Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 I made mention to my neurologist about LDN a few months ago and he didn't have a clue what it was. I didn't pursue it and dropped it. I still think my Copaxone works well. Bill Akiba wrote: > Ok all Y'all, I need some advice...I've been going to this Neuro for > over a year, and I often wonder why, since he basically does nothing > for me, we talk for a few minuted every three months or so and that's > it, I have tried to get him to prescribe LDN, nope, nada, he just says > the same thing every time " I'm trying to keep an open mind " . SO, I > went to the only other Neuro in town, an older man who would have made > a great ol'fashioned country Dr, buggy and all. He is a bit more > proactive in his approach, is ordering new MRI's and even listened > when I said it was too hard to do it all in one, so he is ordering > three separate ones. All well, no? Except, when I mentioned LDN he > basically called it horse poop. He likened us all to sheep who cannot > think for ourselves but blindly follow whatever we hear someone else > say, and strongly tried to talk me into Tysabri (thanks but NO THANKS) > He said that until there is a double-blind study it is all a myth and > there is NO PROOF it does any good at all. > SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance in > a couple-of-years or do I go with Dr Horsepoop? I AM going on LDN > *myself* as soon as my order gets here BTW, I just will forget (you > know our MS cognitive issues...we tend to forget these things) to > mention it to either of them!!! > Peace and Blessings > ~*~ Akiba ~*~ > Pragmatic Visionary > Thy Feet, My Feet > Dance the Dance of Divinity > > > > > > > FREE emoticons for your email! click Here! > <http://www.incredimail.com/index.asp?id=96846> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 I tried Copaxone...we were, shall I say, not compatible so I dropped it. I've also been on Rebif, again a no-go... Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary Thy Feet, My Feet Dance the Dance of Divinity -- Re: Quandary I made mention to my neurologist about LDN a few months ago and he didn't have a clue what it was. I didn't pursue it and dropped it. I still think my Copaxone works well.BillAkiba wrote:> Ok all Y'all, I need some advice...I've been going to this Neuro for > over a year, and I often wonder why, since he basically does nothing > for me, we talk for a few minuted every three months or so and that's > it, I have tried to get him to prescribe LDN, nope, nada, he just says > the same thing every time "I'm trying to keep an open mind". SO, I > went to the only other Neuro in town, an older man who would have made > a great ol'fashioned country Dr, buggy and all. He is a bit more > proactive in his approach, is ordering new MRI's and even listened > when I said it was too hard to do it all in one, so he is ordering > three separate ones. All well, no? Except, when I mentioned LDN he > basically called it horse poop. He likened us all to sheep who cannot > think for ourselves but blindly follow whatever we hear someone else > say, and strongly tried to talk me into Tysabri (thanks but NO THANKS) > He said that until there is a double-blind study it is all a myth and > there is NO PROOF it does any good at all.> SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance in > a couple-of-years or do I go with Dr Horsepoop? I AM going on LDN > *myself* as soon as my order gets here BTW, I just will forget (you > know our MS cognitive issues...we tend to forget these things) to > mention it to either of them!!! > Peace and Blessings> ~*~ Akiba ~*~> Pragmatic Visionary> Thy Feet, My Feet> Dance the Dance of Divinity> > >> > >> FREE emoticons for your email! click Here! > <http://www.incredimail.com/index.asp?id=96846>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 How is your diabetes these day's. My trouble with my double vision is completely gone now thank goodness since Spring is near. Bill Akiba wrote: > I tried Copaxone...we were, shall I say, not compatible so I dropped > it. I've also been on Rebif, again a no-go... > > Peace and Blessings > ~*~ Akiba ~*~ > Pragmatic Visionary > Thy Feet, My Feet > Dance the Dance of Divinity > > > /--*/ Re: Quandary > > I made mention to my neurologist about LDN a few months ago and he > didn't have a clue what it was. I didn't pursue it and dropped it. I > still think my Copaxone works well. > Bill > > Akiba wrote: > > > Ok all Y'all, I need some advice...I've been going to this Neuro for > > over a year, and I often wonder why, since he basically does nothing > > for me, we talk for a few minuted every three months or so and that's > > it, I have tried to get him to prescribe LDN, nope, nada, he just says > > the same thing every time " I'm trying to keep an open mind " . SO, I > > went to the only other Neuro in town, an older man who would have made > > a great ol'fashioned country Dr, buggy and all. He is a bit more > > proactive in his approach, is ordering new MRI's and even listened > > when I said it was too hard to do it all in one, so he is ordering > > three separate ones. All well, no? Except, when I mentioned LDN he > > basically called it horse poop. He likened us all to sheep who cannot > > think for ourselves but blindly follow whatever we hear someone else > > say, and strongly tried to talk me into Tysabri (thanks but NO THANKS) > > He said that until there is a double-blind study it is all a myth and > > there is NO PROOF it does any good at all. > > SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance in > > a couple-of-years or do I go with Dr Horsepoop? I AM going on LDN > > *myself* as soon as my order gets here BTW, I just will forget (you > > know our MS cognitive issues...we tend to forget these things) to > > mention it to either of them!!! > > Peace and Blessings > > ~*~ Akiba ~*~ > > Pragmatic Visionary > > Thy Feet, My Feet > > Dance the Dance of Divinity > > > > > > > > > > > > > > FREE emoticons for your email! click Here! > > <http://www.incredimail.com/index.asp?id=96846> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 The diabetes seems to be under control. I am gaining weight though, no clue as to why...I think it might have to do with the Candida? So I'm taking positive steps to eliminate that. My sweet DH said, though, that he'd still love me if I was 500# and wired to a wheelchair... Which is very sweet but I really hope never comes about! Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary Thy Feet, My Feet Dance the Dance of Divinity --*/ Re: Quandary> > I made mention to my neurologist about LDN a few months ago and he> didn't have a clue what it was. I didn't pursue it and dropped it. I> still think my Copaxone works well.> Bill>> Akiba wrote:>> > Ok all Y'all, I need some advice...I've been going to this Neuro for> > over a year, and I often wonder why, since he basically does nothing> > for me, we talk for a few minuted every three months or so and that's> > it, I have tried to get him to prescribe LDN, nope, nada, he just says> > the same thing every time "I'm trying to keep an open mind". SO, I> > went to the only other Neuro in town, an older man who would have made> > a great ol'fashioned country Dr, buggy and all. He is a bit more> > proactive in his approach, is ordering new MRI's and even listened> > when I said it was too hard to do it all in one, so he is ordering> > three separate ones. All well, no? Except, when I mentioned LDN he> > basically called it horse poop. He likened us all to sheep who cannot> > think for ourselves but blindly follow whatever we hear someone else> > say, and strongly tried to talk me into Tysabri (thanks but NO THANKS)> > He said that until there is a double-blind study it is all a myth and> > there is NO PROOF it does any good at all.> > SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance in> > a couple-of-years or do I go with Dr Horsepoop? I AM going on LDN> > *myself* as soon as my order gets here BTW, I just will forget (you> > know our MS cognitive issues...we tend to forget these things) to> > mention it to either of them!!! > > Peace and Blessings> > ~*~ Akiba ~*~> > Pragmatic Visionary> > Thy Feet, My Feet> > Dance the Dance of Divinity> > > > > >> > > > > >> > FREE emoticons for your email! click Here!> > <http://www.incredimail.com/index.asp?id=96846>> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Akiba, I have been on LDN since last August, with I feel improvements. I ordered out of Mexico like yourself because I could not find a Neuro to prescribe it locally. I have not returned to a Neuro since then. I feel they are almost a waste of time. All the want to do is offer the ABCR drugs without consideration of the side effects or how we feel. I think my cognitive problems have improved and I know my bladder control is much more under control since starting. My walking has not improved but I don't think it any worse either. I don't think I could ask for more than I have received so far. I get my drugs from Medmex and hope they get it back in stock before I need more. I plan to go back to my second opinion Neuro when I have been on for a year and let him see that I have areas of improvement and hope he will then prescribe it for other MS patients that he is taking care of and then maybe get him to prescribe it for me as well. Don't lose faith, we can take care of our selves and be support for each other. I am not one to add a bunch to the group. I read all the email but don't add allot of my own opinion unless I can see that it is needed. It sounded that you were a little lost and needed my input. We can be our own advocates and take care of our selves without the doctors that can not see the forest for the trees. They do not understand the side affects are worse the the disease. Sometimes no medication is better that the side affects of what they want us to take. I think I have talked in circles long enough, I hope this helps you with your decisions. It is not horse poop either or if it is it works. Griffith ggriffith@... Few cases of eyestrain have been developed by looking on the bright side of things. >Akiba wrote: >Snip >a double-blind study it is all a myth and > > there is NO PROOF it does any good at all. > > SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance in > > a couple-of-years or do I go with Dr Horsepoop? I AM going on LDN > > *myself* as soon as my order gets here BTW, I just will forget (you > > know our MS cognitive issues...we tend to forget these things) to > > mention it to either of them!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 My nephews doc has him going on an insulin pump soon but was told he has to take some diabetic classes first. He has been diabetic for year's and has a lot of trouble with it. I am not sure I would be excited about using a pump for my insulin. Bill Akiba wrote: The diabetes seems to be under control. I am gaining weight though, no clue as to why...I think it might have to do with the Candida? So I'm taking positive steps to eliminate that. My sweet DH said, though, that he'd still love me if I was 500# and wired to a wheelchair... Which is very sweet but I really hope never comes about! Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary Thy Feet, My Feet Dance the Dance of Divinity -------Original Message------- From: MS-Bill Date: 03/10/06 08:05:55 To: MSersLife Subject: Re: Quandary How is your diabetes these day's. My trouble with my double vision is completely gone now thank goodness since Spring is near. Bill Akiba wrote: > I tried Copaxone...we were, shall I say, not compatible so I dropped > it. I've also been on Rebif, again a no-go... > > Peace and Blessings > ~*~ Akiba ~*~ > Pragmatic Visionary > Thy Feet, My Feet > Dance the Dance of Divinity > > > /--*/ Re: Quandary > > I made mention to my neurologist about LDN a few months ago and he > didn't have a clue what it was. I didn't pursue it and dropped it. I > still think my Copaxone works well. > Bill > > Akiba wrote: > > > Ok all Y'all, I need some advice...I've been going to this Neuro for > > over a year, and I often wonder why, since he basically does nothing > > for me, we talk for a few minuted every three months or so and that's > > it, I have tried to get him to prescribe LDN, nope, nada, he just says > > the same thing every time "I'm trying to keep an open mind". SO, I > > went to the only other Neuro in town, an older man who would have made > > a great ol'fashioned country Dr, buggy and all. He is a bit more > > proactive in his approach, is ordering new MRI's and even listened > > when I said it was too hard to do it all in one, so he is ordering > > three separate ones. All well, no? Except, when I mentioned LDN he > > basically called it horse poop. He likened us all to sheep who cannot > > think for ourselves but blindly follow whatever we hear someone else > > say, and strongly tried to talk me into Tysabri (thanks but NO THANKS) > > He said that until there is a double-blind study it is all a myth and > > there is NO PROOF it does any good at all. > > SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance in > > a couple-of-years or do I go with Dr Horsepoop? I AM going on LDN > > *myself* as soon as my order gets here BTW, I just will forget (you > > know our MS cognitive issues...we tend to forget these things) to > > mention it to either of them!!! > > Peace and Blessings > > ~*~ Akiba ~*~ > > Pragmatic Visionary > > Thy Feet, My Feet > > Dance the Dance of Divinity > > > > > > > > > > > > > > FREE emoticons for your email! click Here! > > <http://www.incredimail.com/index.asp?id=96846> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Akiba, I would get rid of both doc's. Regards, Tom Quandary Ok all Y'all, I need some advice...I've been going to this Neuro for over a year, and I often wonder why, since he basically does nothing for me, we talk for a few minuted every three months or so and that's it, I have tried to get him to prescribe LDN, nope, nada, he just says the same thing every time "I'm trying to keep an open mind". SO, I went to the only other Neuro in town, an older man who would have made a great ol'fashioned country Dr, buggy and all. He is a bit more proactive in his approach, is ordering new MRI's and even listened when I said it was too hard to do it all in one, so he is ordering three separate ones. All well, no? Except, when I mentioned LDN he basically called it horse poop. He likened us all to sheep who cannot think for ourselves but blindly follow whatever we hear someone else say, and strongly tried to talk me into Tysabri (thanks but NO THANKS) He said that until there is a double-blind study it is all a myth and there is NO PROOF it does any good at all. SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance in a couple-of-years or do I go with Dr Horsepoop? I AM going on LDN *myself* as soon as my order gets here BTW, I just will forget (you know our MS cognitive issues...we tend to forget these things) to mention it to either of them!!! Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary Thy Feet, My Feet Dance the Dance of Divinity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 , the fact that you don't post much but wanted to help me, helped me all in itself. Thank you. I think I've worked it out now. Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary Thy Feet, My Feet Dance the Dance of Divinity -- Re: Quandary Akiba,I have been on LDN since last August, with I feel improvements. I ordered out of Mexico like yourself because I could not find a Neuro to prescribe it locally. I have not returned to a Neuro since then. I feel they are almost a waste of time. All the want to do is offer the ABCR drugs without consideration of the side effects or how we feel. I think my cognitive problems have improved and I know my bladder control is much more under control since starting. My walking has not improved but I don't think it any worse either. I don't think I could ask for more than I have received so far. I get my drugs from Medmex and hope they get it back in stock before I need more. I plan to go back to my second opinion Neuro when I have been on for a year and let him see that I have areas of improvement and hope he will then prescribe it for other MS patients that he is taking care of and then maybe get him to prescribe it for me as well. Don't lose faith, we can take care of our selves and be support for each other. I am not one to add a bunch to the group. I read all the email but don't add allot of my own opinion unless I can see that it is needed. It sounded that you were a little lost and needed my input. We can be our own advocates and take care of our selves without the doctors that can not see the forest for the trees. They do not understand the side affects are worse the the disease. Sometimes no medication is better that the side affects of what they want us to take. I think I have talked in circles long enough, I hope this helps you with your decisions. It is not horse poop either or if it is it works. Griffithggriffith@...Few cases of eyestrain have been developed by looking on the bright side of things.>Akiba wrote:>Snip>a double-blind study it is all a myth and> > there is NO PROOF it does any good at all.> > SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance in> > a couple-of-years or do I go with Dr Horsepoop? I AM going on LDN> > *myself* as soon as my order gets here BTW, I just will forget (you> > know our MS cognitive issues...we tend to forget these things) to> > mention it to either of them!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 Ya know, Tom, I think I'm going to do just that. I *am* going to do the MRI's, as I want a clear record of where I am when I start the LDN, then I'll fire them both. Nicely, of course. Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary Thy Feet, My Feet Dance the Dance of Divinity -- Re: Quandary Akiba, I would get rid of both doc's. Regards, Tom Quandary Ok all Y'all, I need some advice...I've been going to this Neuro for over a year, and I often wonder why, since he basically does nothing for me, we talk for a few minuted every three months or so and that's it, I have tried to get him to prescribe LDN, nope, nada, he just says the same thing every time "I'm trying to keep an open mind". SO, I went to the only other Neuro in town, an older man who would have made a great ol'fashioned country Dr, buggy and all. He is a bit more proactive in his approach, is ordering new MRI's and even listened when I said it was too hard to do it all in one, so he is ordering three separate ones. All well, no? Except, when I mentioned LDN he basically called it horse poop. He likened us all to sheep who cannot think for ourselves but blindly follow whatever we hear someone else say, and strongly tried to talk me into Tysabri (thanks but NO THANKS) He said that until there is a double-blind study it is all a myth and there is NO PROOF it does any good at all. SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance in a couple-of-years or do I go with Dr Horsepoop? I AM going on LDN *myself* as soon as my order gets here BTW, I just will forget (you know our MS cognitive issues...we tend to forget these things) to mention it to either of them!!! Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary Thy Feet, My Feet Dance the Dance of Divinity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 Tom and Akiba, What exactly is LDN? Connie From: MSersLife [mailto:MSersLife ] On Behalf Of Akiba Sent: Saturday, March 11, 2006 9:34 AM To: MSersLife Subject: Re: Quandary Ya know, Tom, I think I'm going to do just that. I *am* going to do the MRI's, as I want a clear record of where I am when I start the LDN, then I'll fire them both. Nicely, of course. Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary Thy Feet, My Feet Dance the Dance of Divinity -- Quandary Ok all Y'all, I need some advice...I've been going to this Neuro for over a year, and I often wonder why, since he basically does nothing for me, we talk for a few minuted every three months or so and that's it, I have tried to get him to prescribe LDN, nope, nada, he just says the same thing every time " I'm trying to keep an open mind " . SO, I went to the only other Neuro in town, an older man who would have made a great ol'fashioned country Dr, buggy and all. He is a bit more proactive in his approach, is ordering new MRI's and even listened when I said it was too hard to do it all in one, so he is ordering three separate ones. All well, no? Except, when I mentioned LDN he basically called it horse poop. He likened us all to sheep who cannot think for ourselves but blindly follow whatever we hear someone else say, and strongly tried to talk me into Tysabri (thanks but NO THANKS) He said that until there is a double-blind study it is all a myth and there is NO PROOF it does any good at all. SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance in a couple-of-years or do I go with Dr Horsepoop? I AM going on LDN *myself* as soon as my order gets here BTW, I just will forget (you know our MS cognitive issues...we tend to forget these things) to mention it to either of them!!! Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary Thy Feet, My Feet Dance the Dance of Divinity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 Low-Dose Nalrexone http://www.lowdosenaltrexone.org/ldn_and_ms.htm Check it out! Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary Thy Feet, My Feet Dance the Dance of Divinity -- Re: Quandary Akiba, I would get rid of both doc's. Regards, Tom Quandary Ok all Y'all, I need some advice...I've been going to this Neuro for over a year, and I often wonder why, since he basically does nothing for me, we talk for a few minuted every three months or so and that's it, I have tried to get him to prescribe LDN, nope, nada, he just says the same thing every time "I'm trying to keep an open mind". SO, I went to the only other Neuro in town, an older man who would have made a great ol'fashioned country Dr, buggy and all. He is a bit more proactive in his approach, is ordering new MRI's and even listened when I said it was too hard to do it all in one, so he is ordering three separate ones. All well, no? Except, when I mentioned LDN he basically called it horse poop. He likened us all to sheep who cannot think for ourselves but blindly follow whatever we hear someone else say, and strongly tried to talk me into Tysabri (thanks but NO THANKS) He said that until there is a double-blind study it is all a myth and there is NO PROOF it does any good at all. SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance in a couple-of-years or do I go with Dr Horsepoop? I AM going on LDN *myself* as soon as my order gets here BTW, I just will forget (you know our MS cognitive issues...we tend to forget these things) to mention it to either of them!!! Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary Thy Feet, My Feet Dance the Dance of Divinity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 Connie, Go to www.lowdosenaltrexone.org Regards, Tom Quandary Ok all Y'all, I need some advice...I've been going to this Neuro for over a year, and I often wonder why, since he basically does nothing for me, we talk for a few minuted every three months or so and that's it, I have tried to get him to prescribe LDN, nope, nada, he just says the same thing every time "I'm trying to keep an open mind". SO, I went to the only other Neuro in town, an older man who would have made a great ol'fashioned country Dr, buggy and all. He is a bit more proactive in his approach, is ordering new MRI's and even listened when I said it was too hard to do it all in one, so he is ordering three separate ones. All well, no? Except, when I mentioned LDN he basically called it horse poop. He likened us all to sheep who cannot think for ourselves but blindly follow whatever we hear someone else say, and strongly tried to talk me into Tysabri (thanks but NO THANKS) He said that until there is a double-blind study it is all a myth and there is NO PROOF it does any good at all. SOOOO, my quandary is this...do I stay with Dr Might-have-a-chance in a couple-of-years or do I go with Dr Horsepoop? I AM going on LDN *myself* as soon as my order gets here BTW, I just will forget (you know our MS cognitive issues...we tend to forget these things) to mention it to either of them!!! Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary Thy Feet, My Feet Dance the Dance of Divinity Quote Link to comment Share on other sites More sharing options...
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