9th and 10th Cranial Nerve Tumor

December 1, 1999

Dear Crew,

After one month out of communications, I have to say I really missed you

all!!! My laptop is now finally working.

I got an MRI on the 10th of this month and just heard briefly from my ENT of

the results although I still need to meet with him and/or my NS. I've had a

lot of delays and I might notget an appointment until January but there's not

much I can do about it.

He did say that my tumor had grown but was growing DOWN and was quite low so

that it affected mainly the 9th and 10th cranial nerves. It was 1.5 cm and

now is 2 cm or so. So even though it has grown it hasn't grown on the 8th any

more but rather on the 9th and 10th. He said it was in the auditory canal

which is why I have Tinnitus and that the severe earaches I have are because

the sensories for the 8th cranial nerve are in the 9th. Can anyone follow?

Well, I've never heard this before. I have had like a " lump " " in my throat

for the past year which he said was because the tumor was so low. I still

need to consult with the specialists but I did want to ask if anyone has any

experience with this and tumors that afftected these nerves?

I more or less have studied a " set pattern " of regular acoustic neuromas. I

want to get this tumor out before it affects more of my swallowing etc. This

tumor wasn't so slow and I don't know if it's the same thing - the smaller

they are, the easier it is to take them out. What are the risks? I would

appreciate any input.

Thanks so much. You guys are the best!

Thea

December 1, 1999

Hi Thea,

Just wondering about something real quick. I'm sure other more veteran

crewbies can chime in here though. Did you know it's not uncommon for us to

have tumors in your throat? I have 4 on my jugular vein, but they are all

really small. I don't even notice them. You said you have a lump?! Eek! Any

lump I feel I worry it's a tumor, I'm kinda surprised no DR has checked into

this. I know these tumors can be nasty if left untreated i.e. swallowing,

voice and breathing! I'd get that one checked out ASAP. I hope I don't scare

you, but don't let that go. I also know that sometimes they don't show up on

MRI's because that's not what the radiologist is always looking for...Good

luck to you, you deserve the best!

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