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My SS Hearing

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well 48 hrs later and I am still trying to digest what happened on Thursday.

After waiting 3 years I finally got my day in court.

My daughter flew up from Denver...we got on the bus at 6:30 am to get to

Portland at 8...usually a 20 min car ride. We got there and asked to see my

file. My hearing was at 9. The night before I get a call from my therapist

who I hadn't seen since March 19th when I had a meeting with her and my

previous therapist..the one with Dr in front of her name...she was the one

that said " anyone listening to my voice for more than 5 min justs tunes me

out!!! " Needless to say that really upset me...anyway she called and told me

she wanted to be at the hearing...I said ok...didn't really know what to say.

Well at 8:30 the cleark comes in and says the judge was ready for me Now. I

had already observed that the Judge had Not read any of the material that I

had sent on the 18th.

My daughter and I go in...the Judge asked me where my council was and i told

him I didn't have any...we then discussed that problem...he tells me I should

go back to the first aty's that dropped me in March...on and on....well then

my therapist comes in...and listens...then the door opens and a uniformed guy

tells the Judge that my aty was on his WAY...that he was Stuck in Traffic!!!

I had not spoke to this aty since March 20th somewhere in there. Needless to

say I am shocked. In the short time I was there my strokes were coming on

and I was loosing my ability to talk already...my daughter telling me to

breath and relax! She was there when I had my big one in March 98 and was

scared for me.

The judge then tells me I had better speak to my aty and make a decision. I

had already told the judge I was fighting the term Somitization in reference

to me and was Very Upset that my problems where not recognized as Traumatic

Brain Injury that my dr had put in my files...that dr would have come but he

had a seminar he was obligated to...

Well the 4 of us go back out to the waiting room and discuss the problem at

hand. I told the aty that I did not think he was representing me and told

the judge that....well then he and my therapist once again pointed out the

benefit of the term Somitization and that I was not seeing it in the right

contex...excuse me...the term Somitization...means making everything up

because drs can't find a reason for the symptons....could be because NONE of

the SOB DRs up here recognized either Traumatic Brain Injury and ESPECIALLY

EDS!!!

I felt very vunerable then...asked my daughter if I should let him represent

me and they said yes....so he and I went back into the Judges room. I am

sitting there on my scooter...while the judge and aty decide I am a CLASSIC

CASE and the Judge said he really thought it was better to let him handle the

case and not ask for a new hearing...because it could take months...they

throw out terms of 1260 or something like that...the aty apologized for being

late...and for the misunderstandings....all the time I am just sitting there

like I don't exist. The Judge then made the statement to the aty that I

disagreed with the somitization and clearing it showed I DID have it because

of ALL the printed info I had brought. He then told the aty he had 2 wks to

send in the Formal written required info to the Judge and the aty said ok.

We went back to the waiting room and he explained that that meant that I had

Probably WON my SS. That after he sent in everything that the judge wanted

that it would be granted....but then he also said it could change...

I think devine intervention was there....because I, as well as my

daughter....felt that I probably would have stroked out completely. In fact

the last 2 days I am having constant pain in my left temple along with

numbness and swelling....and that fried brain over load.

So to all of you that want SS...just go ahead and swallow your pride and let

the aty plead you with Somitization...Although I feel it is very

unfair...that I have REAL REASONS for my symptoms but no one is willing to

research EDS or are trained to recoginize Traumatic Brain Injury...my strokes

in 98 were Traumatic Brain Injury....and I am just finding out that there are

treatments for it IF started soon after...and even now some are

availiable...but welfare turned down my drs request to receive it!!! Now

doesn't that beat all.

So thank you all who have supported me and offered me advice...I still really

haven't comprehended it all.

The judge gave my aty all the things I had sent to him...that my aty Had Not

Seen....who was a bit surprised at what I had done....and that I really

disliked the maniputive conniving and lying aty's...I haven't meet one that

didn't....

My daughter and I had to stop at his office later and make a statement and he

still had his superior attitude...Remember he is the one that told me " he

really didn't Need my case but He Was The Best!. And I stated that was the

easiest $4000 he ever made....that burns my hide that he gets so much of my

money when I did most of the research, contacted the drs....etc...

So unless it all changes....as happens all to often to me....I still have to

wait another 3-4 mo before I get it...and can get my son out of this

apartment.

So the best to all of you....take care of yourselves as much as possible...at

least I don't have to go to any more Stinking doctors for awhile...... Now

I just have to fight the bus company over my scooter accident on the bus July

28th. THAT is still not settled. Could only do one thing at a time...my

Daughters wedding was beautiful...even if she cried thru the whole

thing...got the ss out of the way and now I am going after the bus...I get so

out of breath trying to catch them..... Katharine

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