Guest guest Posted June 24, 2002 Report Share Posted June 24, 2002 My nine year old son has been doing very well since his biopsy a year and a half ago. No visable blood in the urine, normal blood pressure and his protein in his urine has went down tremendously. My question is I have noticed the last couple of days in the morning his eyes are very puffy. Sometimes they will stay that way for hours, and some days it will go away within 30 min. I know when we go to the doctor that is one of the first questions he will ask is, " do you notice puffiness around the eyes, or ankles? " Why is that? and what does that mean? My answer has always been no, so I have never questioned what the puffiness might mean. It had been very hot here (around the 90's) so I don't know if the heat has something to do with it or maybe it means his blood pressure is up. Thanks for your help. I would just like to know with IGA he asked me, jeimym18 wrote: Hi Cohry, welcome to the group. I know that you will find this group very helpfull with many quetions you might have-just ask anything and you'll see. First, I think you should shre with your wife and family about your IgaN. It helps to cope the desperation, frustration, anger and all those feelings that always come and go. It also helps them to understand what it's really going on, due to sometimes it's hard for people to understand IgAN, even for us who have it. The moral support that we can get from our love ones play an important key to those dificult times that we might face with IgAN. About the biopsy, Don't need to fear anything, specially when you kidney function it's still good. The procedure it's very simple, the only bad part it's your back might be sore just alittle bit, but nothing that can't live with. the longer you take, the more risk you could put yourself in. Without a biopsy, docs can't comfirm a diagnose they could only guess. In my opinion it's better to know wht you really have than just think what you might have, specially this days when medicine it's growing so fast, who knows, maybe tomorrow somebody could come out with a cure for IgAN,and with a comfirm diagnose you would not need to wait, Do you see what do I mean? If you have any concerns just ask your doctor. Good luck!! > Hi, I'm new to the group, 30 years old and about 2 1/2 years ago I received > a preliminary diagnosis of IgAN (havent had a biopsy yet). I had a protein > count of around 900mg/24hrs which remained constant for several months. > After receiving this diagnosis, I went in to my primary care physician and > did labs every 3 months just to make sure my protein count wasn't increasing > and it wasn't and my kidney function was just fine. It remained steady, so I > got to feeling dismissive about the whole thing and started thinking that I > have one of those kinds of IgAN that won't progress fast enough to lead to > any end-stage renal failure so I missed my labs for a good 14 months. Last > monday I decided to go ahead and do some more labs so I turned in a 24 hour > sample and did my blood work and got a call last Friday from my doctor's > office indicating that my 24 hour protein count was at 1100mg/24hrs. When > discussing biopsy back at my initial diagnosis, me and my nephrologist > agreed that I would wait until my protein count exceeded 1 gram/24hrs before > going in for a biopsy. Now that I'm beyond that point, I gotta admit that > I'm scared and I don't really want to do it. I haven't even told my wife > yet. I'd like some advice on this... is now the time for a biopsy? What are > the potential side effects, etc? > > thanks, > Cohry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2002 Report Share Posted June 24, 2002 Hi Puffiness can be a symptom of nephrotic syndrome (edema). I am puffy around the eyes in the morning, but by the evening gravity has taken effect and my ankles are swollen while the face is ok. I also get some pain and stiffness in my legs and feet due to the swelling. Reply-To: iga-nephropathy To: iga-nephropathy Subject: Puffy eyes????? Date: Mon, 24 Jun 2002 21:17:27 -0700 (PDT) My nine year old son has been doing very well since his biopsy a year and a half ago. No visable blood in the urine, normal blood pressure and his protein in his urine has went down tremendously. My question is I have noticed the last couple of days in the morning his eyes are very puffy. Sometimes they will stay that way for hours, and some days it will go away within 30 min. I know when we go to the doctor that is one of the first questions he will ask is, " do you notice puffiness around the eyes, or ankles? " Why is that? and what does that mean? My answer has always been no, so I have never questioned what the puffiness might mean. It had been very hot here (around the 90's) so I don't know if the heat has something to do with it or maybe it means his blood pressure is up. Thanks for your help. I would just like to know with IGA he asked me, jeimym18 wrote: Hi Cohry, welcome to the group. I know that you will find this group very helpfull with many quetions you might have-just ask anything and you'll see. First, I think you should shre with your wife and family about your IgaN. It helps to cope the desperation, frustration, anger and all those feelings that always come and go. It also helps them to understand what it's really going on, due to sometimes it's hard for people to understand IgAN, even for us who have it. The moral support that we can get from our love ones play an important key to those dificult times that we might face with IgAN. About the biopsy, Don't need to fear anything, specially when you kidney function it's still good. The procedure it's very simple, the only bad part it's your back might be sore just alittle bit, but nothing that can't live with. the longer you take, the more risk you could put yourself in. Without a biopsy, docs can't comfirm a diagnose they could only guess. In my opinion it's better to know wht you really have than just think what you might have, specially this days when medicine it's growing so fast, who knows, maybe tomorrow somebody could come out with a cure for IgAN,and with a comfirm diagnose you would not need to wait, Do you see what do I mean? If you have any concerns just ask your doctor. Good luck!! > Hi, I'm new to the group, 30 years old and about 2 1/2 years ago I received > a preliminary diagnosis of IgAN (havent had a biopsy yet). I had a protein > count of around 900mg/24hrs which remained constant for several months. > After receiving this diagnosis, I went in to my primary care physician and > did labs every 3 months just to make sure my protein count wasn't increasing > and it wasn't and my kidney function was just fine. It remained steady, so I > got to feeling dismissive about the whole thing and started thinking that I > have one of those kinds of IgAN that won't progress fast enough to lead to > any end-stage renal failure so I missed my labs for a good 14 months. Last > monday I decided to go ahead and do some more labs so I turned in a 24 hour > sample and did my blood work and got a call last Friday from my doctor's > office indicating that my 24 hour protein count was at 1100mg/24hrs. When > discussing biopsy back at my initial diagnosis, me and my nephrologist > agreed that I would wait until my protein count exceeded 1 gram/24hrs before > going in for a biopsy. Now that I'm beyond that point, I gotta admit that > I'm scared and I don't really want to do it. I haven't even told my wife > yet. I'd like some advice on this... is now the time for a biopsy? What are > the potential side effects, etc? > > thanks, > Cohry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2002 Report Share Posted June 24, 2002 Hi Puffiness can be a symptom of nephrotic syndrome (edema). I am puffy around the eyes in the morning, but by the evening gravity has taken effect and my ankles are swollen while the face is ok. I also get some pain and stiffness in my legs and feet due to the swelling. Reply-To: iga-nephropathy To: iga-nephropathy Subject: Puffy eyes????? Date: Mon, 24 Jun 2002 21:17:27 -0700 (PDT) My nine year old son has been doing very well since his biopsy a year and a half ago. No visable blood in the urine, normal blood pressure and his protein in his urine has went down tremendously. My question is I have noticed the last couple of days in the morning his eyes are very puffy. Sometimes they will stay that way for hours, and some days it will go away within 30 min. I know when we go to the doctor that is one of the first questions he will ask is, " do you notice puffiness around the eyes, or ankles? " Why is that? and what does that mean? My answer has always been no, so I have never questioned what the puffiness might mean. It had been very hot here (around the 90's) so I don't know if the heat has something to do with it or maybe it means his blood pressure is up. Thanks for your help. I would just like to know with IGA he asked me, jeimym18 wrote: Hi Cohry, welcome to the group. I know that you will find this group very helpfull with many quetions you might have-just ask anything and you'll see. First, I think you should shre with your wife and family about your IgaN. It helps to cope the desperation, frustration, anger and all those feelings that always come and go. It also helps them to understand what it's really going on, due to sometimes it's hard for people to understand IgAN, even for us who have it. The moral support that we can get from our love ones play an important key to those dificult times that we might face with IgAN. About the biopsy, Don't need to fear anything, specially when you kidney function it's still good. The procedure it's very simple, the only bad part it's your back might be sore just alittle bit, but nothing that can't live with. the longer you take, the more risk you could put yourself in. Without a biopsy, docs can't comfirm a diagnose they could only guess. In my opinion it's better to know wht you really have than just think what you might have, specially this days when medicine it's growing so fast, who knows, maybe tomorrow somebody could come out with a cure for IgAN,and with a comfirm diagnose you would not need to wait, Do you see what do I mean? If you have any concerns just ask your doctor. Good luck!! > Hi, I'm new to the group, 30 years old and about 2 1/2 years ago I received > a preliminary diagnosis of IgAN (havent had a biopsy yet). I had a protein > count of around 900mg/24hrs which remained constant for several months. > After receiving this diagnosis, I went in to my primary care physician and > did labs every 3 months just to make sure my protein count wasn't increasing > and it wasn't and my kidney function was just fine. It remained steady, so I > got to feeling dismissive about the whole thing and started thinking that I > have one of those kinds of IgAN that won't progress fast enough to lead to > any end-stage renal failure so I missed my labs for a good 14 months. Last > monday I decided to go ahead and do some more labs so I turned in a 24 hour > sample and did my blood work and got a call last Friday from my doctor's > office indicating that my 24 hour protein count was at 1100mg/24hrs. When > discussing biopsy back at my initial diagnosis, me and my nephrologist > agreed that I would wait until my protein count exceeded 1 gram/24hrs before > going in for a biopsy. Now that I'm beyond that point, I gotta admit that > I'm scared and I don't really want to do it. I haven't even told my wife > yet. I'd like some advice on this... is now the time for a biopsy? What are > the potential side effects, etc? > > thanks, > Cohry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2002 Report Share Posted June 25, 2002 Is that due to excess water retention, or a side effect from meds? Puffy eyes????? > Date: Mon, 24 Jun 2002 21:17:27 -0700 (PDT) > > > My nine year old son has been doing very well since his biopsy a year and > a half ago. No visable blood in the urine, normal blood pressure and his > protein in his urine has went down tremendously. My question is I have > noticed the last couple of days in the morning his eyes are very puffy. > Sometimes they will stay that way for hours, and some days it will go away > within 30 min. > I know when we go to the doctor that is one of the first questions he will > ask is, " do you notice puffiness around the eyes, or ankles? " Why is that? > and what does that mean? My answer has always been no, so I have never > questioned what the puffiness might mean. > It had been very hot here (around the 90's) so I don't know if the heat has > something to do with it or maybe it means his blood pressure is up. > Thanks for your help. > > I would just like to know with IGA he asked me, jeimym18 > wrote: Hi Cohry, welcome to the group. I know that you will find this group > very helpfull with many quetions you might have-just ask anything and > you'll see. > First, I think you should shre with your wife and family about your > IgaN. It helps to cope the desperation, frustration, anger and all > those feelings that always come and go. It also helps them to > understand what it's really going on, due to sometimes it's hard for > people to understand IgAN, even for us who have it. The moral support > that we can get from our love ones play an important key to those > dificult times that we might face with IgAN. > About the biopsy, Don't need to fear anything, specially when you > kidney function it's still good. The procedure it's very simple, the > only bad part it's your back might be sore just alittle bit, but > nothing that can't live with. the longer you take, the more risk you > could put yourself in. Without a biopsy, docs can't comfirm a diagnose > they could only guess. In my opinion it's better to know wht you > really have than just think what you might have, specially this days > when medicine it's growing so fast, who knows, maybe tomorrow > somebody could come out with a cure for IgAN,and with a comfirm > diagnose you would not need to wait, Do you see what do I mean? > If you have any concerns just ask your doctor. > Good luck!! > > > > Hi, I'm new to the group, 30 years old and about 2 1/2 years ago I > received > > a preliminary diagnosis of IgAN (havent had a biopsy yet). I had a > protein > > count of around 900mg/24hrs which remained constant for several > months. > > After receiving this diagnosis, I went in to my primary care > physician and > > did labs every 3 months just to make sure my protein count wasn't > increasing > > and it wasn't and my kidney function was just fine. It remained > steady, so I > > got to feeling dismissive about the whole thing and started > thinking that I > > have one of those kinds of IgAN that won't progress fast enough to > lead to > > any end-stage renal failure so I missed my labs for a good 14 > months. Last > > monday I decided to go ahead and do some more labs so I turned in a > 24 hour > > sample and did my blood work and got a call last Friday from my > doctor's > > office indicating that my 24 hour protein count was at > 1100mg/24hrs. When > > discussing biopsy back at my initial diagnosis, me and my > nephrologist > > agreed that I would wait until my protein count exceeded 1 > gram/24hrs before > > going in for a biopsy. Now that I'm beyond that point, I gotta > admit that > > I'm scared and I don't really want to do it. I haven't even told my > wife > > yet. I'd like some advice on this... is now the time for a biopsy? > What are > > the potential side effects, etc? > > > > thanks, > > Cohry > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2002 Report Share Posted June 25, 2002 I used to have puffy eyes before I started BP med (vasotec), then it went away. Marty Puffy eyes????? > Date: Mon, 24 Jun 2002 21:17:27 -0700 (PDT) > > > My nine year old son has been doing very well since his biopsy a year and > a half ago. No visable blood in the urine, normal blood pressure and his > protein in his urine has went down tremendously. My question is I have > noticed the last couple of days in the morning his eyes are very puffy. > Sometimes they will stay that way for hours, and some days it will go away > within 30 min. > I know when we go to the doctor that is one of the first questions he will > ask is, " do you notice puffiness around the eyes, or ankles? " Why is that? > and what does that mean? My answer has always been no, so I have never > questioned what the puffiness might mean. > It had been very hot here (around the 90's) so I don't know if the heat has > something to do with it or maybe it means his blood pressure is up. > Thanks for your help. > > I would just like to know with IGA he asked me, jeimym18 > wrote: Hi Cohry, welcome to the group. I know that you will find this group > very helpfull with many quetions you might have-just ask anything and > you'll see. > First, I think you should shre with your wife and family about your > IgaN. It helps to cope the desperation, frustration, anger and all > those feelings that always come and go. It also helps them to > understand what it's really going on, due to sometimes it's hard for > people to understand IgAN, even for us who have it. The moral support > that we can get from our love ones play an important key to those > dificult times that we might face with IgAN. > About the biopsy, Don't need to fear anything, specially when you > kidney function it's still good. The procedure it's very simple, the > only bad part it's your back might be sore just alittle bit, but > nothing that can't live with. the longer you take, the more risk you > could put yourself in. Without a biopsy, docs can't comfirm a diagnose > they could only guess. In my opinion it's better to know wht you > really have than just think what you might have, specially this days > when medicine it's growing so fast, who knows, maybe tomorrow > somebody could come out with a cure for IgAN,and with a comfirm > diagnose you would not need to wait, Do you see what do I mean? > If you have any concerns just ask your doctor. > Good luck!! > > > > Hi, I'm new to the group, 30 years old and about 2 1/2 years ago I > received > > a preliminary diagnosis of IgAN (havent had a biopsy yet). I had a > protein > > count of around 900mg/24hrs which remained constant for several > months. > > After receiving this diagnosis, I went in to my primary care > physician and > > did labs every 3 months just to make sure my protein count wasn't > increasing > > and it wasn't and my kidney function was just fine. It remained > steady, so I > > got to feeling dismissive about the whole thing and started > thinking that I > > have one of those kinds of IgAN that won't progress fast enough to > lead to > > any end-stage renal failure so I missed my labs for a good 14 > months. Last > > monday I decided to go ahead and do some more labs so I turned in a > 24 hour > > sample and did my blood work and got a call last Friday from my > doctor's > > office indicating that my 24 hour protein count was at > 1100mg/24hrs. When > > discussing biopsy back at my initial diagnosis, me and my > nephrologist > > agreed that I would wait until my protein count exceeded 1 > gram/24hrs before > > going in for a biopsy. Now that I'm beyond that point, I gotta > admit that > > I'm scared and I don't really want to do it. I haven't even told my > wife > > yet. I'd like some advice on this... is now the time for a biopsy? > What are > > the potential side effects, etc? > > > > thanks, > > Cohry > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2002 Report Share Posted June 25, 2002 Could be either. If there is any fluid retention at all, as we lie asleep during the night, fluids tend to collect in upper areas of the body, around the lungs, the abdomen, etc. It doesn't take much for the eyes to puff a bit (which you should mention to the nephrologist next visit if it happens). As we go about a normal day, as already pointed out, gravity takes over and the extra fluid tends to collect in the legs, hence swollen ankles and feet. Sometimes, blood pressure medications can cause swelling, but it likely wouldn't just be the eyes. And if it's just in the morning and goes away, I wouldn't think it's a drug side effect. Pierre Puffy eyes????? > > Date: Mon, 24 Jun 2002 21:17:27 -0700 (PDT) > > > > > > My nine year old son has been doing very well since his biopsy a year > and > > a half ago. No visable blood in the urine, normal blood pressure and his > > protein in his urine has went down tremendously. My question is I have > > noticed the last couple of days in the morning his eyes are very puffy. > > Sometimes they will stay that way for hours, and some days it will go away > > within 30 min. > > I know when we go to the doctor that is one of the first questions he will > > ask is, " do you notice puffiness around the eyes, or ankles? " Why is > that? > > and what does that mean? My answer has always been no, so I have never > > questioned what the puffiness might mean. > > It had been very hot here (around the 90's) so I don't know if the heat > has > > something to do with it or maybe it means his blood pressure is up. > > Thanks for your help. > > > > I would just like to know with IGA he asked me, jeimym18 > > > wrote: Hi Cohry, welcome to the group. I know that you will find this > group > > very helpfull with many quetions you might have-just ask anything and > > you'll see. > > First, I think you should shre with your wife and family about your > > IgaN. It helps to cope the desperation, frustration, anger and all > > those feelings that always come and go. It also helps them to > > understand what it's really going on, due to sometimes it's hard for > > people to understand IgAN, even for us who have it. The moral support > > that we can get from our love ones play an important key to those > > dificult times that we might face with IgAN. > > About the biopsy, Don't need to fear anything, specially when you > > kidney function it's still good. The procedure it's very simple, the > > only bad part it's your back might be sore just alittle bit, but > > nothing that can't live with. the longer you take, the more risk you > > could put yourself in. Without a biopsy, docs can't comfirm a diagnose > > they could only guess. In my opinion it's better to know wht you > > really have than just think what you might have, specially this days > > when medicine it's growing so fast, who knows, maybe tomorrow > > somebody could come out with a cure for IgAN,and with a comfirm > > diagnose you would not need to wait, Do you see what do I mean? > > If you have any concerns just ask your doctor. > > Good luck!! > > > > > > > Hi, I'm new to the group, 30 years old and about 2 1/2 years ago I > > received > > > a preliminary diagnosis of IgAN (havent had a biopsy yet). I had a > > protein > > > count of around 900mg/24hrs which remained constant for several > > months. > > > After receiving this diagnosis, I went in to my primary care > > physician and > > > did labs every 3 months just to make sure my protein count wasn't > > increasing > > > and it wasn't and my kidney function was just fine. It remained > > steady, so I > > > got to feeling dismissive about the whole thing and started > > thinking that I > > > have one of those kinds of IgAN that won't progress fast enough to > > lead to > > > any end-stage renal failure so I missed my labs for a good 14 > > months. Last > > > monday I decided to go ahead and do some more labs so I turned in a > > 24 hour > > > sample and did my blood work and got a call last Friday from my > > doctor's > > > office indicating that my 24 hour protein count was at > > 1100mg/24hrs. When > > > discussing biopsy back at my initial diagnosis, me and my > > nephrologist > > > agreed that I would wait until my protein count exceeded 1 > > gram/24hrs before > > > going in for a biopsy. Now that I'm beyond that point, I gotta > > admit that > > > I'm scared and I don't really want to do it. I haven't even told my > > wife > > > yet. I'd like some advice on this... is now the time for a biopsy? > > What are > > > the potential side effects, etc? > > > > > > thanks, > > > Cohry > > > > > > Quote Link to comment Share on other sites More sharing options...
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