Re: new topic

[Guest guest]

..Leanne and everyone else, I have become aware that many of you have

a combination of miserable conditions that are somewhat related. I'm

referring to R.A., Lupus, Scleraderma specifically...in addition to PF

of one form or another. Is there a cause and effect relationship

between them and Pulmonary Fibrosis? My diagnosis has been NSIP...I

have no other auto-immune disease . In fact my first blood- test were

to "rule- out" these illnesses. I'm just wondering which came

first...will this NSIP lead to the other diseases? Right now I am

responding to Prednisone and Imuran and so many other drugs. The

fibrosis has not worsened as of the last HRCT and PFT. The Docs keep

asking if I feel worse when I go for check ups every 6 weeks...so far I

can honestly say that the majority of the time I feel "less bad" than

I did when I was first diagnosed in 7/05. I don't say" better" because

that word has sort of left my vocabulary in regard to my health. I

don't say "OK" either. If asked about my health I usually say " the

same thanks". Anyway, I have asked the Docs but they sort of hedge

their answers all the time. I think they really don't know. In fact I

feel that this group knows more about the disease than the Pulmonary

Specialists!!!

Z. fibriotic NSIP/05

"I'm gonna be iron like a lion in Zion" Bob Marley

http://www.nj.com/starledger/stories/index.ssf?/base/news-11/1171258884234190.xml & coll=1

Leanne uip 1/03

8:00? 8:25? 8:40?

Find a flick in no time

with theYahoo!

Search movie showtime shortcut.

-- Z. fibriotic NSIP/05

"I'm gonna be iron like a lion in Zion" Bob Marley

[Guest guest]

What causes pulmonary fibrosis?

Pulmonary fibrosis is a complicated illness that can

derive from many different causes. There are over 140

known causes or associations with pulmonary fibrosis.

It appears that the lung is reacting to some insult by

developing inflammation and subsequent fibrosis. The

nature of the initial insult is not always known and

although doctors may say that pulmonary fibrosis is

due to a given disease (for example, sarcoidosis) they

may not often know the specific causes of those

diseases either.

The most frequent causes of pulmonary fibrosis are

sarcoidosis, fibrosis associated with certain

occupational diseases, and pulmonary fibrosis in which

the causes are not known ( " idiopathic " ).

Occupational diseases and pulmonary fibrosis

Many jobs, particularly those that involve working

with asbestos, ground stone, or metal dust, can cause

pulmonary fibrosis. The small particles are inhaled,

damage the alveoli, and cause fibrosis. Some organic

substances, such as mouldy hay can also initiate

pulmonary fibrosis; this is know as farmer's lung.

Asbestosis and pulmonary fibrosis

Asbestosis is usually caused when small needle-like

particles of asbestos are inhaled into the lungs. This

can cause lung scarring (pulmonary fibrosis) and in

addition can lead to lung cancer.

The key to asbestosis is prevention. In manufacturing

asbestos products, both employer and employee must be

aware of government standards and should take all

precautions against inhaling the particles.

The paramount danger in working with asbestos comes

when old, friable (crumbly) asbestos-containing

products are replaced or destroyed. In those

circumstances, particles can be released into the air

and breathed into the lungs. Today however, the

asbestos fibres usually are " locked-in " by binders

such as cement, rubber or plastics, thus preventing

the particles from floating free in the air.

Cigarette smoking has an interactive relationship with

asbestos-the asbestos worker who smokes has a much

higher chance of developing lung cancer than does the

non-smoker.

Silicosis and pulmonary fibrosis

Silicosis is another disease producing pulmonary

fibrosis in which the cause is known. It is a disease

that results from breathing in free crystalline silica

dust.

All types of mining in which the ore is extracted from

quartz rock can produce silicosis if precautions are

not taken. This includes the mining of gold, lead,

zinc, copper, iron, anthracite (hard) coal, and some

bituminous (soft) coal. Workers in foundries,

sandstone grinding, tunnelling, sandblasting, concrete

breaking, granite carving, and china manufacturing

also encounter silica.

Large silica particles are stopped in the upper

airways. But the tiniest specks of silica can be

carried down to the alveoli where they lead to

pulmonary fibrosis.

Silicosis can be either mild or severe, in direct

proportion to the percentage and concentration of

silica in the air and the duration of exposure.

Silicosis can be prevented by measures specifically

designed for each industry and each job. Dust control

is essential. Sometimes this is accomplished by the

wetting down of mines, improved ventilation, or the

wearing of masks.

Back to Top

Idiopathic pulmonary fibrosis

Although a number of separate diseases can initiate

pulmonary fibrosis, many times the cause is unknown.

When this is so, the condition is called " idiopathic

(of unknown origin) pulmonary fibrosis " .

In idiopathic pulmonary fibrosis, careful examination

of the patient's environmental and occupational

history gives no clues to the cause.

Some physicians and scientists believe that the

disease is an infectious or allergic condition,

however bacteria and other micro-organisms are not

routinely found in the lungs of such patients. On the

other hand, the condition does sometimes appear to

follow a viral-like illness.

Thus, although the cause of pulmonary fibrosis is

known in many cases, the idiopathic variety still

remains a mystery.

Other diseases that can cause pulmonary fibrosis:

* Tuberculosis

* Rheumatoid

* Arthritis

* Systemic Lupus Erythematosis

* Systemic Sclerosis

* Grain handler's lung

* Mushroom worker's lung

* Bagassosis

* Detergent worker's lung

* Maple bark stripper's lung

* Malt worker's lung

* Paprika splitter's lung

* Bird breeder's lung

* Hermansky Pudlak Syndrome

Back to Top

Some drugs that can cause pulmonary fibrosis

Certain strong medicines may have the undesirable side

effect of causing pulmonary fibrosis. Some of them

are:

* Nitiofurantoin (sometimes used for urinary tract

infections)

* Amiodarone (sometimes prescribed for an

irregular heart rate)

* Bleomycin, cyclophosphamide, and methotrexate

(sometimes prescribed to fight cancer)

Who is at risk for pulmonary fibrosis?

Patients of any age with any of the diseases listed

above, or with exposure to any of the drugs listed

above, may develop pulmonary fibrosis but this is

rare. Patients who develop idiopathic pulmonary

fibrosis are usually middle-aged men and women, and

there appears to be no sexual, racial, or geographical

predilection.

http://pneumotox.com/

Site for drugs that cause lung diseases

P UIP 8/00 PH 4/06

--- linda zion wrote:

> .Leanne and everyone else, I have become aware that

> many of you have a

> combination of miserable conditions that are

> somewhat related. I'm

> referring to R.A., Lupus, Scleraderma

> specifically...in addition to PF

> of one form or another. Is there a cause and effect

> relationship

> between them and Pulmonary Fibrosis? My diagnosis

> has been NSIP...I have

> no other auto-immune disease . In fact my first

> blood- test were to

> " rule- out " these illnesses. I'm just wondering

> which came first...will

> this NSIP lead to the other diseases? Right now I am

> responding to

> Prednisone and Imuran and so many other drugs. The

> fibrosis has not

> worsened as of the last HRCT and PFT. The Docs keep

> asking if I feel

> worse when I go for check ups every 6 weeks...so far

> I can honestly say

> that the majority of the time I feel " less bad " than

> I did when I was

> first diagnosed in 7/05. I don't say " better "

> because that word has sort

> of left my vocabulary in regard to my health. I

> don't say " OK " either.

> If asked about my health I usually say " the same

> thanks " . Anyway, I

> have asked the Docs but they sort of hedge their

> answers all the time. I

> think they really don't know. In fact I feel that

> this group knows more

> about the disease than the Pulmonary Specialists!!!

>

>

> Z. fibriotic NSIP/05

> " I'm gonna be iron like a lion in Zion " Bob Marley

>

> >

> >

> >

>

http://www.nj.com/starledger/stories/index.ssf?/base/news-11/1171258884234190.xm\

l & coll=1

>

> >

>

<http://www.nj.com/starledger/stories/index.ssf?/base/news-11/1171258884234190.x\

ml & coll=1>

> >

> > Leanne uip 1/03

> >

> >

>

------------------------------------------------------------------------

> > 8:00? 8:25? 8:40? Find a flick

> >

>

<http://tools.search.yahoo.com/shortcuts/?fr=oni_on_mail & #news>

> in no time

> > with theYahoo! Search movie showtime shortcut.

> >

>

<http://tools.search.yahoo.com/shortcuts/?fr=oni_on_mail & #news>

> >

>

>

> --

> Z. fibriotic NSIP/05

> " I'm gonna be iron like a lion in Zion " Bob Marley

>

>

________________________________________________________________________________\

____

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[Guest guest]

, Thanks for the information. I've read similar material

previously...it just seems that there doesn't seem to be an answer for

my illness. Except for my short time working in a pottery studio ( not

industrial ..just fun) I have no other situations that explain my

situation at all. Never smoked..never worked in toxic situations. I'm

sure that's why I have the NSIP diagnosisd...in other words...they are

clueless as to the cause...they ruled out the majority of known causes

of the fibrosis and my illness was not slow in it's progression. it

came out of nowhere in maybe April or May of 2005...I got to the Dr. in

July and after every blood test known to man.. and the OLB it was

diagnosed as NSIP. So here I am with the SOB, coughs, no energy and a

constant fight to keep my strength up, no work, and just plain

miserable...with an explanation that does not give me many ways to be

positive . I know that the progression of the fibrosis has stayed

stable for about a year now, the prednisone numbers keep getting less,

but I 've only gotten one answer from the Docs....They are more

concerned about the consequences of all the drugs than of the fibrosis

itself. Now what do I have to think about!!!!Stop the meds and risk an

recurrance of the fibrosis? Keep up with the chemistry experiment? My

daughter says I'm being pickled from the inside out! I'm rambling and

being very negative...sorry. I've tried to remember that negative

energy just saps me...I need what energy I do have for good

stuff..honestly I'm usually more positive. Again, I'm sorry for all

the negativity. Just venting!! Now I'll try to get some

sleep!!!Oh..yes..sleep is not always easy..the prednisone keeps my head

going 24/7!!

-- Z. fibriotic NSIP/05

"I'm gonna be iron like a lion in Zion" Bob Marley

wrote:

What causes pulmonary fibrosis?

Pulmonary fibrosis is a complicated illness that can

derive from many different causes. There are over 140

known causes or associations with pulmonary fibrosis.

It appears that the lung is reacting to some insult by

developing inflammation and subsequent fibrosis. The

nature of the initial insult is not always known and

although doctors may say that pulmonary fibrosis is

due to a given disease (for example, sarcoidosis) they

may not often know the specific causes of those

diseases either.

The most frequent causes of pulmonary fibrosis are

sarcoidosis, fibrosis associated with certain

occupational diseases, and pulmonary fibrosis in which

the causes are not known ("idiopathic").

Occupational diseases and pulmonary fibrosis

Many jobs, particularly those that involve working

with asbestos, ground stone, or metal dust, can cause

pulmonary fibrosis. The small particles are inhaled,

damage the alveoli, and cause fibrosis. Some organic

substances, such as mouldy hay can also initiate

pulmonary fibrosis; this is know as farmer's lung.

Asbestosis and pulmonary fibrosis

Asbestosis is usually caused when small needle-like

particles of asbestos are inhaled into the lungs. This

can cause lung scarring (pulmonary fibrosis) and in

addition can lead to lung cancer.

The key to asbestosis is prevention. In manufacturing

asbestos products, both employer and employee must be

aware of government standards and should take all

precautions against inhaling the particles.

The paramount danger in working with asbestos comes

when old, friable (crumbly) asbestos-containing

products are replaced or destroyed. In those

circumstances, particles can be released into the air

and breathed into the lungs. Today however, the

asbestos fibres usually are "locked-in" by binders

such as cement, rubber or plastics, thus preventing

the particles from floating free in the air.

Cigarette smoking has an interactive relationship with

asbestos-the asbestos worker who smokes has a much

higher chance of developing lung cancer than does the

non-smoker.

Silicosis and pulmonary fibrosis

Silicosis is another disease producing pulmonary

fibrosis in which the cause is known. It is a disease

that results from breathing in free crystalline silica

dust.

All types of mining in which the ore is extracted from

quartz rock can produce silicosis if precautions are

not taken. This includes the mining of gold, lead,

zinc, copper, iron, anthracite (hard) coal, and some

bituminous (soft) coal. Workers in foundries,

sandstone grinding, tunnelling, sandblasting, concrete

breaking, granite carving, and china manufacturing

also encounter silica.

Large silica particles are stopped in the upper

airways. But the tiniest specks of silica can be

carried down to the alveoli where they lead to

pulmonary fibrosis.

Silicosis can be either mild or severe, in direct

proportion to the percentage and concentration of

silica in the air and the duration of exposure.

Silicosis can be prevented by measures specifically

designed for each industry and each job. Dust control

is essential. Sometimes this is accomplished by the

wetting down of mines, improved ventilation, or the

wearing of masks.

Back to Top

Idiopathic pulmonary fibrosis

Although a number of separate diseases can initiate

pulmonary fibrosis, many times the cause is unknown.

When this is so, the condition is called "idiopathic

(of unknown origin) pulmonary fibrosis".

In idiopathic pulmonary fibrosis, careful examination

of the patient's environmental and occupational

history gives no clues to the cause.

Some physicians and scientists believe that the

disease is an infectious or allergic condition,

however bacteria and other micro-organisms are not

routinely found in the lungs of such patients. On the

other hand, the condition does sometimes appear to

follow a viral-like illness.

Thus, although the cause of pulmonary fibrosis is

known in many cases, the idiopathic variety still

remains a mystery.

Other diseases that can cause pulmonary fibrosis:

* Tuberculosis

* Rheumatoid

* Arthritis

* Systemic Lupus Erythematosis

* Systemic Sclerosis

* Grain handler's lung

* Mushroom worker's lung

* Bagassosis

* Detergent worker's lung

* Maple bark stripper's lung

* Malt worker's lung

* Paprika splitter's lung

* Bird breeder's lung

* Hermansky Pudlak Syndrome

Back to Top

Some drugs that can cause pulmonary fibrosis

Certain strong medicines may have the undesirable side

effect of causing pulmonary fibrosis. Some of them

are:

* Nitiofurantoin (sometimes used for urinary tract

infections)

* Amiodarone (sometimes prescribed for an

irregular heart rate)

* Bleomycin, cyclophosphamide, and methotrexate

(sometimes prescribed to fight cancer)

Who is at risk for pulmonary fibrosis?

Patients of any age with any of the diseases listed

above, or with exposure to any of the drugs listed

above, may develop pulmonary fibrosis but this is

rare. Patients who develop idiopathic pulmonary

fibrosis are usually middle-aged men and women, and

there appears to be no sexual, racial, or geographical

predilection.

http://pneumotox.com/

Site for drugs that cause lung diseases

P UIP 8/00 PH 4/06

--- linda zion <ljz741comcast (DOT) net>

wrote:

> .Leanne and everyone else, I have become aware that

> many of you have a

> combination of miserable conditions that are

> somewhat related. I'm

> referring to R.A., Lupus, Scleraderma

> specifically...in addition to PF

> of one form or another. Is there a cause and effect

> relationship

> between them and Pulmonary Fibrosis? My diagnosis

> has been NSIP...I have

> no other auto-immune disease . In fact my first

> blood- test were to

> "rule- out" these illnesses. I'm just wondering

> which came first...will

> this NSIP lead to the other diseases? Right now I am

> responding to

> Prednisone and Imuran and so many other drugs. The

> fibrosis has not

> worsened as of the last HRCT and PFT. The Docs keep

> asking if I feel

> worse when I go for check ups every 6 weeks...so far

> I can honestly say

> that the majority of the time I feel "less bad" than

> I did when I was

> first diagnosed in 7/05. I don't say" better"

> because that word has sort

> of left my vocabulary in regard to my health. I

> don't say "OK" either.

> If asked about my health I usually say " the same

> thanks". Anyway, I

> have asked the Docs but they sort of hedge their

> answers all the time. I

> think they really don't know. In fact I feel that

> this group knows more

> about the disease than the Pulmonary Specialists!!!

>

>

> Z. fibriotic NSIP/05

> "I'm gonna be iron like a lion in Zion" Bob Marley

>

> >

> >

> >

>

http://www.nj.com/starledger/stories/index.ssf?/base/news-11/1171258884234190.xml & coll=1

>

> >

>

<http://www.nj.com/starledger/stories/index.ssf?/base/news-11/1171258884234190.xml & coll=1>

> >

> > Leanne uip 1/03

> >

> >

>

----------------------------------------------------------

> > 8:00? 8:25? 8:40? Find a flick

> >

>

<http://tools.search.yahoo.com/shortcuts/?fr=oni_on_mail & #news>

> in no time

> > with theYahoo! Search movie showtime shortcut.

> >

>

<http://tools.search.yahoo.com/shortcuts/?fr=oni_on_mail & #news>

> >

>

>

> --

> Z. fibriotic NSIP/05

> "I'm gonna be iron like a lion in Zion" Bob Marley

>

>

__________________________________________________________

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-- Z. fibriotic NSIP/05

"I'm gonna be iron like a lion in Zion" Bob Marley

[Guest guest]

Thanks pink joyce wrote: What causes pulmonary fibrosis?Pulmonary fibrosis is a complicated illness that canderive from many different causes. There are over 140known causes or associations with pulmonary fibrosis.It appears that the lung is reacting to some insult bydeveloping inflammation and subsequent fibrosis. Thenature of the initial insult is not always known

andalthough doctors may say that pulmonary fibrosis isdue to a given disease (for example, sarcoidosis) theymay not often know the specific causes of thosediseases either.The most frequent causes of pulmonary fibrosis aresarcoidosis, fibrosis associated with certainoccupational diseases, and pulmonary fibrosis in whichthe causes are not known ("idiopathic").Occupational diseases and pulmonary fibrosisMany jobs, particularly those that involve workingwith asbestos, ground stone, or metal dust, can causepulmonary fibrosis. The small particles are inhaled,damage the alveoli, and cause fibrosis. Some organicsubstances, such as mouldy hay can also initiatepulmonary fibrosis; this is know as farmer's lung.Asbestosis and pulmonary fibrosisAsbestosis is usually caused when small needle-likeparticles of asbestos are inhaled into the lungs. Thiscan cause lung scarring (pulmonary fibrosis)

and inaddition can lead to lung cancer.The key to asbestosis is prevention. In manufacturingasbestos products, both employer and employee must beaware of government standards and should take allprecautions against inhaling the particles.The paramount danger in working with asbestos comeswhen old, friable (crumbly) asbestos-containingproducts are replaced or destroyed. In thosecircumstances, particles can be released into the airand breathed into the lungs. Today however, theasbestos fibres usually are "locked-in" by binderssuch as cement, rubber or plastics, thus preventingthe particles from floating free in the air.Cigarette smoking has an interactive relationship withasbestos-the asbestos worker who smokes has a muchhigher chance of developing lung cancer than does thenon-smoker.Silicosis and pulmonary fibrosisSilicosis is another disease producing pulmonaryfibrosis in which

the cause is known. It is a diseasethat results from breathing in free crystalline silicadust.All types of mining in which the ore is extracted fromquartz rock can produce silicosis if precautions arenot taken. This includes the mining of gold, lead,zinc, copper, iron, anthracite (hard) coal, and somebituminous (soft) coal. Workers in foundries,sandstone grinding, tunnelling, sandblasting, concretebreaking, granite carving, and china manufacturingalso encounter silica.Large silica particles are stopped in the upperairways. But the tiniest specks of silica can becarried down to the alveoli where they lead topulmonary fibrosis.Silicosis can be either mild or severe, in directproportion to the percentage and concentration ofsilica in the air and the duration of exposure.Silicosis can be prevented by measures specificallydesigned for each industry and each job. Dust controlis

essential. Sometimes this is accomplished by thewetting down of mines, improved ventilation, or thewearing of masks.Back to TopIdiopathic pulmonary fibrosisAlthough a number of separate diseases can initiatepulmonary fibrosis, many times the cause is unknown.When this is so, the condition is called "idiopathic(of unknown origin) pulmonary fibrosis".In idiopathic pulmonary fibrosis, careful examinationof the patient's environmental and occupationalhistory gives no clues to the cause.Some physicians and scientists believe that thedisease is an infectious or allergic condition,however bacteria and other micro-organisms are notroutinely found in the lungs of such patients. On theother hand, the condition does sometimes appear tofollow a viral-like illness.Thus, although the cause of pulmonary fibrosis isknown in many cases, the idiopathic variety stillremains a

mystery.Other diseases that can cause pulmonary fibrosis:* Tuberculosis* Rheumatoid* Arthritis* Systemic Lupus Erythematosis* Systemic Sclerosis* Grain handler's lung* Mushroom worker's lung* Bagassosis* Detergent worker's lung* Maple bark stripper's lung* Malt worker's lung* Paprika splitter's lung* Bird breeder's lung* Hermansky Pudlak SyndromeBack to TopSome drugs that can cause pulmonary fibrosisCertain strong medicines may have the undesirable sideeffect of causing pulmonary fibrosis. Some of themare:* Nitiofurantoin (sometimes used for urinary tractinfections)* Amiodarone (sometimes prescribed for anirregular heart rate)* Bleomycin, cyclophosphamide, and methotrexate(sometimes prescribed to fight cancer)Who is at risk for pulmonary fibrosis?Patients of any age with any of the diseases listedabove, or with exposure to any of

the drugs listedabove, may develop pulmonary fibrosis but this israre. Patients who develop idiopathic pulmonaryfibrosis are usually middle-aged men and women, andthere appears to be no sexual, racial, or geographicalpredilection.http://pneumotox.com/Site for drugs that cause lung diseases P UIP 8/00 PH 4/06--- linda zion <ljz741comcast (DOT) net> wrote:> .Leanne and everyone else, I have become aware that> many of you have a > combination of miserable conditions that are> somewhat related. I'm > referring to R.A., Lupus, Scleraderma> specifically...in addition to PF > of one form or another. Is there a cause and effect> relationship > between them and Pulmonary Fibrosis? My diagnosis> has been NSIP...I have > no other auto-immune disease . In fact

my first> blood- test were to > "rule- out" these illnesses. I'm just wondering> which came first...will > this NSIP lead to the other diseases? Right now I am> responding to > Prednisone and Imuran and so many other drugs. The> fibrosis has not > worsened as of the last HRCT and PFT. The Docs keep> asking if I feel > worse when I go for check ups every 6 weeks...so far> I can honestly say > that the majority of the time I feel "less bad" than> I did when I was > first diagnosed in 7/05. I don't say" better"> because that word has sort > of left my vocabulary in regard to my health. I> don't say "OK" either. > If asked about my health I usually say " the same> thanks". Anyway, I > have asked the Docs but they sort of hedge their> answers all the time. I > think they really don't know. In fact I feel that> this

group knows more > about the disease than the Pulmonary Specialists!!!> > > Z. fibriotic NSIP/05> "I'm gonna be iron like a lion in Zion" Bob Marley> > > > > > >>http://www.nj.com/starledger/stories/index.ssf?/base/news-11/1171258884234190.xml & coll=1> > >><http://www.nj.com/starledger/stories/index.ssf?/base/news-11/1171258884234190.xml & coll=1>> > > > Leanne uip 1/03> >> >>----------------------------------------------------------> > 8:00? 8:25? 8:40? Find a flick

> >><http://tools.search.yahoo.com/shortcuts/?fr=oni_on_mail & #news>> in no time> > with theYahoo! Search movie showtime shortcut. > >><http://tools.search.yahoo.com/shortcuts/?fr=oni_on_mail & #news>> > > > > -- > Z. fibriotic NSIP/05> "I'm gonna be iron like a lion in Zion" Bob Marley> > __________________________________________________________Don't get soaked. Take a quick peak at the forecastwith the Yahoo! Search weather shortcut.http://tools.search.yahoo.com/shortcuts/#loc_weather

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[Guest guest]

Right now I am responding to Prednisone and Imuran and so many other drugs.

, when you say"responding" what do you mean exactly? What do you have as evidence that you re responding to the medication? I take the same meds as you do and I was curious as to how it affects you. Thanx for the helpful info you so willingly share. May God continue to be the Light that guides you.

kiss kiss,

Ginger-Tx.

9/04 ipf

And now abide faith, hope, love, these three; but the greatest of these is love.

1Cor.13:13

[Guest guest]

Z.

Autoimmune diseases such as you mentioned will cause lung scarring because they are of an inflamatory nature. I have RA,Lupus and Sjoren's and those all attack the lungs. Systemic Lupus can attack any connective tissue in the body.

, have you asked to have copies of your PFT tests and bloodwork...or any reports that the doc has... you should have. I looks at mine and what I don't understand, I look up online. I am a true believer in having access to my medical information. I am waaaaaaay more interested in my well being than the docs are! That way, when I go for a visit with the doc, I can ask intelligent questions and they are more likely to give you an intelligent answer. Most docs think thier patients are morons. That may be a little strong, but it comes from years and years of experience.

Hugs, Joyce PF/Lupus 1997 Bronchiectasis 2004 Indiana

>> .Leanne and everyone else, I have become aware that many of you have a > combination of miserable conditions that are somewhat related. I'm > referring to R.A., Lupus, Scleraderma specifically...in addition to PF > of one form or another. Is there a cause and effect relationship > between them and Pulmonary Fibrosis? My diagnosis has been NSIP...I have > no other auto-immune disease . In fact my first blood- test were to > "rule- out" these illnesses. I'm just wondering which came first...will > this NSIP lead to the other diseases? Right now I am responding to > Prednisone and Imuran and so many other drugs. The fibrosis has not > worsened as of the last HRCT and PFT. The Docs keep asking if I feel > worse when I go for check ups every 6 weeks...so far I can honestly say > that the majority of the time I feel "less bad" than I did when I was > first diagnosed in 7/05. I don't say" better" because that word has sort > of left my vocabulary in regard to my health. I don't say "OK" either. > If asked about my health I usually say " the same thanks". Anyway, I > have asked the Docs but they sort of hedge their answers all the time. I > think they really don't know. In fact I feel that this group knows more > about the disease than the Pulmonary Specialists!!!> > > Z. fibriotic NSIP/05> "I'm gonna be iron like a lion in Zion" Bob Marley> > > > > > > http://www.nj.com/starledger/stories/index.ssf?/base/news-11/1171258884234190.xml & coll=1 > > <http://www.nj.com/starledger/stories/index.ssf?/base/news-11/1171258884234190.xml & coll=1>> > > > Leanne uip 1/03> >> > ------------------------------------------------------------------------> > 8:00? 8:25? 8:40? Find a flick > > <http://tools.search.yahoo.com/shortcuts/?fr=oni_on_mail & #news> in no time> > with theYahoo! Search movie showtime shortcut. > > <http://tools.search.yahoo.com/shortcuts/?fr=oni_on_mail & #news>> > > > > -- > Z. fibriotic NSIP/05> "I'm gonna be iron like a lion in Zion" Bob Marley>

[Guest guest]

,

Good info as always. Besides having Connective Tissue Diseases, I took Methotrexate for years. The biopsy said that it was caused by Lupus, though.

I think it is interesting that this and other explanations of IPF does not say that there is no cause, but they cannot find what the cause was. Just think of the years it would add to lives if research could find a way to to track the cause. It always comes back to research and that always comes back to money!

Hugs, Joyce

PF/Lupus 1997 Bronchiectasis 2004 Indiana > > > .Leanne and everyone else, I have become aware that> > many of you have a > > combination of miserable conditions that are> > somewhat related. I'm > > referring to R.A., Lupus, Scleraderma> > specifically...in addition to PF > > of one form or another. Is there a cause and effect> > relationship > > between them and Pulmonary Fibrosis? My diagnosis> > has been NSIP...I have > > no other auto-immune disease . In fact my first> > blood- test were to > > "rule- out" these illnesses. I'm just wondering> > which came first...will > > this NSIP lead to the other diseases? Right now I am> > responding to > > Prednisone and Imuran and so many other drugs. The> > fibrosis has not > > worsened as of the last HRCT and PFT. The Docs keep> > asking if I feel > > worse when I go for check ups every 6 weeks...so far> > I can honestly say > > that the majority of the time I feel "less bad" than> > I did when I was > > first diagnosed in 7/05. I don't say" better"> > because that word has sort > > of left my vocabulary in regard to my health. I> > don't say "OK" either. > > If asked about my health I usually say " the same> > thanks". Anyway, I > > have asked the Docs but they sort of hedge their> > answers all the time. I > > think they really don't know. In fact I feel that> > this group knows more > > about the disease than the Pulmonary Specialists!!!> > > > > > Z. fibriotic NSIP/05> > "I'm gonna be iron like a lion in Zion" Bob Marley> > > > > > > > > > >> >> http://www.nj.com/starledger/stories/index.ssf?/base/news-11/1171258884234190.xml & coll=1> > > > >> >> <http://www.nj.com/starledger/stories/index.ssf?/base/news-11/1171258884234190.xml & coll=1>> > > > > > Leanne uip 1/03> > >> > >> >> ------------------------------------------------------------------------> > > 8:00? 8:25? 8:40? Find a flick > > >> >> <http://tools.search.yahoo.com/shortcuts/?fr=oni_on_mail & #news>> > in no time> > > with theYahoo! Search movie showtime shortcut. > > >> >> <http://tools.search.yahoo.com/shortcuts/?fr=oni_on_mail & #news>> > > > > > > > > -- > > Z. fibriotic NSIP/05> > "I'm gonna be iron like a lion in Zion" Bob Marley> > > > > > > > > ____________________________________________________________________________________> Don't get soaked. Take a quick peak at the forecast> with the Yahoo! Search weather shortcut.> http://tools.search.yahoo.com/shortcuts/#loc_weather>

[Guest guest]

Hi Ginger, This is and not but my doctor just explained what she meant by "responding " to me and I thought I'd pass it on. She said I was a "high responder" to prednisone. I get all the side effects (Cushings, puffiness, weight gain, spine erosion) but I also get the good benefits. My lung volume increases dramatically ( 34 to 69%) and I have enough strength to live a fairly normal life. She said most people only have a slight increase in lung volume and a slight increase in strength. Do you notice a big difference when you are off prednisone? Take care-TongueDancer2U@... wrote: In a message dated 2/18/2007 11:22:58 P.M. Central Standard Time, ljz741comcast (DOT) net writes: Right now I am responding to Prednisone and Imuran and so many other drugs. , when you say"responding" what do you mean exactly? What do you have as evidence that you re responding to the medication? I take the same meds as you do and I was curious as to how it affects you. Thanx for the helpful info you so willingly share. May God continue to be the Light that guides

you. kiss kiss, Ginger-Tx. 9/04 ipf And now abide faith, hope, love, these three; but the greatest of these is love. 1Cor.13:13

Don't be flakey. Get Yahoo! Mail for Mobile and always stay connected to friends.

[Guest guest]

Ginger, When I said "responding" I meant that the fibrosis has not

increased in the past 19 months and my symptoms have lessened ( the

coughing is not as bad or frequent and the SOB is less). Of course I'm

also on O2 almost 24/7. As far as the docs are concerned the PFT and

HRCT show no increase in the fibrosis in any of the tests taken since

the first ones way back in July , 2005. The side effects of the

Prednisone and Imuran are more worrisome to them. I'm sure you know

about the great things that they can cause in their way to keeping the

fibrosis under control. I do get copies of all the tests and thanks to

a post from with all the abbreviations and the internet as well I

can sort-of figure out the results. My PFT capacity number was 49% at

the start of this mess and now at the last PFT that was 82%. The doc

said that technically that is normal for a woman, white and 63!!! Go

figure! That isn't function however.

-- Z. fibriotic NSIP/05

"I'm gonna be iron like a lion in Zion" Bob Marley

TongueDancer2U@... wrote:

In a message dated 2/18/2007 11:22:58 P.M. Central Standard

Time, ljz741comcast (DOT) net writes:

Right now I am responding to Prednisone and Imuran and so

many other drugs.

, when you say"responding" what do you mean

exactly? What do you have as evidence that you re responding to the

medication? I take the same meds as you do and I was curious as to how

it affects you. Thanx for the helpful info you so willingly share. May

God continue to be the Light that guides you.

kiss kiss,

Ginger-Tx.

9/04 ipf

And now abide faith, hope,

love, these three; but the greatest of these is love.

1Cor.13:13

-- Z. fibriotic NSIP/05

"I'm gonna be iron like a lion in Zion" Bob Marley

[Guest guest]

, I guess I am a " high responder" too! I have bone loss, horrid

GERD, ADD symptoms, shakey hand, cold and blue fingers and toes,etc,

etc, etc. along with the positive results on the PFT's and HRCT's.

-- Z. fibriotic NSIP/05

"I'm gonna be iron like a lion in Zion" Bob Marley

Hi Ginger,

This is and not but my doctor just explained what

she meant by "responding " to me and I thought I'd pass it on. She

said I was a "high responder" to prednisone. I get all the side

effects (Cushings, puffiness, weight gain, spine erosion) but I also

get the good benefits. My lung volume increases dramatically ( 34 to

69%) and I have enough strength to live a fairly normal life. She said

most people only have a slight increase in lung volume and a slight

increase in strength. Do you notice a big difference when you are off

prednisone? Take care-

TongueDancer2UAOL (DOT) COM wrote:

In a message dated 2/18/2007 11:22:58 P.M. Central Standard

Time, ljz741comcast (DOT) net writes:

Right now I am responding to Prednisone and Imuran and so

many other drugs.

, when you say"responding"

what do you mean exactly? What do you have as evidence that

you re responding to the medication? I take the same meds as you do and

I was curious as to how it affects you. Thanx for the helpful info you

so willingly share. May God continue to be the Light that guides you.

kiss kiss,

Ginger-Tx.

9/04 ipf

And now abide faith, hope,

love, these three; but the greatest of these is love.

1Cor.13:13

Don't be flakey. Get

Yahoo! Mail for Mobile and

always

stay connected to friends.

-- Z. fibriotic NSIP/05

"I'm gonna be iron like a lion in Zion" Bob Marley

[Guest guest]

, All of those describe me to a tee! I especially hate the ADD symptoms I feel like a fidgety kid. I quess we just have to get really good at managing the side effects and knowing when they are too much! Take care-linda zion wrote: , I guess I am a " high responder" too! I have bone loss, horrid GERD, ADD symptoms, shakey hand, cold and blue fingers and toes,etc, etc, etc. along with the positive results on the PFT's

and HRCT's.-- Z. fibriotic NSIP/05 "I'm gonna be iron like a lion in Zion" Bob Marley Hi Ginger, This is and not but my doctor just explained what she meant by "responding " to me and I thought I'd pass it on. She said I was a "high responder" to prednisone. I get all the side effects (Cushings, puffiness, weight gain, spine erosion) but I also get the good benefits. My lung volume increases dramatically ( 34 to 69%) and I have enough strength to live a fairly normal life. She said most people only have a slight increase in lung volume and a slight increase in strength. Do you notice a big difference when you are off prednisone? Take

care-TongueDancer2UAOL (DOT) COM wrote: In a message dated 2/18/2007 11:22:58 P.M. Central Standard Time, ljz741comcast (DOT) net writes: Right now I am responding to Prednisone and Imuran and so many other drugs. , when you say"responding" what do you mean exactly? What do you have as evidence that you re responding to the medication? I take the same meds as you do and I was curious as to how it affects you. Thanx for the helpful info you so willingly share. May God continue to be the Light that

guides you. kiss kiss, Ginger-Tx. 9/04 ipf And now abide faith, hope, love, these three; but the greatest of these is love. 1Cor.13:13 Don't be flakey. Get Yahoo! Mail for Mobile and always stay connected to friends. -- Z. fibriotic NSIP/05 "I'm gonna be iron like a lion in Zion" Bob Marley

Bored stiff? Loosen up...Download and play hundreds of games for free on Yahoo! Games.

[Guest guest]

Hi! I did not respond to Prednisone and only took it for 3 mos when I was 1st diagnosed, but I am shaky all of the time and my hands and feel are usually cold. As for ADD-type symptoms, sometimes I feel as if I'm going to jump out of my skin. All things considered, I am doing very well - I no longer have to use supplemental oxygen and I live a pretty normal life (except for getting tired and winded if I 'overdo'. But, are the shakiness, coldness and ADD-type symptoms just part of the deal??? Nelda IPF 12/04denise randel wrote: , All of those describe me to a tee! I especially hate the ADD symptoms I feel like a fidgety kid. I quess we just have to get really good at managing the side effects and knowing when they are too much! Take care-linda zion <ljz741comcast (DOT) net> wrote: , I guess I am a " high responder" too! I have bone loss, horrid GERD, ADD symptoms, shakey hand, cold and blue fingers and toes,etc, etc, etc. along with the positive results on the PFT's and HRCT's.-- Z. fibriotic NSIP/05 "I'm

gonna be iron like a lion in Zion" Bob Marley Hi Ginger, This is and not but my doctor just explained what she meant by "responding " to me and I thought I'd pass it on. She said I was a "high responder" to prednisone. I get all the side effects (Cushings, puffiness, weight gain, spine erosion) but I also get the good benefits. My lung volume increases dramatically ( 34 to 69%) and I have enough strength to live a fairly normal life. She said most people only have a slight increase in lung volume and a slight increase in strength. Do you notice a big difference when you are off prednisone? Take care-TongueDancer2UAOL (DOT) COM wrote: In a message dated 2/18/2007 11:22:58 P.M. Central Standard Time, ljz741comcast (DOT) net writes: Right now I am responding to Prednisone and Imuran and so many other drugs. , when you say"responding" what do you mean exactly? What do you have as evidence that you re responding to the medication? I take the same meds as you do and I was curious as to how it affects you. Thanx for the helpful info you so willingly share. May God continue to be the Light that guides you. kiss kiss, Ginger-Tx. 9/04 ipf And now abide faith, hope, love, these three; but the greatest of these is love. 1Cor.13:13 Don't be flakey. Get Yahoo! Mail for Mobile and always stay connected to friends. -- Z. fibriotic NSIP/05 "I'm gonna be iron like a lion in Zion" Bob Marley Bored stiff? Loosen up...Download and play hundreds of games for free on Yahoo! Games.

Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Yahoo! Travel to find your fit.

[Guest guest]

Hi! I did not respond to Prednisone and only took it for 3 mos when I was 1st diagnosed, but I am shaky all of the time and my hands and feel are usually cold. As for ADD-type symptoms, sometimes I feel as if I'm going to jump out of my skin. All things considered, I am doing very well - I no longer have to use supplemental oxygen and I live a pretty normal life (except for getting tired and winded if I 'overdo'. But, are the shakiness, coldness and ADD-type symptoms just part of the deal??? Nelda IPF 12/04denise randel wrote: , All of those describe me to a tee! I especially hate the ADD symptoms I feel like a fidgety kid. I quess we just have to get really good at managing the side effects and knowing when they are too much! Take care-linda zion <ljz741comcast (DOT) net> wrote: , I guess I am a " high responder" too! I have bone loss, horrid GERD, ADD symptoms, shakey hand, cold and blue fingers and toes,etc, etc, etc. along with the positive results on the PFT's and HRCT's.-- Z. fibriotic NSIP/05 "I'm

gonna be iron like a lion in Zion" Bob Marley Hi Ginger, This is and not but my doctor just explained what she meant by "responding " to me and I thought I'd pass it on. She said I was a "high responder" to prednisone. I get all the side effects (Cushings, puffiness, weight gain, spine erosion) but I also get the good benefits. My lung volume increases dramatically ( 34 to 69%) and I have enough strength to live a fairly normal life. She said most people only have a slight increase in lung volume and a slight increase in strength. Do you notice a big difference when you are off prednisone? Take care-TongueDancer2UAOL (DOT) COM wrote: In a message dated 2/18/2007 11:22:58 P.M. Central Standard Time, ljz741comcast (DOT) net writes: Right now I am responding to Prednisone and Imuran and so many other drugs. , when you say"responding" what do you mean exactly? What do you have as evidence that you re responding to the medication? I take the same meds as you do and I was curious as to how it affects you. Thanx for the helpful info you so willingly share. May God continue to be the Light that guides you. kiss kiss, Ginger-Tx. 9/04 ipf And now abide faith, hope, love, these three; but the greatest of these is love. 1Cor.13:13 Don't be flakey. Get Yahoo! Mail for Mobile and always stay connected to friends. -- Z. fibriotic NSIP/05 "I'm gonna be iron like a lion in Zion" Bob Marley Bored stiff? Loosen up...Download and play hundreds of games for free on Yahoo! Games.

The fish are biting.

Get more visitors on your site using Yahoo! Search Marketing.

[Guest guest]

Hi ,

i too suffered from the cold and blue fingers. after telling my dr

about it he referred me to a rhuematologist who concluded i have what

is called raynauld's phenomena and has prescribed a low dose of

procardia and it has helped a great deal in these winter months...

there are actully a few of us on the board who suffer from this. it

is very much worth mentioning to your dr.

LCH/EG 10-05

> >

> > In a message dated 2/18/2007 11:22:58 P.M. Central Standard

Time,

> > ljz741@... writes:

> >

> > Right now I am responding to Prednisone and Imuran and so

many

> > other drugs.

> >

> > *, when you say/ " responding " /what do you mean exactly?

What

> > do you have as evidence that you re responding to the

medication?

> > I take the same meds as you do and I was curious as to how it

> > affects you. Thanx for the helpful info you so willingly

share.

> > May God continue to be the Light that guides you.*

> > **

> > *kiss kiss,*

> > *Ginger-Tx.*

> > *9/04 ipf*

> > *And now abide faith, hope, love, these three; but the

greatest of

> > these /is/ love.*

> >

> > *1Cor.13:13*

> >

> >

> >

> >

> >

> > ------------------------------------------------------------------

------

> > Don't be flakey. Get Yahoo! Mail for Mobile

> > <http://us.rd.yahoo.com/evt=43909/*http://mobile.yahoo.com/mail>

and

> > always stay connected

> > <http://us.rd.yahoo.com/evt=43909/*http://mobile.yahoo.com/mail>

to

> > friends.

> >

>

>

> --

> Z. fibriotic NSIP/05

> " I'm gonna be iron like a lion in Zion " Bob Marley

>

[Guest guest]

Nelda,

You just described me! but I am shaky all of the time and my hands and feel are usually cold. As for ADD-type symptoms, sometimes I feel as if I'm going to jump out of my skin. I don't know if it is part of the disease. I have told my doc. The 'jumping out of my skin' thing is making me nuts! I feel like I am waiting for a train to hit me. I hate it!

I hope that you can stay off 02 for a long time. I was off for two years early on. When I got sick and was put back on, I expected to get weaned off again. Not.

Take care. If your doc gives you a clue about all this, share with me.

Hugs, Joyce PF/Lupus Bronchiectasis Indiana> > Right now I am responding to Prednisone and Imuran and so many other drugs. > , when you say"responding" what do you mean exactly? What do you have as evidence that you re responding to the medication? I take the same meds as you do and I was curious as to how it affects you. Thanx for the helpful info you so willingly share. May God continue to be the Light that guides you.> > kiss kiss,> Ginger-Tx.> 9/04 ipf> And now abide faith, hope, love, these three; but the greatest of these is love. 1Cor.13:13> > > > > > > > > > ---------------------------------> Don't be flakey. Get Yahoo! Mail for Mobile and > always stay connected to friends. > > > -- Z. fibriotic NSIP/05 "I'm gonna be iron like a lion in Zion" Bob Marley > > > > > > ---------------------------------> Bored stiff? Loosen up...> Download and play hundreds of games for free on Yahoo! Games. > > > > > ---------------------------------> Now that's room service! Choose from over 150,000 hotels > in 45,000 destinations on Yahoo! Travel to find your fit.>

[Guest guest]

Hey , I have hot red fingers and hands. Feet burn at night. I have a hard time being still at night because of it. This disease makes me nuts just trying to keep up with what my body is supposed to look like..LOL Every Dr. I address this with just shake their head and say " HUH " . Good Dx !!

Love and Prayers, Peggy 9/04 ipf Florida

Hi ,

i too suffered from the cold and blue fingers. after telling my dr

about it he referred me to a rhuematologist who concluded i have what

is called raynauld's phenomena and has prescribed a low dose of

procardia and it has helped a great deal in these winter months...

there are actully a few of us on the board who suffer from this. it

is very much worth mentioning to your dr.

LCH/EG 10-05

> >

> > In a message dated 2/18/2007 11:22:58 P.M. Central Standard

Time,

> > ljz741@... writes:

> >

> > Right now I am responding to Prednisone and Imuran and so

many

> > other drugs.

> >

> > *, when you say/ " responding " /what do you mean exactly?

What

> > do you have as evidence that you re responding to the

medication?

> > I take the same meds as you do and I was curious as to how it

> > affects you. Thanx for the helpful info you so willingly

share.

> > May God continue to be the Light that guides you.*

> > **

> > *kiss kiss,*

> > *Ginger-Tx.*

> > *9/04 ipf*

> > *And now abide faith, hope, love, these three; but the

greatest of

> > these /is/ love.*

> >

> > *1Cor.13:13*

> >

> >

> >

> >

> >

> > ----------------------------------------------------------

------

> > Don't be flakey. Get Yahoo! Mail for Mobile

> > <http://us.rd.yahoo.com/evt=43909/*http://mobile.yahoo.com/mail>

and

> > always stay connected

> > <http://us.rd.yahoo.com/evt=43909/*http://mobile.yahoo.com/mail>

to

> > friends.

> >

>

>

> --

> Z. fibriotic NSIP/05

> " I'm gonna be iron like a lion in Zion " Bob Marley

>

[Guest guest]

Peggy from Sher....lol...you are red because you are a junior ladybug!

...that bigger one is me 'cause I came first! hehehe

Sher

"Don't worry about tomorrow, God is already there"

Re: Re: new topic

Hey , I have hot red fingers and hands. Feet burn at night. I have a hard time being still at night because of it. This disease makes me nuts just trying to keep up with what my body is supposed to look like..LOL Every Dr. I address this with just shake their head and say "HUH". Good Dx !!Love and Prayers, Peggy 9/04 ipf Florida

Hi ,i too suffered from the cold and blue fingers. after telling my dr about it he referred me to a rhuematologist who concluded i have what is called raynauld's phenomena and has prescribed a low dose of procardia and it has helped a great deal in these winter months...there are actully a few of us on the board who suffer from this. it is very much worth mentioning to your dr. LCH/EG 10-05> >> > > >> > Right now I am responding to Prednisone and Imuran and so many> > other drugs. > >> > *, when you say/"responding" /what do you mean exactly? What > > do you have as evidence that you re responding to the medication?> > I take the same meds as you do and I was curious as to how it> > affects you. Thanx for the helpful info you so willingly share.> > May God continue to be the Light that guides you.*> > ** > > *kiss kiss,*> > *Ginger-Tx.*> > *9/04 ipf*> > *And now abide faith, hope, love, these three; but the greatest of> > these /is/ love.*> >> > *1Cor.13:13*> > > > > > > >> >> > ----------------------------------------------------------------> > Don't be flakey. Get Yahoo! Mail for Mobile > > <http://us.rd.yahoo.com/evt=43909/*http://mobile.yahoo.com/mail> and> > always stay connected > > <http://us.rd.yahoo.com/evt=43909/*http://mobile.yahoo.com/mail> to > > friends.> > > > > -- > Z. fibriotic NSIP/05> "I'm gonna be iron like a lion in Zion" Bob Marley>

[Guest guest]

Sher, I think it was the day I got my cute little lady's in the mail I felt something on my arm and it was a LADYBUG now go figure that.. took it outside for me.. They aren't supposed to be here yet.. I love visits..

Love and Prayers, Peggy 9/04 ipf Florida

Peggy from Sher....lol...you are red because you are a junior ladybug!

...that bigger one is me 'cause I came first! hehehe

Sher

" Don't worry about tomorrow, God is already there "

Re: Re: new topic

Hey , I have hot red fingers and hands. Feet burn at night. I have a hard time being still at night because of it. This disease makes me nuts just trying to keep up with what my body is supposed to look like..LOL Every Dr. I address this with just shake their head and say " HUH " . Good Dx !!

Love and Prayers, Peggy 9/04 ipf Florida

Hi ,

i too suffered from the cold and blue fingers. after telling my dr

about it he referred me to a rhuematologist who concluded i have what

is called raynauld's phenomena and has prescribed a low dose of

procardia and it has helped a great deal in these winter months...

there are actully a few of us on the board who suffer from this. it

is very much worth mentioning to your dr.

LCH/EG 10-05

> >

> > In a message dated 2/18/2007 11:22:58 P.M. Central Standard

Time,

> > ljz741@... writes:

> >

> > Right now I am responding to Prednisone and Imuran and so

many

> > other drugs.

> >

> > *, when you say/ " responding " /what do you mean exactly?

What

> > do you have as evidence that you re responding to the

medication?

> > I take the same meds as you do and I was curious as to how it

> > affects you. Thanx for the helpful info you so willingly

share.

> > May God continue to be the Light that guides you.*

> > **

> > *kiss kiss,*

> > *Ginger-Tx.*

> > *9/04 ipf*

> > *And now abide faith, hope, love, these three; but the

greatest of

> > these /is/ love.*

> >

> > *1Cor.13:13*

> >

> >

> >

> >

> >

> > ----------------------------------------------------------

------

> > Don't be flakey. Get Yahoo! Mail for Mobile

> > <http://us.rd.yahoo.com/evt=43909/*http://mobile.yahoo.com/mail>

and

> > always stay connected

> > <http://us.rd.yahoo.com/evt=43909/*http://mobile.yahoo.com/mail>

to

> > friends.

> >

>

>

> --

> Z. fibriotic NSIP/05

> " I'm gonna be iron like a lion in Zion " Bob Marley

>

[Guest guest]

Ahhh Peggy...that is just too sweet!

Come 'visit' me.

Sher

"Don't worry about tomorrow, God is already there"

Re: Re: new topicHey , I have hot red fingers and hands. Feet burn at night. I have a hard time being still at night because of it. This disease makes me nuts just trying to keep up with what my body is supposed to look like..LOL Every Dr. I address this with just shake their head and say "HUH". Good Dx !!Love and Prayers, Peggy 9/04 ipf Florida

Hi ,i too suffered from the cold and blue fingers. after telling my dr about it he referred me to a rhuematologist who concluded i have what is called raynauld's phenomena and has prescribed a low dose of procardia and it has helped a great deal in these winter months...there are actully a few of us on the board who suffer from this. it is very much worth mentioning to your dr. LCH/EG 10-05> >> > > >> > Right now I am responding to Prednisone and Imuran and so many> > other drugs. > >> > *, when you say/"responding" /what do you mean exactly? What > > do you have as evidence that you re responding to the medication?> > I take the same meds as you do and I was curious as to how it> > affects you. Thanx for the helpful info you so willingly share.> > May God continue to be the Light that guides you.*> > ** > > *kiss kiss,*> > *Ginger-Tx.*> > *9/04 ipf*> > *And now abide faith, hope, love, these three; but the greatest of> > these /is/ love.*> >> > *1Cor.13:13*> > > > > > > >> >> > ----------------------------------------------------------------> > Don't be flakey. Get Yahoo! Mail for Mobile > > <http://us.rd.yahoo.com/evt=43909/*http://mobile.yahoo.com/mail> and> > always stay connected > > <http://us.rd.yahoo.com/evt=43909/*http://mobile.yahoo.com/mail> to > > friends.> > > > > -- > Z. fibriotic NSIP/05> "I'm gonna be iron like a lion in Zion" Bob Marley>

[Guest guest]

, I try my best...the not being able to really concentrate on

reading really gets to me. I have been a READING SPECIALIST for 30

years!!!

Z. fibriotic NSIP/05

"I'm gonna be iron like a lion in Zion" Bob Marley

denise randel wrote:

,

All of those describe me to a tee! I especially hate the

ADD symptoms I feel like a fidgety kid. I quess we just have to get

really good at managing the side effects and knowing when they are too

much! Take care-

linda zion <ljz741comcast (DOT) net> wrote:

, I guess I am a " high responder" too! I have bone

loss, horrid GERD, ADD symptoms, shakey hand, cold and blue fingers

and toes,etc, etc, etc. along with the positive results on the PFT's

and HRCT's.

-- Z. fibriotic NSIP/05 "I'm gonna be iron like a lion in Zion" Bob Marley

Hi Ginger,

This is and not but my doctor just explained

what she meant by "responding " to me and I thought I'd pass it on.

She said I was a "high responder" to prednisone. I get all the side

effects (Cushings, puffiness, weight gain, spine erosion) but I also

get the good benefits. My lung volume increases dramatically ( 34 to

69%) and I have enough strength to live a fairly normal life. She said

most people only have a slight increase in lung volume and a slight

increase in strength. Do you notice a big difference when you are off

prednisone? Take care-

TongueDancer2UAOL (DOT) COM wrote:

In a message dated 2/18/2007 11:22:58 P.M. Central

Standard Time, ljz741comcast (DOT) net writes:

Right now I am responding to Prednisone and Imuran and so

many other drugs.

, when you say"responding"

what do you mean exactly? What do you have as evidence

that you re responding to the medication? I take the same meds as you

do and I was curious as to how it affects you. Thanx for the helpful

info you so willingly share. May God continue to be the Light that

guides you.

kiss kiss,

Ginger-Tx.

9/04 ipf

And now abide faith, hope,

love, these three; but the greatest of these is love.

1Cor.13:13

Don't be flakey. Get

Yahoo! Mail for Mobile and

always

stay connected to friends.

-- Z. fibriotic NSIP/05 "I'm gonna be iron like a lion in Zion" Bob Marley

Bored

stiff? Loosen up...

Download

and play hundreds of games for free on Yahoo! Games.

-- Z. fibriotic NSIP/05

"I'm gonna be iron like a lion in Zion" Bob Marley

[Guest guest]

, I am an English teacher and I specialize in reading. nd what grades? Where did you teach and what grades? linda zion wrote: , I try my best...the not being able to really concentrate on reading really gets to me. I have been a READING SPECIALIST for 30 years!!! Z. fibriotic NSIP/05"I'm gonna be iron like a lion in Zion" Bob Marleydenise randel wrote: , All of those describe me to a tee! I especially hate the ADD symptoms I feel like a fidgety kid. I quess we just have to get really good at managing the side effects and knowing when they are too much! Take care-linda zion <ljz741comcast (DOT) net> wrote: , I guess I am a " high responder" too! I have bone loss, horrid GERD, ADD symptoms, shakey hand, cold and blue fingers and toes,etc, etc, etc. along with the positive results on the PFT's and HRCT's.-- Z. fibriotic NSIP/05 "I'm gonna be iron like a lion in Zion" Bob Marley Hi Ginger, This is and not but my doctor just explained what she meant by "responding " to me and I thought I'd pass it on. She said I was a "high responder" to prednisone. I get all the side effects (Cushings, puffiness, weight gain, spine erosion) but I also get the good benefits. My lung volume increases dramatically ( 34 to 69%) and I have enough strength to live a fairly normal life. She said most people only have a slight increase in lung volume and a slight increase in strength. Do you notice a big difference when you are off prednisone? Take care-TongueDancer2UAOL (DOT) COM wrote: In a message dated 2/18/2007 11:22:58 P.M. Central Standard Time, ljz741comcast (DOT) net writes: Right now I am responding to Prednisone and Imuran and so many other drugs. , when you say"responding" what do you mean exactly? What do you have as evidence that you re responding to the medication? I take the same meds as you do and I was curious as to how it affects you. Thanx for the helpful info you so willingly share. May God continue to be the Light that guides you. kiss kiss, Ginger-Tx. 9/04 ipf And now abide faith, hope, love, these three; but the greatest of these is love. 1Cor.13:13 Don't be flakey. Get Yahoo! Mail for Mobile and always stay

connected to friends. -- Z. fibriotic NSIP/05 "I'm gonna be iron like a lion in Zion" Bob Marley Bored stiff? Loosen up...Download and play hundreds of games for free on Yahoo! Games. -- Z. fibriotic NSIP/05 "I'm gonna be iron like a lion in Zion" Bob Marley

We won't tell. Get more on shows you hate to love(and love to hate): Yahoo! TV's Guilty Pleasures list.

[Guest guest]

Z,

I read constantly. I, like you, have problems with concentration. I have changed over to more simple books. If I start a book and it is filled with statistics, dates or too many complicating characters....I put it down and find one that is an easy read.

My ADD thing makes it difficult to sit through a movie or watch t.v. I am constantly changing channels.

It seems that we all share so many characteristics and symptoms.

Hugs, Joyce PF/Lupus 1997 Bronchiectasis 2004 Indiana > >>> >> > >>> >> Right now I am responding to Prednisone and Imuran and so> >> many other drugs. > >>> >> *, when you say/"responding" /what do you mean exactly?> >> What do you have as evidence that you re responding to the> >> medication? I take the same meds as you do and I was curious> >> as to how it affects you. Thanx for the helpful info you so> >> willingly share. May God continue to be the Light that guides> >> you.*> >> ** > >> *kiss kiss,*> >> *Ginger-Tx.*> >> *9/04 ipf*> >> *And now abide faith, hope, love, these three; but the> >> greatest of these /is/ love.*> >>> >> *1Cor.13:13*> >> > >> > >> > >>> >>> >> ------------------------------------------------------------------------> >> Don't be flakey. Get Yahoo! Mail for Mobile> >> <http://us.rd.yahoo.com/evt=43909/*http://mobile.yahoo.com/mail> and> >> always stay connected> >> <http://us.rd.yahoo.com/evt=43909/*http://mobile.yahoo.com/mail>> >> to friends.> >> >> >-- Z. fibriotic NSIP/05 "I'm gonna be iron like a lion in Zion" Bob Marley > >> >> > ------------------------------------------------------------------------> > Bored stiff? > > <http://us.rd.yahoo.com/evt=49935/*http://games.yahoo.com> Loosen up...> > Download and play hundreds of games for free > > <http://us.rd.yahoo.com/evt=49935/*http://games.yahoo.com> on Yahoo! > > Games.> > > > > -- > Z. fibriotic NSIP/05> "I'm gonna be iron like a lion in Zion" Bob Marley>

[Guest guest]

, When I first graduated from Temple in 1965 and got married..I taught 5th, 3rd, and 6th for 5 years. I stopped teaching in 1970..had three children....Adam is now 36, married and a daddy... is now 33, married and working on a grand child...Sam ia 27, married and way too young to think about kids. I got my masters degree in the Psychology of Reading in 1976.I started back as a substitute in 1985 in the same school as my son Sam...then found the best job. I've been a college Study Skills and Developmental Reading and ESL instructor at the local community college for the past 18 years. I missed all of it at first..but I don't have the energy to even think much about it anymore.

-- Z.NSIP/05 "I'm gonna be iron like a lion in Zion." Bob Marley

-------------- Original message --------------

,

I am an English teacher and I specialize in reading. nd what grades? Where did you teach and what grades? linda zion <ljz741comcast (DOT) net> wrote:

, I try my best...the not being able to really concentrate on reading really gets to me. I have been a READING SPECIALIST for 30 years!!! Z. fibriotic NSIP/05"I'm gonna be iron like a lion in Zion" Bob Marleydenise randel wrote:

,

All of those describe me to a tee! I especially hate the ADD symptoms I feel like a fidgety kid. I quess we just have to get really good at managing the side effects and knowing when they are too much! Take care-linda zion <ljz741comcast (DOT) net> wrote:

, I guess I am a " high responder" too! I have bone loss, horrid GERD, ADD symptoms, shakey hand, cold and blue fingers and toes,etc, etc, etc. along with the positive results on the PFT's and HRCT's.-- Z. fibriotic NSIP/05 "I'm gonna be iron like a lion in Zion" Bob Marley

Hi Ginger,

This is and not but my doctor just explained what she meant by "responding " to me and I thought I'd pass it on. She said I was a "high responder" to prednisone. I get all the side effects (Cushings, puffiness, weight gain, spine erosion) but I also get the good benefits. My lung volume increases dramatically ( 34 to 69%) and I have enough strength to live a fairly normal life. She said most people only have a slight increase in lung volume and a slight increase in strength. Do you notice a big difference when you are off prednisone? Take care-TongueDancer2UAOL (DOT) COM wrote:

In a message dated 2/18/2007 11:22:58 P.M. Central Standard Time, ljz741comcast (DOT) net writes:

Right now I am responding to Prednisone and Imuran and so many other drugs.

, when you say"responding" what do you mean exactly? What do you have as evidence that you re responding to the medication? I take the same meds as you do and I was curious as to how it affects you. Thanx for the helpful info you so willingly share. May God continue to be the Light that guides you.

kiss kiss,

Ginger-Tx.

9/04 ipf

And now abide faith, hope, love, these three; but the greatest of these is love.

1Cor.13:13

Don't be flakey. Get Yahoo! Mail for Mobile and always stay connected to friends. -- Z. fibriotic NSIP/05 "I'm gonna be iron like a lion in Zion" Bob Marley

Bored stiff? Loosen up...Download and play hundreds of games for free on Yahoo! Games. -- Z. fibriotic NSIP/05 "I'm gonna be iron like a lion in Zion" Bob Marley

We won't tell. Get more on shows you hate to love(and love to hate): Yahoo! TV's Guilty Pleasures list.

[Guest guest]

Joyce, That's exactly what I've been able to do.

-- Z.NSIP/05 "I'm gonna be iron like a lion in Zion." Bob Marley

-------------- Original message --------------

Z,

I read constantly. I, like you, have problems with concentration. I have changed over to more simple books. If I start a book and it is filled with statistics, dates or too many complicating characters....I put it down and find one that is an easy read.

My ADD thing makes it difficult to sit through a movie or watch t.v. I am constantly changing channels.

It seems that we all share so many characteristics and symptoms.

Hugs, Joyce PF/Lupus 1997 Bronchiectasis 2004 Indiana > >>> >> > >>> >> Right now I am responding to Prednisone and Imuran and so> >> many other drugs. > >>> >> *, when you say/"responding" /what do you mean exactly?> >> What do you have as evidence that you re responding to the> >> medication? I take the same meds as you do and I was curious> >> as to how it affects you. Thanx for the helpful info you so> >> willingly share. May God continue to be the Light that guides> >> you.*> >> ** > >> *kiss kiss,*> >> *Ginger-Tx.*> >> *9/04 ipf*> >> *And now abide faith, hope, love, these three; but the> >> greatest of these /is/ love.*> >>> >> *1Cor.13:13*> >> > >> > >> > >>> >>> >> ------------------------------------------------------------------------> >> Don't be flakey. Get Yahoo! Mail for Mobile> >> <http://us.rd.yahoo.com/evt=43909/*http://mobile.yahoo.com/mail> and> >> always stay connected> >> <http://us.rd.yahoo.com/evt=43909/*http://mobile.yahoo.com/mail>> >> to friends.> >> >> >-- Z. fibriotic NSIP/05 "I'm gonna be iron like a lion in Zion" Bob Marley > >> >> > ------------------------------------------------------------------------> > Bored stif

f? > > <http://us.rd.yahoo.com/evt=49935/*http://games.yahoo.com> Loosen up...> > Download and play hundreds of games for free > > <http://us.rd.yahoo.com/evt=49935/*http://games.yahoo.com> on Yahoo! > > Games.> > > > > -- > Z. fibriotic NSIP/05> "I'm gonna be iron like a lion in Zion" Bob Marley>

[Guest guest]

Joyce from Sher.....I'm really surprised to read the similarities here! Concentration is hard. I don't even pray the way I used to. Reading...same....and channel surfing used to drive me crazy. Now I do it too.

Thanks so much for sharing. These little things are what I notice and I think I'm the only one.

Love ya. Sher

"Don't worry about tomorrow, God is already there"

Re: new topic

Z,

I read constantly. I, like you, have problems with concentration. I have changed over to more simple books. If I start a book and it is filled with statistics, dates or too many complicating characters....I put it down and find one that is an easy read.

My ADD thing makes it difficult to sit through a movie or watch t.v. I am constantly changing channels.

It seems that we all share so many characteristics and symptoms.

Hugs, Joyce PF/Lupus 1997 Bronchiectasis 2004 Indiana > >>> >> > >>> >> Right now I am responding to Prednisone and Imuran and so> >> many other drugs. > >>> >> *, when you say/"responding" /what do you mean exactly?> >> What do you have as evidence that you re responding to the> >> medication? I take the same meds as you do and I was curious> >> as to how it affects you. Thanx for the helpful info you so> >> willingly share. May God continue to be the Light that guides> >> you.*> >> ** > >> *kiss kiss,*> >> *Ginger-Tx.*> >> *9/04 ipf*> >! ;> *And now abide faith, hope, love, these three; but the> >> greatest of these /is/ love.*> >>> >> *1Cor.13:13*> >> > >> > >> > >>> >>> >> ------------------------------------------------------------------------> >> Don't be flakey. Get Yahoo! Mail for Mobile> >> <http://us.rd.yahoo.com/evt=43909/*http://mobile.yahoo.com/mail> and> >> always stay connected> >> <http://us.rd.yahoo.com/evt=43909/*http://mobile.yahoo.com/mail>> >> to friends.> >> >> >-- Z. fibriotic NSIP/05 "I'm gonna be iron like a lion in Zion" Bob Marley > >> >> > ----------------------------------------------------------------------! --> > Bored stiff? > > <http://us.rd.yahoo.com/evt=49935/*http://games.yahoo.com> Loosen up...> > Download and play hundreds of games for free > > <http://us.rd.yahoo.com/evt=49935/*http://games.yahoo.com> on Yahoo! > > Games.> > > > > -- > Z. fibriotic NSIP/05> "I'm gonna be iron like a lion in Zion" Bob Marley>