Guest guest Posted May 5, 2001 Report Share Posted May 5, 2001 well 48 hrs later and I am still trying to digest what happened on Thursday. After waiting 3 years I finally got my day in court. My daughter flew up from Denver...we got on the bus at 6:30 am to get to Portland at 8...usually a 20 min car ride. We got there and asked to see my file. My hearing was at 9. The night before I get a call from my therapist who I hadn't seen since March 19th when I had a meeting with her and my previous therapist..the one with Dr in front of her name...she was the one that said " anyone listening to my voice for more than 5 min justs tunes me out!!! " Needless to say that really upset me...anyway she called and told me she wanted to be at the hearing...I said ok...didn't really know what to say. Well at 8:30 the cleark comes in and says the judge was ready for me Now. I had already observed that the Judge had Not read any of the material that I had sent on the 18th. My daughter and I go in...the Judge asked me where my council was and i told him I didn't have any...we then discussed that problem...he tells me I should go back to the first aty's that dropped me in March...on and on....well then my therapist comes in...and listens...then the door opens and a uniformed guy tells the Judge that my aty was on his WAY...that he was Stuck in Traffic!!! I had not spoke to this aty since March 20th somewhere in there. Needless to say I am shocked. In the short time I was there my strokes were coming on and I was loosing my ability to talk already...my daughter telling me to breath and relax! She was there when I had my big one in March 98 and was scared for me. The judge then tells me I had better speak to my aty and make a decision. I had already told the judge I was fighting the term Somitization in reference to me and was Very Upset that my problems where not recognized as Traumatic Brain Injury that my dr had put in my files...that dr would have come but he had a seminar he was obligated to... Well the 4 of us go back out to the waiting room and discuss the problem at hand. I told the aty that I did not think he was representing me and told the judge that....well then he and my therapist once again pointed out the benefit of the term Somitization and that I was not seeing it in the right contex...excuse me...the term Somitization...means making everything up because drs can't find a reason for the symptons....could be because NONE of the SOB DRs up here recognized either Traumatic Brain Injury and ESPECIALLY EDS!!! I felt very vunerable then...asked my daughter if I should let him represent me and they said yes....so he and I went back into the Judges room. I am sitting there on my scooter...while the judge and aty decide I am a CLASSIC CASE and the Judge said he really thought it was better to let him handle the case and not ask for a new hearing...because it could take months...they throw out terms of 1260 or something like that...the aty apologized for being late...and for the misunderstandings....all the time I am just sitting there like I don't exist. The Judge then made the statement to the aty that I disagreed with the somitization and clearing it showed I DID have it because of ALL the printed info I had brought. He then told the aty he had 2 wks to send in the Formal written required info to the Judge and the aty said ok. We went back to the waiting room and he explained that that meant that I had Probably WON my SS. That after he sent in everything that the judge wanted that it would be granted....but then he also said it could change... I think devine intervention was there....because I, as well as my daughter....felt that I probably would have stroked out completely. In fact the last 2 days I am having constant pain in my left temple along with numbness and swelling....and that fried brain over load. So to all of you that want SS...just go ahead and swallow your pride and let the aty plead you with Somitization...Although I feel it is very unfair...that I have REAL REASONS for my symptoms but no one is willing to research EDS or are trained to recoginize Traumatic Brain Injury...my strokes in 98 were Traumatic Brain Injury....and I am just finding out that there are treatments for it IF started soon after...and even now some are availiable...but welfare turned down my drs request to receive it!!! Now doesn't that beat all. So thank you all who have supported me and offered me advice...I still really haven't comprehended it all. The judge gave my aty all the things I had sent to him...that my aty Had Not Seen....who was a bit surprised at what I had done....and that I really disliked the maniputive conniving and lying aty's...I haven't meet one that didn't.... My daughter and I had to stop at his office later and make a statement and he still had his superior attitude...Remember he is the one that told me " he really didn't Need my case but He Was The Best!. And I stated that was the easiest $4000 he ever made....that burns my hide that he gets so much of my money when I did most of the research, contacted the drs....etc... So unless it all changes....as happens all to often to me....I still have to wait another 3-4 mo before I get it...and can get my son out of this apartment. So the best to all of you....take care of yourselves as much as possible...at least I don't have to go to any more Stinking doctors for awhile...... Now I just have to fight the bus company over my scooter accident on the bus July 28th. THAT is still not settled. Could only do one thing at a time...my Daughters wedding was beautiful...even if she cried thru the whole thing...got the ss out of the way and now I am going after the bus...I get so out of breath trying to catch them..... Katharine Quote Link to comment Share on other sites More sharing options...
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