Guest guest Posted March 31, 2006 Report Share Posted March 31, 2006 Hi everyone! I have a few questions and I don't really feel like I can talk about it with anyone else because I don't feel like anyone else will understand. I am not diagnosed with MS but my neurologist is suspecting it and so am I. First of all is my pain, no one seems to get it! It is pretty much in my left hip and sometimes my left leg. I don't even really know how to explain it but it is SO intense it leaves me in tears often. It seems to get worse as the day progresses. Is this normal or anyone else experience it? I'm working up to 2700mg of gabapentin a day..I'm hoping this is going to help. The pain was jsut getting worse and I needed something for short term and I talked to the nurse at my neuro's office and she said they won't presribe anything unless they see me. So I said get me in ASAP and they said that they couldn't! and I don't have an appointment until the middle of May! She told me to call my reg. doc. and he was reluctant to prescribe anything over the phone(I live 5 hours away from my doc and my neuro because of school)...but he came through...thank goodness! I feel guilty if I have to take the pain med. Has anyone else had that problem? Not only that but some of my friends make me feel guilty for taking it (and I've only taken it once)! I'm so frustrated with my pain. The pain level just depends on the day. Anyone have any suggestions on how to help the pain other than medications? Also, this may seem like a silly question, but...can an exacerbation be less severe than a previous one? I think that's all for now. I'm so glad that I have a place that I can vent (and hopefully make some friends too) to people who understand the frustration. Thanks all! -Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2006 Report Share Posted April 1, 2006 Those "friends" have not walked in YOUR shoes! Hang in there, and do NOT let them make YOU feel (unfustifiably) guilty! Love to you, n Pain! Ouch! Hi everyone!I have a few questions and I don't really feel like I can talk about it with anyone else because I don't feel like anyone else will understand. I am not diagnosed with MS but my neurologist is suspecting it and so am I. First of all is my pain, no one seems to get it! It is pretty much in my left hip and sometimes my left leg. I don't even really know how to explain it but it is SO intense it leaves me in tears often. It seems to get worse as the day progresses. Is this normal or anyone else experience it? I'm working up to 2700mg of gabapentin a day..I'm hoping this is going to help. The pain was jsut getting worse and I needed something for short term and I talked to the nurse at my neuro's office and she said they won't presribe anything unless they see me. So I said get me in ASAP and they said that they couldn't! and I don't have an appointment until the middle of May! She told me to call my reg. doc. and he was reluctant to prescribe anything over the phone(I live 5 hours away from my doc and my neuro because of school)...but he came through...thank goodness! I feel guilty if I have to take the pain med. Has anyone else had that problem? Not only that but some of my friends make me feel guilty for taking it (and I've only taken it once)! I'm so frustrated with my pain. The pain level just depends on the day. Anyone have any suggestions on how to help the pain other than medications? Also, this may seem like a silly question, but...can an exacerbation be less severe than a previous one? I think that's all for now. I'm so glad that I have a place that I can vent (and hopefully make some friends too) to people who understand the frustration. Thanks all! -Jen No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.384 / Virus Database: 268.3.4/299 - Release Date: 3/31/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2006 Report Share Posted April 1, 2006 Hi Jen: First let me tell you there are no "usuals" with MS pain. There are many people who don't have pain but there are many who do to varying degrees. You need a doctor who understands. They used to say there was no pain with MS and some doctors still believe that. Incredible, isn't it? What pain med are you taking? Please don't feel guilty about taking something for your pain. I went through the same thing with a family member. He didn't want me to get addicted to pain medication. I tried to not take it (hydrocodone) and really suffered. Finally I talked it over with my doctor. Maybe you could do the same with your doctor? Our conversation did help and I now take it when I need it. There are days I don't take any and then other days I take it several times. I'm assuming the doctor who prescribed the pain meds as well as the gabapentin (Neurontin) are the doc who is 5 hours away? Is the Neurontin helping and what was the reason it was prescribed? For me hydrocodone works on some of my pain. Then other pain is helped by Baclofen. I'm glad you wrote. Please hang in there. Sharonjmort21185 wrote: Hi everyone!I have a few questions and I don't really feel like I can talk about it with anyone else because I don't feel like anyone else will understand. I am not diagnosed with MS but my neurologist is suspecting it and so am I. First of all is my pain, no one seems to get it! It is pretty much in my left hip and sometimes my left leg. I don't even really know how to explain it but it is SO intense it leaves me in tears often. It seems to get worse as the day progresses. Is this normal or anyone else experience it? I'm working up to 2700mg of gabapentin a day..I'm hoping this is going to help. The pain was jsut getting worse and I needed something for short term and I talked to the nurse at my neuro's office and she said they won't presribe anything unless they see me. So I said get me in ASAP and they said that they couldn't! and I don't have an appointment until the middle of May! She told me to call my reg. doc. and he was reluctant to prescribe anything over the phone(I live 5 hours away from my doc and my neuro because of school)...but he came through...thank goodness! I feel guilty if I have to take the pain med. Has anyone else had that problem? Not only that but some of my friends make me feel guilty for taking it (and I've only taken it once)! I'm so frustrated with my pain. The pain level just depends on the day. Anyone have any suggestions on how to help the pain other than medications? Also, this may seem like a silly question, but...can an exacerbation be less severe than a previous one? I think that's all for now. I'm so glad that I have a place that I can vent (and hopefully make some friends too) to people who understand the frustration. Thanks all! -Jen Sharon (MSersLife creator/owner) “One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2006 Report Share Posted April 1, 2006 Hi Just to refresh everybody, since I have only posted once, I was diagnosed with Cramp-Fascilation Syndrome and not MS. I have been hanging out here since it looks like I have similar issues as people with MS and I cannot find a forum that is for people with CFS. Almost none of my family and friends understands that some days are a struggle or that I am stiff and sore all the the time. Pain is also one of the symptoms I have. One person in my office has a mother with MS and he understands everything that I am experiencing. This is how I have been dealing with non-neurologicaly impaired persons. I ignore their comments and do not care what they think. This is hard to do with family, but I cannot control their thoughts. There is one family member and one person I work with that goes out of their way to demonstrate their ignorance. This usually occurs when I am exhibiting outward symptoms. I just suck it up and let it go. I can only control what I do, so take my medication and slow down when I have to. If somebody else has a problem with that, so be it. > > Hi everyone! > I have a few questions and I don't really feel like I can talk about > it with anyone else because I don't feel like anyone else will > understand. I am not diagnosed with MS but my neurologist is > suspecting it and so am I. First of all is my pain, no one seems to > get it! It is pretty much in my left hip and sometimes my left > leg. I don't even really know how to explain it but it is SO > intense it leaves me in tears often. It seems to get worse as the > day progresses. Is this normal or anyone else experience it? I'm > working up to 2700mg of gabapentin a day..I'm hoping this is going > to help. The pain was jsut getting worse and I needed something for > short term and I talked to the nurse at my neuro's office and she > said they won't presribe anything unless they see me. So I said get > me in ASAP and they said that they couldn't! and I don't have an > appointment until the middle of May! She told me to call my reg. > doc. and he was reluctant to prescribe anything over the phone(I > live 5 hours away from my doc and my neuro because of school)...but > he came through...thank goodness! I feel guilty if I have to take > the pain med. Has anyone else had that problem? Not only that but > some of my friends make me feel guilty for taking it (and I've only > taken it once)! I'm so frustrated with my pain. The pain level > just depends on the day. Anyone have any suggestions on how to help > the pain other than medications? Also, this may seem like a silly > question, but...can an exacerbation be less severe than a previous > one? I think that's all for now. I'm so glad that I have a place > that I can vent (and hopefully make some friends too) to people who > understand the frustration. Thanks all! > -Jen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2006 Report Share Posted April 1, 2006 Dear , no problem here. I welcome learning about your condition, and feel nothing but pity for those who lack compassion--they are the ultimate sufferers! I consider you very welcome here, and hope to learn more about your condition, which one of my first cousin's has as well. Thank you for putting up with us. We do try, love, n Rojas, with MS and a really odd muscle cramping problem! Re: Pain! Ouch! HiJust to refresh everybody, since I have only posted once, I wasdiagnosed with Cramp-Fascilation Syndrome and not MS. I have beenhanging out here since it looks like I have similar issues as peoplewith MS and I cannot find a forum that is for people with CFS.Almost none of my family and friends understands that some days are astruggle or that I am stiff and sore all the the time. Pain is alsoone of the symptoms I have. One person in my office has a mother withMS and he understands everything that I am experiencing. This is how I have been dealing with non-neurologicaly impairedpersons. I ignore their comments and do not care what they think. This is hard to do with family, but I cannot control their thoughts. There is one family member and one person I work with that goes out oftheir way to demonstrate their ignorance. This usually occurs when Iam exhibiting outward symptoms. I just suck it up and let it go. Ican only control what I do, so take my medication and slow down when Ihave to. If somebody else has a problem with that, so be it. >> Hi everyone!> I have a few questions and I don't really feel like I can talk about > it with anyone else because I don't feel like anyone else will > understand. I am not diagnosed with MS but my neurologist is > suspecting it and so am I. First of all is my pain, no one seems to > get it! It is pretty much in my left hip and sometimes my left > leg. I don't even really know how to explain it but it is SO > intense it leaves me in tears often. It seems to get worse as the > day progresses. Is this normal or anyone else experience it? I'm > working up to 2700mg of gabapentin a day..I'm hoping this is going > to help. The pain was jsut getting worse and I needed something for > short term and I talked to the nurse at my neuro's office and she > said they won't presribe anything unless they see me. So I said get > me in ASAP and they said that they couldn't! and I don't have an > appointment until the middle of May! She told me to call my reg. > doc. and he was reluctant to prescribe anything over the phone(I > live 5 hours away from my doc and my neuro because of school)...but > he came through...thank goodness! I feel guilty if I have to take > the pain med. Has anyone else had that problem? Not only that but > some of my friends make me feel guilty for taking it (and I've only > taken it once)! I'm so frustrated with my pain. The pain level > just depends on the day. Anyone have any suggestions on how to help > the pain other than medications? Also, this may seem like a silly > question, but...can an exacerbation be less severe than a previous > one? I think that's all for now. I'm so glad that I have a place > that I can vent (and hopefully make some friends too) to people who > understand the frustration. Thanks all! > -Jen> No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.384 / Virus Database: 268.3.4/299 - Release Date: 3/31/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2006 Report Share Posted April 1, 2006 - About the only thing you can do about other people lack of consideration and compassion, is to just hold your head up and keep going forward. I have MS, but I understand what it's like to be around people who don't have a clue. They are usually the ones with all the answers. I quit trying to explain along time ago. Now, if they want to think I'm lazy or mentally impaired, I let them. Yes, my feelings get hurt, but I know the truth. I am sorry you are dealing with CFS. As far as I'm concerned, you are welcome to come here to vent, talk, share, or add to this group. May God bless you... -- Re: Re: Pain! Ouch! Dear , no problem here. I welcome learning about your condition, and feel nothing but pity for those who lack compassion--they are the ultimate sufferers! I consider you very welcome here, and hope to learn more about your condition, which one of my first cousin's has as well. Thank you for putting up with us. We do try, love, n Rojas, with MS and a really odd muscle cramping problem! Re: Pain! Ouch! HiJust to refresh everybody, since I have only posted once, I wasdiagnosed with Cramp-Fascilation Syndrome and not MS. I have beenhanging out here since it looks like I have similar issues as peoplewith MS and I cannot find a forum that is for people with CFS.Almost none of my family and friends understands that some days are astruggle or that I am stiff and sore all the the time. Pain is alsoone of the symptoms I have. One person in my office has a mother withMS and he understands everything that I am experiencing. This is how I have been dealing with non-neurologicaly impairedpersons. I ignore their comments and do not care what they think. This is hard to do with family, but I cannot control their thoughts. There is one family member and one person I work with that goes out oftheir way to demonstrate their ignorance. This usually occurs when Iam exhibiting outward symptoms. I just suck it up and let it go. Ican only control what I do, so take my medication and slow down when Ihave to. If somebody else has a problem with that, so be it. >> Hi everyone!> I have a few questions and I don't really feel like I can talk about > it with anyone else because I don't feel like anyone else will > understand. I am not diagnosed with MS but my neurologist is > suspecting it and so am I. First of all is my pain, no one seems to > get it! It is pretty much in my left hip and sometimes my left > leg. I don't even really know how to explain it but it is SO > intense it leaves me in tears often. It seems to get worse as the > day progresses. Is this normal or anyone else experience it? I'm > working up to 2700mg of gabapentin a day..I'm hoping this is going > to help. The pain was jsut getting worse and I needed something for > short term and I talked to the nurse at my neuro's office and she > said they won't presribe anything unless they see me. So I said get > me in ASAP and they said that they couldn't! and I don't have an > appointment until the middle of May! She told me to call my reg. > doc. and he was reluctant to prescribe anything over the phone(I > live 5 hours away from my doc and my neuro because of school)...but > he came through...thank goodness! I feel guilty if I have to take > the pain med. Has anyone else had that problem? Not only that but > some of my friends make me feel guilty for taking it (and I've only > taken it once)! I'm so frustrated with my pain. The pain level > just depends on the day. Anyone have any suggestions on how to help > the pain other than medications? Also, this may seem like a silly > question, but...can an exacerbation be less severe than a previous > one? I think that's all for now. I'm so glad that I have a place > that I can vent (and hopefully make some friends too) to people who > understand the frustration. Thanks all! > -Jen> No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.384 / Virus Database: 268.3.4/299 - Release Date: 3/31/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2006 Report Share Posted April 1, 2006 Hi Jen, I agree with Sharon 100 %. My doc told me never to apologize for my pain...it's a good rule of thumb for me. That's what it's prescribed for - when you have pain, take it, & when you don't, then don't. But you should never have to apologize for having to take something to ease your pain. I've had it bad in the past - I was on Neurontin, Oxycodone, Oxycontin plus muscle relaxants...now I'm off all of it except 10 mg. of Methadone when needed. (I had to go through a hard detox, though, but it was the way it had to be at the time). I feel better now - still have some pain in my L hip & leg, but it's manageable now with just a little Methadone. I think it's trial & error sometimes with this illness, but like she told me, "Never apologize for your pain or the MS" - you certainly didn't ask for it. Hang in there & best of luck to you. All my best kharma - debbie .> Hi everyone!> I have a few questions and I don't really feel like I can talk about > it with anyone else because I don't feel like anyone else will > understand. I am not diagnosed with MS but my neurologist is > suspecting it and so am I. First of all is my pain, no one seems to > get it! It is pretty much in my left hip and sometimes my left > leg. I don't even really know how to explain it but it is SO > intense it leaves me in tears often. It seems to get worse as the > day progresses. Is this normal or anyone else experience it? I'm > working up to 2700mg of gabapentin a day..I'm hoping this is going > to help. The pain was jsut getting worse and I needed something for > short term and I talked to the nurse at my neuro's office and she > said they won't presribe anything unless they see me. So I said get > me in ASAP and they said that they couldn't! and I don't have an > appointment until the middle of May! She told me to call my reg. > doc. and he was reluctant to prescribe anything over the phone(I > live 5 hours away from my doc and my neuro because of school)...but > he came through...thank goodness! I feel guilty if I have to take > the pain med. Has anyone else had that problem? Not only that but > some of my friends make me feel guilty for taking it (and I've only > taken it once)! I'm so frustrated with my pain. The pain level > just depends on the day. Anyone have any suggestions on how to help > the pain other than medications? Also, this may seem like a silly > question, but...can an exacerbation be less severe than a previous > one? I think that's all for now. I'm so glad that I have a place > that I can vent (and hopefully make some friends too) to people who > understand the frustration. Thanks all! > -Jen> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2006 Report Share Posted April 1, 2006 Hi ~ Sorry you have to go through what sounds like the same thing that we with MS go through on a daily basis & I'm with you all the way. Slow it down when you have to & don't let what others think weigh you down - it's only ignorance on their part. I have a son who has been with me for the 5 years since my dx & he has seen it all - from the best to the worst & back again. And yet he can still tell me that I use my sx's as excuses for not doing things...sometimes he's right, but sometimes it's no excuse - you really DO feel too lousy to do anything, or get out of bed, or go for a walk - or whatever....so even living with it for this long, sometimes even he (he's 19) doesn't understand the impact that pain & weakness can have on us. So ignorant, or totally informed, sometimes people who've never "walked a mile in our moccasins" just don't get it....but we do, so post more often! It's so nice to be able to vent this stuff - good for the soul...all my best to you - debbie> >> > Hi everyone!> > I have a few questions and I don't really feel like I can talk about > > it with anyone else because I don't feel like anyone else will > > understand. I am not diagnosed with MS but my neurologist is > > suspecting it and so am I. First of all is my pain, no one seems to > > get it! It is pretty much in my left hip and sometimes my left > > leg. I don't even really know how to explain it but it is SO > > intense it leaves me in tears often. It seems to get worse as the > > day progresses. Is this normal or anyone else experience it? I'm > > working up to 2700mg of gabapentin a day..I'm hoping this is going > > to help. The pain was jsut getting worse and I needed something for > > short term and I talked to the nurse at my neuro's office and she > > said they won't presribe anything unless they see me. So I said get > > me in ASAP and they said that they couldn't! and I don't have an > > appointment until the middle of May! She told me to call my reg. > > doc. and he was reluctant to prescribe anything over the phone(I > > live 5 hours away from my doc and my neuro because of school)...but > > he came through...thank goodness! I feel guilty if I have to take > > the pain med. Has anyone else had that problem? Not only that but > > some of my friends make me feel guilty for taking it (and I've only > > taken it once)! I'm so frustrated with my pain. The pain level > > just depends on the day. Anyone have any suggestions on how to help > > the pain other than medications? Also, this may seem like a silly > > question, but...can an exacerbation be less severe than a previous > > one? I think that's all for now. I'm so glad that I have a place > > that I can vent (and hopefully make some friends too) to people who > > understand the frustration. Thanks all! > > -Jen> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2006 Report Share Posted April 1, 2006 Hello Jen- I'm with Deborah on this one. It's very easy for other people to point fingers and judge when it's not their place in the first place. We all know the pain of MS. Do what you have to do to make yourself more comfortable. (As long as it's legal and doctor approved.) Then, even if it's not... I don't want to know. Shhhh. God bless.... -- Re: Pain! Ouch! Hi Jen, I agree with Sharon 100 %. My doc told me never to apologize for my pain...it's a good rule of thumb for me. That's what it's prescribed for - when you have pain, take it, & when you don't, then don't. But you should never have to apologize for having to take something to ease your pain. I've had it bad in the past - I was on Neurontin, Oxycodone, Oxycontin plus muscle relaxants...now I'm off all of it except 10 mg. of Methadone when needed. (I had to go through a hard detox, though, but it was the way it had to be at the time). I feel better now - still have some pain in my L hip & leg, but it's manageable now with just a little Methadone. I think it's trial & error sometimes with this illness, but like she told me, "Never apologize for your pain or the MS" - you certainly didn't ask for it. Hang in there & best of luck to you. All my best kharma - debbie .> Hi everyone!> I have a few questions and I don't really feel like I can talk about > it with anyone else because I don't feel like anyone else will > understand. I am not diagnosed with MS but my neurologist is > suspecting it and so am I. First of all is my pain, no one seems to > get it! It is pretty much in my left hip and sometimes my left > leg. I don't even really know how to explain it but it is SO > intense it leaves me in tears often. It seems to get worse as the > day progresses. Is this normal or anyone else experience it? I'm > working up to 2700mg of gabapentin a day..I'm hoping this is going > to help. The pain was jsut getting worse and I needed something for > short term and I talked to the nurse at my neuro's office and she > said they won't presribe anything unless they see me. So I said get > me in ASAP and they said that they couldn't! and I don't have an > appointment until the middle of May! She told me to call my reg. > doc. and he was reluctant to prescribe anything over the phone(I > live 5 hours away from my doc and my neuro because of school)...but > he came through...thank goodness! I feel guilty if I have to take > the pain med. Has anyone else had that problem? Not only that but > some of my friends make me feel guilty for taking it (and I've only > taken it once)! I'm so frustrated with my pain. The pain level > just depends on the day. Anyone have any suggestions on how to help > the pain other than medications? Also, this may seem like a silly > question, but...can an exacerbation be less severe than a previous > one? I think that's all for now. I'm so glad that I have a place > that I can vent (and hopefully make some friends too) to people who > understand the frustration. Thanks all! > -Jen> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2006 Report Share Posted April 2, 2006 Hi Sharon, The " short term " pain med prescribe by a reg doc (my primary wasn't in when I called)was Ultram...which has helped(I've only taken it a couple times). The gabapentin I've been on since the begining of March. This was prescribed for pain. It worked pretty well for awhile and then my pain really took a sharp increase-so my neuro upped the dose again and I'm finally at the full dose of 2700mg starting yesterday. (when the pain turn a sharp turn I asked my neuro's nurse if the neuro would give me something just to get me through this rough patch and well yeah..the rest was in the previous post. But I don't have an appointment with my neuro until May and she wouldn't precribe me anything without seeing me...how does this work??? Apparently I need to know how to jump through loops just to get help...do you have any recommendations on how else to handle the pain? I'm trying the best I can to live my life normally but I know I can't, I'm hoping this whatever it is, since I don't have a diagnosis, will soon pass as it has already been a month. But...any ideas on how to talk to my neuro and/or my primary doc (both are 5 hours away) or anything else would be greatly appreciated! Thanks for your help! Jen > Hi everyone! > I have a few questions and I don't really feel like I can talk about > it with anyone else because I don't feel like anyone else will > understand. I am not diagnosed with MS but my neurologist is > suspecting it and so am I. First of all is my pain, no one seems to > get it! It is pretty much in my left hip and sometimes my left > leg. I don't even really know how to explain it but it is SO > intense it leaves me in tears often. It seems to get worse as the > day progresses. Is this normal or anyone else experience it? I'm > working up to 2700mg of gabapentin a day..I'm hoping this is going > to help. The pain was jsut getting worse and I needed something for > short term and I talked to the nurse at my neuro's office and she > said they won't presribe anything unless they see me. So I said get > me in ASAP and they said that they couldn't! and I don't have an > appointment until the middle of May! She told me to call my reg. > doc. and he was reluctant to prescribe anything over the phone(I > live 5 hours away from my doc and my neuro because of school)...but > he came through...thank goodness! I feel guilty if I have to take > the pain med. Has anyone else had that problem? Not only that but > some of my friends make me feel guilty for taking it (and I've only > taken it once)! I'm so frustrated with my pain. The pain level > just depends on the day. Anyone have any suggestions on how to help > the pain other than medications? Also, this may seem like a silly > question, but...can an exacerbation be less severe than a previous > one? I think that's all for now. I'm so glad that I have a place > that I can vent (and hopefully make some friends too) to people who > understand the frustration. Thanks all! > -Jen > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 That well-known "MS HUG," possibly I get that--no action down below! n Rojas Re: Pain! Ouch! One day I was standing up inFront of my staff explaining how to do something when I had a wetFeeling running down my leg. I looked down, in mid sentence, to seeThat my leg was dry (thank God!). When I looked up everybody had aStrange look on their faces. I must have had a very strange look onMine. What do you say? "Sorry, I thought I just peed myself." > > --------------------------------- > YAHOO! GROUPS LINKS > > > Visit your group "MSersLife" on the web. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 I get wet sensations normally on the feet or hands, but sometimes on my arms and legs. I tend to have a problem telling the difference between wet and cold on my feet and hands. Sometimes the sharp pains are sometimes associated with twitching or jerking but never associated with the odd sensations. Pain is a minor component in my CFS and usually only occurs once or twice a day for a very brief time. Some days there is no pain at all. My sensations at this time are mostly a nuisance or sometimes even comical, at this time. The MS Hug is much more serious and I have not experienced it. The cramps, stiffness, fatigue, twitches and jerks, tremors, and poor coordination a bigger concern, but are not severe enough to keep me from doing most things. Medication has helped. I have CFS so any symptoms that I describe I am assuming are less severe than those who have MS. > > Hi , > Glad to see that you are posting. I can relate when you mention below about > sharp stabbing pain you get. I get this in my stomache so severe that I > actually almost called 911 one time. I can't move, talk am in fear waiting > for it to go away. It may last less than a minute. Seems like it happens > when my body is trying to tell me that I have to go to the restroom. Well.. > ..as you said below I was in your exact situation, I was talking to this > gentleman and was sitting down and had the horrifiying pain/cramp and all of > a sudden I thought that I went to the bathroom in my pants. I paniced and > appologized to him that I have to go to the restroom. To my total amazment > THIS TIME I was in total shock cuz I didn't have an accident and my body was > going through the motion like it was and I honestly thought that I had > trickling down my leg and I looked down. Anyway this was so weird cuz > usually when this happens, it is to late and lost control. Weird, my body > gave me the sensation that I actually peed/po po'd and I was about in tears. > Can't explain the pain and all. Hope things get better for you > Darlene > Kickin Cane Covers > www.canecovers.org > > > -- Re: Pain! Ouch! > > One day I was standing up in > Front of my staff explaining how to do something when I had a wet > Feeling running down my leg. I looked down, in mid sentence, to see > That my leg was dry (thank God!). When I looked up everybody had a > Strange look on their faces. I must have had a very strange look on > Mine. What do you say? " Sorry, I thought I just peed myself. " > > > > > > > --------------------------------- > > YAHOO! GROUPS LINKS > > > > > > Visit your group " MSersLife " on the web. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 I get minor spasms sometimes and I can get it to go away by taking Advil. My MS also goes nuts when I have a fever. I have no balance because of my MS so I use a walker all the time. Advil lower my fever quickly also. Once it has lowered I can move around again with no trouble. When I do get my fever I can't even crawl. Bill wrote: > I get wet sensations normally on the feet or hands, but sometimes on > my arms and legs. I tend to have a problem telling the difference > between wet and cold on my feet and hands. Sometimes the sharp pains > are sometimes associated with twitching or jerking but never > associated with the odd sensations. Pain is a minor component in my > CFS and usually only occurs once or twice a day for a very brief time. > Some days there is no pain at all. > > My sensations at this time are mostly a nuisance or sometimes even > comical, at this time. The MS Hug is much more serious and I have not > experienced it. The cramps, stiffness, fatigue, twitches and jerks, > tremors, and poor coordination a bigger concern, but are not severe > enough to keep me from doing most things. Medication has helped. I > have CFS so any symptoms that I describe I am assuming are less severe > than those who have MS. > > > > > > > > > Hi , > > Glad to see that you are posting. I can relate when you mention > below about > > sharp stabbing pain you get. I get this in my stomache so severe that I > > actually almost called 911 one time. I can't move, talk am in fear > waiting > > for it to go away. It may last less than a minute. Seems like it > happens > > when my body is trying to tell me that I have to go to the restroom. > Well.. > > ..as you said below I was in your exact situation, I was talking to this > > gentleman and was sitting down and had the horrifiying pain/cramp > and all of > > a sudden I thought that I went to the bathroom in my pants. I > paniced and > > appologized to him that I have to go to the restroom. To my total > amazment > > THIS TIME I was in total shock cuz I didn't have an accident and my > body was > > going through the motion like it was and I honestly thought that I had > > trickling down my leg and I looked down. Anyway this was so weird cuz > > usually when this happens, it is to late and lost control. Weird, > my body > > gave me the sensation that I actually peed/po po'd and I was about > in tears. > > > > > Can't explain the pain and all. Hope things get better for you > > Darlene > > Kickin Cane Covers > > www.canecovers.org > > > > > > -- Re: Pain! Ouch! > > > > One day I was standing up in > > Front of my staff explaining how to do something when I had a wet > > Feeling running down my leg. I looked down, in mid sentence, to see > > That my leg was dry (thank God!). When I looked up everybody had a > > Strange look on their faces. I must have had a very strange look on > > Mine. What do you say? " Sorry, I thought I just peed myself. " > > > > > > > > > > > > --------------------------------- > > > YAHOO! GROUPS LINKS > > > > > > > > > Visit your group " MSersLife " on the web. > > > > > > Quote Link to comment Share on other sites More sharing options...
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