Re: Psycho killer, qu'est-ce que c'est?

December 7, 1999

Lana,

Are you being serious? Cause I mean, I really lost it after surgery. I was

psycho! Has anyone else had this happen to them? I was told it happened to

my mother after her surgery. I had a CSF leak, and I think the doctors are

blaming the psychosis on that, but I don't see how the two are connected.

Any insights?

> From: Kizzycom@...

>

> Hi ,

>

> I read your post to Joanie and had to laugh,I have had a a few episodes

on

> and off where I didn't know myself what's up heheh.I think we can all

relate

> to that <G>

>

> Lana in Minnesota ))))

December 8, 1999

Hi ,

I didn't lose it after surgery,the only I felt was tired exhausted and half

deaf.BUT I did lose it when I went to bed one night hearing and woke up the

next day hearing impaired and well on my way to deaf.

Lana

December 8, 1999

I've been stewing on this question. What is CSF?

December 8, 1999

HI LANA,

DID YOU KNOW THAT MYSELF, THE ONLY WAY THAT I KNEW SOMETHING WAS WRONG WAS

ONE DAY AT WORK, I PICKED UP THE PHONE AND PUT IT TO MY LEFT EAR AND COULDN'T

HEAR A THING. IT WAS VERY WIERD AND SCARY!

JUNE

December 8, 1999

PS. THAT WAS MY INTRODUCTION TO NF2 AND DEAFNESS (AT AGE 19).

December 8, 1999

Wow, Alan, I don't remember experiencing what you went through. I was a

little groggy. But not delusional.

What really got me the first time (that was in 1983) were the cockroaches

(gross).

THEY WERE REAL!!! This was a well-known hospital, which shall remain

nameless. My Dad stayed in a student dorm while I was in the hospital (1

week). He told me that the shower was FULL of them. Yuck!!!

June

December 8, 1999

In a message dated 12/8/99 2:05:28 PM Eastern Standard Time,

alan.gordon@... writes:

<< I had a CSF leak ( cerable something fluid, that the brain sits in) and

this

caused meningitis, and yes I was really gone. >>

Cerebral Spinal Fluid

It's the clear/yellowish stuff they are always checking to see if you've had

any run out of your ears/nose after surgery I've never had any out of body

experiences but after my first surgery the site got infected and a spent a

week with a Spinal Drain and on Vicodin.

Pete

December 8, 1999

Hmm...from my experiences (and I've had 7 brain surgeries), I've never spent

more than 1 week or at the most one week and a half in the hospital. I've

had the invasive surgery every time.

I'm wondering if that's the norm?

Please let me know your experiences. I'm very curious (by nature, I guess:o)

June

December 8, 1999

Pete, thanks for the clarification of CFS. I have no idea wether I had some

or not.

I'll tell you one thing everybody...since I've joined the Crew, I've learned

so much. I realize now, that I really don't know what's happening with my NF

I laugh about it now, but when I recently had an appointment with Dr.

MacCollin at MGH, I had a whole list of questions and concerns (written out -

I just handed her the piece of paper ). THANKS for bringing up different

issues and concerns. It's made me more aware of my NF2 (though I still have

a ways to go). Next time that I see Dr. MacCollin, I'll be bringing a book!

)

June

December 8, 1999

Hello Alan,

So you spent time with Couselor Troi? You lucky devil!! Heh....

I have to ask now, did the Cerebral Spinal Fluid (CSF) leak because of the

AN sugery? Or was it something else?

Mark

----Original Message Follows----

After my operation last year I spent the first week on the Starship

Enterprise, all the Enterprise crew came to see me, and I finally realised

that I was a holgraphic image, they were trying to see what effect the

differant treatments would have, so they could cure the real me. I drove

the nurses mad asking to be able to E-mail the captain.

I had a CSF leak ( cerable something fluid, that the brain sits in) and this

caused meningitis, and yes I was really gone.

But I'm back on earth now.

Alan.Gordon.Manchester.UK (alan.gordon@...)

------------------------------------------------------------------------

See what's happening for NF2Con 2000!

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December 8, 1999

,

Anything can happen when it involves the brain. Probabbly a CSF leak can

cause brain trauma. That's a question for your neurologist.

Mikey A

At 11:04 PM 12/7/1999 -0700, you wrote:

>

>Lana,

>

>Are you being serious? Cause I mean, I really lost it after surgery. I was

>psycho! Has anyone else had this happen to them? I was told it happened to

>my mother after her surgery. I had a CSF leak, and I think the doctors are

>blaming the psychosis on that, but I don't see how the two are connected.

>Any insights?

>

December 8, 1999

> From: " "

> Are you being serious? Cause I mean, I really lost it after surgery. I

was

> psycho! Has anyone else had this happen to them? I was told it happened

to

> my mother after her surgery. I had a CSF leak, and I think the doctors

are

> blaming the psychosis on that, but I don't see how the two are connected.

> Any insights?

>

After my operation last year I spent the first week on the Starship

Enterprise, all the Enterprise crew came to see me, and I finally realised

that I was a holgraphic image, they were trying to see what effect the

differant treatments would have, so they could cure the real me. I drove

the nurses mad asking to be able to E-mail the captain.

I had a CSF leak ( cerable something fluid, that the brain sits in) and this

caused meningitis, and yes I was really gone.

But I'm back on earth now.

Alan.Gordon.Manchester.UK (alan.gordon@...)

December 8, 1999

Hi June,

The first time I picked up a fhone I was 15 and at work and couldnt hear a

thing and the woman was scrreaming at me,I just thought that it was a prank

call.Thats a horrible shocking way to find out huh?

Lana

December 8, 1999

Hi June,

:0COCKROACHES in the HOSPITOL OH MY GOSH!Maybe you stumbled upon there

mystery meat supply for dinner

Lana

December 8, 1999

Oh Man yes Don! Gosh I thought I was the only one with the whacko King

dreams lol. The scariest one I had was when I was just released from St.

's and I was staying in Seton Hall. I decided to take a nap. I guess I

was sleepin pretty hard bc I went into REM. The dream (or should I say

nightmare) was this HUGE nurse that did somewhat resemble Dolores Claiborne

(Kathy Bates) was chasing me around the hospital with a pair of rusty

scissors. She finally got a hold of me and started straping me down like they

did when I woke up from the surgery. Then she was laughing hysterically with

the giant respirator tube. LOL by this time I was screaming and my husband

woke me up real quick like Funny thing is the next surgery I had in June

of this year I told the anesesthiologist (I know that's spelled totally

wrong, hang in there with me <g>) to do me good so I wouldn't wake up right

after surgery with that nasty tube in my mouth. I slept thru but still had

WAY WAY vivid dreams, just not so much scary.

December 8, 1999

while on the subject of being delusional, how many of you that have had AN