Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 Welcome to the group Chris. !981 is a long time. That put's you in the same longevity territory as me. Your message says your creatinine is .6 I have to assume you meant 6 if you are in the U.S., especially if you are on a low protein diet. 0.6 mg/dl would be very, very mild IgAN, especially having IgAN since 1981. .... or is that millimoles? What country are you in? Lower back pain, to my knowledge isn't a common thing among IgAN patients. For one thing, the kidneys are higher up than that. I guess anything is possible though. The official line is that nothing you eat or don't eat will affect your creatinine significantly. From my own personal experience as a pre-dialysis patient, I would have to agree with that. So my answer would have to be no, I don't think the low protein diet will lower your creatinine, unless you lose muscle mass because of it (which you don't want to do - since that would be a sign of malnutrition, definitely not what you want!). Of course, that's not to say that, if you are in more advanced renal failure, as I suspect you are, the lower protein diet isn't helpful in other ways - because it definitely is. For one thing, it may delay the need for dialysis somewhat, and it will help to keep your renal failure symptoms at a minimum. Pierre Lower back pain > Hi All, I am new to this group. I was diagnosed with IgaN back in > 1981 and I have gradually been getting worse. Last time I went to the > doctor he said my creatine was up to .6. Since then I have been > experiencing lower back pain, on both sides of my back. Is this > common for Iga sufferers? I am on a low protein diet at the moment. > Is a low protein diet going to bring my creatine levels down? I hope > you dont mind these questions as I am a little confused and my doctor > is very negative. > Best regards to all, > Chris > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 Hi Chris A no animal protein diet certainly made a huge difference to all my 'numbers' - and I know that is so because I was already taking meds for high blood pressure and raised cholesterol before I was diagnosed with IgA and the only further change I made, on the advice of my neph, was to stop eating animal protein. In 12 weeks my blood and urine results were quite different and continue to go down (3 years now) except for times when I have a viral infection. After I recover from the infection my results go back to where they were and then continue to improve. I know other members of the group don't share my conviction re the no animal protein diet but my advice would be to discuss it with your neph and, if supported, give it a try. Remember to take appropriate supplements (see Pierre's excellent files for advice on this) and get advice from a renal dietician - although in my experience some dieticians are better informed than others. Good luck. Laraine Lower back pain Hi All, I am new to this group. I was diagnosed with IgaN back in 1981 and I have gradually been getting worse. Last time I went to the doctor he said my creatine was up to .6. Since then I have been experiencing lower back pain, on both sides of my back. Is this common for Iga sufferers? I am on a low protein diet at the moment. Is a low protein diet going to bring my creatine levels down? I hope you dont mind these questions as I am a little confused and my doctor is very negative. Best regards to all, Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 -Hi Pierre, I live in Australia, and I assume the number would be 6 as my doctor is talking about if I reach 9 I would probably needing dialysis. Hopefully I can delay reaching 9 for some time yet but my doctor is very negative which makes it hard for me to remain positive. -- In iga-nephropathy@y..., " Pierre " <pgl-groups@s...> wrote: > Welcome to the group Chris. > > !981 is a long time. That put's you in the same longevity territory as me. > > Your message says your creatinine is .6 > I have to assume you meant 6 if you are in the U.S., especially if you are > on a low protein diet. > 0.6 mg/dl would be very, very mild IgAN, especially having IgAN since 1981. > > ... or is that millimoles? What country are you in? > > > Lower back pain, to my knowledge isn't a common thing among IgAN patients. > For one thing, the kidneys are higher up than that. I guess anything is > possible though. > > The official line is that nothing you eat or don't eat will affect your > creatinine significantly. From my own personal experience as a pre- dialysis > patient, I would have to agree with that. So my answer would have to be no, > I don't think the low protein diet will lower your creatinine, unless you > lose muscle mass because of it (which you don't want to do - since that > would be a sign of malnutrition, definitely not what you want!). Of course, > that's not to say that, if you are in more advanced renal failure, as I > suspect you are, the lower protein diet isn't helpful in other ways - > because it definitely is. For one thing, it may delay the need for dialysis > somewhat, and it will help to keep your renal failure symptoms at a minimum. > > Pierre > > Lower back pain > > > > Hi All, I am new to this group. I was diagnosed with IgaN back in > > 1981 and I have gradually been getting worse. Last time I went to the > > doctor he said my creatine was up to .6. Since then I have been > > experiencing lower back pain, on both sides of my back. Is this > > common for Iga sufferers? I am on a low protein diet at the moment. > > Is a low protein diet going to bring my creatine levels down? I hope > > you dont mind these questions as I am a little confused and my doctor > > is very negative. > > Best regards to all, > > Chris > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2002 Report Share Posted March 4, 2002 Hi Welcome to our group. Sorry to hear that you are suffering with pain at the moment. Some of us in this group (myself included) suffer low back pain or flank pain, which most Nephrologists are at a loss to explain, but I think our understanding of it in the introduction of this group, is a fair explanation. As a matter of course, have you ever been followed up by a Urologist ? Sometimes like me, you can have two different problems going on here, which make you think it is kidney related, when in fact it is more urologic. In my case it usually means a UTI? Worth a check if you have not already done so. As far as your doctor being negative, this is a great pity, and not what you need right now. Would it be possible to change your GP? Good luck ok, and I hope you feel better soon. With best wishes UK Re: Lower back pain -Hi Pierre, I live in Australia, and I assume the number would be 6 as my doctor is talking about if I reach 9 I would probably needing dialysis. Hopefully I can delay reaching 9 for some time yet but my doctor is very negative which makes it hard for me to remain positive. -- In iga-nephropathy@y..., " Pierre " <pgl-groups@s...> wrote: > Welcome to the group Chris. > > !981 is a long time. That put's you in the same longevity territory as me. > > Your message says your creatinine is .6 > I have to assume you meant 6 if you are in the U.S., especially if you are > on a low protein diet. > 0.6 mg/dl would be very, very mild IgAN, especially having IgAN since 1981. > > ... or is that millimoles? What country are you in? > > > Lower back pain, to my knowledge isn't a common thing among IgAN patients. > For one thing, the kidneys are higher up than that. I guess anything is > possible though. > > The official line is that nothing you eat or don't eat will affect your > creatinine significantly. From my own personal experience as a pre- dialysis > patient, I would have to agree with that. So my answer would have to be no, > I don't think the low protein diet will lower your creatinine, unless you > lose muscle mass because of it (which you don't want to do - since that > would be a sign of malnutrition, definitely not what you want!). Of course, > that's not to say that, if you are in more advanced renal failure, as I > suspect you are, the lower protein diet isn't helpful in other ways - > because it definitely is. For one thing, it may delay the need for dialysis > somewhat, and it will help to keep your renal failure symptoms at a minimum. > > Pierre > > Lower back pain > > > > Hi All, I am new to this group. I was diagnosed with IgaN back in > > 1981 and I have gradually been getting worse. Last time I went to the > > doctor he said my creatine was up to .6. Since then I have been > > experiencing lower back pain, on both sides of my back. Is this > > common for Iga sufferers? I am on a low protein diet at the moment. > > Is a low protein diet going to bring my creatine levels down? I hope > > you dont mind these questions as I am a little confused and my doctor > > is very negative. > > Best regards to all, > > Chris > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2002 Report Share Posted March 4, 2002 Hi Chris. Ok, now I know that's in millimoles. I'm a 4 using those numbers, and going for my fistula surgery soon. In my case, my neph expects me to need dialysis probably before I reach 6 (you must be bigger than me). When you're at that level, serum creatinine reflects the amount of permanent damage and loss of kidney function. That can't be repaired by doing or not doing anything, so, except for minor fluctuations now and again, your serum creatinine isn't likely to go down. But you should still follow your low protein renal diet. As I said before, that might buy you some time, plus it will minimize any symptoms you might have from the kidney failure (like nausea, itching, cramps, etc.). At some point, dialysis becomes inevitable, and it's only a matter of time. It's hard to be positive in a situation like that, but being negative ain't going to change the situation. The way I look at it, I can either be miserable, or not miserable. I prefer the latter. But, I agree with you that it can be hard sometimes. Did you get your low protein diet from a renal dietician? Pierre Canada Re: Lower back pain > -Hi Pierre, > I live in Australia, and I assume the number would be 6 as my doctor > is talking about if I reach 9 I would probably needing dialysis. > Hopefully I can delay reaching 9 for some time yet but my doctor is > very negative which makes it hard for me to remain positive. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2002 Report Share Posted March 4, 2002 That would be difficult having a doctor who is negative like that - if you are finding that you don't have any confidence in him because of it, maybe it might be an idea to change nephs if you possibly can. Where abouts in Australia are you living? I'm living in Melbourne, , and there are also other Australians who visit this site, too. crv8au wrote: -Hi Pierre, I live in Australia, and I assume the number would be 6 as my doctor is talking about if I reach 9 I would probably needing dialysis. Hopefully I can delay reaching 9 for some time yet but my doctor is very negative which makes it hard for me to remain positive. -- In iga-nephropathy@y..., " Pierre " <pgl-groups@s...> wrote: > Welcome to the group Chris. > > !981 is a long time. That put's you in the same longevity territory as me. > > Your message says your creatinine is .6 > I have to assume you meant 6 if you are in the U.S., especially if you are > on a low protein diet. > 0.6 mg/dl would be very, very mild IgAN, especially having IgAN since 1981. > > ... or is that millimoles? What country are you in? > > > Lower back pain, to my knowledge isn't a common thing among IgAN patients. > For one thing, the kidneys are higher up than that. I guess anything is > possible though. > > The official line is that nothing you eat or don't eat will affect your > creatinine significantly. From my own personal experience as a pre- dialysis > patient, I would have to agree with that. So my answer would have to be no, > I don't think the low protein diet will lower your creatinine, unless you > lose muscle mass because of it (which you don't want to do - since that > would be a sign of malnutrition, definitely not what you want!). Of course, > that's not to say that, if you are in more advanced renal failure, as I > suspect you are, the lower protein diet isn't helpful in other ways - > because it definitely is. For one thing, it may delay the need for dialysis > somewhat, and it will help to keep your renal failure symptoms at a minimum. > > Pierre > > Lower back pain > > > > Hi All, I am new to this group. I was diagnosed with IgaN back in > > 1981 and I have gradually been getting worse. Last time I went to the > > doctor he said my creatine was up to .6. Since then I have been > > experiencing lower back pain, on both sides of my back. Is this > > common for Iga sufferers? I am on a low protein diet at the moment. > > Is a low protein diet going to bring my creatine levels down? I hope > > you dont mind these questions as I am a little confused and my doctor > > is very negative. > > Best regards to all, > > Chris > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2002 Report Share Posted March 5, 2002 Hi, I am trying to stop eating animal protein (except fish) based on advice from my doctor, for three months now. My numbers did indeed come down. I am not sure if it is related to my new diet. I think eating a bit lesser of red meat would not harm anyone. Regards, Wee Liat > Hi Chris > > A no animal protein diet certainly made a huge difference to all my 'numbers' - and I know that is so because I was already taking meds for high blood pressure and raised cholesterol before I was diagnosed with IgA and the only further change I made, on the advice of my neph, was to stop eating animal protein. In 12 weeks my blood and urine results were quite different and continue to go down (3 years now) except for times when I have a viral infection. After I recover from the infection my results go back to where they were and then continue to improve. > > I know other members of the group don't share my conviction re the no animal protein diet but my advice would be to discuss it with your neph and, if supported, give it a try. Remember to take appropriate supplements (see Pierre's excellent files for advice on this) and get advice from a renal dietician - although in my experience some dieticians are better informed than others. > > Good luck. > > Laraine > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2002 Report Share Posted March 5, 2002 Hi Jennie, I live in Pakenham and see a Neph in Melbourne. My next visit is in around 3 weeks, and I am hoping my numbers haven't got any worse. Regards Chris -- In iga-nephropathy@y..., Jennie Bright <jennieeb@y...> wrote: > > > That would be difficult having a doctor who is negative like that - if you are finding that you don't have any confidence in him because of it, maybe it might be an idea to change nephs if you possibly can. Where abouts in Australia are you living? I'm living in Melbourne, , and there are also other Australians who visit this site, too. > crv8au <crv8@h...> wrote: -Hi Pierre, > I live in Australia, and I assume the number would be 6 as my doctor > is talking about if I reach 9 I would probably needing dialysis. > Hopefully I can delay reaching 9 for some time yet but my doctor is > very negative which makes it hard for me to remain positive. > > > > > > > > > > > > > > > > > > > > -- In iga-nephropathy@y..., " Pierre " <pgl-groups@s...> wrote: > > Welcome to the group Chris. > > > > !981 is a long time. That put's you in the same longevity territory > as me. > > > > Your message says your creatinine is .6 > > I have to assume you meant 6 if you are in the U.S., especially if > you are > > on a low protein diet. > > 0.6 mg/dl would be very, very mild IgAN, especially having IgAN > since 1981. > > > > ... or is that millimoles? What country are you in? > > > > > > Lower back pain, to my knowledge isn't a common thing among IgAN > patients. > > For one thing, the kidneys are higher up than that. I guess > anything is > > possible though. > > > > The official line is that nothing you eat or don't eat will affect > your > > creatinine significantly. From my own personal experience as a pre- > dialysis > > patient, I would have to agree with that. So my answer would have > to be no, > > I don't think the low protein diet will lower your creatinine, > unless you > > lose muscle mass because of it (which you don't want to do - since > that > > would be a sign of malnutrition, definitely not what you want!). Of > course, > > that's not to say that, if you are in more advanced renal failure, > as I > > suspect you are, the lower protein diet isn't helpful in other ways > - > > because it definitely is. For one thing, it may delay the need for > dialysis > > somewhat, and it will help to keep your renal failure symptoms at a > minimum. > > > > Pierre > > > > Lower back pain > > > > > > > Hi All, I am new to this group. I was diagnosed with IgaN back in > > > 1981 and I have gradually been getting worse. Last time I went to > the > > > doctor he said my creatine was up to .6. Since then I have been > > > experiencing lower back pain, on both sides of my back. Is this > > > common for Iga sufferers? I am on a low protein diet at the > moment. > > > Is a low protein diet going to bring my creatine levels down? I > hope > > > you dont mind these questions as I am a little confused and my > doctor > > > is very negative. > > > Best regards to all, > > > Chris > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 Hi I'm in Thornbury, and I'm currently seeing a neph in Geelong, as I only relocated from there at the start of February. But I'm happy enough to keep travelling to Geelong to see him, as I'm currently only having to see him every 12 months, so its not as though I'm always having to run up to Geelong to see him. Anyway, all the best with your next neph visit. Let us all know how it goes. crv8au wrote: Hi Jennie, I live in Pakenham and see a Neph in Melbourne. My next visit is in around 3 weeks, and I am hoping my numbers haven't got any worse. Regards Chris -- In iga-nephropathy@y..., Jennie Bright <jennieeb@y...> wrote: > > > That would be difficult having a doctor who is negative like that - if you are finding that you don't have any confidence in him because of it, maybe it might be an idea to change nephs if you possibly can. Where abouts in Australia are you living? I'm living in Melbourne, , and there are also other Australians who visit this site, too. > crv8au <crv8@h...> wrote: -Hi Pierre, > I live in Australia, and I assume the number would be 6 as my doctor > is talking about if I reach 9 I would probably needing dialysis. > Hopefully I can delay reaching 9 for some time yet but my doctor is > very negative which makes it hard for me to remain positive. > > > > > > > > > > > > > > > > > > > > -- In iga-nephropathy@y..., " Pierre " <pgl-groups@s...> wrote: > > Welcome to the group Chris. > > > > !981 is a long time. That put's you in the same longevity territory > as me. > > > > Your message says your creatinine is .6 > > I have to assume you meant 6 if you are in the U.S., especially if > you are > > on a low protein diet. > > 0.6 mg/dl would be very, very mild IgAN, especially having IgAN > since 1981. > > > > ... or is that millimoles? What country are you in? > > > > > > Lower back pain, to my knowledge isn't a common thing among IgAN > patients. > > For one thing, the kidneys are higher up than that. I guess > anything is > > possible though. > > > > The official line is that nothing you eat or don't eat will affect > your > > creatinine significantly. From my own personal experience as a pre- > dialysis > > patient, I would have to agree with that. So my answer would have > to be no, > > I don't think the low protein diet will lower your creatinine, > unless you > > lose muscle mass because of it (which you don't want to do - since > that > > would be a sign of malnutrition, definitely not what you want!). Of > course, > > that's not to say that, if you are in more advanced renal failure, > as I > > suspect you are, the lower protein diet isn't helpful in other ways > - > > because it definitely is. For one thing, it may delay the need for > dialysis > > somewhat, and it will help to keep your renal failure symptoms at a > minimum. > > > > Pierre > > > > Lower back pain > > > > > > > Hi All, I am new to this group. I was diagnosed with IgaN back in > > > 1981 and I have gradually been getting worse. Last time I went to > the > > > doctor he said my creatine was up to .6. Since then I have been > > > experiencing lower back pain, on both sides of my back. Is this > > > common for Iga sufferers? I am on a low protein diet at the > moment. > > > Is a low protein diet going to bring my creatine levels down? I > hope > > > you dont mind these questions as I am a little confused and my > doctor > > > is very negative. > > > Best regards to all, > > > Chris > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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