Another Question

[Guest guest]

I'm asking these impossible questions, I know. A lot of the reason stems from

my being told that I'm basically in charge of my own care....it's a bit much

all at once, and I find myself at these little barricades of thought that I

have to figure out a way around.....

I'm convinced I could be secondarily diagnosed with CFS; the only criterion

I'm lacking is the duration of symptomology. I've only been putting up with

it for two or three months, at his point.

I'm also fairly sure I could meet a diagnosis of FMS as well. By

self-diagnosis, the trigger points go " ouch " at less than 4 pounds pressure.

Now the question: how much difference would it make to pursue these

diagnoses, given that they're probably by-products of the primary EDS? I'm

already trying to treat these symptoms from the EDS angle, and it's unlikely

that secondary diagnoses would make much difference to my health care, in

fact, I'm not sure it wouldn't isolate me more.

Where's the priority, if I chould get these diagnosed?

If you have any thoughts, let me know. I'm still very much at sea, here.

Before I can tell my doctors what to do, I need to figure out what that is,

and what the steps beyond are....

Thanks, Mark