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Re: facial paralysis

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In a message dated 10/30/99 1:19:30 PM Eastern Daylight Time,

jemerick@... writes:

<< Cathrine and Mikey what did you think of the lights flashing

when the subway train was coming? >>

It's funny, because about a year ago, I rode the DC Metro with a friend who

has lived in DC all her life (and rides the metro before). I kept saying

" Here comes the train " and it would come, finally she asked me " How can you

tell? " and I said the Lights in the Platform flash when it's coming! She had

never noticed, always relying on the fact that she could hear it coming.

Pete

Who knows a few (very few) signs, so Joanie can't hate me <g>

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Joanie,

I have to agree with you 100%! Has anybody seen the movie " Children of a

Lesser God " ? If so, you noticed they did not have TTY's, captioned TV's, or

any of the modern technologies that are available now. You just have to

decide that this is the fate that you have been dealt and make the most of

it!

My .02 worth!

Donna

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Joanie

I think it's kinda rude to say that ur sick of " this ASL crap " . I don't

put down people that don't know it. I use ASL and PSE what's so wrong with

that? Who are you to say what people should learn or not? Marie and I chatted

in Houston and I don't think I ever gave the impression that I'd rather be

chatting with someone who knows ASL. My thoughts for us late deafened is to

use what ever we feel comfy using. Why is that wrong? Don't knock others

methods is all I'm saying; if you don't like ASL that's cool, that's ur beef,

but don't say those of us that do use it are full of crap.

in AZ

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The many TTYs and captioned tv shows are here because someone spoke up and

said that they are needed now instead of being quite about it. We can live

with our deafness, but we don't have to live with the insensitivity and

ignorance of the outside world to those who aren't deaf like us.

Mark

----Original Message Follows----

From: DonnaHut@...

Reply-To: NF2_Crewonelist

To: NF2_Crewonelist

Subject: Re: facial paralysis

Date: Sat, 30 Oct 1999 14:52:12 EDT

From: DonnaHut@...

Joanie,

I have to agree with you 100%! Has anybody seen the movie " Children of a

Lesser God " ? If so, you noticed they did not have TTY's, captioned TV's, or

any of the modern technologies that are available now. You just have to

decide that this is the fate that you have been dealt and make the most of

it!

My .02 worth!

Donna

------------------------------------------------------------------------

See what's happening for NF2Con 2000!

http://www.home.earthlink.net/~earldillon/nf2convegas2000.html

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AMEN .

Mark

----Original Message Follows----

From: Misha64@...

Reply-To: NF2_Crewonelist

To: NF2_Crewonelist

Subject: Re: facial paralysis

Date: Sat, 30 Oct 1999 16:42:27 EDT

From: Misha64@...

Joanie

I think it's kinda rude to say that ur sick of " this ASL crap " . I don't

put down people that don't know it. I use ASL and PSE what's so wrong with

that? Who are you to say what people should learn or not? Marie and I

chatted

in Houston and I don't think I ever gave the impression that I'd rather be

chatting with someone who knows ASL. My thoughts for us late deafened is to

use what ever we feel comfy using. Why is that wrong? Don't knock others

methods is all I'm saying; if you don't like ASL that's cool, that's ur

beef,

but don't say those of us that do use it are full of crap.

in AZ

------------------------------------------------------------------------

See what's happening for NF2Con 2000!

http://www.home.earthlink.net/~earldillon/nf2convegas2000.html

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Marie,

You HAVE experienced total deafness, with me. What do you think? I was

still able to get around and communicate with people. I mean I went

off, by myself, to Chinatown for lunch at the con. I really get upset

with people who say ASL this or ASL that. I dont use ASL and I know of

very few Late deafned that do. I use more PSE or really I just use

signs NOT ASL. AS for expressivenes on the face, well I have a

paralysis and thus far, in these many years, it has not been a problem

communicating in signs with people. The problem has been with HEARING

people and speaking to them. The other excuse I hear, well is it hard

to learn? Well is French hard to learn or Spanish and how long does it

take to learn them? That equals sign as well. Get off the ASL crap.

Marie signed to me , just a few signs she knew and I understoood her

very well and also I was able to lipread her even with her paralysis. I

just get so sick of the excuse people give for not learning a few

SIGNS. The bottom line is you CAN live deaf. It may not be great, but

you CAN. Things are getting so much more accessible these days then

before. Cathrine and Mikey what did you think of the lights flashing

when the subway train was coming? That is neat. Paralysis can be fixed

and you live with it. Deafness, to some extent can be fixed and things

in your enviroment can be fixed.

Joanie - getting off my soap box and ohhh Marie what I can say about

your comment about men and pants, hahahahahah Watch out Mikey when you

are driving with her to events:):):)

Joanie

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I don't understand your question What do you want clarified?

Marie

facial paralysis

>

>

> To Marie and list, This is the first I am reading about associated

>problems with facial paralysis,please clarify. I can only imagine....

>but then again I really can't.

> Thanks, Martha

> PS- I am way behind on my list reading ..if this has been addressed,

>please excuse.

>

> " As far as the facial vs. hearing; one sided hearing loss vs.

>facial: Facial is MUCH more important; however deafness vs. facial--well I

>can only give MY opinion; I have one sided paralysis, severe; It has caused

>me many more problems than my hearing; I know face total deafness, but if I

>have to choose between total facial paralysis and deafness, I would choose

>deafness. Others may feel differently. And of course I have not

experienced

>deafness. " Marie

>------------------------------------------------------------------------

>See what's happening for NF2Con 2000!

>http://www.home.earthlink.net/~earldillon/nf2convegas2000.html

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we don't have here tty or captiond t.v and i don't think you should compere

defeness with facial parallysis ,i have both and i don't like nither/

netta

Has anybody seen the movie " Children of a

>Lesser God " ? If so, you noticed they did not have TTY's, captioned TV's,

>or

>any of the modern technologies that are available now. You just have to

>decide that this is the fate that you have been dealt and make the most of

>it!

>

>My .02 worth!

>Donna

>------------------------------------------------------------------------

>See what's happening for NF2Con 2000!

>http://www.home.earthlink.net/~earldillon/nf2convegas2000.html

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