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Re:gayle IPF 06

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Gayle, You are on 30 prednisone and imuran and it makes you feel

optomistic? At that dose I was just the opposite..40-20.prednisone and

2 imuran have made me even more pessimistic if anything. I haven't

asked for anti depressants yet...I still have too much need for the

anti- anxiety variety of meds right now.

-- Z. fibriotic NSIP/05

"I'm gonna be iron like a lion in Zion" Bob Marley

carrgm1776 wrote:

Sorry, I don't mean to confuse people, but somettimes I do. I

meant

to say that between the effexor on responding to meds for IPF, I

feel well enough to tackle the things I want to. I'll worry about

dying when it gets here.

Gayle IPF 06

> >

> > Vicky from Sher.... Well, Vicky, you know me by now...I say

> what's on my mind although I pray my words are tender!

> > I quote you, "I want so much to be an inspiration to others,

to

> encourage them and lift them up but its so hard when I'm down in

> the valley."

> > Dear heart...we are ALL one day going to be in the

Valley...yes,

> the Valley of the Shadow of Death. I need your encouragement as

you

> walk through so I'm not going to 'fear evil'

> > You already ARE an inspiration. You have been through so much

and

> if the depression is what weighs so heavy, well, you've been

here

> before and came through it. Don't you see how that 'lifts us

up'?

> > I think living and dying are both done in a very personal way

by

> each of us. When I am walking in the Valley, I will remember you

> Vicky...what do you most want me to know about this step of the

> journey?

> > I know you can't tell me when to 'let go and let God' but as

I

> watch your walk, I will learn something.

> > When I asked you if it might be time for Hospice, I was

referring

> as well to your emotional needs as you walk through the Valley.

I

> was thinking about the whole family.

> > What hurts me most about you is that there is an easier

softer

way

> for you. For goodness sake, take it. Meds, mental health, or

even

> Hospice.

> > I always pray for you. You are courageous and brave!

> > I love you. Sher

> > "Don't worry about tomorrow, God is already there"

> > Re: Sher and all, drs visit

> >

> >

> >

> > HI sher and everyone,

> >

> > Thank you for your concern, it did make me smile. I saw my dr

> today, he ordered, in addition to, Prozac, Klonopin and Xanax,

now

> Effoxor, is that how you spell it? He said it should give me

energy

> and cheer me up but he told my husband that anyone who is told

they

> are terminal is going to have depressing times, he's such a good

dr,

> I really do admire him. I did ask him about "putting me down"

> addmitting me and just letting me go, but he looked at my

husband

> and my husband shook his head no. The dr said my breathing is

good,

> I sounded good and he thinks the majority is depression. It will

> take about 3 weeks for this pill to kick in but I'll give it

that

> long then I just don't know. None of the drs think I need

Hospice,

> but it took every bit of energy just to walk into the drs office

> from the truck ( we havent installed the ramps for my wheelchair

> yet). I want so much to be an inspiration to others, to

encourage

> them and lift them up but its so hard when I'm down in the

valley.

> I cried so hard last night, I just don't feel like this is

living,

> like I said it's probably the depression. Please keep me in your

> prayers everyone, I really do need them spirtually and

emotionally,

> I love and pray for you all...

> >

> > Vicky81856

> >

>

> Sher, when I was faced with a VAT biopsy and the diagnosis of

IPF

> Nov '06, I absolutely fell apart. I have been taking 75 mg of

> effexor during and since my husbands final illness (recurrent

colon

> cancer). I was told to double the dose, and it's working just

> fine. I am not ordinarily a depressive, but you gotta do what

you

> gotta do.

> I am on 30 mg. prednisone (makes me feel optomistic) and 1

imuran,

> (these doses will change) and of course NAC and a fistfull of

other

> supplements. I'm going to UCSF for treatment. I've been feeling

> really good. Sooo, while I can, I do. My life plan is to do what

I

> want to do. I've never been able to do that without taking other

> peoples needs/desires into account. "better living through

> chemistry"

> Gayle, almost 69, IPF 11/06

>

-- Z. fibriotic NSIP/05

"I'm gonna be iron like a lion in Zion" Bob Marley

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Dear

It was suggested I double the dose of effexor because of the anxiety

I had surrounding the lung biopsy and the grim diagnosis. I was in

mortal fear it would be IPF. It has really, really helped. You

might have a little discussion about this with your primary care doc.

Gayle IPF/06

> > > >

> > > > Vicky from Sher.... Well, Vicky, you know me by now...I say

> > > what's on my mind although I pray my words are tender!

> > > > I quote you, " I want so much to be an inspiration to others,

> > to

> > > encourage them and lift them up but its so hard when I'm down

in

> > > the valley. "

> > > > Dear heart...we are ALL one day going to be in the

> > Valley...yes,

> > > the Valley of the Shadow of Death. I need your encouragement as

> > you

> > > walk through so I'm not going to 'fear evil'

> > > > You already ARE an inspiration. You have been through so much

> > and

> > > if the depression is what weighs so heavy, well, you've been

> > here

> > > before and came through it. Don't you see how that 'lifts us

> > up'?

> > > > I think living and dying are both done in a very personal way

> > by

> > > each of us. When I am walking in the Valley, I will remember

you

> > > Vicky...what do you most want me to know about this step of the

> > > journey?

> > > > I know you can't tell me when to 'let go and let God' but as

I

> > > watch your walk, I will learn something.

> > > > When I asked you if it might be time for Hospice, I was

> > referring

> > > as well to your emotional needs as you walk through the Valley.

> > I

> > > was thinking about the whole family.

> > > > What hurts me most about you is that there is an easier

softer

> > way

> > > for you. For goodness sake, take it. Meds, mental health, or

> > even

> > > Hospice.

> > > > I always pray for you. You are courageous and brave!

> > > > I love you. Sher

> > > > " Don't worry about tomorrow, God is already there "

> > > > Re: Sher and all, drs visit

> > > >

> > > >

> > > >

> > > > HI sher and everyone,

> > > >

> > > > Thank you for your concern, it did make me smile. I saw my dr

> > > today, he ordered, in addition to, Prozac, Klonopin and Xanax,

> > now

> > > Effoxor, is that how you spell it? He said it should give me

> > energy

> > > and cheer me up but he told my husband that anyone who is told

> > they

> > > are terminal is going to have depressing times, he's such a

good

> > dr,

> > > I really do admire him. I did ask him about " putting me down "

> > > addmitting me and just letting me go, but he looked at my

> > husband

> > > and my husband shook his head no. The dr said my breathing is

> > good,

> > > I sounded good and he thinks the majority is depression. It

will

> > > take about 3 weeks for this pill to kick in but I'll give it

> > that

> > > long then I just don't know. None of the drs think I need

> > Hospice,

> > > but it took every bit of energy just to walk into the drs

office

> > > from the truck ( we havent installed the ramps for my

wheelchair

> > > yet). I want so much to be an inspiration to others, to

> > encourage

> > > them and lift them up but its so hard when I'm down in the

> > valley.

> > > I cried so hard last night, I just don't feel like this is

> > living,

> > > like I said it's probably the depression. Please keep me in

your

> > > prayers everyone, I really do need them spirtually and

> > emotionally,

> > > I love and pray for you all...

> > > >

> > > > Vicky81856

> > > >

> > >

> > > Sher, when I was faced with a VAT biopsy and the diagnosis of

> > IPF

> > > Nov '06, I absolutely fell apart. I have been taking 75 mg of

> > > effexor during and since my husbands final illness (recurrent

> > colon

> > > cancer). I was told to double the dose, and it's working just

> > > fine. I am not ordinarily a depressive, but you gotta do what

> > you

> > > gotta do.

> > > I am on 30 mg. prednisone (makes me feel optomistic) and 1

> > imuran,

> > > (these doses will change) and of course NAC and a fistfull of

> > other

> > > supplements. I'm going to UCSF for treatment. I've been feeling

> > > really good. Sooo, while I can, I do. My life plan is to do

what

> > I

> > > want to do. I've never been able to do that without taking

other

> > > peoples needs/desires into account. " better living through

> > > chemistry "

> > > Gayle, almost 69, IPF 11/06

> > >

> >

> >

>

>

> --

> Z. fibriotic NSIP/05

> " I'm gonna be iron like a lion in Zion " Bob Marley

>

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