Guest guest Posted November 15, 1999 Report Share Posted November 15, 1999 Hi Jeff, My first surgery I lost about 10 lbs at most, but I gained it all back plus about 5 more with in maybe a month. My second surgery I lost about 15 lbs....I'm only 4 11 so ppl are starting to notice. I had the surgery in June and the weight still isn't coming back, it's actually gotten a little worse. I'm glad you brought up this thread, I was just getting ready to ask something similar about this. Any one have ideas??? Hugs, in AZ PS The surgery went fine, no " weird " things happened except I went deaf. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 Wow Steve, Excercise did wonders for me too. Aside from NF2, I was overweight with high blood pressure. Thanks to a trainer/friend I was able to lose 50lbs through weight training and cardio/vascular work. With a suggestion from another Crew member, I had strengthened my legs to help me with some balance problems and it has worked. Granted I still sway from side to side, but not as much. I also agree with you that excercise helps you mentally. For me at least, it helps me to alleviate stress. Just wanted to say I agree with, Steve. Mark ----Original Message Follows---- From: Scwashdc@... Reply-To: NF2_Crewonelist To: NF2_Crewonelist Subject: Re: QUESTION-Weight Date: Tue, 16 Nov 1999 11:23:13 EST From: Scwashdc@... I lost about 25 pounds following my acoustic neuroma surgery way back in 1971. I then proceed to blimp out, gaining around 50. I'm a small-framed, 5' 8 " guy so these weight fluctuations were quite dramatic. I went from being a normally thin person, to an emaciated string bean, and then to quite the porker. In the early 70s I got disgusted with my new spare tire and chubby cheeks and began exercising--running, weight-training, etc. This summer I added biking to my routines, and I'm probably in the best shape of my life. Practically all of you have had more NF-2 operations and complications than I've had and cannot exercise strenuously. But I urge everyone to develop an exercise program compatible with your physical situation and to follow it regularly. Over the years, exercise has simply made me feel better, both physically and mentally. I cannot overestimate its benefits. Steve Cherrington ------------------------------------------------------------------------ See what's happening for NF2Con 2000! http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 I lost about 25 pounds following my acoustic neuroma surgery way back in 1971. I then proceed to blimp out, gaining around 50. I'm a small-framed, 5' 8 " guy so these weight fluctuations were quite dramatic. I went from being a normally thin person, to an emaciated string bean, and then to quite the porker. In the early 70s I got disgusted with my new spare tire and chubby cheeks and began exercising--running, weight-training, etc. This summer I added biking to my routines, and I'm probably in the best shape of my life. Practically all of you have had more NF-2 operations and complications than I've had and cannot exercise strenuously. But I urge everyone to develop an exercise program compatible with your physical situation and to follow it regularly. Over the years, exercise has simply made me feel better, both physically and mentally. I cannot overestimate its benefits. Steve Cherrington Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 I always thought the reason I could not gain the weight back was because I had to eat my own cooking! From the looks of it this is a common problem. Jeff W. From: Misha64@... Hi Jeff, My first surgery I lost about 10 lbs at most, but I gained it all back plus about 5 more with in maybe a month. My second surgery I lost about 15 lbs....I'm only 4 11 so ppl are starting to notice. I had the surgery in June and the weight still isn't coming back, it's actually gotten a little worse. I'm glad you brought up this thread, I was just getting ready to ask something similar about this. Any one have ideas??? Hugs, in AZ PS The surgery went fine, no " weird " things happened except I went deaf. ------------------------------------------------------------------------ See what's happening for NF2Con 2000! http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 I can sure empathize with Steve's situation. I have not had surgery for AN but underwent chemo for cancer 6 years ago. I was about between 132-135 throughout the ordeal. Everyone else who had recovered a year or so later warned me about blimping out at least 20 lbs. Low and behold, I began to blimp out and then some about a couple years later. It did not happen right away (such as June explained). Finally my body metabolism is starting to work its way back now and I am on my way down in size!! Why this happens is because they body goes in a state of shock. For those with the fast metabolisms I imagine they do not have as much of a problem. However, mine was slow at the start. When your body goes thru such a trauma it feels (or is more or less) starved. Now your body starts to wise up and so oh oh, we don't want to have that happen again. Thus your metabolism slows down so that the body goes into mass storage mode. It changes its chemistry and stores more fat reserves in the event that the body is traumatized again. (Note that normally the fats are the last energy source utilized by the body). However annoying it is this is the body's way of protection against malnurishment. Here is something to add to your words of wisdom for those struggling with the (TOO MUCH) weight issue: So what do you so when this happens? Well it is a long course back to change it but it is possible. First off, building muscle is the fastest (natural way) to speed your metabolism. Muscle weighs more than fat and utilizes more energy. You will actually have to start eating more in order to adequately fuel muscles once you have become in shape. Eating a lower fat diet also helps curb your BMR (basal metabolic rate) in the right direction. The most important however, is to get up and exercise. For those with slow BMRs at least 4-5 days a week for a minimum of a half hour is necessary. The exercise should not be too hard (above 75% of your resting heartrate) or the body will go into shock again (resist burning the fat stores). Fiber also helps aid the metabolism improvement process because it requires more energy to digest. For those who are having the thinness problem, please please do not try gaining by eating very high fat foods. This is very dangerous to your health! People can still be rather thin but also very fat! Having a high body fat compostition as opposed to lean muscle opens the door to very serious health problems (heart disease, cancers, diabetes, etc.). The best thing to do is to remain active in exercise, get on a weight training program and eat a good diet. You have the good fortune of splurging more but it is important to make sure your fat comsumption is less than 40% of your daily diet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 Interesting thread, Jeff. I went from 127 to just 92 lbs. after my first surgery. Seventeen years later, I have gained most of it back. I fell into anorexia nervosa for a very long time bc I felt my weight was the only thing I could control by myself in a very " out of control " time of my life. Classic excuse. It wasn't until about 5 years ago that I felt comfortable enough to start eating more food to return to that original weight. Jennette [Oregon] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 1999 Report Share Posted November 17, 1999 Steve, I totally agree about the benefits of regular exercise. I have such a great day after I go for a run in the morning. However, lately I'm finding it more and more difficult to actually get out there and run. I guess I'm just lazy! But I urge everyone to develop an > exercise program compatible with your physical situation and to follow it > regularly. Over the years, exercise has simply made me feel better, both > physically and mentally. I cannot overestimate its benefits. > > Steve Cherrington Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 1999 Report Share Posted November 22, 1999 You are so right, I rode my bike 17 miles yesterday and it is 6 am now and I feel soooooooo good. Any yes i can ride despite not having perfect baalance and one hand that is pretty weak, not a problem. But if you are deaf make sure you have a mirror on your bike!!! Chartrand wrote: > > > Steve, > > I totally agree about the benefits of regular exercise. I have such a great > day after I go for a run in the morning. However, lately I'm finding it > more and more difficult to actually get out there and run. I guess I'm just > lazy! > > > > But I urge everyone to develop an > > exercise program compatible with your physical situation and to follow it > > regularly. Over the years, exercise has simply made me feel better, both > > physically and mentally. I cannot overestimate its benefits. > > > > Steve Cherrington > ------------------------------------------------------------------------ > See what's happening for NF2Con 2000! > http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
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