extra pain doc visit

[Guest guest]

I called my pain doc's office this morning when my arm was killing me when I was

using the computer, and then when I got up, my foot was SO painful I could

barely walk. He said that I needed to come in, so my hubby drove me over this

afternoon.

Of course, pain doc has no idea why my pain levels are through the roof. On

top of the problems with the arm and foot, I'm having a ton of breakthrough face

pain from the trigeminal neuralgia. I'm rationing my Fentoras, otherwise I won't

have enough to get my through the month. Basically, I'm totally miserable.

He switched me from hydrocodone 7.5 mg to oxycodone 15 mg. I can't remember if

I'd ever taken oxycodone before or if I had bad side-effects from it, but I'm

more than willing to give this a try. He also said to give the Cymbalta another

week to get into my system to see if that helps, otherwise I may have to go back

on Lyrica, which helped some but gave me edema. Incredibly, that was the only

anti-seizure med I could tolerate at all. Neurontin made me psychotic, trileptal

had me slurring like a drunk on a pediatric dose, gabitril made me nauseated and

gave me a rash.

Pain doc also said that I need to go see an ortho for my foot and arm, as the

pain is so widespread that he doesn't even want to venture a guess as to where

to inject some cortisone. As surgery is out of the question, he said that I need

to get an ortho to work with me on alternative treatments for the recurring

neuropathies. So tomorrow I'll put a call in to the foot guy I saw for a second

opinion after my surgery made things worse, not better, as he seemed decent

enough. I also need to call the neuro for the results of my CPAP study and to

find out when I can get my own machine.

Too much going on, and I'm just not up to handling all of this right now. The

pain is too intense, and I just want to lay down, pull the covers over my head,

and have myself a good cry. And in the meantime, my hubby is convinced that

every single doc I see is a snake-oil salesman, as I continue to have pain. I

know he's speaking from frustration, but I really don't need to hear it anymore.

Guess he needs to vent every now and then too, though. I sure vent often enough.

Please, if it doesn't hurt for you to cross your fingers, do so for me so that

the oxycodone helps the pain.

Hugs,

a

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[Guest guest]

Dear a

I am so sorry you are in so much pain. Surely your Doctor will work with you

to get you back to a " comfortable as possible " point again soon. I, myself, am

not familiar with the problems you wrote about but I do know how frustrating it

is to be in pain that nothing seems to help.

I am just now getting to a point where I can say I am " comfortable " and it

isn't consist ant yet so I still have a few bad days a week. On top of that I

have a " cycle " coming and since the Fibromyalgia has set in, they are

excruciatingly painful. I hate knowing its coming almost as much as when it

happens out of the blue! (The pain I mean)

My husband is also like yours, frustrated in not being able to help or fix me.

To see me in pain all the time is as tough on him sometimes as it is on me! Let

him vent, get it out of his system, he will calm down again! My husband has a

harder time dealing with my memory loss - he can NEVER find anything. I used to

be the " finder of all lost things " in my house and now, I am lucky if I remember

if I mailed out a bill or not. Scary!

Anyway, I hope your new medications work well for you and get you some relief.

Just remember, it will take some time so be patient and try to relax!

Best wishes

Tammy