RE: What is your biggest trouble you have with your MS you wish would go away?

[Guest guest]

So, Connie, I may just get a girl yet! LOL. After 4 boys, I would just expect only boys. Trista

RE: What is your biggest trouble you have with your MS you wish would go away?

Val and Trista,

I have twins too. Mine are 22. Identical boys. Lots of energy when they were young. Now they share an apartment, work and go to school. Great guys. I have another son, younger by 2 years and a 15year old daughter. I always tell her she is my reward from God….

Connie

[Guest guest]

Jackie-

I also know what you mean. I spent just 45 minutes with 3 of my kids last week. And they are grown! (Except the 14 year old.) I was so tired and stressed, that up until the next day, I had a headache and fatigue that was literally draining.

Although, my kids are understanding, to a point. They are often disappointed when I refuse to accompany them to places. I try to tell them that it's not personal, I just don't have the stamina anymore.

Blessings...

-- RE: What is your biggest trouble you have with your MS you wish would go away?

I'm sending my love and understanding to you, my dear friend. I don't get out very often either. I usually go shopping to Wal Mart once a month. I get to go to the thrift store every few weeks with my daughter-in-law and I look forward to it so much.

I do understand. As many of here do.

Sharon

Jackie Hanan wrote:

I think the hardest thing for me is the fatigue and weakness. I use to be very energetic, and strong. I was always on the go, and I loved be out and around daily. Now I am lucky if I can leave my house once a month. I want so much to spend time with my grandchildren, and take them places, and just have them around more. As it is the fatigue makes it so I don’t have a lot of stamina, so when those two little energy balls come to visit it doesn’t take long before my energy is totally drained. I can put up with the pain, even the disability of not being able to walk very well, but when you have hardly any energy just the act of visiting with others is trying.

Jackie J

From: MSersLife [mailto:MSersLife ] On Behalf Of MS-BillSent: Sunday, April 16, 2006 7:59 PMTo: MS-Christians ; MSersLife Subject: What is your biggest trouble you have with your MS you wish would go away?

I was wondering what is your biggest trouble you have with your MS you wish would go away? I haven't had any balance since my MS hit me and I use a walker all the time. The worse part about that is I can't even stand on a ladder any more. My son and I recently took on a home project building a new cabinet for my wife Judy and I am so glad my 16 year old is old enough to help me with something like that. I am posting a photo of the cabinet so you can see what I am writing about.Our home was built in 1875 so everytime I start a new project it is like opening up a can of worms because all the unusual troubles we have with an old house like we have. None of the floors are level and that is one trouble. Everything at the ceiling level I had to have my son work on because of my having no balance. I was able to get material up and down the stairs by sitting on the steps and pulling the wood and other items up. I am impatient when I get into a project like our cabinet so I do the best even with my disability to get it done I am usually pretty worn out after it is done. When I was healthy this would have been a snap to do. We took several days to finish it, my wife and my 8 year gave it a nice paint job. I will try an post the cabinet done soon.I have already set out on a new project for my son to be busy with , we are putting some fencing up in our back yard to help when we get a new dog. BillI hope everyone had a nice Easter

Sharon (MSersLife creator/owner)

“One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge

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[Guest guest]

I'm finding it so amazing at how much we all have in common here! Our twins are even close in age. One of my twins is starting to have some back trouble and some vision problems these days. I've been after her to get herself checked. She seems to think the back problems are coming from having her children. I have arthritis in my back. The way she's been describing the pain, sounds a lot like arthritis to me.

Have a blessed day...

-- Re: What is your biggest trouble you have with your MS you wish would go away?

Val,

My oldest was a twin, but we lost his brother. I know I never could have handled 2 like him. He has ADHD and Asperger's Syndrome. My 9 yr old has Autism. He's my little savant, like Akiba's son. He's a gifted artist.

It's good you have your daughter near you. Are they girl/girl or girl/boy twins? My oldest will probably never leave me. LOL. He's like my mother hen, always worried about taking care of me and his little brothers. If any of them sticks close by, it will be him. He's a challenge, but still such a blessing. Take care, Trista

Re: What is your biggest trouble you have with your MS you wish would go away?

My worst sx, is fatigue. Some days are really bad. And heat wipes me out.

Both these things are bad, especially since I have 12 yr. old, 9 yr. old, 2

yr. old and 8 month old boys. I homeschool the oldest 2, so I have to fit

more school in on my "good days". Summers are rough, because they love to

swim at Gpa's house, but I feel ill and wiped out, before we even get

there. (30 min. drive) Last summer, I swam with them once and couldn't get

out of the pool. Scared me to death. Then, I avoided swimming again,

because I wanted to pretend it would be an isolated event. Trista

[Guest guest]

Hey

n,……it took me a long time to decide not to drive anymore. I even

went so far as to brake with my left foot, and I rested my right one up against

the side, and the heaviness kept the accelerator down hard enough to power the

car. Eventually I decided it was too dangerous to drive like that, so I reluctantly

gave up the keys! L

Ya

know life changes at some point for every one, it just changes a little sooner

for those with progressive illnesses. This was what the Dr’s meant when

they told me to go home and learn to live with it. A little cold, but I understand

now.

Jackie J

From: MSersLife

[mailto:MSersLife ] On Behalf Of n Rojas

Sent: Monday, April 17, 2006 11:26 PM

To: MSersLife

Subject: Re: What is

your biggest trouble you have with your MS you wish would go away?

Love to

you, Jackie; limitations are so . .

.. . just. . . well. . . LIMITING!

Love from

me to you, n--oddly the steering wheel seems to act like

a gyroscope

for me and I can drive just fine--walk--very IFFY! more love, M.~

What is your

biggest trouble you have with your MS you wish would go away?

I was wondering what is your biggest trouble you have

with your MS you wish would go away?

I haven't had any balance since my MS hit me and I use a walker all the

time. The worse part about that is I can't even stand on a ladder any more.

My son and I recently took on a home project building a new cabinet for my wife

Judy and I am so glad my 16 year old is old enough to help me with something

like that. I am posting a photo of the cabinet so you can see what I am writing

about.

Our home was built in 1875 so everytime I start a new project it is like

opening up a can of worms because all the unusual troubles we have with an old

house like we have. None of the floors are level and that is one trouble.

Everything at the ceiling level I had to have my son work on because of my

having no balance. I was able to get material up and down the stairs by sitting

on the steps and pulling the wood and other items up. I am impatient when I get

into a project like our cabinet so I do the best even with my disability to get

it done I am usually pretty worn out after it is done. When I was healthy

this would have been a snap to do.

We took several days to finish it, my wife and my 8 year gave it a nice paint

job. I will try an post the cabinet done soon.

I have already set out on a new project for my son to be busy with , we are

putting some fencing up in our back yard to help when we get a new dog.

Bill

I hope everyone had a nice Easter

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found in this incoming message.

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[Guest guest]

Hi

Bill,……I envy your wifes work space. What a beautiful area, and how

neat! Everything is right there at her arms length to do her scrapbooking with.

I am still getting everything together to start mine. Both my daughter and I are

going to put together several for our family.

I’ll

be looking forward to seeing the finished cabinet!

Jackie J

From: MSersLife

[mailto:MSersLife ] On Behalf Of MS-Bill

Sent: Tuesday, April 18, 2006 4:45 AM

To: MSersLife

Subject: Re: What is

your biggest trouble you have with your MS you wish would go away?

Hi Jackie I was wanting to post a photo of the finished

cabinet the other night but I didn't have the photo of the finished cabinet yet

and I would have woken up everyone to take the picture at that time.

My wife Judy is big into working on Scrapbooks and

I took a photo also of her area. I don't understand why she has so much fun

working on her books I don't have the patients like she does. She is good at

doing them. She will get with her friends and they have a good time doing the

books together.

Storage

Cabinet

Bill

Jackie Hanan wrote:

Bill,

I meant to tell you how nice your cabinet turned out. What color/stain did you

use on it?

I think if my personality might have been more of a

couch potato one, maybe the loss of activity might not have been so hard? I

don't know, I just keep thinking any day now I will be well, and I can get back

to living my life! Talk about denial huh!

Jackie

J

Re: What is your biggest trouble you have with your MS you

wish would go away?

I agree with not having the energy to do things like I

use to and not

being able to keep up with everyone.

Bill

[Guest guest]

Hi

Val,……my kids [30, 32] have lived with my illnesses since they were

6 and 8. During the early years I was able to keep up fairly well, but there

were many crash and burn days. They got use to mom not feeling well. As time

went on and things progressed, I could tell they were disappointed too when I couldn’t

go to their programs. I missed both their college graduations. Luckily Steve

took video’s of them, but I know they would have liked me to have been there.

[sigh]

One

of the biggest hurdles we are facing now, is reversing roles. I need them to

take up the slack, and do the family dinners. They still are holding on to mom or

dad doing the cooking, cleaning, and entertaining. Steve was doing all of it

when I couldn’t anymore, but he too is ill now, and we keep telling

everyone, that we just can’t. They still want to hold on to tradition, or

they are just lazy……..lol, haven’t decided yet!

Jackie J

From: MSersLife

[mailto:MSersLife ] On Behalf Of Valene

Sent: Tuesday, April 18, 2006 10:58 AM

To: MSersLife

Subject: RE: What is

your biggest trouble you have with your MS you wish would go away?

Jackie-

I also know what you mean. I spent just 45

minutes with 3 of my kids last week. And they are grown! (Except the 14

year old.) I was so tired and stressed, that up until the next day, I had a

headache and fatigue that was literally draining.

Although, my kids are understanding, to a

point. They are often disappointed when I refuse to accompany them to places.

I try to tell them that it's not personal, I just don't have the stamina

anymore.

Blessings...

-- What is

your biggest trouble you have with your MS you wish would go away?

I was wondering what is your biggest trouble you

have with your MS you wish would go away?

I haven't had any balance since my MS hit me and I use a walker all the

time. The worse part about that is I can't even stand on a ladder any more.

My son and I recently took on a home project building a new cabinet for my wife

Judy and I am so glad my 16 year old is old enough to help me with something

like that. I am posting a photo of the cabinet so you can see what I am

writing about.

Our home was built in 1875 so everytime I start a new project it is like

opening up a can of worms because all the unusual troubles we have with an

old house like we have. None of the floors are level and that is one trouble.

Everything at the ceiling level I had to have my son work on because of my

having no balance. I was able to get material up and down the stairs by

sitting on the steps and pulling the wood and other items up. I am impatient

when I get into a project like our cabinet so I do the best even with my

disability to get it done I am usually pretty worn out after it is done.

When I was healthy this would have been a snap to do.

We took several days to finish it, my wife and my 8 year gave it a nice paint

job. I will try an post the cabinet done soon.

I have already set out on a new project for my son to be busy with , we are putting

some fencing up in our back yard to help when we get a new dog.

Bill

I hope everyone had a nice Easter

Sharon (MSersLife creator/owner)

“One minute it's a giant cabbage and the next, ka-boom!

You've got cole slaw all over you. " V.R. ,

Palmer, Alaska,

where Cabbages grow huge

Talk is cheap. Use Yahoo! Messenger to

make PC-to-Phone calls. Great

rates starting at 1¢/min.

Font ITC

Art by Engelbreit

[Guest guest]

Jackie,

I think that no matter how much time goes by or how bad things seem to be from our stand point, no one really knows what we go through. Not even our kids. I wonder sometimes if maybe the people around us might be going through a little denial. I think that one of my twins is going through that herself. She just doesn't see me as weak. Maybe that's my own fault. I was in denial for so long myself. I always tried to give the illusion that everything was fine.

I'm learning now to speak up. Even if it hurts her feelings. Although, I do try to do it with love. But, I do agree with one thing. I can see the laziness in her. But, if she wants the family get together's, that tend to wipe me out for weeks, then she has to suck it up and have it at her home.

God bless...

-- RE: What is your biggest trouble you have with your MS you wish would go away?

I'm sending my love and understanding to you, my dear friend. I don't get out very often either. I usually go shopping to Wal Mart once a month. I get to go to the thrift store every few weeks with my daughter-in-law and I look forward to it so much.

I do understand. As many of here do.

Sharon

Jackie Hanan wrote:

I think the hardest thing for me is the fatigue and weakness. I use to be very energetic, and strong. I was always on the go, and I loved be out and around daily. Now I am lucky if I can leave my house once a month. I want so much to spend time with my grandchildren, and take them places, and just have them around more. As it is the fatigue makes it so I don’t have a lot of stamina, so when those two little energy balls come to visit it doesn’t take long before my energy is totally drained. I can put up with the pain, even the disability of not being able to walk very well, but when you have hardly any energy just the act of visiting with others is trying.

Jackie J

From: MSersLife [mailto:MSersLife ] On Behalf Of MS-BillSent: Sunday, April 16, 2006 7:59 PMTo: MS-Christians ; MSersLife Subject: What is your biggest trouble you have with your MS you wish would go away?

I was wondering what is your biggest trouble you have with your MS you wish would go away? I haven't had any balance since my MS hit me and I use a walker all the time. The worse part about that is I can't even stand on a ladder any more. My son and I recently took on a home project building a new cabinet for my wife Judy and I am so glad my 16 year old is old enough to help me with something like that. I am posting a photo of the cabinet so you can see what I am writing about.Our home was built in 1875 so everytime I start a new project it is like opening up a can of worms because all the unusual troubles we have with an old house like we have. None of the floors are level and that is one trouble. Everything at the ceiling level I had to have my son work on because of my having no balance. I was able to get material up and down the stairs by sitting on the steps and pulling the wood and other items up. I am impatient when I get into a project like our cabinet so I do the best even with my disability to get it done I am usually pretty worn out after it is done. When I was healthy this would have been a snap to do. We took several days to finish it, my wife and my 8 year gave it a nice paint job. I will try an post the cabinet done soon.I have already set out on a new project for my son to be busy with , we are putting some fencing up in our back yard to help when we get a new dog. BillI hope everyone had a nice Easter

Sharon (MSersLife creator/owner)

“One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

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