Hi

[Guest guest]

Everybody,

I still don't have a diagnosis of MS. I have other

strange things going on that only seem to confuse the

doctors. Like the mystery rash earlier this winter.

Last weekend, I felt this really strange sensation

around the base of one of my toes. It almost felt as

though a string had been wrapped around the toe and

the ends of the string pulled tight. I began pinching

my toe to try and get rid of the sensation. Then I

realized that I couldn't feel my fingers pinching my

toe. It was like my toe was dead or partly dead. So

far it has not changed color but I've been checking

and the toe is still numb. Only that one toe.

I don't know what to make of it.

Donna in WA

It does not require many words to speak the truth.

--Chief ph

__________________________________________________

[Guest guest]

Just a guess: very early beginning of Multiple Sclerosis! Just do not feel

guilty about being on our list. We are all too familiar with those who wait,

and wait, and wait, and all of a sudden, there is the diagnosis, or something

very similar to it! You are always welcome here. Highest hopes, n Rojas

Hi

Everybody,I still don't have a diagnosis of MS. I have otherstrange things going on that only seem to confuse thedoctors. Like the mystery rash earlier this winter.Last weekend, I felt this really strange sensationaround the base of one of my toes. It almost felt asthough a string had been wrapped around the toe andthe ends of the string pulled tight. I began pinchingmy toe to try and get rid of the sensation. Then Irealized that I couldn't feel my fingers pinching mytoe. It was like my toe was dead or partly dead. Sofar it has not changed color but I've been checkingand the toe is still numb. Only that one toe. I don't know what to make of it.Donna in WAIt does not require many words to speak the truth.--Chief ph__________________________________________________

[Guest guest]

> Stephan wrote: " i currently take both Cymbalta and neurontin 100mg and

> 300mg

> respectivly once a day, but they dont seem to be doing anything

> besides just

> being another set of multiple pills I take every day, "

a/

You are so right when you say don't give up. I use the Provigel when I

need it and my doctor is going to change me to Fentora in place of

actiqu. I had to take the Neurontin 600 mg at night because of the

fogginess it causes. The topamax is dopamax to me and I had to get off

it but have it if I need it. So I had to titer my medications. We

titer them up when I need it and down if I can.

This is done with my pain psychiatrist assessment. I also have

oxcodone for breakthrough, and something for sleep if I need it.

This is essential with pain patients as we never know when we have

flare-ups and when we do it effects other organs in my body.

When my pain is up, my blood pressure goes up and 200/104 is not a

good blood pressure to maintain. When I have pain relief it is

136/84. They have now recognized blood pressure as an indicator for

pain assessment. Good doctors have known this all along. I don't show

pain by whining or groaning. (Like we do this) My doctor says Bennie

you dress well, put your make up on, and sometimes if doctors don't

know you, would assess you in less pain as you know you are.

Those of us that say OK or fine when we go to our pain doctors or

doctors do ourselves a disservice. Now I say, I feel like if you touch

me I would like to take a baseball bat and hit you all over and then me

ask you how I am doing. That is my remark for my fibromylagia pain.

For my SI pain I say, let me put a knife in your butt and you walk

around all day with it sticking you and sitting on it when you sit

down, For my pain when it is really bad, I say: Just put me in the

coffin, collect the insurance money as the way I feel now I am just a

burden for everyone, and I just would like to go to sleep and not wake

up.

My doctors understand that. I am sure we all could come up with

remarks to describe our pain, please share them as I am running out of

new descriptors. It would be good for all us and I need new input.

Remarks anyone?

Bennie