Re: Newbie

[Guest guest]

Welcome aboard, , to the Good Ship, "Multiple Surprises!"

I think that the plan you describe has many positive aspects, especially

in view of your disease progression. Go for it! I find (I take Copaxone,

formerly took Avonex) that a daily injection sure beats rapid progression,

or brain atrophy, or all the other joys of MS. I am sorry that you do have

our delightful condition, but want to thank you for choosing this group to

join! I hope you will find us as charming, informative, and yes, even enter

taining as we thing we are--on our better days! Love to you and to those

close to you. Just pull up a nicely padded deck chair on our cruise ship

to better treatment and ultimately a cure/prevention. We have our own

nice, cool swimming pool on this cruise ship, too, so just feel free to

dive right in. Our fearless leader is the best and this group has gotten

me through so much! n Rojas, age 69, wMS, diagnosed at age

19! Still kicking! Do NOT give up hope!

Newbie

Hi All,

I just joined last night, I need other people who know what I'm going through.

My name is , I have a hubby and 2 teens and a 1 year old foster child.

This is my story... about 3 years ago I had my first symptom, I was 34. I then had several symptoms and went to my doctor, then several doctors. My only test that came back postive was my MRI, which I had 3 lesions. Well, I was unable to get diagnosed with that, according to these doctors. So I gave up - too many medical bills (my daughter had just had cancer the year before- she is in remission now) so I went on living, putting MS and my symptoms 'out of my head' and I went on a low fat diet and tried to stay healthy.

That brings me to now. I went to a conference on MS. The doctor said that it is very important to get on treatment as soon as possible. So I made an appointment with him, had another MRI, which showed 2 more lesions- so now I have that 'diagnosis'.

Now, I wanted to get treatment started, but still finanically strapped. The doctor is 250 miles away (round trip) and we had an old van. So first we went and bought something more dependable. Next I decided on a clinical trial, because it is free for 3 years. It is a trial where I will get either Avonex, Copaxone, or both. So I will being getting some drug. The doctor said that he will probably know which one, based on side effects. So that means I will be giving myself 8 shots a week. That is alittle hard for me to think about! I start on May 5th.

I'm wondering how everyone else has dealt with injections? I will be doing them on my own, my husband would pass out if he saw a needle!

Thanks for having me !

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.1/326 - Release Date: 4/27/2006

[Guest guest]

Hi ,

It's good to have you here with us. I know you will find that this is a close knit bunch, who really care about the welfare of others. We've got some pretty smart people here. And what they don't know, often leads to research. Someone usually comes up with a remedy.

I am on Rebif. Injecting myself 3x's a week. It's not so bad. (The shots, that is.) I couldn't imagine having to do it everyday or even 8x's a week. I'm having problems with just finding new areas myself. But, that's just me. I'm new at this and still learning. Although, I was diagnosed in 1985, I didn't start getting any real treatment until recently.

Once again, I'd like to welcome you to the group.

God bless...Val

-- Re: Newbie

Welcome aboard, , to the Good Ship, "Multiple Surprises!"

I think that the plan you describe has many positive aspects, especially

in view of your disease progression. Go for it! I find (I take Copaxone,

formerly took Avonex) that a daily injection sure beats rapid progression,

or brain atrophy, or all the other joys of MS. I am sorry that you do have

our delightful condition, but want to thank you for choosing this group to

join! I hope you will find us as charming, informative, and yes, even enter

taining as we thing we are--on our better days! Love to you and to those

close to you. Just pull up a nicely padded deck chair on our cruise ship

to better treatment and ultimately a cure/prevention. We have our own

nice, cool swimming pool on this cruise ship, too, so just feel free to

dive right in. Our fearless leader is the best and this group has gotten

me through so much! n Rojas, age 69, wMS, diagnosed at age

19! Still kicking! Do NOT give up hope!

Newbie

Hi All,

I just joined last night, I need other people who know what I'm going through.

My name is , I have a hubby and 2 teens and a 1 year old foster child.

This is my story... about 3 years ago I had my first symptom, I was 34. I then had several symptoms and went to my doctor, then several doctors. My only test that came back postive was my MRI, which I had 3 lesions. Well, I was unable to get diagnosed with that, according to these doctors. So I gave up - too many medical bills (my daughter had just had cancer the year before- she is in remission now) so I went on living, putting MS and my symptoms 'out of my head' and I went on a low fat diet and tried to stay healthy.

That brings me to now. I went to a conference on MS. The doctor said that it is very important to get on treatment as soon as possible. So I made an appointment with him, had another MRI, which showed 2 more lesions- so now I have that 'diagnosis'.

Now, I wanted to get treatment started, but still finanically strapped. The doctor is 250 miles away (round trip) and we had an old van. So first we went and bought something more dependable. Next I decided on a clinical trial, because it is free for 3 years. It is a trial where I will get either Avonex, Copaxone, or both. So I will being getting some drug. The doctor said that he will probably know which one, based on side effects. So that means I will be giving myself 8 shots a week. That is alittle hard for me to think about! I start on May 5th.

I'm wondering how everyone else has dealt with injections? I will be doing them on my own, my husband would pass out if he saw a needle!

Thanks for having me !

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.1/326 - Release Date: 4/27/2006

Font CluffHmkBold

Art by Engelbreit

[Guest guest]

First, welcome to the group, you've found one of the best resources on the net!

Second, sorry to hear your child went through Cancer but very glad to hear it is in remission. I am curious about the trial, you say 8 shots a week? Copaxone usually is a one shot a day med, and Avonex is 1 shot a week, so you will be using both? Good luck to you! I have been on Rebif, not good for me, and Copaxone, also not good. Now I do it all with supplements and have recently started LDN. Now just because *I* have not had luck with Copaxone, do not let that taint your experience, there are many, many people who do just fine on it and would be loathe to quit!

Best of luck to you and do not hesitate to ask questions or share thoughts and experiences!

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

http://yodamamma.blogspot.com/

-- Newbie

Hi All,

I just joined last night, I need other people who know what I'm going through.

My name is , I have a hubby and 2 teens and a 1 year old foster child.

This is my story... about 3 years ago I had my first symptom, I was 34. I then had several symptoms and went to my doctor, then several doctors. My only test that came back postive was my MRI, which I had 3 lesions. Well, I was unable to get diagnosed with that, according to these doctors. So I gave up - too many medical bills (my daughter had just had cancer the year before- she is in remission now) so I went on living, putting MS and my symptoms 'out of my head' and I went on a low fat diet and tried to stay healthy.

That brings me to now. I went to a conference on MS. The doctor said that it is very important to get on treatment as soon as possible. So I made an appointment with him, had another MRI, which showed 2 more lesions- so now I have that 'diagnosis'.

Now, I wanted to get treatment started, but still finanically strapped. The doctor is 250 miles away (round trip) and we had an old van. So first we went and bought something more dependable. Next I decided on a clinical trial, because it is free for 3 years. It is a trial where I will get either Avonex, Copaxone, or both. So I will being getting some drug. The doctor said that he will probably know which one, based on side effects. So that means I will be giving myself 8 shots a week. That is alittle hard for me to think about! I start on May 5th.

I'm wondering how everyone else has dealt with injections? I will be doing them on my own, my husband would pass out if he saw a needle!

Thanks for having me !

[Guest guest]

Hi : I'm sorry I didn't write sooner in response to your introduction. I am glad to have you here! So they couldn't dx you with THREE lesions??? Hmmm.... I'm glad you've finally gotten your diagnosis so you can get treatment. So you will be treated with one of the drugs you mentioned? (Avonex, Copaxone) Did you know that there are drug manufacturers who give medications for free to those who have a financial need? If you need a medication to treat any of your symptoms and can't afford it you can do a search for the company to find out

if they have a patient assistance program. Keep us all posted on your treatment! Sharon (group owner) wrote: Hi All, I just joined last night, I need other people who know what I'm going through. My name is , I have a hubby and 2 teens and a 1 year old foster child. This is my story... about 3 years ago I had my first symptom, I was 34. I then had several symptoms and went to

my doctor, then several doctors. My only test that came back postive was my MRI, which I had 3 lesions. Well, I was unable to get diagnosed with that, according to these doctors. So I gave up - too many medical bills (my daughter had just had cancer the year before- she is in remission now) so I went on living, putting MS and my symptoms 'out of my head' and I went on a low fat diet and tried to stay healthy. That brings me to now. I went to a conference on MS. The doctor said that it is very important to get on treatment as soon as possible. So I made an appointment with him, had another MRI, which showed 2 more lesions- so now I have that 'diagnosis'. Now, I wanted to get treatment started, but still finanically strapped. The doctor is 250 miles away (round trip) and we had an old van. So first we went and bought

something more dependable. Next I decided on a clinical trial, because it is free for 3 years. It is a trial where I will get either Avonex, Copaxone, or both. So I will being getting some drug. The doctor said that he will probably know which one, based on side effects. So that means I will be giving myself 8 shots a week. That is alittle hard for me to think about! I start on May 5th. I'm wondering how everyone else has dealt with injections? I will be doing them on my own, my husband would pass out if he saw a needle! Thanks for having me !

Sharon (MSersLife creator/owner)

“One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

[Guest guest]

Hey n,

Thanks for the great welcome! I know treatment is good- I want to think of it as "everytime I get a shot, I'm doing something to help my disease" but right now I'm thinking that everytime I give myself a shot that I'll be reminded that I have MS. I know it's a matter of "mind over matter" I'm working on getting there

Wow- you're doing great to have MS for so long!

Glad to be here ,

Newbie

Hi All,

I just joined last night, I need other people who know what I'm going through.

My name is , I have a hubby and 2 teens and a 1 year old foster child.

This is my story... about 3 years ago I had my first symptom, I was 34. I then had several symptoms and went to my doctor, then several doctors. My only test that came back postive was my MRI, which I had 3 lesions. Well, I was unable to get diagnosed with that, according to these doctors. So I gave up - too many medical bills (my daughter had just had cancer the year before- she is in remission now) so I went on living, putting MS and my symptoms 'out of my head' and I went on a low fat diet and tried to stay healthy.

That brings me to now. I went to a conference on MS. The doctor said that it is very important to get on treatment as soon as possible. So I made an appointment with him, had another MRI, which showed 2 more lesions- so now I have that 'diagnosis'.

Now, I wanted to get treatment started, but still finanically strapped. The doctor is 250 miles away (round trip) and we had an old van. So first we went and bought something more dependable. Next I decided on a clinical trial, because it is free for 3 years. It is a trial where I will get either Avonex, Copaxone, or both. So I will being getting some drug. The doctor said that he will probably know which one, based on side effects. So that means I will be giving myself 8 shots a week. That is alittle hard for me to think about! I start on May 5th.

I'm wondering how everyone else has dealt with injections? I will be doing them on my own, my husband would pass out if he saw a needle!

Thanks for having me !

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.1/326 - Release Date: 4/27/2006

[Guest guest]

Hi Val,

Thanks for the welcome. I look forward to getting to know everyone.

And I hope you're feeling better

Hi ,

It's good to have you here with us. I know you will find that this is a close knit bunch, who really care about the welfare of others. We've got some pretty smart people here. And what they don't know, often leads to research. Someone usually comes up with a remedy.

I am on Rebif. Injecting myself 3x's a week. It's not so bad. (The shots, that is.) I couldn't imagine having to do it everyday or even 8x's a week. I'm having problems with just finding new areas myself. But, that's just me. I'm new at this and still learning. Although, I was diagnosed in 1985, I didn't start getting any real treatment until recently.

Once again, I'd like to welcome you to the group.

God bless...Val

[Guest guest]

Hi Connie,

Yeah, I'm kind of hoping I don't get the Avonex, I'm worried about its side effects.

Thanks for the tips - I really appreciate it

Re: Newbie

Hi :

I'm sorry I didn't write sooner in response to your introduction. I am glad to have you here!

So they couldn't dx you with THREE lesions??? Hmmm.... I'm glad you've finally gotten your diagnosis so you can get treatment.

So you will be treated with one of the drugs you mentioned? (Avonex, Copaxone) Did you know that there are drug manufacturers who give medications for free to those who have a financial need? If you need a medication to treat any of your symptoms and can't afford it you can do a search for the company to find out if they have a patient assistance program.

Keep us all posted on your treatment!

Sharon (group owner) wrote:

Hi All,

I just joined last night, I need other people who know what I'm going through.

My name is , I have a hubby and 2 teens and a 1 year old foster child.

This is my story... about 3 years ago I had my first symptom, I was 34. I then had several symptoms and went to my doctor, then several doctors. My only test that came back postive was my MRI, which I had 3 lesions. Well, I was unable to get diagnosed with that, according to these doctors. So I gave up - too many medical bills (my daughter had just had cancer the year before- she is in remission now) so I went on living, putting MS and my symptoms 'out of my head' and I went on a low fat diet and tried to stay healthy.

That brings me to now. I went to a conference on MS. The doctor said that it is very important to get on treatment as soon as possible. So I made an appointment with him, had another MRI, which showed 2 more lesions- so now I have that 'diagnosis'.

Now, I wanted to get treatment started, but still finanically strapped. The doctor is 250 miles away (round trip) and we had an old van. So first we went and bought something more dependable. Next I decided on a clinical trial, because it is free for 3 years. It is a trial where I will get either Avonex, Copaxone, or both. So I will being getting some drug. The doctor said that he will probably know which one, based on side effects. So that means I will be giving myself 8 shots a week. That is alittle hard for me to think about! I start on May 5th.

I'm wondering how everyone else has dealt with injections? I will be doing them on my own, my husband would pass out if he saw a needle!

Thanks for having me !

Sharon (MSersLife creator/owner)

“One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

[Guest guest]

Hi Rick

I was on AMBIEN for 6 years at 10 mg. It put me to sleep but did nto keep me

asleep. When I checked into a clinic for depression this past march, they TOOK

AWAY my Ambien AND my Xanax and TRIEd to take all my pain medications.

Lord I was depressed because of my pain and health issues and NEVER expected

them to take away the meds that were helping me. They had me convinced they

were NOT helping me.

LORD. When is the last time I slept? I remember. when they gave me seroquel and

I was OUT SO COLD that the place could have burned down and I would not have

responded.

I could NOT wake up in the morning for anything, this was on only 25 mg the baby

dose!!! Some take 300 more than once a day.

Anyhow,Klonopin makes me depressed and I have to stay away from benzos due to

this. Lunesta did not work at all. Oh my ins would pay for 12 ambien a month,

out of pocket the other days and it was VERY VERY expsensive.

I have to go my neck is burning and I need my heating pad. I am so

happy to have found this group. I have met a and now you Rick

and I believe Kaylene. Not quite sure how to navigate around yet but

I am sure I will get hang of it. Night to all.

SHELLEY