Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 I would ask how the 24 hour urine test compared to previous tests. Also ask what his serum creatinine and BUN are, or even better, ask for a copy of the lab report. That way, you can let the group know certain areas where you have questions, if you chose. Plus, you can keep it for your records. I always do this. Marty, also in So Cal. questions for neph? Hi all.........my son has his appointment with his neph tomorrow. As always, approx. 1 week prior to his appointment he does a 24 hr. urine collection and blood work. As I have mentioned before the only thing that we have judged my son's progress on is his protein loss but now (since belonging to this group) I know there is much more to keep track of. Could someone provide me with some questions I should ask the doctor? I have wrote down a couple but would appreciate some input on the exact things I should ask about. Thanks for the help. Debbie Anaheim, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 Also, just in general, ask how your son is doing. Out of curiosity, how were his last labs? Marty questions for neph? Hi all.........my son has his appointment with his neph tomorrow. As always, approx. 1 week prior to his appointment he does a 24 hr. urine collection and blood work. As I have mentioned before the only thing that we have judged my son's progress on is his protein loss but now (since belonging to this group) I know there is much more to keep track of. Could someone provide me with some questions I should ask the doctor? I have wrote down a couple but would appreciate some input on the exact things I should ask about. Thanks for the help. Debbie Anaheim, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 You might also want to ask about his blood pressure. Although I have to admit I haven't always done it myself, but, I agree with Marty that if you can, it can be useful to keep copies of his lab results. They are usually on one or two sheets. It wouldn't hurt to ask what the plan is for the future, in terms of treatment, diet, exercise. Pierre Re: questions for neph? > I would ask how the 24 hour urine test compared to previous tests. Also ask what his serum creatinine and BUN are, or even better, ask for a copy of the lab report. That way, you can let the group know certain areas where you have questions, if you chose. Plus, you can keep it for your records. I always do this. > > Marty, also in So Cal. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Thanks Pierre & Marty...........we are on our way out to the doctor. I have 2 pages of questions including the one's recommended by the 2 of you. You may be getting a lengthy report back from me later on :- ) Debbie Pierre wrote: > You might also want to ask about his blood pressure. Although I have to > admit I haven't always done it myself, but, I agree with Marty that if you > can, it can be useful to keep copies of his lab results. They are usually on > one or two sheets. > > It wouldn't hurt to ask what the plan is for the future, in terms of > treatment, diet, exercise. > > Pierre > > Re: questions for neph? > > > I would ask how the 24 hour urine test compared to previous tests. Also > ask what his serum creatinine and BUN are, or even better, ask for a copy of > the lab report. That way, you can let the group know certain areas where you > have questions, if you chose. Plus, you can keep it for your records. I > always do this. > > > > Marty, also in So Cal. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 To be honest with you Marty, I don't know how his last lab results were with the exception of his protein loss which was around 7500 mg (24 hr.) . I'll be asking today for the results from this last test and the previous one..........again, thanks for your input. Debbie Marty Hall wrote: > Also, just in general, ask how your son is doing. Out of curiosity, how were his last labs? > > Marty > questions for neph? > > Hi all.........my son has his appointment with his neph tomorrow. As > always, approx. 1 week prior to his appointment he does a 24 hr. urine > collection and blood work. As I have mentioned before the only thing > that we have judged my son's progress on is his protein loss but now > (since belonging to this group) I know there is much more to keep track > of. Could someone provide me with some questions I should ask the > doctor? I have wrote down a couple but would appreciate some input on > the exact things I should ask about. Thanks for the help. > > Debbie > Anaheim, CA > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Good luck with the appointment. It will be interesting to see what kind of answers you get. My neph is usually good for about 3 questions maximum per visit : ) Pierre Re: questions for neph? > Thanks Pierre & Marty...........we are on our way out to the doctor. I have 2 > pages of questions including the one's recommended by the 2 of you. You may be > getting a lengthy report back from me later on :- ) > Debbie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Hello........Info on doctor's visit for my son : protein loss 24 hr. - Jan. 2002/4223 mg. ......April 2002/3140 mg. ........ Serum Creatinine - Jan./0.7..... April/0.2 ........BUN is 13 Things that are good, even though has heavy protein loss, he has no swelling and never has had any. He has never had a blood pressure problem, although he is on 35 mg. daily of Prinivil, which could be the reason no BP problems. 's BP yesterday was 118/78 The doctor did mention a test which measures the urine protien to blood protein ratio. In June of 2001 this was at 264, normal range is 90 - 120. The high is to be expected because of the proteinuria. In January it was at 92.8, which sounded good to me but the doctor was concerned because this would indicate more scaring and he said the only way to determine the amount would be by another biopsy. This last test it was at 128, which slightly eased the docs concerns. Pierre, sometime ago you asked if anything showed up on the biopsy besides IgA. The answer is no. Some of you have discussed having fatigue.......my son also occasionally does, but not frequently. I asked the doc about this and if it could be IgAN related and he definately feels that it is. We spent an entire hour with the doctor and he answered all my questions. I tried taking notes but know I didn't get everything.........he is very patient and we have great confidence in him. The doctor was going to a pediatric nephrology conference today and he told me that the main speaker was going to be Dr. Leiberman........ha! she was my nephrologist from 1969 - 1972......a small world it is. Next visit is in June........hopefully things will continue in the right direction. Thanks for your input on questions... Debbie Marty Hall wrote: > I would ask how the 24 hour urine test compared to previous tests. Also ask what his serum creatinine and BUN are, or even better, ask for a copy of the lab report. That way, you can let the group know certain areas where you have questions, if you chose. Plus, you can keep it for your records. I always do this. > > Marty, also in So Cal. > questions for neph? > > Hi all.........my son has his appointment with his neph tomorrow. As > always, approx. 1 week prior to his appointment he does a 24 hr. urine > collection and blood work. As I have mentioned before the only thing > that we have judged my son's progress on is his protein loss but now > (since belonging to this group) I know there is much more to keep track > of. Could someone provide me with some questions I should ask the > doctor? I have wrote down a couple but would appreciate some input on > the exact things I should ask about. Thanks for the help. > > Debbie > Anaheim, CA > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 What excellent advice! Laraine questions for neph? > > > > Hi all.........my son has his appointment with his neph tomorrow. As > > always, approx. 1 week prior to his appointment he does a 24 hr. urine > > collection and blood work. As I have mentioned before the only thing > > that we have judged my son's progress on is his protein loss but now > > (since belonging to this group) I know there is much more to keep >track > > of. Could someone provide me with some questions I should ask the > > doctor? I have wrote down a couple but would appreciate some input on > > the exact things I should ask about. Thanks for the help. > > > > Debbie > > Anaheim, CA > > > > Quote Link to comment Share on other sites More sharing options...
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