Re: someone who understands

[Guest guest]

Oh, sweetie! You're definitely in the right place!! *BIG HUGS*

First of all, almost every one of us understand being accused of "lying" or "faking it" or "making excuses" -- we've all been through this with doctors, nurses, physical therapists, friends -- and, worst of all -- FAMILY members!

I used to be active, worked 70-hour weeks (and LOVED it!), took care of my husband, the shopping, paying bills, going to movies, going camping, etc. etc. etc. -- now, I'm on disability because I can no longer work; my body simply WILL NOT do what it once did -- and there are days when I literally have to sleep 18-20 hours straight, wake up & still am pooped. I used to get by on 4-6 hours per night...now, I average needing 12-14 hours a day, plus a 2-3 hour nap!

I nearly died of pneumonia about three years ago, and had to have surgery to insert a chest tube. I *still* have pain, both in my lung where the tube was located, as well as all the way around my ribcage; my last doc attributed this to fibro.

My glands swell often; I have a lot of sore throats; and when I do get the flu, I often don't realize it, because the symptoms are so similar to what I experience with fibro.

I now get pissy when I go to the doc & the nurse says, "are you in pain? What number would you assign to your level of pain?" What part of my body are you referring to, ma'am? My chest, my lower back, my joints, my legs, my hands, my shoulders, my neck, my arms, or my feet? Or do you want to hear about my migraine? Sheesh...STUPIDEST system ever developed; it tells them NOTHING!

Many of us take meds for the pain. I usually take Tylenol arthritis formula, but also occasionally take percocet or Tylenol with codeine (when I can find a bloody doc to give it to me!) I've tried cyclobenzaprine, which doesn't help me a bit -- nor does Gabapentin. Other folks here, such as our listmom, , have to take some high-level hard-hitting narcotics just to cope with the pain. Sometimes, heat helps -- long, hot showers, hot tubs, heating pads -- or man y of us use Mineral Ice, Ben Gay, or Salonpas patches (mentholated patches that stick to your skin & can be left in place for up to 8 hours).

I heartily recommend that you find a new doctor -- someone who deals with fibro pain -- and discuss pain-controlling options with him/her. And listen to the discussions we have here on the list; many people have different ways of dealing.

So, trust me, darlin' -- we're ALL in this together. You are NOT alone...we feel your pain, and we're here for you. Just tell us how we can help!

*GENTLE Hugs*

~Eri, list moderator

hi i am new here & not sure how this works. All i know is that i have been looking for someone for so long that understands that the pain i am having is real. right now i can bearly see those keys on the keyboard because i am crying while i am typing this'. i have a doctor right now that does not seem to understand FMS.i know that most people say that i need to walk.my doctor keeps telling me this .but it is so frustrating to hear him say that

[Guest guest]

Oh, sweetie! You're definitely in the right place!! *BIG HUGS*

First of all, almost every one of us understand being accused of "lying" or "faking it" or "making excuses" -- we've all been through this with doctors, nurses, physical therapists, friends -- and, worst of all -- FAMILY members!

I used to be active, worked 70-hour weeks (and LOVED it!), took care of my husband, the shopping, paying bills, going to movies, going camping, etc. etc. etc. -- now, I'm on disability because I can no longer work; my body simply WILL NOT do what it once did -- and there are days when I literally have to sleep 18-20 hours straight, wake up & still am pooped. I used to get by on 4-6 hours per night...now, I average needing 12-14 hours a day, plus a 2-3 hour nap!

I nearly died of pneumonia about three years ago, and had to have surgery to insert a chest tube. I *still* have pain, both in my lung where the tube was located, as well as all the way around my ribcage; my last doc attributed this to fibro.

My glands swell often; I have a lot of sore throats; and when I do get the flu, I often don't realize it, because the symptoms are so similar to what I experience with fibro.

I now get pissy when I go to the doc & the nurse says, "are you in pain? What number would you assign to your level of pain?" What part of my body are you referring to, ma'am? My chest, my lower back, my joints, my legs, my hands, my shoulders, my neck, my arms, or my feet? Or do you want to hear about my migraine? Sheesh...STUPIDEST system ever developed; it tells them NOTHING!

Many of us take meds for the pain. I usually take Tylenol arthritis formula, but also occasionally take percocet or Tylenol with codeine (when I can find a bloody doc to give it to me!) I've tried cyclobenzaprine, which doesn't help me a bit -- nor does Gabapentin. Other folks here, such as our listmom, , have to take some high-level hard-hitting narcotics just to cope with the pain. Sometimes, heat helps -- long, hot showers, hot tubs, heating pads -- or man y of us use Mineral Ice, Ben Gay, or Salonpas patches (mentholated patches that stick to your skin & can be left in place for up to 8 hours).

I heartily recommend that you find a new doctor -- someone who deals with fibro pain -- and discuss pain-controlling options with him/her. And listen to the discussions we have here on the list; many people have different ways of dealing.

So, trust me, darlin' -- we're ALL in this together. You are NOT alone...we feel your pain, and we're here for you. Just tell us how we can help!

*GENTLE Hugs*

~Eri, list moderator

hi i am new here & not sure how this works. All i know is that i have been looking for someone for so long that understands that the pain i am having is real. right now i can bearly see those keys on the keyboard because i am crying while i am typing this'. i have a doctor right now that does not seem to understand FMS.i know that most people say that i need to walk.my doctor keeps telling me this .but it is so frustrating to hear him say that

[Guest guest]

Thank you so much for responding .its great to know that there are people out there that understand.i haven't worked these past 2 weeks ,i am having such a bad 2 weeks .when i work i work hard .i work with live lobsters & there is alot of heavy lifting .i get so tired & sore from my head to my feet ' my boss does know that i have FMS & says that she understands' she is great but she really dosen't know how much pain i try to hide

ReginaEri wrote:

Oh, sweetie! You're definitely in the right place!! *BIG HUGS*

First of all, almost every one of us understand being accused of "lying" or "faking it" or "making excuses" -- we've all been through this with doctors, nurses, physical therapists, friends -- and, worst of all -- FAMILY members!

I used to be active, worked 70-hour weeks (and LOVED it!), took care of my husband, the shopping, paying bills, going to movies, going camping, etc. etc. etc. -- now, I'm on disability because I can no longer work; my body simply WILL NOT do what it once did -- and there are days when I literally have to sleep 18-20 hours straight, wake up & still am pooped. I used to get by on 4-6 hours per night...now, I average needing 12-14 hours a day, plus a 2-3 hour nap!

I nearly died of pneumonia about three years ago, and had to have surgery to insert a chest tube. I *still* have pain, both in my lung where the tube was located, as well as all the way around my ribcage; my last doc attributed this to fibro.

My glands swell often; I have a lot of sore throats; and when I do get the flu, I often don't realize it, because the symptoms are so similar to what I experience with fibro.

I now get pissy when I go to the doc & the nurse says, "are you in pain? What number would you assign to your level of pain?" What part of my body are you referring to, ma'am? My chest, my lower back, my joints, my legs, my hands, my shoulders, my neck, my arms, or my feet? Or do you want to hear about my migraine? Sheesh...STUPIDEST system ever developed; it tells them NOTHING!

Many of us take meds for the pain. I usually take Tylenol arthritis formula, but also occasionally take percocet or Tylenol with codeine (when I can find a bloody doc to give it to me!) I've tried cyclobenzaprine, which doesn't help me a bit -- nor does Gabapentin. Other folks here, such as our listmom, , have to take some high-level hard-hitting narcotics just to cope with the pain. Sometimes, heat helps -- long, hot showers, hot tubs, heating pads -- or man y of us use Mineral Ice, Ben Gay, or Salonpas patches (mentholated patches that stick to your skin & can be left in place for up to 8 hours).

I heartily recommend that you find a new doctor -- someone who deals with fibro pain -- and discuss pain-controlling options with him/her. And listen to the discussions we have here on the list; many people have different ways of dealing.

So, trust me, darlin' -- we're ALL in this together. You are NOT alone...we feel your pain, and we're here for you. Just tell us how we can help!

*GENTLE Hugs*

~Eri, list moderator

hi i am new here & not sure how this works. All i know is that i have been looking for someone for so long that understands that the pain i am having is real. right now i can bearly see those keys on the keyboard because i am crying while i am typing this'. i have a doctor right now that does not seem to understand FMS.i know that most people say that i need to walk.my doctor keeps telling me this .but it is so frustrating to hear him say that 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that

situation better.Have a nice day everyone.Post your free ad now! Yahoo! Canada Personals

[Guest guest]

Thank you so much for responding .its great to know that there are people out there that understand.i haven't worked these past 2 weeks ,i am having such a bad 2 weeks .when i work i work hard .i work with live lobsters & there is alot of heavy lifting .i get so tired & sore from my head to my feet ' my boss does know that i have FMS & says that she understands' she is great but she really dosen't know how much pain i try to hide

ReginaEri wrote:

Oh, sweetie! You're definitely in the right place!! *BIG HUGS*

First of all, almost every one of us understand being accused of "lying" or "faking it" or "making excuses" -- we've all been through this with doctors, nurses, physical therapists, friends -- and, worst of all -- FAMILY members!

I used to be active, worked 70-hour weeks (and LOVED it!), took care of my husband, the shopping, paying bills, going to movies, going camping, etc. etc. etc. -- now, I'm on disability because I can no longer work; my body simply WILL NOT do what it once did -- and there are days when I literally have to sleep 18-20 hours straight, wake up & still am pooped. I used to get by on 4-6 hours per night...now, I average needing 12-14 hours a day, plus a 2-3 hour nap!

I nearly died of pneumonia about three years ago, and had to have surgery to insert a chest tube. I *still* have pain, both in my lung where the tube was located, as well as all the way around my ribcage; my last doc attributed this to fibro.

My glands swell often; I have a lot of sore throats; and when I do get the flu, I often don't realize it, because the symptoms are so similar to what I experience with fibro.

I now get pissy when I go to the doc & the nurse says, "are you in pain? What number would you assign to your level of pain?" What part of my body are you referring to, ma'am? My chest, my lower back, my joints, my legs, my hands, my shoulders, my neck, my arms, or my feet? Or do you want to hear about my migraine? Sheesh...STUPIDEST system ever developed; it tells them NOTHING!

Many of us take meds for the pain. I usually take Tylenol arthritis formula, but also occasionally take percocet or Tylenol with codeine (when I can find a bloody doc to give it to me!) I've tried cyclobenzaprine, which doesn't help me a bit -- nor does Gabapentin. Other folks here, such as our listmom, , have to take some high-level hard-hitting narcotics just to cope with the pain. Sometimes, heat helps -- long, hot showers, hot tubs, heating pads -- or man y of us use Mineral Ice, Ben Gay, or Salonpas patches (mentholated patches that stick to your skin & can be left in place for up to 8 hours).

I heartily recommend that you find a new doctor -- someone who deals with fibro pain -- and discuss pain-controlling options with him/her. And listen to the discussions we have here on the list; many people have different ways of dealing.

So, trust me, darlin' -- we're ALL in this together. You are NOT alone...we feel your pain, and we're here for you. Just tell us how we can help!

*GENTLE Hugs*

~Eri, list moderator

hi i am new here & not sure how this works. All i know is that i have been looking for someone for so long that understands that the pain i am having is real. right now i can bearly see those keys on the keyboard because i am crying while i am typing this'. i have a doctor right now that does not seem to understand FMS.i know that most people say that i need to walk.my doctor keeps telling me this .but it is so frustrating to hear him say that 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that

situation better.Have a nice day everyone.Post your free ad now! Yahoo! Canada Personals