Guest guest Posted January 6, 2000 Report Share Posted January 6, 2000 i have a bunch of spinal tumors, some that have been there for years....ive also had a bunch of surgeries to remove some of them i have MRI's every 6 months of both head and spine, the doc seems to monitor them and if theyre not causing problems just leaves them, but we do watch them closely to see if they get bigger or whatever one tumor they found a while back, i dont even remember when, they were very definate that they couldnt remove it for its in the spinal cord, i searched out other options but decided to just push it in the back of my mind and not deal with it....now my hands are getting weaker and weaker (i cant even open things on my own any more and pats kitchen floor got a pot full of noodles dropped on it the other day!) anyway the tumor is causing problems and its time to take it out, surgery is soon and the outcome i hope will be positive Jimmy, I would suggest a second opinion or to seek out another doctor, but if you really like your doctor, thats another story. I love my doctor and have had him for over 10 years and only trust his judgement and his hands for surgeries. caren ~ who kinda babbled on and on there, sorry if it doesnt make sense Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2000 Report Share Posted January 6, 2000 Hi Crew I dont have any experience with spinal tumors(although I do have 1 or more),so I need to ask a question Ok,first off,here is what's going on.I have had minor pain in my right leg for over a year,I've told my neuro about it and he says " can you live with this pain " (yes), " then don't worry about it " .I'm in no hurry to have spinal surgery,so I took his advice.The level of pain hasn't changed,but it has spread further down the leg,I had my annual mri Monday,this is the third apointment I've had since mentioning my leg,My neuro did not even have my spine scanned nor ask me about my leg.My homecare nurse was with me,she sees me limp or grab my leg once in awhile,she could not believe him.I told her " he knows about it,what can I do " She wants me to dump him(can't tell you her exact words:-).I was just wondering if any Crew member could tell me When is it time to get a spinal tumor out?All I have is bearable pain,should I look into surgery or " live with it " I mean,hey I'll live with it,but the nurse NOT THE DR says I'll have a better chance at " no permanent damage if I fix it now.Anybody with personal experience have advice? Jimmy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2000 Report Share Posted January 7, 2000 Jimmy Even if the doc dont want to take it out they should still be monitering it (regular MRI's of the spine). I say dump him too. Jeff Wurst spinal tumor advice Hi Crew I dont have any experience with spinal tumors(although I do have 1 or more),so I need to ask a question Ok,first off,here is what's going on.I have had minor pain in my right leg for over a year,I've told my neuro about it and he says " can you live with this pain " (yes), " then don't worry about it " .I'm in no hurry to have spinal surgery,so I took his advice.The level of pain hasn't changed,but it has spread further down the leg,I had my annual mri Monday,this is the third apointment I've had since mentioning my leg,My neuro did not even have my spine scanned nor ask me about my leg.My homecare nurse was with me,she sees me limp or grab my leg once in awhile,she could not believe him.I told her " he knows about it,what can I do " She wants me to dump him(can't tell you her exact words:-).I was just wondering if any Crew member could tell me When is it time to get a spinal tumor out?All I have is bearable pain,should I look into surgery or " live with it " I mean,hey I'll live with it,but the nurse NOT THE DR says I'll have a better chance at " no permanent damage if I fix it now.Anybody with personal experience have advice? Jimmy ---------------------------------------------------------------------------- -- See what's happening for NF2Con 2000! http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
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