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Hi My son , in the past year, has been on boh Luvox and Paxil, and

because of the bad side effects had to come off of them. He also could'nt

stay on clonidine and risperdal, but hes been on Anafranil for 4 months now

and it seems to be helping him. Everyones chemistry is different, so what

may work for one, won't work for another. The dr may need to up the prozac

or if you feel it isn't working have him change it. I keep a journal of

Joshs complaints and behaviors, so when we go to the dr I just read from

that and hes pretty good about changing meds when we feel its not

working-after all we are the ones that live with them 24-7 . And always ask

alot of queations , I do take care & good luck Nellie

>From: " Ann " <ctjj04@...>

>Reply-egroups

>egroups

>Subject: SSRI's

>Date: Thu, 06 Apr 2000 12:38:47 -0000

>

> I was told that all SSRI's work pretty much the same. We wanted to

>try Zoloft since our son has been on Prozac for over 3 months with no

>change. I have heard alot of good things about Zoloft and it is hard

>for me to beleive that they are all the same, if that was so then

>everyone would be taking the same drug! We have a Doctor appointment

>tomorrow and I just wanted some information from others on this

>subject.

>Thanks,

> Ann

>

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Theresa:

While it is true that the SSRIs work the same way, an individual's response

to a given SSRI may be different from another individual's. That's why

there is such a process of trial and error finding the one that works for

you. My son was originally on Luvox, but it made him aggressive so we

switched to Prozac. For depression I tried several different SSRIs until I

found one that worked. BSEs are different for different people too, even

if taking the same SSRI. This is the same with antibiotics. All

cephalosporins work in the same manner, but one may be preferred over

another depending on whether you are treating a sinus infection or wound

infection. Just an FYI.

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Hi :

You are right, they are not identical; however in general looking at

populations of OCDers the effects are quite similar. Population studies

tell us nothing about individuals. (Thank goodness or I would be dead.)

An individual may respond quite differently to the different SSRIs.

I read a post by Dr. J. lately on the OCD-L where he mentioned that about

50% of people will respond to the first SSRI they try. The response rate

declines for subsequent SSRIs but he has seen people not respond to four in

succession and then have success with the fifth.

Luckily we know CBT (with E & RP) is another treatment we know which has a

higher response rate, the efficacy persists after therapy is stopped, and

it does not come with difficult side effects.

Good luck with your doctor's appointment. Take care, aloha, Kathy (H)

kathyh@...

At 12:38 PM 04/06/2000 +0000, you wrote:

> I was told that all SSRI's work pretty much the same. We wanted to

>try Zoloft since our son has been on Prozac for over 3 months with no

>change. I have heard alot of good things about Zoloft and it is hard

>for me to beleive that they are all the same, if that was so then

>everyone would be taking the same drug! We have a Doctor appointment

>tomorrow and I just wanted some information from others on this

>subject.

>Thanks,

> Ann

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to Ann,

My 16 daughter was on paxil, then luvox (awful w/drawal) and now on zoloft. She

just went to 150 mg and what a

wonderful difference in her mood. I see smiles not seen for years, her anxiety

level is down and the tiredness

throughout the day is almost gone! Yes it took a couple of weeks, but what an

improvement at school, she is able

to begin bossing back some compulsions. Her therapist is so excited that she is

using the tools to stop some

obsessions. Yes new ones come up and we start again, but her outlook is

wonderful. They also put her on .5 mg of

Konopin for relaxation. That has helped (tired in beginning) and we have

started walking off stress. Our lives

our so much better since zoloft. I can't tell you what this last year has been

like b/4 zoloft. This is our

personal experience, but what a difference for my sophomore daughter. This is

so important at her age!

Good luck

Lori-ca

Ann wrote:

> I was told that all SSRI's work pretty much the same. We wanted to

> try Zoloft since our son has been on Prozac for over 3 months with no

> change. I have heard alot of good things about Zoloft and it is hard

> for me to beleive that they are all the same, if that was so then

> everyone would be taking the same drug! We have a Doctor appointment

> tomorrow and I just wanted some information from others on this

> subject.

> Thanks,

> Ann

>

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Hi: Bob

In addition to what posted below I will add that my experience with

Wellbutrin was MANIA!!!!!! I told the doctor that gave it to me and he just

laughed and didn't take me seriously. I quit taking it. I have enough trouble

sleeping as it is!

Teena

ssri's

Bob, I took 5 different SSRI'S over a 5 yr. period and had tremors in my

feet, especially when upping the dose. Wellbutrin is a known seizure &

tremor producer, as well as causing mania & jitteriness in most CFSERS.

DR.Goldstein, whose big into DRUGS; doesn't like either one....Bob, I am

presently on 6,000 mg. of Tyrosine and it's helping my alertnes & depression.

Be well,

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Lanna,

SSRIs are Selective Serotonin Reuptake Inhibitors

(Prozac,Zoloft,Paxil,Luvox,Celexa) quite simply, they increase serotonin. The

reason they usually cause stomach upset is due to the fact that we have more

serotonin receptors in the gut than in the brain!

Believe it or not....Chocolate will increase serotonin !

JR

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>>> Also, I have trouble with low serotonin levels, any advice?

http://www.enzymestuff.com/serotonin.htm

Here is a discussion on how some foods affect serotonin levels. Some

people crave dairy and bread because they probably are trying to get

their serotonin levels up...not due to 'opiate cravings'.

.

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Some

> people crave dairy and bread because they probably are trying to

get

> their serotonin levels up...not due to 'opiate cravings'.

>

> .

-- We cut out dairy for a couple of days earlier this week in an

effort to stop diarrhoea. Our son then begsan demanding crackers

constantly. This disappeared only when I started giving him 5HTP

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>>>> -- We cut out dairy for a couple of days earlier this week in

an effort to stop diarrhoea. Our son then begsan demanding crackers

> constantly. This disappeared only when I started giving him 5HTP

Bingo! LOL.

How much 5-HTP do you give your son?

.

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> >>>> -- We cut out dairy for a couple of days earlier this week in

> an effort to stop diarrhoea. Our son then begsan demanding crackers

> > constantly. This disappeared only when I started giving him 5HTP

>

> Bingo! LOL.

>

> How much 5-HTP do you give your son?

>

> .

We normally give him 10mg at night only if he seems restless. During

this period we were giving him 10mg 3x a day. It was amazing how

quickly it could take effect.

He's back on dairy now (I don't think the dairy had anything to do

with diarrhoea) and we've cut out the 5HTP again.

It was only when I read the article " New idea to reduce stimming " in

the files section that I understood this issue. Thanks very much. In

our son's case, food cravings and stimming are definitely related to

low tryptophan. He does best on a low-carb diet (gets yeast

otherwise) but we have to give him dairy (preferably with just a few

carbs at the same time) or he goes haywire.

Now I'm wondering, can tryptophan levels that are TOO high also

affect stimming? I get the impression that managing high serotonin

and overmethylation is harder and more complicated than low

serotonin, undermethylation.

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RE:

Aspergers or Not?

“The doctor whom gave my son this

diagnosis also gave me two book titles to read they were Tony Attwood’s

books that I need to check out at the library. On another subject, what do you

think of SSRI meds for Autism? The counselor pushes and believes these meds

work wonders for their social lives etc.”

****************I think this is an odd

thing for a counselor to say. A Psychiatrist will make a decision based on the

individual and their symptoms and whether or not the child might be Bi-Polar,

etc….and it certainly has nothing to do with their social lives. My son

has been on Celexa an SSRI for some time for anxiety, depression and OCD. He

also takes an anti-psychotic for OCD, tics

Prozac these kinds of drugs typically

used for depression/anxiety etc. Currently my son had been on Tenex (a

blood pressure med that works from the back door doc says) I took him off when

he had gotten sick and couldn’t keep anything down. I knew we were to see

a new doc that liked SSRI meds so I didn’t put him back on in fear we

were going to have a change of meds at the appointment shortly after his

sickness. Well what happened was he ended up missing too much school and I re

scheduled the appt. Now he isn’t on meds hasn’t been for awhile. I

know it’s coming and IM just looking into some

info on different meds.

*******************My

understanding is that Tenex targets hyperactivity and tics,

I’m not sure what else. I’m sure the Dr. will look at your son’s

history and make a decision. If the Tenex helped him, I would imagine they’ll

go with that. It will depend on what symptoms are causing the most problems for

your son….Gail

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I think this is an odd thing for a

counselor to say. A Psychiatrist will make a decision based on the individual

and their symptoms and whether or not the child might be Bi-Polar,

etc….and it certainly has nothing to do with their social lives. My son

has been on Celexa an SSRI for some time for anxiety, depression and OCD. He

also takes an anti-psychotic for OCD, tics

Hi Gail, I think it is

strange to. Our counselor is always saying things she shouldn’t and she

will tell you “I am no doctor and I always get into trouble for these

things but…” She is the one whom had a “hunch” about my

son having Aspergers and recommended us to a specialist. She believes because

she sees so many kids, that there is one child she does see whom is

Autistic/aspergers and he is on Prozac and she swears it made him more social

etc. The counselor see’s my son in the school and outside, she told me

recently that she purposely took my son in the same room with two other kids

just to see how they socialized. The result was that my son had no idea the

other kids were around “in his own world” but when the kids

approached him, he had to take charge had to be in control. That’s why I

asked about SSRI’s forming my own opinion.

Also my son’s biological

father (now deceased) was bi-polar and it has been mentioned before he may have

Bi-polar instead of Autism/Aspergers. This is before we had the dx of Aspergers

but I contacted this psychologist and let her know it was Autism, she didn’t

agree and said she wouldn’t have believed that but her next thought was

Bi-polar since it wasn’t ADHD that she had dx. See why IM confused?

I asked the pharmacist about

Tenex she said it was rarely prescribed for blood pressure anymore although it

was created for bp, it helps a multiple of things.

BTW-I am Deborah I know it’s

confusing with my husbands name (Barry) on here but we share this account under

this name.

RE:

Aspergers or Not?

“The doctor whom

gave my son this diagnosis also gave me two book titles to read they were Tony

Attwood’s books that I need to check out at the library. On another

subject, what do you think of SSRI meds for Autism? The counselor pushes and

believes these meds work wonders for their social lives etc.”

****************I think

this is an odd thing for a counselor to say. A Psychiatrist will make a

decision based on the individual and their symptoms and whether or not the

child might be Bi-Polar, etc….and it certainly has nothing to do with their

social lives. My son has been on Celexa an SSRI for some time for anxiety,

depression and OCD. He also takes an anti-psychotic for OCD, tics

Prozac

these kinds of drugs typically used for depression/anxiety etc. Currently

my son had been on Tenex (a blood pressure med that works from the back door

doc says) I took him off when he had gotten sick and couldn’t keep

anything down. I knew we were to see a new doc that liked SSRI meds so I

didn’t put him back on in fear we were going to have a change of meds at

the appointment shortly after his sickness. Well what happened was he ended up

missing too much school and I re scheduled the appt. Now he isn’t on meds

hasn’t been for awhile. I know it’s coming and IM just looking into

some info on different meds.

*******************My

understanding is that Tenex targets hyperactivity and tics, I’m not sure

what else. I’m sure the Dr. will look at your son’s history and

make a decision. If the Tenex helped him, I would imagine they’ll go with

that. It will depend on what symptoms are causing the most problems for your

son….Gail

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..” She believes because she sees so many kids, that

there is one child she does see whom is Autistic/aspergers and he is on Prozac

and she swears it made him more social etc.”

************Hi

Deborah, possibly the boy seems more social because he was in such an anxious,

depressed state before the SSRI.

Also my son’s

biological father (now deceased) was bi-polar and it has been mentioned before

he may have Bi-polar instead of Autism/Aspergers. This is before we had the dx

of Aspergers but I contacted this psychologist and let her know it was Autism,

she didn’t agree and said she wouldn’t have believed that but her

next thought was Bi-polar since it wasn’t ADHD that she had dx. See why

IM confused?

*************Possibly he is both Bi-Polar

and Asperger’s. With a

Bi-Polar possibility SSRI’s most likely wouldn’t be prescribed as

they can have serious side affects for a Bi-Polar person. If you do a search on

Autism OASIS their site is good and I would recommend their book, OASIS, A

Guide to Asperger Syndrome………If you join your states Autism

society many of these books are available on loan. When I first read about

Asperger’s I thought yes, this sounds just like my son in many ways…My

son from an early age has had many special interests and once described his

brain as ‘a file cabinet, with a whole bunch of files’(he was 9 at

the time)…..Good luck, Gail

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Bipolar, tourettes, autism, ADHD, all have similar genetic components

(depending on who you ask). I have tourettes & many drs wouldsay that is why

one of my DS has/d ADHD, why my DD has Bipolar, and why DS has autism...the

same gene, different expression.

While that is an overly simple simple explanation, and it is controversial, I

think that there is some truth in it. All of these disorders (or one's

vulnerability to these disorders) are on the same gene.

>*************Possibly he is both Bi-Polar and Asperger's. With a

>Bi-Polar possibility SSRI's most likely wouldn't be prescribed as they

>can have serious side affects for a Bi-Polar person. If you do a search

>on Autism OASIS their site is good and I would recommend their book,

>OASIS, A Guide to Asperger Syndrome...If you join your states Autism

>society many of these books are available on loan. When I first read

>about Asperger's I thought yes, this sounds just like my son in many

>ways.My son from an early age has had many special interests and once

>described his brain as 'a file cabinet, with a whole bunch of files'(he

>was 9 at the time)...Good luck, Gail

D. Marie Ralstin-

University of Oregon

Graduate Teaching Fellow, Department of Sociology

Native American Event Coordinator, Office of Admissions

717 PLC Hall

Eugene, Oregon 97403

541-346-5071

dralstin@...

d.ralstin@...

http://gladstone.uoregon.edu/~dralstin/

Ending a sentence with a preposition is something up with which we should not

put. - Winston Churchill

Not everything that can be counted counts and not everything that counts can be

counted. -Albert Einstein

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My son is Bi-Polar 1 and Aspergers. He is currently on Prozac 20 mg a

day and Risperdal 2mg a day. TREMENDOUS difference with the Prozac.

He is almost symptom free now! I hope this helps!

Jean

>

> RE: Aspergers or Not?

>

> " The doctor whom gave my son this diagnosis also gave me two book

titles

> to read they were Tony Attwood's books that I need to check out at

the

> library. On another subject, what do you think of SSRI meds for

Autism?

> The counselor pushes and believes these meds work wonders for their

> social lives etc. "

> ****************I think this is an odd thing for a counselor to

say. A

> Psychiatrist will make a decision based on the individual and their

> symptoms and whether or not the child might be Bi-Polar, etc..and it

> certainly has nothing to do with their social lives. My son has

been on

> Celexa an SSRI for some time for anxiety, depression and OCD. He

also

> takes an anti-psychotic for OCD, tics

>

> Prozac these kinds of drugs typically used for depression/anxiety

etc.

> Currently my son had been on Tenex (a blood pressure med that works

from

> the back door doc says) I took him off when he had gotten sick and

> couldn't keep anything down. I knew we were to see a new doc that

liked

> SSRI meds so I didn't put him back on in fear we were going to have

a

> change of meds at the appointment shortly after his sickness. Well

what

> happened was he ended up missing too much school and I re scheduled

the

> appt. Now he isn't on meds hasn't been for awhile. I know it's

coming

> and IM just looking into some info on different meds.

>

> *******************My understanding is that Tenex targets

hyperactivity

> and tics, I'm not sure what else. I'm sure the Dr. will look at your

> son's history and make a decision. If the Tenex helped him, I would

> imagine they'll go with that. It will depend on what symptoms are

> causing the most problems for your son..Gail

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I've gained a small amount of weight after being on the Lex. for just over a

year now. I've had no side effects from it despite the high dose that I am

on. I cannot take Cymbalta because of a particular ingredient in it that I

react badly to. I also suffer from Fibromyalgia and I too have been curious

as to the pain control aspect of it. I have chronic pain from a severe skin

disease I have and I'm always looking for new drugs that can control my pain

Sue C

-- SSRI's

I have just started Lexapro and wondered if anyone gained weight on

it? I'm hoping not. I have myofascial pain syndrome and fibromyalgia

which it is supposed to help plus the depression from the above!!! I

wondered if anyone here had been on Cymbalta? They advertise it as so

wonderful for pain too and my dau. had bad reaction to it so I went

with Lexapro after I tried effexor after having been on Paxil for a

few years. I lost some weight BTW after stopping the Paxil but that

drug is harder than heck to get off of. Just curious about other's

experiences with both lexapro and the Cymbalta. linda

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How high did you have to go to get relief. ??

SSRI's

I have just started Lexapro and wondered if anyone gained weight on

it? I'm hoping not. I have myofascial pain syndrome and fibromyalgia

which it is supposed to help plus the depression from the above!!! I

wondered if anyone here had been on Cymbalta? They advertise it as so

wonderful for pain too and my dau. had bad reaction to it so I went

with Lexapro after I tried effexor after having been on Paxil for a

few years. I lost some weight BTW after stopping the Paxil but that

drug is harder than heck to get off of. Just curious about other's

experiences with both lexapro and the Cymbalta. linda

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I was just upped to 40 mg.

SC

-- Re: SSRI's

How high did you have to go to get relief. ??

SSRI's

I have just started Lexapro and wondered if anyone gained weight on

it? I'm hoping not. I have myofascial pain syndrome and fibromyalgia

which it is supposed to help plus the depression from the above!!! I

wondered if anyone here had been on Cymbalta? They advertise it as so

wonderful for pain too and my dau. had bad reaction to it so I went

with Lexapro after I tried effexor after having been on Paxil for a

few years. I lost some weight BTW after stopping the Paxil but that

drug is harder than heck to get off of. Just curious about other's

experiences with both lexapro and the Cymbalta. linda

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Is anyone on it for pain as well as depression from fibro. pain? Or strictly

just for depression?

SSRI's

I have just started Lexapro and wondered if anyone gained weight on

it? I'm hoping not. I have myofascial pain syndrome and fibromyalgia

which it is supposed to help plus the depression from the above!!! I

wondered if anyone here had been on Cymbalta? They advertise it as so

wonderful for pain too and my dau. had bad reaction to it so I went

with Lexapro after I tried effexor after having been on Paxil for a

few years. I lost some weight BTW after stopping the Paxil but that

drug is harder than heck to get off of. Just curious about other's

experiences with both lexapro and the Cymbalta. linda

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I am on Lexapro for depression but I do have fibromyalgia.Drs. for yrs. have

put me on anti-depressants for pain and they have never helped my pain.

Sandy

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Just for depression.

sc

-- Re: SSRI's

Is anyone on it for pain as well as depression from fibro. pain? Or strictly

just for depression?

SSRI's

I have just started Lexapro and wondered if anyone gained weight on

it? I'm hoping not. I have myofascial pain syndrome and fibromyalgia

which it is supposed to help plus the depression from the above!!! I

wondered if anyone here had been on Cymbalta? They advertise it as so

wonderful for pain too and my dau. had bad reaction to it so I went

with Lexapro after I tried effexor after having been on Paxil for a

few years. I lost some weight BTW after stopping the Paxil but that

drug is harder than heck to get off of. Just curious about other's

experiences with both lexapro and the Cymbalta. linda

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so true that each of our bodies is unique; medicines are not one size fit all, although many doctors appear to insist they are. i've been told that certain side effects of meds are "impossible" by doctors, only to then turn to the internet in desperation and find that others have that same "impossible" effect. or that two drugs, because they were in the same class, would have the same effects: not. you are so right: we each need to be our own health advocate. the internet is the great equalizer and we have all become "scouts", but beware the bad information as well. there is no "one way"... the paths are many. looking forward to trying ldn in the next week or so. i've finally decided to forgo the opioids which haven't worked for me for some time, ie, have made me a prisoner; my pain doc is arranging a detox for me. have had such good support from this site, and decided to do it in the hospital rather than alone. have made big dietary changes in baby steps. can't wait for my new life, although i know i will have to be patient for some time to come. but the process alone is exciting. ~laura t.

http://moineauenfrance.blogspot.com

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, it's so worth trying it out. Living on opioids is being a prisoner

in some ways. I'm glad you will do it in the hospital, and I'm glad that

your doctor is in support of your choices.

Please stay in touch with us and let us know how it goes for you and how

you are doing.

--

At 05:32 PM 7/4/2010, you wrote:

>so true that each of our bodies is unique; medicines are not one size fit

>all, although many doctors appear to insist they are. i've been told that

>certain side effects of meds are " impossible " by doctors, only to then

>turn to the internet in desperation and find that others have that same

> " impossible " effect. or that two drugs, because they were in the same

>class, would have the same effects: not.

>

>you are so right: we each need to be our own health advocate. the internet

>is the great equalizer and we have all become " scouts " , but beware the bad

>information as well. there is no " one way " ... the paths are many.

>

>looking forward to trying ldn in the next week or so. i've finally decided

>to forgo the opioids which haven't worked for me for some time, ie, have

>made me a prisoner; my pain doc is arranging a detox for me. have had such

>good support from this site, and decided to do it in the hospital rather

>than alone. have made big dietary changes in baby steps. can't wait for my

>new life, although i know i will have to be patient for some time to come.

>but the process alone is exciting. ~laura t.

>

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

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Dear Listmates,

I need to hear from you regarding ssri's. Does every one have a hard time after

starting them? Have your kids worked through a tough time on one or did you

switch and things got better?

If they do have an awful reaction, once you quit it, does the child become his

self again quickly?

I confess, this just freaks me out. My son was on Keppra for siezures and even

though he was only 4 years old, he said he was " sad " . I called the doctor and

got him off of that so quickly.

So I am just afraid of the suicidal thoughts Bill described and the violence

that another has recently described. This is a real hurdle for me in starting

this protocol. All comments and experiences will be most welcome and

appreciated.

Thank you! Sheryl

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What if the child is doing very well on anther med...like our son, we tried

different meds including ssri meds like Prozac and Lexapro but he seems to

be doing very well, awareness wise, on Risperidone (LOW DOSE! - .25ml). I

don't like giving him anything but for now, this seems like it is really

helping him... I am scared to keep switching especially with ssri drugs.

They can really do a number on your thinking process and reality - for some

people anyway.

From: [mailto: ] On Behalf Of Lori

Sent: December-07-10 7:45 AM

Subject: RE: ssri's

Hi Sheryl,

The SSRI was the hardest part of the protocol for me and we avoided it, in

part because of my hesitation, in part because in Canada I had a hard time

getting our local doc to rewrite Dr. G's script. We were probably 7 years

with Dr. G when we finally started Paxil and I was prepared for the worst.

I am so pleased to say that we started VERY slowly, at 1/8 of a tablet and

gradually increased and we saw no negative, only more awareness, more

engagement, more initiation from him - quite rapidly. With all my

hesitation I wish I had advocated more assertively with our local doc to get

it started. Dr. G was right. We needed to do a trial and if he was better

on it great, if not perhaps try one or two others and if no improvement,

then we would discontinue. We were only looking to push my son a bit more

forward and it worked tremendously!

Hope this helps.

Lori

_____

From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

Sheryl

Sent: December-07-10 1:28 AM

<mailto:%40>

Subject: ssri's

Dear Listmates,

I need to hear from you regarding ssri's. Does every one have a hard time

after starting them? Have your kids worked through a tough time on one or

did you switch and things got better?

If they do have an awful reaction, once you quit it, does the child become

his self again quickly?

I confess, this just freaks me out. My son was on Keppra for siezures and

even though he was only 4 years old, he said he was " sad " . I called the

doctor and got him off of that so quickly.

So I am just afraid of the suicidal thoughts Bill described and the violence

that another has recently described. This is a real hurdle for me in

starting this protocol. All comments and experiences will be most welcome

and appreciated.

Thank you! Sheryl

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