RE: new and unconfirmed

[Guest guest]

Tammy,

Welcome to the group. There are wonderful

people on here who try to answer your question and offer support.

Where are you in Texas? I live in Fort Worth---where it will be a sizzling 91

on Easter day.

Connie

From: MSersLife [mailto:MSersLife ] On Behalf Of tamatha_tx

Sent: Thursday, April 13, 2006

4:37 PM

To: MSersLife

Subject: new and

unconfirmed

I have all the classic beginning symptoms. I know in my heart

what it

is although the official diagnosis has not been

made. My Neurology

appt is the 27th this month with the NCV testing

done the 25th this

month. Just really looking for people to

talk to and help support now

and later, look for that support in return.

I am married to DH #2 and

have 4 wonderful kids. Son 15, Son 13,

Daugher 11, and Son 4. The

oldes and youngest live with me and the middle son

and daughter live

with their dad. My children know nothing at

this point, just Mom and

DH. Which I'm sure Mom has told Aunt, Mamaw,

and so forth. DH has

told some close family friends by now as well.

Thanks for letting me be a part of what I hope

will be a very rewarding

and supportive group.

Tammy in Tx

[Guest guest]

I am at Fort Hood, down by Austin.connie buran wrote: Tammy, Welcome to the group. There are wonderful people on here who try to answer your question and offer support. Where are you in Texas? I live in Fort Worth---where it will be a sizzling 91 on Easter day. Connie From: MSersLife [mailto:MSersLife ] On Behalf Of tamatha_txSent: Thursday, April 13, 2006 4:37 PMTo: MSersLife Subject: new and unconfirmed I have all the classic beginning symptoms. I know in my heart what it is although the official diagnosis has not been made. My Neurology appt is the 27th this month with the NCV testing done the 25th this month. Just really looking for people to talk to and help support now and later, look for that support in return. I am married to DH #2 and have 4 wonderful kids. Son 15, Son 13, Daugher 11, and Son 4. The oldes and youngest live with me and the middle son and daughter live with their dad. My children know nothing at this point, just Mom and DH. Which I'm sure Mom has told Aunt, Mamaw, and so forth. DH has

told some close family friends by now as well.Thanks for letting me be a part of what I hope will be a very rewarding and supportive group.Tammy in Tx

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[Guest guest]

Hi Tammy, sorry to hear of your "maybe dx" . It's not so bad, I am a sub and I still work sometimes full time. I have a boy,14 and two girls, 11 and 8. Have been married for 17 1/2 years. Hope it is something else. tamatha_tx wrote: I have all the classic beginning symptoms. I know in my heart what it is although the official diagnosis has not been made. My Neurology appt is the 27th this month with the NCV testing done the 25th this month. Just really looking for people to talk to and help support now and later, look for that support in return. I am married to DH #2 and have 4 wonderful kids. Son 15, Son 13, Daugher 11, and Son 4. The oldes and youngest live with me and the middle son and daughter

live with their dad. My children know nothing at this point, just Mom and DH. Which I'm sure Mom has told Aunt, Mamaw, and so forth. DH has told some close family friends by now as well.Thanks for letting me be a part of what I hope will be a very rewarding and supportive group.Tammy in Tx

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[Guest guest]

Tammy: What symptoms are you experiencing? How long? SharonTamatha P wrote: I am at Fort Hood, down by Austin.connie buran wrote: Tammy, Welcome to the group. There are wonderful people on here who try to answer your question and offer support. Where are you in Texas? I live in Fort Worth---where it will be a sizzling 91 on Easter day. Connie From: MSersLife [mailto:MSersLife ] On Behalf Of tamatha_txSent: Thursday, April 13, 2006 4:37 PMTo: MSersLife Subject: new and unconfirmed I have all the classic beginning symptoms. I know in my heart what it is although the official diagnosis has not been made. My Neurology appt is the 27th this month with the NCV testing done the 25th this month. Just really looking for people to talk to and help support now and later, look for that support in return. I am married to DH #2 and have 4 wonderful kids. Son 15, Son 13, Daugher 11, and Son 4. The

oldes and youngest live with me and the middle son and daughter live with their dad. My children know nothing at this point, just Mom and DH. Which I'm sure Mom has told Aunt, Mamaw, and so forth. DH has told some close family friends by now as well.Thanks for letting me be a part of what I hope will be a very rewarding and supportive group.Tammy in Tx Join Killeen Barter at http://finance.groups.yahoo.com/group/KilleenBarter/ Trade or Barter away those things you don't want anymore! Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

Sharon (MSersLife creator/owner)

“One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge

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[Guest guest]

So far I have the numbness in my left fingers, hand, arm, side, down into my hip, let and foot. Actually both feet now. Vision blurring sometimes. Headaches, of course I am also a migraine sufferer. Vertigo, Barbershop symptoms ( the LeHermittes ). Sharp pains that feel like they hug my ribs and shoot from my spine down my legs and arms. This has been going on for about 3 weeks now. I am on Prednison for the inflammation of the brain. MRI showed 11 lesions, 4 of which glowed under the injection, on my right frontal and parietal lobes. From about 1:30 pm to about 4:30 pm I feel just totally wasted. My speech is horrible. My co-workers have commented that sometimes I sound drunk or high! LOL I stumble over words and have a hard time concentrating on what's going on in front of me. I really have to listen to understand what people are saying to me. That's it for now in a nut

shell. Neurology appt is the 27th this month and I have NCV tests before that on the 25th. 99% of everyone's stories I've read have all started out just like this. I am not upset or worried at this point and think it will be just fine even if my DX is positive. My DH is very supportive and so is my family! Thanks for listening! Tammy, TXSharon Marsden wrote: Tammy: What symptoms are you experiencing? How long? SharonTamatha P wrote: I am at Fort Hood, down by Austin.connie buran

wrote: Tammy, Welcome to the group. There are wonderful people on here who try to answer your question and offer support. Where are you in Texas? I live in Fort Worth---where it will be a sizzling 91 on Easter day. Connie From: MSersLife [mailto:MSersLife ] On Behalf Of tamatha_txSent: Thursday, April 13, 2006 4:37 PMTo: MSersLife Subject: new and unconfirmed I have all the classic beginning symptoms. I know in my heart what it is although the official diagnosis has not been made. My Neurology appt is the 27th this month with the NCV testing done the 25th this month. Just really looking for people to talk to and help support now and later, look for that support in return. I am married to DH #2 and have 4 wonderful kids. Son 15, Son 13, Daugher 11, and Son 4. The oldes and youngest live with me and the middle son and daughter live with their dad. My children know nothing at this point, just Mom and DH. Which I'm sure Mom has told Aunt, Mamaw, and so forth. DH has told some close family friends by now as well.Thanks for letting me be a part of what I hope will be a very rewarding and supportive group.Tammy in Tx Join Killeen Barter at http://finance.groups.yahoo.com/group/KilleenBarter/ Trade or Barter away those things you don't want anymore! Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Sharon (MSersLife creator/owner) “One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow

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[Guest guest]

Tammy, if at least part of this is not MS, then I am NOT 5' 10" tall! Welcome

Aboard; I think you definitely belong with us! Love to you, n

RE: new and unconfirmed

So far I have the numbness in my left fingers, hand, arm, side, down into my hip, let and foot. Actually both feet now. Vision blurring sometimes. Headaches, of course I am also a migraine sufferer. Vertigo, Barbershop symptoms ( the LeHermittes ). Sharp pains that feel like they hug my ribs and shoot from my spine down my legs and arms. This has been going on for about 3 weeks now. I am on Prednison for the inflammation of the brain. MRI showed 11 lesions, 4 of which glowed under the injection, on my right frontal and parietal lobes. From about 1:30 pm to about 4:30 pm I feel just totally wasted. My speech is horrible. My co-workers have commented that sometimes I sound drunk or high! LOL I stumble over words and have a hard time concentrating on what's going on in front of me. I really have to listen to understand what people are saying to me. That's it for now in a nut shell. Neurology appt is the 27th this month and I have NCV tests before that on the 25th. 99% of everyone's stories I've read have all started out just like this. I am not upset or worried at this point and think it will be just fine even if my DX is positive. My DH is very supportive and so is my family! Thanks for listening!

Tammy, TXSharon Marsden wrote:

Tammy:

What symptoms are you experiencing? How long?

SharonTamatha P wrote:

I am at Fort Hood, down by Austin.connie buran wrote:

Tammy,

Welcome to the group. There are wonderful people on here who try to answer your question and offer support.

Where are you in Texas? I live in Fort Worth---where it will be a sizzling 91 on Easter day.

Connie

From: MSersLife [mailto:MSersLife ] On Behalf Of tamatha_txSent: Thursday, April 13, 2006 4:37 PMTo: MSersLife Subject: new and unconfirmed

I have all the classic beginning symptoms. I know in my heart what it is although the official diagnosis has not been made. My Neurology appt is the 27th this month with the NCV testing done the 25th this month. Just really looking for people to talk to and help support now and later, look for that support in return. I am married to DH #2 and have 4 wonderful kids. Son 15, Son 13, Daugher 11, and Son 4. The oldes and youngest live with me and the middle son and daughter live with their dad. My children know nothing at this point, just Mom and DH. Which I'm sure Mom has told Aunt, Mamaw, and so forth. DH has told some close family friends by now as well.Thanks for letting me be a part of what I hope will be a very rewarding and supportive group.Tammy in Tx

Join Killeen Barter at http://finance.groups.yahoo.com/group/KilleenBarter/

Trade or Barter away those things you don't want anymore!

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Sharon (MSersLife creator/owner)

“One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge

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[Guest guest]

Hi

Tammy, and welcome to our family. There are many wonderful people here who can

relate to what you experience, and will support you in good times and bad.

Great group! J

“What

are barbershop symptoms”? I’ve never heard of that term.

It

took me awhile to get a firm dx. All the Dr’s I saw were noncommittal and

kept saying, “possible”, “probable”, and then finally

after several years “definitely”! I too had several lesions in my

brain, but was told they weren’t in the area they normally see MS plaques

at. It wasn’t until they did a cervical spine series that they found a

large lesion in my neck. Then with clinical symptoms similar to yours, it was

confirmed I had MS. Then a few years after I went to the University hosp. to be

reevaluated and to see if anything new was going on because I was having some

more disability, and it seemed to me my symptoms were getting worse. I could

feel a slow progression for years prior. Well the Neuro I saw said she didn’t

know if I had MS, but something else called Transverse Myelitis. Which was like

a second cousin to MS. I had never heard of it so I did a search, and

came upon a group where many of the members had similar symptoms. [That’s

where I met Sharon, and a few others here.] I could relate to the TM symptoms,

but from what I gathered there, not many had progression. If you did, then it

was likely you were going on to full blown MS.

Even

though I had a Physio-Neurology diagnostic Dr. confirm MS, I still questioned it

because of what the other Dr. said. I later found out that some Dr’s are

reluctant to give a MS dx because of insurance coverage problems with

pre-existing conditions. So basically I had TM/MS.

Have

they done a cervical spine MRI on you to check for lesions there? There is such

a thing as Spinal MS too.

Hang

in there Tammy most of us know exactly what you are going thru with the

uncertainty of it all. Its hard to ignore our inner suspicions when we

just know something is wrong. Keep asking questions, and don’t give up

the hope of getting something definite confirmed. It took me many years to get

mine.

Smiles,

Jackie [oregon]

From: MSersLife [mailto:MSersLife ] On Behalf Of Tamatha P

Sent: Friday, April 14, 2006 9:12 AM

To: MSersLife

Subject: RE: new and

unconfirmed

So far I have the numbness in my left fingers, hand,

arm, side, down into my hip, let and foot. Actually both feet now.

Vision blurring sometimes. Headaches, of course I am also a migraine

sufferer. Vertigo, Barbershop symptoms ( the LeHermittes ). Sharp

pains that feel like they hug my ribs and shoot from my spine down my legs and

arms. This has been going on for about 3 weeks now. I am on

Prednison for the inflammation of the brain. MRI showed 11 lesions, 4 of

which glowed under the injection, on my right frontal and parietal lobes.

From about 1:30 pm to

about 4:30 pm I feel just

totally wasted. My speech is horrible. My co-workers have commented

that sometimes I sound drunk or high! LOL I stumble over words and

have a hard time concentrating on what's going on in front of me. I

really have to listen to understand what people are saying to me. That's

it for now in a nut shell. Neurology appt is the 27th this month and I

have NCV tests before that on the 25th. 99% of everyone's stories I've read

have all started out just like this. I am not upset or worried at this

point and think it will be just fine even if my DX is positive. My DH is

very supportive and so is my family! Thanks for listening!

Tammy,

TX

[Guest guest]

Barbershop symptoms are the LeHermittes symptoms. Pardon the spelling. When you look down for your barber to shave your neck, it is the electrical shocks that run down you back to your legs or arms or just anywhere. Barbershop is just a nickname I came across and I liked it! LOLJackie Hanan wrote: Hi Tammy, and welcome to our family. There are many wonderful people here who can relate to what you experience, and will support you in good times and bad. Great group! J “What are barbershop symptoms”? I’ve never heard of that term. It took me awhile to get a firm dx. All the Dr’s I saw were noncommittal and kept saying, “possible”, “probable”, and then finally after

several years “definitely”! I too had several lesions in my brain, but was told they weren’t in the area they normally see MS plaques at. It wasn’t until they did a cervical spine series that they found a large lesion in my neck. Then with clinical symptoms similar to yours, it was confirmed I had MS. Then a few years after I went to the University hosp. to be reevaluated and to see if anything new was going on because I was having some more disability, and it seemed to me my symptoms were getting worse. I could feel a slow progression for years prior. Well the Neuro I saw said she didn’t know if I had MS, but something else called Transverse Myelitis. Which was like a second cousin to MS. I had never heard of it so I did a search, and came upon a group where many of the members had similar symptoms. [That’s where I met Sharon, and a few others here.] I could relate to the TM symptoms, but from what I gathered there, not many had progression. If you did, then it was

likely you were going on to full blown MS. Even though I had a Physio-Neurology diagnostic Dr. confirm MS, I still questioned it because of what the other Dr. said. I later found out that some Dr’s are reluctant to give a MS dx because of insurance coverage problems with pre-existing conditions. So basically I had TM/MS. Have they done a cervical spine MRI on you to check for lesions there? There is such a thing as Spinal MS too. Hang in there Tammy most of us know exactly what you are going thru with the uncertainty of it all. Its hard to ignore our inner suspicions when we just know something is wrong. Keep asking questions, and don’t give up the hope of getting something definite confirmed. It took me many years to get mine. Smiles, Jackie [oregon] From: MSersLife [mailto:MSersLife ] On Behalf Of Tamatha PSent: Friday, April 14, 2006 9:12 AMTo:

MSersLife Subject: RE: new and unconfirmed So far I have the numbness in my left fingers, hand, arm, side, down into my hip, let and foot. Actually both feet now. Vision blurring sometimes. Headaches, of course I am also a migraine sufferer. Vertigo, Barbershop symptoms ( the LeHermittes ). Sharp pains that feel like they hug my ribs and shoot from my spine down my legs and arms. This has been going on for about 3 weeks now. I am on Prednison for the inflammation of the brain. MRI showed 11 lesions, 4 of which glowed under the

injection, on my right frontal and parietal lobes. From about 1:30 pm to about 4:30 pm I feel just totally wasted. My speech is horrible. My co-workers have commented that sometimes I sound drunk or high! LOL I stumble over words and have a hard time concentrating on what's going on in front of me. I really have to listen to understand what people are saying to me. That's it for now in a nut shell. Neurology appt is the 27th this month and I have NCV tests before that on the 25th. 99% of everyone's stories I've read have all started out just like this. I am not upset or worried at this point and think it will be just fine even if my DX is positive. My DH is very supportive and so is my family! Thanks for listening! Tammy, TX

Join Killeen Barter at http://finance.groups.yahoo.com/group/KilleenBarter/

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[Guest guest]

Hi Tammy,

My name is Valene. Welcome to the group! Like Jackie said, we have alot of wonderful people here. I'm still pretty new here, but I have found this place so informative. And you can talk about what things are bothering you without being judged. We all can relate in one way or another.

I am, at this time, starting to go into remission once again. I've had numbness in my hands for several months now. I can see that it is slowly, but surely getting better. I will pray that you get the help you need soon. Be strong and don't take no for an answer.

God bless...

-- RE: new and unconfirmed

Hi Tammy, and welcome to our family. There are many wonderful people here who can relate to what you experience, and will support you in good times and bad. Great group! J

“What are barbershop symptoms”? I’ve never heard of that term.

It took me awhile to get a firm dx. All the Dr’s I saw were noncommittal and kept saying, “possible”, “probable”, and then finally after several years “definitely”! I too had several lesions in my brain, but was told they weren’t in the area they normally see MS plaques at. It wasn’t until they did a cervical spine series that they found a large lesion in my neck. Then with clinical symptoms similar to yours, it was confirmed I had MS. Then a few years after I went to the University hosp. to be reevaluated and to see if anything new was going on because I was having some more disability, and it seemed to me my symptoms were getting worse. I could feel a slow progression for years prior. Well the Neuro I saw said she didn’t know if I had MS, but something else called Transverse Myelitis. Which was like a second cousin to MS. I had never heard of it so I did a search, and came upon a group where many of the members had similar symptoms. [That’s where I met Sharon, and a few others here.] I could relate to the TM symptoms, but from what I gathered there, not many had progression. If you did, then it was likely you were going on to full blown MS.

Even though I had a Physio-Neurology diagnostic Dr. confirm MS, I still questioned it because of what the other Dr. said. I later found out that some Dr’s are reluctant to give a MS dx because of insurance coverage problems with pre-existing conditions. So basically I had TM/MS.

Have they done a cervical spine MRI on you to check for lesions there? There is such a thing as Spinal MS too.

Hang in there Tammy most of us know exactly what you are going thru with the uncertainty of it all. Its hard to ignore our inner suspicions when we just know something is wrong. Keep asking questions, and don’t give up the hope of getting something definite confirmed. It took me many years to get mine.

Smiles, Jackie [oregon]

From: MSersLife [mailto:MSersLife ] On Behalf Of Tamatha PSent: Friday, April 14, 2006 9:12 AMTo: MSersLife Subject: RE: new and unconfirmed

So far I have the numbness in my left fingers, hand, arm, side, down into my hip, let and foot. Actually both feet now. Vision blurring sometimes. Headaches, of course I am also a migraine sufferer. Vertigo, Barbershop symptoms ( the LeHermittes ). Sharp pains that feel like they hug my ribs and shoot from my spine down my legs and arms. This has been going on for about 3 weeks now. I am on Prednison for the inflammation of the brain. MRI showed 11 lesions, 4 of which glowed under the injection, on my right frontal and parietal lobes. From about 1:30 pm to about 4:30 pm I feel just totally wasted. My speech is horrible. My co-workers have commented that sometimes I sound drunk or high! LOL I stumble over words and have a hard time concentrating on what's going on in front of me. I really have to listen to understand what people are saying to me. That's it for now in a nut shell. Neurology appt is the 27th this month and I have NCV tests before that on the 25th. 99% of everyone's stories I've read have all started out just like this. I am not upset or worried at this point and think it will be just fine even if my DX is positive. My DH is very supportive and so is my family! Thanks for listening!

Tammy, TX

Font Chinacat

Artby Engelbreit

[Guest guest]

Great analogy!

I thought I was the only one with that symptom. When I talked to a doctor about it, he was so indifferent about it. Tried to tell me that that was not a MS symptom. That was the last time I saw him. What a jerk. He was a resident who obviously needed more schooling.

Blessed be...

-- RE: new and unconfirmed

Barbershop symptoms are the LeHermittes symptoms. Pardon the spelling. When you look down for your barber to shave your neck, it is the electrical shocks that run down you back to your legs or arms or just anywhere. Barbershop is just a nickname I came across and I liked it! LOLJackie Hanan wrote:

Hi Tammy, and welcome to our family. There are many wonderful people here who can relate to what you experience, and will support you in good times and bad. Great group! J

“What are barbershop symptoms”? I’ve never heard of that term.

It took me awhile to get a firm dx. All the Dr’s I saw were noncommittal and kept saying, “possible”, “probable”, and then finally after several years “definitely”! I too had several lesions in my brain, but was told they weren’t in the area they normally see MS plaques at. It wasn’t until they did a cervical spine series that they found a large lesion in my neck. Then with clinical symptoms similar to yours, it was confirmed I had MS. Then a few years after I went to the University hosp. to be reevaluated and to see if anything new was going on because I was having some more disability, and it seemed to me my symptoms were getting worse. I could feel a slow progression for years prior. Well the Neuro I saw said she didn’t know if I had MS, but something else called Transverse Myelitis. Which was like a second cousin to MS. I had never heard of it so I did a search, and came upon a group where many of the members had similar symptoms. [That’s where I met Sharon, and a few others here.] I could relate to the TM symptoms, but from what I gathered there, not many had progression. If you did, then it was likely you were going on to full blown MS.

Even though I had a Physio-Neurology diagnostic Dr. confirm MS, I still questioned it because of what the other Dr. said. I later found out that some Dr’s are reluctant to give a MS dx because of insurance coverage problems with pre-existing conditions. So basically I had TM/MS.

Have they done a cervical spine MRI on you to check for lesions there? There is such a thing as Spinal MS too.

Hang in there Tammy most of us know exactly what you are going thru with the uncertainty of it all. Its hard to ignore our inner suspicions when we just know something is wrong. Keep asking questions, and don’t give up the hope of getting something definite confirmed. It took me many years to get mine.

Smiles, Jackie [oregon]

From: MSersLife [mailto:MSersLife ] On Behalf Of Tamatha PSent: Friday, April 14, 2006 9:12 AMTo: MSersLife Subject: RE: new and unconfirmed

So far I have the numbness in my left fingers, hand, arm, side, down into my hip, let and foot. Actually both feet now. Vision blurring sometimes. Headaches, of course I am also a migraine sufferer. Vertigo, Barbershop symptoms ( the LeHermittes ). Sharp pains that feel like they hug my ribs and shoot from my spine down my legs and arms. This has been going on for about 3 weeks now. I am on Prednison for the inflammation of the brain. MRI showed 11 lesions, 4 of which glowed under the injection, on my right frontal and parietal lobes. From about 1:30 pm to about 4:30 pm I feel just totally wasted. My speech is horrible. My co-workers have commented that sometimes I sound drunk or high! LOL I stumble over words and have a hard time concentrating on what's going on in front of me. I really have to listen to understand what people are saying to me. That's it for now in a nut shell. Neurology appt is the 27th this month and I have NCV tests before that on the 25th. 99% of everyone's stories I've read have all started out just like this. I am not upset or worried at this point and think it will be just fine even if my DX is positive. My DH is very supportive and so is my family! Thanks for listening!

Tammy, TX

Join Killeen Barter at http://finance.groups.yahoo.com/group/KilleenBarter/

Trade or Barter away those things you don't want anymore!

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

Font Chinacat

Art by Engelbreit