Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Congratulations Pierre, Perhaps you will even make it into the News of the World one day (that's one of the UK's very tacky Sunday Paper's - full of sex stories and little news). Frances Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Are you giving autographs? Now we have a comedian and a celebrity among us... Maybe from reading the article someone like me will find this site and feel the same kind of kinship that I felt the moment I read the first e-mail. Because many of you have been there...and done that...and for the first time in many years I didn't feel alone and really that makes me less afraid about my future. By the way, I have learned more about IgAN since I've been a member of this site than I learned over the last 20 years from the medical library and my Neph. Thanks to this group Connie igan.ca in the news Just thought I would let the group know that the IgA Nephropathy Support Group and the www.igan.ca website made the local newspaper today (which is the major daily in the National Capital - a pretty major newspaper in Canada). I was interviewed a couple of weeks ago by a reporter in connection with an article on highspeed Internet use, and the reporter worked in the fact that I have Berger's Disease and that I run the website and support group. There's a big photo of me in front of my computer, with the website on the screen. Once I get permission, I'll either put the article up on the website, or reprint the text in a message on the group. To be honest, I didn't even think she would mention the disease at all, since that wasn't the main purpose of the article. Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Perhaps as topical calendars are all the rage we could get one called " catheter boys and girls " ? Re: igan.ca in the news > Congratulations Pierre, > > Perhaps you will even make it into the News of the World one day (that's one > of the UK's very tacky Sunday Paper's - full of sex stories and little news). > > Frances > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Ahh but February and fistula do have a certain alliterative run don't you think? Re: igan.ca in the news > > > > > > > Congratulations Pierre, > > > > > > Perhaps you will even make it into the News of the World one day (that's > > one > > > of the UK's very tacky Sunday Paper's - full of sex stories and little > > news). > > > > > > Frances > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 What about those on hemo? : ) Fistula boy just doesn't sound good. Pierre Re: igan.ca in the news > > > > Congratulations Pierre, > > > > Perhaps you will even make it into the News of the World one day (that's > one > > of the UK's very tacky Sunday Paper's - full of sex stories and little > news). > > > > Frances > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 LOL. I've had better pictures on my driver's licence! Hardly a celebrity, but, it's nice to get the website known locally. Out of the 400 or so members we have in the group, I don't think there's anyone else from my region, let alone my city. Pierre igan.ca in the news > > > Just thought I would let the group know that the IgA Nephropathy Support > Group and the www.igan.ca website made the local newspaper today (which is > the major daily in the National Capital - a pretty major newspaper in > Canada). > > I was interviewed a couple of weeks ago by a reporter in connection with > an > article on highspeed Internet use, and the reporter worked in the fact > that > I have Berger's Disease and that I run the website and support group. > There's a big photo of me in front of my computer, with the website on the > screen. > > Once I get permission, I'll either put the article up on the website, or > reprint the text in a message on the group. To be honest, I didn't even > think she would mention the disease at all, since that wasn't the main > purpose of the article. > > Pierre > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Re: igan.ca in the news > Congratulations Pierre, > > Perhaps you will even make it into the News of the World one day (that's one > of the UK's very tacky Sunday Paper's - full of sex stories and little news). > > Frances > LOL. Well Frances, I wouldn't mind making that Sunday paper if the story was good : ) Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Wow! I know media hero! PS. If it raises general awareness of our condition, that's a good thing. Reply-To: iga-nephropathy To: <iga-nephropathy > Subject: igan.ca in the news Date: Thu, 20 Jun 2002 11:43:09 -0400 Just thought I would let the group know that the IgA Nephropathy Support Group and the www.igan.ca website made the local newspaper today (which is the major daily in the National Capital - a pretty major newspaper in Canada). I was interviewed a couple of weeks ago by a reporter in connection with an article on highspeed Internet use, and the reporter worked in the fact that I have Berger's Disease and that I run the website and support group. There's a big photo of me in front of my computer, with the website on the screen. Once I get permission, I'll either put the article up on the website, or reprint the text in a message on the group. To be honest, I didn't even think she would mention the disease at all, since that wasn't the main purpose of the article. Pierre _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2002 Report Share Posted June 21, 2002 Well , so far, I've only gotten a single email out of it, so, probably not that much recognition locally : ) But, as I said, my disease and the support group were only mentioned incidentally, as it wasn't the reason for the article. For whatever reason, the reporter called it Berger's Disease, instead of IgA nephropathy. I guess it sounded more like a real disease that way. You can read the article (without the picture though, but probably just as well) on the newspaper's website. I've put a link to it on the news page of www.igan.ca. It's the first item at the top (so far today). Note that the French accented î in my name seems to have been a problem for the online version, although it did appear correctly in the actual newspaper. Pierre Re: igan.ca in the news > Wow! I know media hero! > > PS. If it raises general awareness of our condition, that's a good thing. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2002 Report Share Posted June 21, 2002 Well , so far, I've only gotten a single email out of it, so, probably not that much recognition locally : ) But, as I said, my disease and the support group were only mentioned incidentally, as it wasn't the reason for the article. For whatever reason, the reporter called it Berger's Disease, instead of IgA nephropathy. I guess it sounded more like a real disease that way. You can read the article (without the picture though, but probably just as well) on the newspaper's website. I've put a link to it on the news page of www.igan.ca. It's the first item at the top (so far today). Note that the French accented î in my name seems to have been a problem for the online version, although it did appear correctly in the actual newspaper. Pierre Re: igan.ca in the news > Wow! I know media hero! > > PS. If it raises general awareness of our condition, that's a good thing. > > Quote Link to comment Share on other sites More sharing options...
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