Pulmonary Fibrosis caused by Amiodarone

[Guest guest]

Gordon from Sher....I'm no help here. No experience to pass along. Just want to say hi and glad to see you posting again.

You and your Dad are in my prayers...I can do that much.

hugs. Sher ipf 3-06

"Don't worry about tomorrow, God is already there"

Pulmonary Fibrosis caused by Amiodarone

My father has just been diagnosed with extensivepulmonary fibrosis. The leading indicator is that itwas caused by the drug Amiodarone, which he was takingfor his heath arrhythmia. My research on this drugwas stunning in that it shows about 10-17% of peoplethat take this drug develop pulmoanary fibrosis. Have others dealt with this. He has been on this drugfor about 2 years and developed breathing problemsabout a year and half ago which were reported to thedoctor. I really feel his primary physician shouldhave taken him off this drug right away. Am Ioverreacting on this? Any insight is helpful on this.Also it seems that the physicians will not give aclear prognosis of treatment and outcomes except torecommend predinsone for the short term.Thanks,Gordon __________________________________________________________It's here! Your new message! Get new email alerts with the free Yahoo! Toolbar.http://tools.search.yahoo.com/toolbar/features/mail/

[Guest guest]

I sent this email last week but didn't get much

response. I was just wondering if anyone had had any

experience with the heart drug Amiodarone and a

resulting side effect of pulmonary fibrosis.

My father was just diagnosed with extensive pulmonary

fibrosis. The leading indicator is that it

was caused by the drug Amiodarone, which he was taking

for his heath arrhythmia. My research on this drug

was stunning in that it shows about 10-17% of people

that take this drug develop pulmoanary fibrosis.

Have others dealt with this serious side effect from

this drug. He has been on this drug

for about 2 years and developed breathing problems

about a year and half ago which were reported to the

doctor. I really feel his primary physician should

have taken him off this drug right away. Am I

overreacting on this? Any insight is helpful on this.

Also it seems that the physicians will not give a

clear prognosis of treatment and outcomes except to

recommend predinsone for the short term.

Thanks,

Gordon

________________________________________________________________________________\

____

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Go to www.Answers.yahoo.com and get answers from real people who know.

[Guest guest]

Dear Gordon:

I am on the drug Paceron which is Amiodarone. My

cardiologist wrote to my pulmonary doctor to get

approval to put me on the drug as I already have

" restrictive " lung disease. My pulmonologist wrote

back saying I could take the drug for my irregular

heart beats for 6 months and then retest for my PFT.

My pulmo was very concerned about it; but my

cardiologist seemed to think it was the best drug for

my premature vent. contractions as nothing else has

worked. I have been on Amiodarone for 3 months at 200

mg twice daily and in March will be reduced to 200 mg

once daily. This drug stays in your system for quite

a long time and builds up in your liver (as I

understand) so it needs to be checked regularly in

your blood (according to cardio). My skipping is gone

and I have no harder time breathing than before. But

it's only been 3 months...and I'm being monitored.

Hope this helps you.

--- Gordon Mosley wrote:

> I sent this email last week but didn't get much

> response. I was just wondering if anyone had had

> any

> experience with the heart drug Amiodarone and a

> resulting side effect of pulmonary fibrosis.

>

> My father was just diagnosed with extensive

> pulmonary

> fibrosis. The leading indicator is that it

> was caused by the drug Amiodarone, which he was

> taking

> for his heath arrhythmia. My research on this drug

> was stunning in that it shows about 10-17% of people

> that take this drug develop pulmoanary fibrosis.

>

> Have others dealt with this serious side effect from

> this drug. He has been on this drug

> for about 2 years and developed breathing problems

> about a year and half ago which were reported to the

> doctor. I really feel his primary physician should

> have taken him off this drug right away. Am I

> overreacting on this? Any insight is helpful on

> this.

>

> Also it seems that the physicians will not give a

> clear prognosis of treatment and outcomes except to

> recommend predinsone for the short term.

>

> Thanks,

> Gordon

>

>

>

>

>

________________________________________________________________________________\

____

> Have a burning question?

> Go to www.Answers.yahoo.com and get answers from

> real people who know.

>

[Guest guest]

,

It does, actually, especially as much as you are being

monitored on it.

Thank you for the input.

Best,

Gordon

--- Geesey wrote:

> Dear Gordon:

>

> I am on the drug Paceron which is Amiodarone. My

> cardiologist wrote to my pulmonary doctor to get

> approval to put me on the drug as I already have

> " restrictive " lung disease. My pulmonologist wrote

> back saying I could take the drug for my irregular

> heart beats for 6 months and then retest for my PFT.

>

> My pulmo was very concerned about it; but my

> cardiologist seemed to think it was the best drug

> for

> my premature vent. contractions as nothing else has

> worked. I have been on Amiodarone for 3 months at

> 200

> mg twice daily and in March will be reduced to 200

> mg

> once daily. This drug stays in your system for

> quite

> a long time and builds up in your liver (as I

> understand) so it needs to be checked regularly in

> your blood (according to cardio). My skipping is

> gone

> and I have no harder time breathing than before.

> But

> it's only been 3 months...and I'm being monitored.

> Hope this helps you.

> --- Gordon Mosley wrote:

>

> > I sent this email last week but didn't get much

> > response. I was just wondering if anyone had had

> > any

> > experience with the heart drug Amiodarone and a

> > resulting side effect of pulmonary fibrosis.

> >

> > My father was just diagnosed with extensive

> > pulmonary

> > fibrosis. The leading indicator is that it

> > was caused by the drug Amiodarone, which he was

> > taking

> > for his heath arrhythmia. My research on this

> drug

> > was stunning in that it shows about 10-17% of

> people

> > that take this drug develop pulmoanary fibrosis.

> >

> > Have others dealt with this serious side effect

> from

> > this drug. He has been on this drug

> > for about 2 years and developed breathing problems

> > about a year and half ago which were reported to

> the

> > doctor. I really feel his primary physician

> should

> > have taken him off this drug right away. Am I

> > overreacting on this? Any insight is helpful on

> > this.

> >

> > Also it seems that the physicians will not give a

> > clear prognosis of treatment and outcomes except

> to

> > recommend predinsone for the short term.

> >

> > Thanks,

> > Gordon

> >

> >

> >

> >

> >

>

________________________________________________________________________________\

____

> > Have a burning question?

> > Go to www.Answers.yahoo.com and get answers from

> > real people who know.

> >

>

>

________________________________________________________________________________\

____

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[Guest guest]

Gordon,

I am not familiar with Amiodarone but I took Methotrexate for Lupus. I knew the risks. I take Cellcept now which makes me susceptible to cancer and infections. But, what are the alternatives when you are dealing with life threatening disease. It is a no win situation. You just count the cost, make the best decision that you can and pray a lot.

As a sufferer of PF, I want to thank you for taking such an interest in your dad. It is such a blessing to have someone that loves you and cares about your pain. You will always be grateful that you helped him.

Hugs, Joyce PF/Lupus 1997 Bronchiectasis 2004 Indiana >> I sent this email last week but didn't get much> response. I was just wondering if anyone had had any> experience with the heart drug Amiodarone and a> resulting side effect of pulmonary fibrosis.> > My father was just diagnosed with extensive pulmonary> fibrosis. The leading indicator is that it> was caused by the drug Amiodarone, which he was taking> for his heath arrhythmia. My research on this drug> was stunning in that it shows about 10-17% of people> that take this drug develop pulmoanary fibrosis. > > Have others dealt with this serious side effect from> this drug. He has been on this drug> for about 2 years and developed breathing problems> about a year and half ago which were reported to the> doctor. I really feel his primary physician should> have taken him off this drug right away. Am I> overreacting on this? Any insight is helpful on this.> > Also it seems that the physicians will not give a> clear prognosis of treatment and outcomes except to> recommend predinsone for the short term.> > Thanks,> Gordon> > > > > ____________________________________________________________________________________> Have a burning question? > Go to www.Answers.yahoo.com and get answers from real people who know.>

[Guest guest]

I have IPF and was taking Amiodarone for my A-Fib. When I started on the drug, my cardiologist alerted me to the fact that it could cause lung problems. At the time my lung problem was not classified as IPF. After about 1 year, when I detected a further decrease in lung function, I alerted the MD and was taken off the drug immediately. Unfortunately, this has resulted in more episodes pf A-Fib, which is probably the lesser of the two evils. Other drugs for my heart no longer work. It seems that I have to wait to see which disease will get me first.

Ann S. Check out free AOL. Most comprehensive set of free safety and security tools, millions of free high-quality videos from across the web, free AOL Mail and much more.

[Guest guest]

Ann S.

ME too! I have so much going on that it is a guessing game as to what which disease will get me. Till then, I am running as fast as I can.

I don't think I have seen you posting before. If not, then welcome to our group. Hope to hear more of you.

Hugs, Joyce PF/Lupus 1997 Bronchiectasis 2004 Indianapolis >> I have IPF and was taking Amiodarone for my A-Fib. When I started on the > drug, my cardiologist alerted me to the fact that it could cause lung problems. > At the time my lung problem was not classified as IPF. After about 1 year, > when I detected a further decrease in lung function, I alerted the MD and > was taken off the drug immediately. Unfortunately, this has resulted in more > episodes pf A-Fib, which is probably the lesser of the two evils. Other drugs > for my heart no longer work. It seems that I have to wait to see which > disease will get me first.> > Ann S.> <BR><BR><BR>**************************************<BR> Check out free AOL at > http://free.aol.com/thenewaol/index.adp. Most comprehensive set of free > safety and security tools, millions of free high-quality videos from across the > web, free AOL Mail and much more.>

[Guest guest]

HI - My husband, Bud, was also on Amiodarone for a-fib. He was only

on it for a short while before the pulmo told the cardio to take him

off immediately. Hard lessons to live and learn. I see a lot of

discussion of Prednisone. Word of caution: diabetics need to be

extremely careful if Prednisone is prescribed. Make sure pulmo knows

if you also have diabetes; plays havoc with blood sugars.

It's a shame our collective wisdom can't cure this disease.

Love and light, Joanie

-- In Breathe-Support , chironud@... wrote:

>

> I have IPF and was taking Amiodarone for my A-Fib. When I started

on the

> drug, my cardiologist alerted me to the fact that it could cause

lung problems.

> At the time my lung problem was not classified as IPF. After

about 1 year,

> when I detected a further decrease in lung function, I alerted the

MD and

> was taken off the drug immediately. Unfortunately, this has

resulted in more

> episodes pf A-Fib, which is probably the lesser of the two evils.

Other drugs

> for my heart no longer work. It seems that I have to wait to see

which

> disease will get me first.

>

> Ann S.

> <BR><BR><BR>**************************************<BR> Check out

free AOL at

> http://free.aol.com/thenewaol/index.adp. Most comprehensive set of

free

> safety and security tools, millions of free high-quality videos

from across the

> web, free AOL Mail and much more.

>

[Guest guest]

Gordon et al.

Bud is just taking NAC for IPF (thanks to this group). The rest of

his meds are for heart condition and diabetes.

Joanie

-- In Breathe-Support , Gordon Mosley

wrote:

>

> Joanie,

>

> Thanks for your input. Unfortunately, my father

> wasn't warned by his doctor and has been on the drug

> for two years and so now we have to deal with both.

> He has just started a prednisone treatment which I am

> not too terribly excited about for him.

>

> Best,

> Gordon

> --- bud_kilmon wrote:

>

> > HI - My husband, Bud, was also on Amiodarone for

> > a-fib. He was only

> > on it for a short while before the pulmo told the

> > cardio to take him

> > off immediately. Hard lessons to live and learn. I

> > see a lot of

> > discussion of Prednisone. Word of caution:

> > diabetics need to be

> > extremely careful if Prednisone is prescribed. Make

> > sure pulmo knows

> > if you also have diabetes; plays havoc with blood

> > sugars.

> > It's a shame our collective wisdom can't cure this

> > disease.

> > Love and light, Joanie

> >

> >

> > -- In Breathe-Support , chironud@

> > wrote:

> > >

> > > I have IPF and was taking Amiodarone for my A-Fib.

> > When I started

> > on the

> > > drug, my cardiologist alerted me to the fact that

> > it could cause

> > lung problems.

> > > At the time my lung problem was not classified as

> > IPF. After

> > about 1 year,

> > > when I detected a further decrease in lung

> > function, I alerted the

> > MD and

> > > was taken off the drug immediately.

> > Unfortunately, this has

> > resulted in more

> > > episodes pf A-Fib, which is probably the lesser of

> > the two evils.

> > Other drugs

> > > for my heart no longer work. It seems that I have

> > to wait to see

> > which

> > > disease will get me first.

> > >

> > > Ann S.

> > >

> >

> <BR><BR><BR>**************************************<BR>

> > Check out

> > free AOL at

> > > http://free.aol.com/thenewaol/index.adp. Most

> > comprehensive set of

> > free

> > > safety and security tools, millions of free

> > high-quality videos

> > from across the

> > > web, free AOL Mail and much more.

> > >

> >

> >

> >

>

>

>

>

>

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