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Thanks for your help with the " accept no comfort " comment. It helped me first

by giving me a more objective sense of it, and second by clueing me in to

some issues I hadn't gotten to yet. Like how my friends have to adjust, too.

I didn't have enough trouble with interpersonal relationships before the

diagnosis?...you know, this EDS is a real pain.

L, Mark

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Hi Mark,

I am sorry you are being hurt by your friends as well as the EDS. My

standard comment is " some days are better than others " to those who know

me well, or the standard " Fine " .

> I didn't have enough trouble with interpersonal relationships before the

> diagnosis?...you know, this EDS is a real pain.

Since going off ill from work 4 years ago, I have not kept up with work

colleagues at all. I now have a different circle of friends and those

who really know me know how well I am by whether I am with them or not,

as the case may be. If I get to a meeting or a group to which I belong,

it must be a reasonable day. On bad days I give my apologies for

absence and go to bed.

Yes, EDS sucks!!!

Love,

Lilian.

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