I'm back

[Guest guest]

In a message dated 1/28/00 3:07:59 PM Pacific Standard Time,

NF2_Crewonelist writes:

Dear ,

<< both my Mom and Dad who went under multiple heart procedures and

surgeries the past 3 months. I found myself again in the role of a

caregiver, maybe my life's destiny.

(What a lot to be dealing with! Not your destiny - just a test!)

In the middle of all this not only did both my parents get the flu, but so

did I despite the fact that we all had flu shots!

(Here's hoping you all at least had a milder case of it!)

There were some real lessons learned regarding seeking out the best doctors

available -- not just the best at your local community hospital. The

knowledge

and outcomes are frequently far different if you have the true experts.

(Would you care to expound on this? Does this mean you initially went to

some less good MDs and then experienced a difference when you were with a

true expert? It's always good to hear these stories - for learning and re

enforcement purposes. Hope you'll tell us more.)

Glad you're back,

Barbara B. NYC

[Guest guest]

Hope everything went well for you too, Pierre. Glad you're back at home.

If you wanna share your experiences, feel free....

You were sorely missed (not to take anything away from , who did a

great job covering for you).

Curtis

I'm back

Hi everyone. Just to let you know I'm back home. Lots of new messages and

some new members I see. It will probably take me a couple of days to catch

up, but, I will be reading every message. Hope everything went well for all

of you.

Pierre

Moderator

[Guest guest]

Thanks Curtis.

Just did a 24 hour urine collection at the hospital. Don't know the results

yet. I think this is my first since about a year ago.

Other than that, with 150 mg Avapro (irbesartan), 5 mg felodipine and 40 mg

furosemide, my resting BP (when at absolute rest) is still 130/90 - but

that's a big improvement. I have no edema at all, but I still seem to need

the diuretic (furosemide), despite a very strictly controlled and enforced

renal diet that is about as low as you can get in sodium. My nephrologist

said I am now about 12 months away from needing dialysis, but a lot will

depend on how well I can keep my BP controlled. It should still be lower. My

options for that are limited because there are a number of BP meds that I'm

either allergic to or that really, I mean really, don't agree with my body.

At this point, a person might think, hey, if I'm going to be on dialysis

anyway, and if the super strict renal diet may only delay that by weeks or

months, maybe I should just enjoy the food I like while I still can. But

then I regain my senses, since the high blood pressure is really deadlier

than the renal failure in many ways, so.... guess I won't have that pizza

tonight after all.

Pierre

I'm back

>

>

> Hi everyone. Just to let you know I'm back home. Lots of new messages and

> some new members I see. It will probably take me a couple of days to catch

> up, but, I will be reading every message. Hope everything went well for

all

> of you.

>

> Pierre

> Moderator

>

>

>

>

[Guest guest]

Hi Jen

Good to hear from you again. Also good to hear about about your

numbers, I hope they continue to improve. I absolutely agree with you

about having doctors you trust, in my opinion, it is half the battle. I

am very fortunate, I have a diligent GP and a very good Nephrologist,

the two combined give me heaps of faith.

Best wishes

I'm back

Hi all I'm back after a couple of months. Long story short I was

getting to much mail & my server kept telling me that, so I had to

quit the group for a while. Any way I had a checkup with my Neph

last month & it really went well. I have been quite dillegent about

taking my fish oil & medicins & it seems to have paid off a bit. My

levels were MUCH better that my last visit 3months prior. As a

matter of fact my creatine level is lower than it has been since I

was pregnant & they found the protien in my urine. My last visit it

was over 1700 & this time it was like 814. Also mykidney function

has increased from I think 60 something % to 71%. My blood pressure

was 100/80 so I was a little concerned by that but my Neph was very

encourageing. Having a doc that you can trust really makes a

difference. Any way.... Just wanted to " check in " Hope all is well

with all.

Jen

[Guest guest]

Hi Jen. Always great to have better numbers than the last time, eh!

No need to be concerned over a BP of 100/80 though. That's pretty good.

Pierre

I'm back

> Hi all I'm back after a couple of months. Long story short I was

> getting to much mail & my server kept telling me that, so I had to

> quit the group for a while. Any way I had a checkup with my Neph

> last month & it really went well. I have been quite dillegent about

> taking my fish oil & medicins & it seems to have paid off a bit. My

> levels were MUCH better that my last visit 3months prior. As a

> matter of fact my creatine level is lower than it has been since I

> was pregnant & they found the protien in my urine. My last visit it

> was over 1700 & this time it was like 814. Also mykidney function

> has increased from I think 60 something % to 71%. My blood pressure

> was 100/80 so I was a little concerned by that but my Neph was very

> encourageing. Having a doc that you can trust really makes a

> difference. Any way.... Just wanted to " check in " Hope all is well

> with all.

> Jen

>

>

>

>

[Guest guest]

---

Glad to hear you are getting better. I had the same problem with

mine. You TL story is a lot like mine. My baby DD will be 18

on June 20th and I was 20 when I had my TL done and have always

wanted to have another baby since new DH and I got together we have

talked about it. I had ny TR on 2-28-02 I had 4.5 on the right and

6.5 on the left.

Tina 38

DH Jack 31

DS 20

DD 17

TL 6-20-84

TR 2-28-02

right 4.5

LEFT 6.5

In TubalLigationReversal@y..., " jordanentj15 " <jordanentj15@y...>

wrote:

> Hi all I know I havent posted in a while and I dont really post

that

> much but i do keep with all the post I but I have been having some

> problems since my tr.Which was April 4,2002.But anyway im doing

> better now.My incision came a lose at the bottom of my stomach.My

> stomach kinda hang a little bit and Dr. Levin said that it was not

> getting the air that it need to heal.But it getting better now.I

was

> so scared out of my mind I did not know what to do.Dr. levin has

been

> wonderful.I had to call him on sat and he called right back.He is a

> god blessing.The surgery went well I didnt have a whole lot of pain

> either .DR levin said that my tubes went back together real well I

> ended up with 4.5 on the left and 6.5 on the right.I was really

> scared that i might have a lot of scar tissue.But I think the lord

> that the surgery went well because I was really worried that he

> might have not could done anything for me being that is has almost

> been 18 yrs since i had my tubes tied.(were tied)My baby will be 18

> in june. I really feel like their has been some type of relief

lifed

> off my body.I think the the lord for letting this finally happen

for

> me. I was only 19 when i had my tubes tied.And I have wanted a baby

> all those years and could not have one.Now that I'm 37 years old I

> pray that the lord give me another chance.Sorry that this so long I

> cant sit to long I gotta let this incicion breathe.

[Guest guest]

Mildred,

Glad that it is finally starting to heal. Take it easy and rest up while you

can.

in MI

I'm back

Hi all I know I havent posted in a while and I dont really post that

much but i do keep with all the post I but I have been having some

problems since my tr.Which was April 4,2002.But anyway im doing

better now.My incision came a lose at the bottom of my stomach.My

stomach kinda hang a little bit and Dr. Levin said that it was not

getting the air that it need to heal.But it getting better now.I was

so scared out of my mind I did not know what to do.Dr. levin has been

wonderful.I had to call him on sat and he called right back.He is a

god blessing.The surgery went well I didnt have a whole lot of pain

either .DR levin said that my tubes went back together real well I

ended up with 4.5 on the left and 6.5 on the right.I was really

scared that i might have a lot of scar tissue.But I think the lord

that the surgery went well because I was really worried that he

might have not could done anything for me being that is has almost

been 18 yrs since i had my tubes tied.(were tied)My baby will be 18

in june. I really feel like their has been some type of relief lifed

off my body.I think the the lord for letting this finally happen for

me. I was only 19 when i had my tubes tied.And I have wanted a baby

all those years and could not have one.Now that I'm 37 years old I

pray that the lord give me another chance.Sorry that this so long I

cant sit to long I gotta let this incicion breathe.

[Guest guest]

: Welcome back.. Sorry you are still hurting and sorry to here the Percogesic is not working for you.. Sure hope the Solanpas works for you.. I know they work good for me.. Gentle Caring Hug's Marie Marie A. Roomsburg pretty_n_cute2002@... marieava@...

[Guest guest]

Ah Kathleen hun sorry you were in the hospital... i know all about that place and those blood gasses what a pain in the wrist!~ I am so glad you are home and that you are feeling better hun ... get some rest and be sure to take care of yourself hun.. we missed ya and I am glad to see you again hugs

Huggles you lots

Sophia

-------Original Message-------

From: Krag52@...

Date: 12/02/04 14:23:35

[Guest guest]

Hi ... I've been gone for awhile. Actually, was in Hawaii for a week...getting traveling done before I can't do it any more! Anxious to hear how everyone is doing. Joy 3/6Joy (IPF 3/06) Today is a gift for each of us. Enjoy it.

[Guest guest]

Hi Joy, welcome home. I know Hawaii was good medication. I would love a big dose. We have a friend that has a condo in Kona and Oh I do LOVE it there. I don't think I could fly anymore. I don't know when all the fun stuff stops. How did you do on the flight? Are you ok other than being tired. Get a good rest.

Love and Prayers, Peggy 9/04 ipf Florida

Hi ... I've been gone for awhile. Actually, was in Hawaii for a week...getting traveling done before I can't do it any more! Anxious to hear how everyone is doing. Joy 3/6

Joy

(IPF 3/06)

Today is a gift for each

of us. Enjoy it.

[Guest guest]

Hi Joy, welcome home and glad to see you on board.

Sounds like your trip was a good one. I've never been to Hawaii. Lucky you.

Cya. Sher

"Don't worry about tomorrow, God is already there"

I'm back

Hi ... I've been gone for awhile. Actually, was in Hawaii for a week...getting traveling done before I can't do it any more! Anxious to hear how everyone is doing. Joy 3/6

Joy

(IPF 3/06)

Today is a gift for each

of us. Enjoy it.

[Guest guest]

Hi Peggy and Everyone! Just got back from having lunch with Sher, It was so much fun getting to meet in person and gab and gab and gab. . .I think I could have talked for 4 or 5 more hours but Sher wiselystopped us at the three hour mark (we were both getting a little sob). I think we should all fly to Kona and spend a week in your condo-eating and talking and laughing and eating some more.I am putting a photo of us on the website. Wish so much you could have been with us-Peggy wrote: Hi Joy, welcome home. I know Hawaii was good medication. I would love a big dose. We have a friend that has a condo in Kona and Oh I do LOVE it there. I don't think I could fly anymore. I don't know when all the fun stuff stops. How did you do on the flight? Are you ok other than being tired. Get a good rest.Love and Prayers, Peggy 9/04 ipf Florida Hi ... I've been gone for awhile. Actually, was in Hawaii for a week...getting traveling done before I can't do it any more! Anxious to hear how everyone is doing. Joy 3/6Joy (IPF 3/06) Today is a gift for each of us. Enjoy it.

Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates.

[Guest guest]

Joy, I had a ticket to go to Honolulu this Thur. but had to cancel it

because my pulmonary doctor did not recommend that I fly now. It was

a big disappointment as I had the trip planned to see my new baby

grand daughter. Are you on oxygen 24/7 and if so what type of

portable concentrator are you using or what arrangements did you have

at the airports? My primary care doctor thought I could make the

trip, but when the pulmonary doc advised against it I agreed as the

logistics of the oxygen had me worried also I need to be available for

a lung transplant team when they call me to set up an evaluation.

Aloha, Judy

>

> Hi ... I've been gone for awhile. Actually, was in Hawaii for a

week...getting traveling done before I can't do it any more! Anxious

to hear how everyone is doing. Joy 3/6

>

> Joy

> (IPF 3/06)

> Today is a gift for each

> of us. Enjoy it.

>