Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Challis, Welcome Back! Trista...DON'T lurk!!! This list has become WAY too quiet lately as it is!! All y;all..send me energies Ok? I am not in a good space tonight. I am in intense pain and worried about things that are out of my hands but affect me anyway. My face is red and I just....hurt. I'll be better tomorrow. This is one of those nights where I will probably not even eat because it all hurts too much. Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary http://yodamamma.blogspot.com/ http://www.solay-twinflames.com -- Re: Hello/Challis! Challis, I 2nd what n said! Plus, aren't some Neuros really a piece of work!? Complete morons. I had my first encounter last Friday, and now I see why you haven't gone back yet. So glad your back. Ok, now I'll return to lurking. lol. Trista Re: Hello Hi ', It's nice to meet you. ) I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona. I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*. I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g> My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support. I'm glad docs are listening to you now and hope you get concrete and accurate answers soon! Challis dixmstx wrote: Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Akiba, I cannot read the words that get lost in that lovely wolf or dog's face, but I get the picture! Tell us more of what is going on! Maybe we can come up with something. Lurkers, come out, come out, wherever you are! Sending love and hope, Akiba, n Re: Hello Hi ', It's nice to meet you. ) I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona. I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*. I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g> My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support. I'm glad docs are listening to you now and hope you get concrete and accurate answers soon! Challis dixmstx wrote: Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Akiba- So sorry to hear about your pain! I do hope you get to feeling better soon. Haven't heard a whole lot from a lot of people around here lately. It was really quiet over the weekend. Well in any case...I hope we hear more from you. You are on my prayer list. God Bless... http://mscopgirl.blogspot.com http://360.yahoo.com/vallee45 -- Re: Hello/Challis! Challis, I 2nd what n said! Plus, aren't some Neuros really a piece of work!? Complete morons. I had my first encounter last Friday, and now I see why you haven't gone back yet. So glad your back. Ok, now I'll return to lurking. lol. Trista Re: Hello Hi ', It's nice to meet you. ) I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona. I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*. I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g> My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support. I'm glad docs are listening to you now and hope you get concrete and accurate answers soon! Challis dixmstx wrote: Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Prayers your way Akiba. I'm sorry you are feeling bad. Hugs, Trista Re: Hello Hi ', It's nice to meet you. ) I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona. I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*. I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g> My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support. I'm glad docs are listening to you now and hope you get concrete and accurate answers soon! Challis dixmstx wrote: Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Hopefully you can read it now. I was having a very bad night and today so far isn't much better. I am very depressed. We are SO far over our heads financially. Rob is beating his head into every job he can find but to no avail. Everyone says he is overqualified and why should they hire him when they can get a Mexican to do it for $5 an hour? Literally that is what they say. We just had to trade in our car, it was going bad on us, and even though the payments are not that bad we still might not be able to make them, which will mean we lose what we have in the new (ok not "new" it is an '91 Mazda) car and will not have a car at all. And with no car it will be even harder for him to get a job. I am just sitting and crying. I don't know what to do. IF the people that owe us money would PAY it we'd be fine. As it is I have not been able to make the electric payment this month OR last so I'm half expecting a cutoff notice any time now. Oh Gods I am sorry to dump. He is out right now trying to get something, anything, going. Send him good job vibes, ok? Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary http://yodamamma.blogspot.com/ http://www.solay-twinflames.com -- Re: Hello/Challis! Akiba, I cannot read the words that get lost in that lovely wolf or dog's face, but I get the picture! Tell us more of what is going on! Maybe we can come up with something. Lurkers, come out, come out, wherever you are! Sending love and hope, Akiba, n Re: Hello Hi ', It's nice to meet you. ) I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona. I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*. I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g> My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support. I'm glad docs are listening to you now and hope you get concrete and accurate answers soon! Challis dixmstx wrote: Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Akiba- I am praying for you and your husband, sister. I feel so bad knowing that you guys are struggling so hard. And I don't blame you for being depressed. Please, know that you are in my thoughts and prayers. Keep the faith. God bless.... http://mscopgirl.blogspot.com http://360.yahoo.com/vallee45 -- Re: Hello/Challis! Akiba, I cannot read the words that get lost in that lovely wolf or dog's face, but I get the picture! Tell us more of what is going on! Maybe we can come up with something. Lurkers, come out, come out, wherever you are! Sending love and hope, Akiba, n Re: Hello Hi ', It's nice to meet you. ) I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona. I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*. I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g> My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support. I'm glad docs are listening to you now and hope you get concrete and accurate answers soon! Challis dixmstx wrote: Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 You have GOT to KNOW that I have been sqwallin' and pinin' for you, all this time! Love, n Re: Hello Hi ', It's nice to meet you. ) I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona. I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*. I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g> My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support. I'm glad docs are listening to you now and hope you get concrete and accurate answers soon! Challis dixmstx wrote: Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 LOLOL I missed you, too, n. Challis n Rojas wrote: You have GOT to KNOW that I have been sqwallin' and pinin' for you, all this time! Love, n Re: Hello Hi ', It's nice to meet you. ) I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona. I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*. I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g> My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support. I'm glad docs are listening to you now and hope you get concrete and accurate answers soon! Challis dixmstx wrote: Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 It's no joke, she's been driving us all NUTS (just kidding n I missed her as much as you did!!!) Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary http://yodamamma.blogspot.com/ http://www.solay-twinflames.com -- Re: Hello/Challis! LOLOL I missed you, too, n. Challis n Rojas wrote: You have GOT to KNOW that I have been sqwallin' and pinin' for you, all this time! Love, n Re: Hello Hi ', It's nice to meet you. ) I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona. I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*. I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g> My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support. I'm glad docs are listening to you now and hope you get concrete and accurate answers soon! Challis dixmstx wrote: Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 ROFL Yeah, y'all were nuts long before anyone started driving on this list. LOL Challis Akiba wrote: It's no joke, she's been driving us all NUTS (just kidding n I missed her as much as you did!!!) Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary http://yodamamma.blogspot.com/ http://www.solay-twinflames.com -- Re: Hello/Challis! LOLOL I missed you, too, n. Challis n Rojas wrote: You have GOT to KNOW that I have been sqwallin' and pinin' for you, all this time! Love, n Re: Hello Hi ', It's nice to meet you. ) I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona. I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*. I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g> My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support. I'm glad docs are listening to you now and hope you get concrete and accurate answers soon! Challis dixmstx wrote: Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Akiba- Praise God!! Boy, does He work fast, or what!! I am so glad he was able to help with at least that issue. Of course, I'm not done praying yet!! I went to my doctor's appt. I wasn't in her office two minutes before she decided it was time to be put back on my anti-depressants. She also prescribed something for the insomnia. I, unfortunately, am unable to have them filled. I checked to see how much it would cost. It's almost $200.00. But, it's not going to kill me to go without for a little longer. As far as the blood pressure goes....Looks like it's back to normal. No big deal. Well, American Idol comes on in a few minutes. I don't want to miss it. And about your electricity....Prayers are being sent heavenward. God bless... Valene -- Re: Hello/Challis! Akiba, I cannot read the words that get lost in that lovely wolf or dog's face, but I get the picture! Tell us more of what is going on! Maybe we can come up with something. Lurkers, come out, come out, wherever you are! Sending love and hope, Akiba, n Re: Hello Hi ', It's nice to meet you. ) I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona. I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*. I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g> My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support. I'm glad docs are listening to you now and hope you get concrete and accurate answers soon! Challis dixmstx wrote: Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 What did she prescribe? And Thank you SO much for your prayers I think you must have a direct line to HimSelf... Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary http://yodamamma.blogspot.com/ http://www.solay-twinflames.com -- Re: Hello/Challis! Akiba, I cannot read the words that get lost in that lovely wolf or dog's face, but I get the picture! Tell us more of what is going on! Maybe we can come up with something. Lurkers, come out, come out, wherever you are! Sending love and hope, Akiba, n Re: Hello Hi ', It's nice to meet you. ) I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona. I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*. I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g> My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support. I'm glad docs are listening to you now and hope you get concrete and accurate answers soon! Challis dixmstx wrote: Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 She's got me back on the Paxil for depression, and some sort of sleep aide for the insomnia. I was on the paxil once before, but had to quit taking it. Could not longer afford it. She must think that the fatigue is because of the depression, because when I asked her about it, she said the Paxil would help with that also. Hmmmmm. I'm not so sure. Yes, I am still praying that your electrical needs will be met. Honestly, if I had the money, I would send it to you with out fail. And it makes me very sad that I can't help all who are in need. But, I do have faith. And I am praying for you, and so are others. God bless... http://mscopgirl.blogspot.com http://360.yahoo.com/vallee45 -- Re: Hello/Challis! Akiba, I cannot read the words that get lost in that lovely wolf or dog's face, but I get the picture! Tell us more of what is going on! Maybe we can come up with something. Lurkers, come out, come out, wherever you are! Sending love and hope, Akiba, n Re: Hello Hi ', It's nice to meet you. ) I'm Challis... my husband, , and I have four children ( is 19, is 15½, Jenna is 6 and Maya is 2½) and we live in Arizona. I don't have a dx myself, but I've tried to find one. lol If I think about it, I may be able tot race the first hints of symptoms back about ten or eleven years. It was just about seven years ago when they really started grabbing my attention and increasing a good bit. Right now I'm *okay*. I did at last decide to try to find some answers, and headed off to see a Neuro and go for a few of the tests. MRI, blood work, eval, that sort of thing. It was a bit over a year ago when my Neuro dismissed me. Well, I shouldn't say that. He did tell me the reason I can't feel my skin, among other things, is that I was Breastfeeding. LOL And he did say that I should "keep an open mind and find some happiness in the fact that I have zero chance of developing any significant neurological disease over the next ten years". I better watch out in ten years maybe? ROFL He also said that when people are told they don't have MS, their symptoms disapear. I'm waiting... LOL I've not gathered the courage, gusto, caring, whatever it is it'll take to get me back to a new Neuro and more testing... I've not found it yet and so talk about going when asked. Never further. <g> My Mother has MS. Clearly I want to be like Mom so imagine it all, I'm sure. LOL My Mom, btw, is Sharon / Wobbletowalk. She encouraged me to join this list about a year and a half ago. I'm glad I finally did. The people here can be a true and deep source of support. I'm glad docs are listening to you now and hope you get concrete and accurate answers soon! Challis dixmstx wrote: Just wanted to say hello. I don't know if I'm a newbie or still in limboland. I have had symptoms for 7 years with two documented exacerbations before but always had normal MRI's so other neuro never investigated the poblem they would just say it was fibromyalgia and that was it.In March I went to my urologist thinking I was just having problems with chronic cystitis, was treated for a kidney infecton, and ended up in the ER 5 days later unable to urinate. Imagine my surprise a few days later when the dr said it was probably ms and I needed to see a neuro.Luckily this time I had my Urologist and my Rheumatologist saying THIS IS NOT NORMAL. I have the neurological problems: tremors, balance and coordination problems, some cognitive, abnormal gait, blurred vision, etc.This is the first time my MRI was abnormal but it was "INCONCLUSIVE" so I go and have the field of blood work done on Monday and will go into my third week of PT.Hopefully when I see the neurologist next week we can decide on some kind of plan. The only thing that aggravates me is that I'm a nurse and I recognized the symptoms and was asking the question for years, "What about MS?" Still working and taking care of others the best I can soo I hope the MD has some answers.Thanks for listening' from Texas Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.5/335 - Release Date: 5/9/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 Hey Dawn- where is Cook County Hospital- sounds like Chicago? If it is, I have a great Neuro in that area. Re: Hello/Challis! Hi Challis! Welcome back, you have been missed here! I have been lurking not posting much, between not having time to write and sticking my head in the sand neither is a good idea. I need to start figuring out things like insurance..... Rick is doing really well on Copaxone. He says the shots are a piece of cake compared to the one's he took with Avonex. He goes to his neurologist on the 24th, the last time with this neurologist. He, doctor, is leaving to go to Cook County Hospital, which I really don't understand why he would want to go there. This has really upset me but any change with Rick's MS just gets me going, but I can't do anything about it. I've excepted that. They are suppose to be hiring someone to take his place I hope and pray it's someone as good. Insurance is another issue...that scares me too. But something that I need to deal with probably sooner than I want to. Anyway...I'm really glad to see you back. BTW even if I don't post I do read the e-mails and I keep everyone in my prayers. ~hugs~ Dawn ~Sometimes God brings things to you because you have the strength thru him to deal with it. ~ ~All Animals are God's angels, they give to us their unconditional love~.~A dog has one aim in life...to bestow his heart. J.R. Ackerley~ ~The average dog is a nicer person than the average person. Andy Rooney~ ~A dog has the soul of a philosopher. Plato~ Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
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