Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Hi everyone………Here is an explanation of two things we have talked about here lately. I hope this helps you to understand these two symptoms. I know it helps me to read about the symptoms I deal with. I’ll send the other one about fatigue over in a separate note. Smiles, Jackie [oregon] Many people with MS experience some form of tremor, or uncontrollable shaking, which can occur in various parts of the body. There are several types of tremor, including: Postural tremors. A person who has a postural tremor will shake while sitting or standing, but not while lying down. Intention tremor. Means there is no shaking when a person is at rest. The tremor develops as the person attempts to reach or grasp something or move a hand or foot to a precise spot. This is the most common and generally the most disabling form of tremor that occurs in people with MS. Nystagmus. A tremor that produces jumpy eye movements. Multiple Sclerosis: Controlling Muscle Spasms Many people with MS experience spasticity, or muscle stiffness and spasms. It usually affects the muscles of the legs and arms, and may interfere with the ability to move those muscles freely. Spasticity can occur either as a sustained stiffness caused by increased muscle tone or as spasms that come and go, especially at night. It can feel like a muscle tightening or it can cause severe pain. Spasticity can also produce feelings of pain or tightness in and around joints and can cause low back pain. The intensity may vary depending on your position, posture, and state of relaxation. What Causes Spasticity? Spasticity is the result of an imbalance in the electrical signals coming from the brain and spinal cord, often caused by damage to these areas from by MS. This imbalance causes hyperactive muscle stretch reflexes, which result in involuntary contractions of the muscle, and increased muscle tension. What Triggers Spasticity? Spasticity may be aggravated by extremes of temperature, humidity, or infections. It can even be triggered by tight clothing Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Thank you Jackie. It's always good to read about it. Which of these things do you experience? I have the Intentional Tremor. Yesterday I would reach for something and my hand tremored slightly but enough to make it more difficult to do what I was trying to do (can't remember now.... lol) I also have an 'at rest' tremor that's more like a "quivering" in my body. I was thinking last week that maybe I was taking too much B Vitamins. (I know that too much of the B Vitamins can actually cause nerve problems). So I stopped taking the B Complex (I was taking two a day thinking I needed the B 12 for my fatigue). The tremors went away! I thought "AH HA it WAS the B Vitamins!" Then yesterday it all came back. Oh well.... not the B Vitamins but is the MS instead. My legs are hurting worse again so I upped the Baclofen like the doc said I could. Then I couldn't stand easily (as we MSers need some spasticity to help us stand). So I had to take less Baclofen and then my legs hurt more. Isn't there a vitamin or supplement that will take all of this away?????? love you Sharon Jackie Hanan wrote: Hi everyone………Here is an explanation of two things we have talked about here lately. I hope this helps you to understand these two symptoms. I know it helps me to read about the symptoms I deal with. I’ll send the other one about fatigue over in a separate note. Smiles, Jackie [oregon] Many people with MS experience some form of tremor, or uncontrollable shaking, which can occur in various parts of the body. There are several types of tremor, including: Postural tremors. A person who has a postural tremor will shake while sitting or standing, but not while lying down. Intention tremor. Means there is no shaking when a person is at rest. The tremor develops as the person attempts to reach or grasp something or move a hand or foot to a precise spot. This is the most common and generally the most disabling form of tremor that occurs in people with MS. Nystagmus. A tremor that produces jumpy eye movements. Multiple Sclerosis:Controlling Muscle Spasms Many people with MS experience spasticity, or muscle stiffness and spasms. It usually affects the muscles of the legs and arms, and may interfere with the ability to move those muscles freely. Spasticity can occur either as a sustained stiffness caused by increased muscle tone or as spasms that come and go, especially at night. It can feel like a muscle tightening or it can cause severe pain. Spasticity can also produce feelings of pain or tightness in and around joints and can cause low back pain. The intensity may vary depending on your position, posture, and state of relaxation. What Causes Spasticity? Spasticity is the result of an imbalance in the electrical signals coming from the brain and spinal cord, often caused by damage to these areas from by MS. This imbalance causes hyperactive muscle stretch reflexes, which result in involuntary contractions of the muscle, and increased muscle tension. What Triggers Spasticity? Spasticity may be aggravated by extremes of temperature, humidity, or infections. It can even be triggered by tight clothing Sharon (MSersLife creator/owner) “One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 You are very welcomed! J I don’t get the tremors anymore, but in the earlier days I had a vibrating that seemed to come on nightly when I would go to bed. I didn’t know what to call it, and my Dr. seemed to think I was making stuff up. Now that I know the definition for tremors I am sure that is what it was. I don’t know if this is just a co-incidence or not, but once I started on my CPAP [breathing machine] the vibrating stopped. I am thinking lack of oxygen thru-out the day/night might have caused the vibrating. I really am not sure. Sleep Apnea which I probably had back then too, but didn’t know it, does strange things to you. I’m glad the descriptions were helpful to you. J I had a bad week with my legs too. They seem to have calmed down some now, and I didn’t take any relaxants which I should have but I hesitate to take too many different meds at the same time. So if I wanted to breathe all week I took allergy meds instead of the relaxants. I thought the two together would put me in a coma, ;-) so I opted for the symptoms that were the worse. I did up my pain meds, and that helped some. Steve rubbed pain relief stuff on them, and that helped. My right ankle [the foot with the drop] was swollen all the way down into the foot this time. So he had to massage it upwards, and that was very painful. That has calmed some now too. I think my foot was bad because when I have a bout of spastic activity in that leg/foot it will cause me to over stretch all the muscles, and I think I might have pulled the ligaments too hard. I have to concentrate really hard to not allow my body to stretch too far, but sometimes there’s no control of that. Then I get the pulled muscles and added pain. Anybody else have this happen to them too? Hugs and love, Jackie From: MSersLife [mailto:MSersLife ] On Behalf Of Sharon Marsden Sent: Monday, April 10, 2006 5:05 AM To: MSersLife Subject: Re: Tremors and Muscle Spasms Thank you Jackie. It's always good to read about it. Which of these things do you experience? I have the Intentional Tremor. Yesterday I would reach for something and my hand tremored slightly but enough to make it more difficult to do what I was trying to do (can't remember now.... lol) I also have an 'at rest' tremor that's more like a " quivering " in my body. I was thinking last week that maybe I was taking too much B Vitamins. (I know that too much of the B Vitamins can actually cause nerve problems). So I stopped taking the B Complex (I was taking two a day thinking I needed the B 12 for my fatigue). The tremors went away! I thought " AH HA it WAS the B Vitamins! " Then yesterday it all came back. Oh well.... not the B Vitamins but is the MS instead. My legs are hurting worse again so I upped the Baclofen like the doc said I could. Then I couldn't stand easily (as we MSers need some spasticity to help us stand). So I had to take less Baclofen and then my legs hurt more. Isn't there a vitamin or supplement that will take all of this away?????? love you Sharon Jackie Hanan wrote: Hi everyone………Here is an explanation of two things we have talked about here lately. I hope this helps you to understand these two symptoms. I know it helps me to read about the symptoms I deal with. I’ll send the other one about fatigue over in a separate note. Smiles, Jackie [oregon] Many people with MS experience some form of tremor, or uncontrollable shaking, which can occur in various parts of the body. There are several types of tremor, including: Postural tremors. A person who has a postural tremor will shake while sitting or standing, but not while lying down. Intention tremor. Means there is no shaking when a person is at rest. The tremor develops as the person attempts to reach or grasp something or move a hand or foot to a precise spot. This is the most common and generally the most disabling form of tremor that occurs in people with MS. Nystagmus. A tremor that produces jumpy eye movements. Multiple Sclerosis: Controlling Muscle Spasms Many people with MS experience spasticity, or muscle stiffness and spasms. It usually affects the muscles of the legs and arms, and may interfere with the ability to move those muscles freely. Spasticity can occur either as a sustained stiffness caused by increased muscle tone or as spasms that come and go, especially at night. It can feel like a muscle tightening or it can cause severe pain. Spasticity can also produce feelings of pain or tightness in and around joints and can cause low back pain. The intensity may vary depending on your position, posture, and state of relaxation. What Causes Spasticity? Spasticity is the result of an imbalance in the electrical signals coming from the brain and spinal cord, often caused by damage to these areas from by MS. This imbalance causes hyperactive muscle stretch reflexes, which result in involuntary contractions of the muscle, and increased muscle tension. What Triggers Spasticity? Spasticity may be aggravated by extremes of temperature, humidity, or infections. It can even be triggered by tight clothing Sharon (MSersLife creator/owner) “One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you. " V.R. , Palmer, Alaska, where Cabbages grow huge Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 I get something really weird that so far has baffled all the Dr's I've approached about it. I shiver at night. Not every night. And not when I am cold, although the shiver is the same as when I Am cold. But I'll wake up just shivering away, Rob says I look like I was thrown nekkid into a snowbank. Funny thing, even though I'm Not cold when it happens, tossing on an extra blanket or comforter helps me go back to sleep ..Anyone else have this? And if so, did your Dr's come up with anything? One said it might be thyroid, so we tested for that and came up negative...my thyroid is fine. So what can it be? Anyone? Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary http://yodamamma.blogspot.com/ -- RE: Tremors and Muscle Spasms You are very welcomed! J I don’t get the tremors anymore, but in the earlier days I had a vibrating that seemed to come on nightly when I would go to bed. I didn’t know what to call it, and my Dr. seemed to think I was making stuff up. Now that I know the definition for tremors I am sure that is what it was. I don’t know if this is just a co-incidence or not, but once I started on my CPAP [breathing machine] the vibrating stopped. I am thinking lack of oxygen thru-out the day/night might have caused the vibrating. I really am not sure. Sleep Apnea which I probably had back then too, but didn’t know it, does strange things to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Akiba, That's interesting. I have a new sx too. I get the sensation of chills running down my right leg. It can be any time of day and is not related to anything like cold or emotion. And it's usually just the right leg. VERY strange. Have you mentioned the shivering to your Dr. ? Hugs, Trista RE: Tremors and Muscle Spasms You are very welcomed! J I don’t get the tremors anymore, but in the earlier days I had a vibrating that seemed to come on nightly when I would go to bed. I didn’t know what to call it, and my Dr. seemed to think I was making stuff up. Now that I know the definition for tremors I am sure that is what it was. I don’t know if this is just a co-incidence or not, but once I started on my CPAP [breathing machine] the vibrating stopped. I am thinking lack of oxygen thru-out the day/night might have caused the vibrating. I really am not sure. Sleep Apnea which I probably had back then too, but didn’t know it, does strange things to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 I have. They are stumped. Clueless, as usual Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary http://yodamamma.blogspot.com/ -- Re: Tremors and Muscle Spasms Akiba, That's interesting. I have a new sx too. I get the sensation of chills running down my right leg. It can be any time of day and is not related to anything like cold or emotion. And it's usually just the right leg. VERY strange. Have you mentioned the shivering to your Dr. ? Hugs, Trista RE: Tremors and Muscle Spasms You are very welcomed! J I don’t get the tremors anymore, but in the earlier days I had a vibrating that seemed to come on nightly when I would go to bed. I didn’t know what to call it, and my Dr. seemed to think I was making stuff up. Now that I know the definition for tremors I am sure that is what it was. I don’t know if this is just a co-incidence or not, but once I started on my CPAP [breathing machine] the vibrating stopped. I am thinking lack of oxygen thru-out the day/night might have caused the vibrating. I really am not sure. Sleep Apnea which I probably had back then too, but didn’t know it, does strange things to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Hi Trista and Akiba,…..That’s so weird you should mention this because just this morning I too was having “chills” running up and down the side of my head. I get this, and it running up and down my legs too from time to time. There’s no rhyme or reason to it, and I am just assuming it is a neurological thing that is screwing with our senses. I never equated it to tremors, but maybe it is a type of tremor? I know my temp gage is off, and I’ve heard that this is common in autoimmune illnesses. I get chilled inside, but the outside feels normal. So I am assuming its another temp disregulation thing. I do have hypothyroidism, but I take meds for it. The other thing might be good old hormones!! ;-) Jackie From: MSersLife [mailto:MSersLife ] On Behalf Of Trista Sent: Monday, April 10, 2006 12:49 PM To: MSersLife Subject: Re: Tremors and Muscle Spasms Akiba, That's interesting. I have a new sx too. I get the sensation of chills running down my right leg. It can be any time of day and is not related to anything like cold or emotion. And it's usually just the right leg. VERY strange. Have you mentioned the shivering to your Dr. ? Hugs, Trista ----- Original Message ----- From: Akiba To: MSersLife Sent: Monday, April 10, 2006 9:13 AM Subject: RE: Tremors and Muscle Spasms I get something really weird that so far has baffled all the Dr's I've approached about it. I shiver at night. Not every night. And not when I am cold, although the shiver is the same as when I Am cold. But I'll wake up just shivering away, Rob says I look like I was thrown nekkid into a snowbank. Funny thing, even though I'm Not cold when it happens, tossing on an extra blanket or comforter helps me go back to sleep ..Anyone else have this? And if so, did your Dr's come up with anything? One said it might be thyroid, so we tested for that and came up negative...my thyroid is fine. So what can it be? Anyone? Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary http://yodamamma.blogspot.com/ -- RE: Tremors and Muscle Spasms You are very welcomed! J I don’t get the tremors anymore, but in the earlier days I had a vibrating that seemed to come on nightly when I would go to bed. I didn’t know what to call it, and my Dr. seemed to think I was making stuff up. Now that I know the definition for tremors I am sure that is what it was. I don’t know if this is just a co-incidence or not, but once I started on my CPAP [breathing machine] the vibrating stopped. I am thinking lack of oxygen thru-out the day/night might have caused the vibrating. I really am not sure. Sleep Apnea which I probably had back then too, but didn’t know it, does strange things to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Jackie, So, I'm not the only one then. I used to get those chill feelings on my head back in high school. I still do occasionally. It's interesting you say that you are "cold on the inside", when the outside is normal. I am the opposite. My temp can be normal, but I feel like I have a fever inside my head. Sounds weird. sigh.... I am "borderline" hypothyroidism, whatever the heck that's supposed to mean. Trista RE: Tremors and Muscle Spasms You are very welcomed! J I don’t get the tremors anymore, but in the earlier days I had a vibrating that seemed to come on nightly when I would go to bed. I didn’t know what to call it, and my Dr. seemed to think I was making stuff up. Now that I know the definition for tremors I am sure that is what it was. I don’t know if this is just a co-incidence or not, but once I started on my CPAP [breathing machine] the vibrating stopped. I am thinking lack of oxygen thru-out the day/night might have caused the vibrating. I really am not sure. Sleep Apnea which I probably had back then too, but didn’t know it, does strange things to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Oh,…. I get it the other way too. In fact so much so I am always taking my temp, and it registers normal. I can even feel like I am burning up, and when I feel my cheeks they are hot. I’ve even taken my blood pressure during that time, and it isn’t high. Like I said there’s no rhyme or reason to all of this except the temp regulator system in the brain must be affected by autoimmune diseases. My hubby Steve has the same thing happening with him, and he has Lupus! Smiles, Jackie J From: MSersLife [mailto:MSersLife ] On Behalf Of Trista Sent: Monday, April 10, 2006 3:16 PM To: MSersLife Subject: Re: Tremors and Muscle Spasms Jackie, So, I'm not the only one then. I used to get those chill feelings on my head back in high school. I still do occasionally. It's interesting you say that you are " cold on the inside " , when the outside is normal. I am the opposite. My temp can be normal, but I feel like I have a fever inside my head. Sounds weird. sigh.... I am " borderline " hypothyroidism, whatever the heck that's supposed to mean. Trista RE: Tremors and Muscle Spasms You are very welcomed! J I don’t get the tremors anymore, but in the earlier days I had a vibrating that seemed to come on nightly when I would go to bed. I didn’t know what to call it, and my Dr. seemed to think I was making stuff up. Now that I know the definition for tremors I am sure that is what it was. I don’t know if this is just a co-incidence or not, but once I started on my CPAP [breathing machine] the vibrating stopped. I am thinking lack of oxygen thru-out the day/night might have caused the vibrating. I really am not sure. Sleep Apnea which I probably had back then too, but didn’t know it, does strange things to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 I get the heat thing too, but usually in the daytime, I'll be going along, and suddenly my cheeks flare and my whole face feels hot. The only other time I get that is if I've had a few glasses of red wine. Only then I get blotchy. Yukk. Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary http://yodamamma.blogspot.com/ -- RE: Tremors and Muscle Spasms Oh,…. I get it the other way too. In fact so much so I am always taking my temp, and it registers normal. I can even feel like I am burning up, and when I feel my cheeks they are hot. I’ve even taken my blood pressure during that time, and it isn’t high. Like I said there’s no rhyme or reason to all of this except the temp regulator system in the brain must be affected by autoimmune diseases. My hubby Steve has the same thing happening with him, and he has Lupus! Smiles, Jackie J From: MSersLife [mailto:MSersLife ] On Behalf Of TristaSent: Monday, April 10, 2006 3:16 PMTo: MSersLife Subject: Re: Tremors and Muscle Spasms Jackie, So, I'm not the only one then. I used to get those chill feelings on my head back in high school. I still do occasionally. It's interesting you say that you are "cold on the inside", when the outside is normal. I am the opposite. My temp can be normal, but I feel like I have a fever inside my head. Sounds weird. sigh.... I am "borderline" hypothyroidism, whatever the heck that's supposed to mean. Trista RE: Tremors and Muscle Spasms You are very welcomed! J I don’t get the tremors anymore, but in the earlier days I had a vibrating that seemed to come on nightly when I would go to bed. I didn’t know what to call it, and my Dr. seemed to think I was making stuff up. Now that I know the definition for tremors I am sure that is what it was. I don’t know if this is just a co-incidence or not, but once I started on my CPAP [breathing machine] the vibrating stopped. I am thinking lack of oxygen thru-out the day/night might have caused the vibrating. I really am not sure. Sleep Apnea which I probably had back then too, but didn’t know it, does strange things to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 My husband's name is Steve too. LOL. They tested me for Lupus, but I was told it takes years sometimes to show in blood work. My DH has a lot of the same sx's I do, but they are calling his peripheral neuropathy, because they don't really know what it is. Trista RE: Tremors and Muscle Spasms You are very welcomed! J I don’t get the tremors anymore, but in the earlier days I had a vibrating that seemed to come on nightly when I would go to bed. I didn’t know what to call it, and my Dr. seemed to think I was making stuff up. Now that I know the definition for tremors I am sure that is what it was. I don’t know if this is just a co-incidence or not, but once I started on my CPAP [breathing machine] the vibrating stopped. I am thinking lack of oxygen thru-out the day/night might have caused the vibrating. I really am not sure. Sleep Apnea which I probably had back then too, but didn’t know it, does strange things to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 See now n, this is what makes me sooooo mad at the Dr.s . I tell them about these sx's and they act like it can't be MS, or act like I'm just crazy! Trista RE: Tremors and Muscle Spasms You are very welcomed! J I don’t get the tremors anymore, but in the earlier days I had a vibrating that seemed to come on nightly when I would go to bed. I didn’t know what to call it, and my Dr. seemed to think I was making stuff up.. Now that I know the definition for tremors I am sure that is what it was. I don’t know if this is just a co-incidence or not, but once I started on my CPAP [breathing machine] the vibrating stopped. I am thinking lack of oxygen thru-out the day/night might have caused the vibrating. I really am not sure. Sleep Apnea which I probably had back then too, but didn’t know it, does strange things to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Sounds pretty familiar to me! Love to you, Akiba, and to all on our list who have these "multiple surprises!" n RE: Tremors and Muscle Spasms You are very welcomed! J I don’t get the tremors anymore, but in the earlier days I had a vibrating that seemed to come on nightly when I would go to bed. I didn’t know what to call it, and my Dr. seemed to think I was making stuff up.. Now that I know the definition for tremors I am sure that is what it was. I don’t know if this is just a co-incidence or not, but once I started on my CPAP [breathing machine] the vibrating stopped. I am thinking lack of oxygen thru-out the day/night might have caused the vibrating. I really am not sure. Sleep Apnea which I probably had back then too, but didn’t know it, does strange things to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 The Dr. called my Steve’s lupus “smoldering”, meaning he has a high ANA but none of the other lupus markers. He said he has several other patients with the same arthritic symptoms as Steve, but no organ involvement. So he calls it smoldering. I am not sure he has it, but whatever he does have he and I share many same symptoms. His sister has Lupus, and an Aunt had MS. No one in my family had either, so I am still wondering how I got MS, when there is a predisposition in his family but not mine?? Lol…. It makes life interesting with having a mate sick too, doesn’t it? Smiles, Jackie From: MSersLife [mailto:MSersLife ] On Behalf Of Trista Sent: Monday, April 10, 2006 4:21 PM To: MSersLife Subject: Re: Tremors and Muscle Spasms My husband's name is Steve too. LOL. They tested me for Lupus, but I was told it takes years sometimes to show in blood work. My DH has a lot of the same sx's I do, but they are calling his peripheral neuropathy, because they don't really know what it is. Trista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 Jackie, I hate that he has these problems too, but he understands me much better. He always know when I'm hurting, even when I'm trying to pretend I'm not. Trista RE: Tremors and Muscle Spasms The Dr. called my Steve’s lupus “smoldering”, meaning he has a high ANA but none of the other lupus markers. He said he has several other patients with the same arthritic symptoms as Steve, but no organ involvement. So he calls it smoldering. I am not sure he has it, but whatever he does have he and I share many same symptoms. His sister has Lupus, and an Aunt had MS. No one in my family had either, so I am still wondering how I got MS, when there is a predisposition in his family but not mine?? Lol…. It makes life interesting with having a mate sick too, doesn’t it? Smiles, Jackie From: MSersLife [mailto:MSersLife ] On Behalf Of TristaSent: Monday, April 10, 2006 4:21 PMTo: MSersLife Subject: Re: Tremors and Muscle Spasms My husband's name is Steve too. LOL. They tested me for Lupus, but I was told it takes years sometimes to show in blood work. My DH has a lot of the same sx's I do, but they are calling his peripheral neuropathy, because they don't really know what it is. Trista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2006 Report Share Posted April 11, 2006 http://www.lupus.org/education/brochures/labtests.html - lupus diagnosis data Jackie and Trista, I always dread having them due the ANA markers AGAIN! Mine are always at the site, yet my arthritis and rheutoid problems are clearly not lupus. One of my children has the same markers, and at nearly 43, has not had a symptom nor other indicator yet! I can only hope that this may be the case, or close to it, for Steve! There are other tests they can do to indentify Lupus; in our family, those tests do NOT indicate it. Love to all who are coping with any degree of this. Love, n RE: Tremors and Muscle Spasms The Dr. called my Steve’s lupus “smoldering”, meaning he has a high ANA but none of the other lupus markers. He said he has several other patients with the same arthritic symptoms as Steve, but no organ involvement. So he calls it smoldering. I am not sure he has it, but whatever he does have he and I share many same symptoms. His sister has Lupus, and an Aunt had MS. No one in my family had either, so I am still wondering how I got MS, when there is a predisposition in his family but not mine?? Lol…. It makes life interesting with having a mate sick too, doesn’t it? Smiles, Jackie From: MSersLife [mailto:MSersLife ] On Behalf Of TristaSent: Monday, April 10, 2006 4:21 PMTo: MSersLife Subject: Re: Tremors and Muscle Spasms My husband's name is Steve too. LOL. They tested me for Lupus, but I was told it takes years sometimes to show in blood work. My DH has a lot of the same sx's I do, but they are calling his peripheral neuropathy, because they don't really know what it is. Trista No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.384 / Virus Database: 268.4.1/307 - Release Date: 4/10/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 My ANA has always been normal. Steve’s sister has Lupus, and the Dr. said if a family member has an abnormal level, then other members could have high levels and still not have any illness. I don’t understand that at all? Smiles Jackie J From: MSersLife [mailto:MSersLife ] On Behalf Of n Rojas Sent: Monday, April 10, 2006 10:28 PM To: MSersLife Subject: Re: Tremors and Muscle Spasms http://www.lupus.org/education/brochures/labtests.html - lupus diagnosis data Jackie and Trista, I always dread having them due the ANA markers AGAIN! Mine are always at the site, yet my arthritis and rheutoid problems are clearly not lupus. One of my children has the same markers, and at nearly 43, has not had a symptom nor other indicator yet! I can only hope that this may be the case, or close to it, for Steve! There are other tests they can do to indentify Lupus; in our family, those tests do NOT indicate it. Love to all who are coping with any degree of this. Love, n Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 I am not sure that I "understand" it fully, but I do KNOW that I have family members with Lupus, that I have very high ANA titres, and that I do NOT have Lupus--not a chance; takes MORE than high ANA titres, many other factors to have Lupus! That is just the beginning test. We have all had it done; one of my adult children also has very high ANA titres, no sign of LUPUS--none. We all carry fragments of markers for many diseases but do not have them. Love, n Rojas RE: Tremors and Muscle Spasms My ANA has always been normal. Steve’s sister has Lupus, and the Dr. said if a family member has an abnormal level, then other members could have high levels and still not have any illness. I don’t understand that at all? Smiles Jackie J From: MSersLife [mailto:MSersLife ] On Behalf Of n RojasSent: Monday, April 10, 2006 10:28 PMTo: MSersLife Subject: Re: Tremors and Muscle Spasms http://www.lupus.org/education/brochures/labtests.html - lupus diagnosis data Jackie and Trista, I always dread having them due the ANA markers AGAIN! Mine are always at the site, yet my arthritis and rheutoid problems are clearly not lupus. One of my children has the same markers, and at nearly 43, has not had a symptom nor other indicator yet! I can only hope that this may be the case, or close to it, for Steve! There are other tests they can do to indentify Lupus; in our family, those tests do NOT indicate it. Love to all who are coping with any degree of this. Love, n No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.384 / Virus Database: 268.4.1/309 - Release Date: 4/11/2006 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.