Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 Hi everyone I was amazed to see how many people wrote back and offered me support. Thank you all. I did look up Adhesive Arachnoiditis and I can not Believe what I read. I have suffered from all of the symptoms, and honestly thought I was losing my mind. I blamed everything on menopause, especially loss of concentration, memory loss, feeling hot, loss of balance, weight gain, depression. Ooh my god, so many of them. I did go through the " change " a few years ago, so you can all see why I thought it was all related. How do I find out if I really have AA. I did go to a Neuroligist who did an EMG on me. I was complaining then (2 months before my surgery in December) of having pain in my lower back, legs, and feet. My test came out abnormal. My legs seem to be ok, but when she did the test on my spine, she said I really had an issue, so I went back to my Neuro Surgeon, who then told me I needed a second fusion. I was in so much pain, that I was having a hard time working. Sitting at my desk for just 15 min, getting up, then I began to pace, I would try anything to give me some relief. So again, in December I had it done. I had to remain flat on my back for days due to the spinal tear. Last night was so uncomfortable. I have been suffering for insomnia now for awhile, and was put on Ambiem. It does help me sleep, without feeling out of it, but last night I wanted to die. I just could not sleep. Pain in my feet, and legs, then back. No matter how I would turn. Today I called my Doctor, and he increased my neurontin to 900mg, 3 times a day to see if that can ease the pain. I just can not describe it. I feel like my toes are being pulled, my feet burn underneath sometimes. They are cold all the time, it's just so hard to explain. Today I went for a walk and walked in the freezing cold for 30 min. (I live in Rhode Island). I had lots of energy when I came home and felt good, but now, my legs are killing me, they are cramped, and my feet feel like someone dropped a heavy rock on them. Does all of the make sense to anyone or am I going crazy? I am already on Cembalta, for depression, and that is surpose to help with people who have pain. Is this Neurontin going to hurt me? Forgive me for complaining, but I have no one to talk too. I am fortunate tho, I do live with a man that still wants to be with me after all of this. We have been together now for 4 years, and finally now he knows how I feel, but I worry. He doesn't need this, although he says it makes no difference. I still do lots of housework, but then I am in so much pain, but I feel like I have to keep going. I Can't stop or I will crash. Well everyone, thanks for listening. Now I know I am not alone. To Cheryl - does it help at all living in Arizona? I did visit there and Loved it. One Doctor told me that the climate in RI is not good for someone like me. Please all feel free to email me here or reply directly to me. I promise, I will try not to complain so much. CherylAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2007 Report Share Posted February 10, 2007 Dearest Cheryl Ann: I am so sorry you hurt so bad. I am so proud that you are trying so hard to continue with your normal life. Being a florist is hard with the complications you're having. I think you are still on a low dose of Neurontin. This is specifally for nerve pain, it is not ment for other types of pain. Are you on any thing else to curb your pain? Maybe this is what you need to check into. Most of us with a long history are taking several different types of medications (oral, patch, electric stimulation etc.)Please take courage. We care about each other. And that means you, too! Keep us informed of how you're doing. M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2007 Report Share Posted February 10, 2007 Your not crazzy. I have simulare feeling in my legs, I hurt bad this morring. seems like every part of my body is screaming for relef and I just did the chors I was behind on yesterday and sat up and finshed my book. Nothing major. Sometimes its feels like my whole body is being pulled all the time with, tingleing, buring and stabbing sensations. Ever just want to bang your head agginest the wall out of frustration? Well it would take our minds off our back or thats what my dad saids to try to make me feel better. But hey maybe you need epidural shoots. Thats what I am trying to get. maybe it will work for you. Don't know till you try right? Tack care. Connie H. Cherylann wrote: Well everyone, thanks for listening. Now I know I am not alone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2007 Report Share Posted February 10, 2007 FM and CFS can flare up worse after exercise. Don't know if you have either one of those syndromes? You feel better immediately after exercise, but a few hours, or even a day or two, later, the pain comes. It happens to me every single time I exercise, but I refuse to stop moving. I was the opposite, everyone ELSE blamed my symptoms on menopause (peri-menopause, I'm 47). And I said NOOOOO! lol Hope this helps. I live in central Mass.! K2 Cherylann wrote after taking a walk: I had lots of energy when I came home and felt good, but now, my legs are killing me, they are cramped, and my feet feel like someone dropped a heavy rock on them. Does all of the make sense to anyone or am I going crazy? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2007 Report Share Posted February 10, 2007 You can get that leg pain with RSD and FM... --- cherylann hutchinson wrote: > > Hi everyone > > I was amazed to see how many people wrote back and offered me support. Thank you all. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2007 Report Share Posted February 10, 2007 we are here to hear your complaints. So go on, even rant and rave if need be. The medicine is out there. Consider it a tough quest, all you have to do is find it. --------------------------------- Sucker-punch spam with award-winning protection. Try the free Yahoo! Mail Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2007 Report Share Posted February 10, 2007 we are here to hear your complaints. So go on, even rant and rave if need be. The medicine is out there. Consider it a tough quest, all you have to do is find it. --------------------------------- Any questions? Get answers on any topic at Yahoo! Answers. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2007 Report Share Posted February 11, 2007 --- cherylann hutchinson wrote: > I promise, I will try not to complain so much. > I forgot to say earlier, CherylAnn - You are NOT complaining! You have every right to vent, ask questions, throw a pity party, whatever you want here! This is a support group, and that means we're here to listen and support each other. It's a safe place to do just what you are doing. No one will ever accuse you of whining or complaining here. So don't ever apologize, and don't hold back. We're here to be the safe place to cry. And the really great thing is that you can provide that shoulder for someone else here later, when you're feeling stronger. Cheryl in AZ Moderator Quote Link to comment Share on other sites More sharing options...
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