Re: PSC and athletic performance question

[Guest guest]

Mike, you make me tired just hearing about your

cycling. But it is great that you can continue to do

that. Fatigue is a symptom of PSC, but it doesn't

sound like you are fatigued, just not getting the

performance improvement you want. I am sure there are

some very physically active folks that can answer your

questions. Glad you posted. Where are you from?

=====

Michigan Hunter . Dx UC 1984, Jpouch 99/2000, PSC dx 97, first PSC symptoms

2000.

__________________________________________________

[Guest guest]

> Are there any athletes in the group...?

Well, Klug isn't a group member, but he's been known to engage

in athletic activities from time to time. : ) Seriously, I sometimes

wonder whether there might be a causal connection between PSC and

sports. The PSC folk that I've met or corresponded with are nearly

all rabid participants in one sport or another. I don't know how

long you've been a group member, Mike, but Norm Hoffman was probably

the biggest cyclist we've had. Sadly, he was killed while riding his

bike last March. You can read about him here:

http://www.bakersfield.com/top/Story/406706p-405205c.html

I'm a rider, too, although not in Norm's league, and mainly on a

mountain bike in the back country. At age 31, your best years as a

cyclist are probably still ahead of you (think of Lance and Greg

LeMond). In addition to the longer recovery time that you noted as

possibly symptomatic of PSC, I would also add the spectacular bruises

that invariably bloom after crashing on single track trails!

Best wishes, Gene A.

[Guest guest]

Are there

any athletes in the group, especially cyclists? I was wondering if

there is any relationship between PSC and workout recovery times. I

don't have any other PCS Symptoms really (DX 2000) except some

occasional itching. I am on 1500mg Actigall Daily. Maybe I'm just

getting older (almost 31) and not able to do the same as say 10 years

ago...

Yesterday I

rode with a group and took a long pull at the front @ 25 MPH on a long

flat road, followed by a bunch of hills that I struggled up. Today I

just feel extra sore and it got me thinking. I have been riding

a lot, but don't feel like I make as much of an overall improvement as

I would like to see. I commute a few days a week to work (43 Mile

round trip) and usually ride every Sat.

Mike Z - Not

posting much, but reading often.

Mike: I believe Readers Digest, July issue has an article on

recovery and soreness of atheletes , it cites a research that found

Vit E is supposed to work to stave off these inconveniences and of

course the pity party for oldness (31?) will not get any tears from

this 59 y.o. Kidding of course. You can access Readers Digest at

rd.com I was interested because my grandson is leaving for

Eureka College,alma mater of Regan, and plans on being an

athletic coach. One of his classes is Jogging. He laughs

as does the rest of the family that it will be a simple class, but

those of us who have signed up for college courses know the title does

not tell all only the syllabus (look out memory here comes all the

muscle, bone, chemical jargon that will accompany Jogging 101).

What a rude awakening he will have. There is a dry Vit E ask

Tim, he or someone will tell you about it or look in the most recent

achives, it was just posted this last few days.

Dee in Peoria wife of Bob 59 ileo psc

Yahoo!

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[Guest guest]

> Mike Z wrote:

>

> Maybe

> I'm just getting older (almost 31) and not able to do the same as say

> 10 years ago...

>

> Yesterday I rode with a group and took a long pull at the front @ 25

> MPH on a long flat road, followed by a bunch of hills that I struggled

> up. Today I just feel extra sore and it got me thinking.

PSC can lead to muscle wasting... since your liver can't store as much

energy as it should your body starts burning muscle tissue for energy

ealier than it would otherwise. At least thats what my doctor told me!

athan

[Guest guest]

----- Original Message -----

> Mike, you make me tired just hearing about your

> cycling. But it is great that you can continue to do

> that. Fatigue is a symptom of PSC, but it doesn't

> sound like you are fatigued, just not getting the

> performance improvement you want. I am sure there are

> some very physically active folks that can answer your

> questions. Glad you posted. Where are you from?

South of Baltimore land. Severna Park. I posted a good bit two years

ago, but have just read lately.

>

> PSC can lead to muscle wasting... since your liver can't store as much

> energy as it should your body starts burning muscle tissue for energy

> ealier than it would otherwise. At least thats what my doctor told me!

> athan

I wonder if the " solution " is eating more during exercise to preserve the

glycogen stotes in the muscles. I do find that I need to eat often. (or

drink sports drink carbs)

>

> Well, Klug isn't a group member, but he's been known to engage

> in athletic activities from time to time. : )

Check this out about Klug: www.drmirkin.com/fitness/9891.html

> but Norm Hoffman was probably

> the biggest cyclist we've had. Sadly, he was killed while riding his

> bike last March. You can read about him here:

> http://www.bakersfield.com/top/Story/406706p-405205c.html

That link didn't work - Do you know if the story is posted elsewhere?

> I'm a rider, too, although not in Norm's league, and mainly on a

> mountain bike in the back country.

I have taken to the roads since I got my Trek OCLV road bike in Dec 2001.

----- Original Message -----

From: Deanna Vinovich

Mike: I believe Readers Digest, July issue has an article on recovery and

soreness of atheletes , it cites a research that found Vit E is supposed to

work to stave off these inconveniences and of course the pity party for

oldness (31?) will not get any tears from this 59 y.o. Kidding of course.

You can access Readers Digest at rd.com I was interested because my

grandson is leaving for Eureka College,alma mater of Regan, and plans

on being an athletic coach. One of his classes is Jogging. He laughs as

does the rest of the family that it will be a simple class, but those of us

who have signed up for college courses know the title does not tell all only

the syllabus (look out memory here comes all the muscle, bone, chemical

jargon that will accompany Jogging 101). What a rude awakening he will

have. There is a dry Vit E ask Tim, he or someone will tell you about it or

look in the most recent achives, it was just posted this last few days.

Dee in Peoria wife of Bob 59 ileo psc

I will check out the Article. Is Dry Vitamin E better than the oil capsules?

I have some of the capsules already.

[Guest guest]

My husband Gene is an athlete. He takes Urso and asacol. He hasn't had

any hospital time yet other than all of the testing. He thinks he used to

get cramping worse in the past because since the liver was not pumping out

the acids (lactic acid being one?) the muscles would take longer to rid of

the acid and recover. Since taking urso it has been much better. So that

could be part of the problem. He has done marathons and He did a 1/2 iron

man triathalon back in july of 98 (before he took any meds and was not dx

with psc yet)and does the" hood to coast relay" every year. Three 6.5 mile

legs in 24hrs!His Dr. said he is not worried about the running at all. I

think he gets too skinny and that it is good for him to have some extra pounds

on. He is actualy kinda buff right now so I do not he has any muscle wasting

going on!!

We are both doing it this year!! I had tank tops printed that say "recycle

yourself......please be an organ donor!!" front and back for our 12 team

members!! Take care-

Elesa wife of Gene(uc 89 psc 01)

Mike Z wrote:

Are there any athletes in the group, especially

cyclists? I was wondering if there is any relationship between PSC and workout

recovery times. I don't have any other PCS Symptoms really (DX 2000) except

some occasional itching. I am on 1500mg Actigall Daily. Maybe I'm just getting

older (almost 31) and not able to do the same as say 10 years ago...

Yesterday I rode with a group and took

a long pull at the front @ 25 MPH on a long flat road, followed by a bunch

of hills that I struggled up. Today I just feel extra sore and it got me

thinking. I have been riding a lot, but don't feel like I make as much

of an overall improvement as I would like to see. I commute a few days a

week to work (43 Mile round trip) and usually ride every Sat.

Mike Z - Not posting much, but reading

often.

[Guest guest]

> I wonder if the " solution " is eating more during exercise to preserve the

> glycogen stotes in the muscles. I do find that I need to eat often. (or

> drink sports drink carbs)

That's what my doctor told me to do... eat more often. I often drink

sports drinks while I'm exercising too.

athan

[Guest guest]

I've noticed that I very seldom get muscle cramps since my CBD was dilated

a year ago last spring. I'm also much less tolerant of dehydration.

I will say that leading a pace line at 25 mph for more than a couple of

minutes is about 10 years in the past, for me. So are 6:30 miles. I'd

prefer to chalk it up to age - it's a valid reason. On the other hand,

running 3 miles/day or biking 10 miles/day (at ANY pace) is doing better

than the vast majority of the US population. I'll keep on as long as I can.

Arne

51 - UC 1977 - PSC 2000

Alive and (mostly) well in Minnesota

> I wonder if the " solution " is eating more during exercise to preserve the

> glycogen stotes in the muscles. I do find that I need to eat often. (or

> drink sports drink carbs)

That's what my doctor told me to do... eat more often. I often drink

sports drinks while I'm exercising too.

athan