Guest guest Posted January 18, 2002 Report Share Posted January 18, 2002 Hi Everyone--I have been asked to pass on some information........Tom and Dennin, parents to Luke age 4 in South Bend, Indiana have been taking Luke to Cleveland to see Marcy Freed for e-stim treatments. They have had very good results---Luke has never eaten anything orally and now is eating many things (without any aspiration) including Cheerios ( also drinking liquids) and has asked to eat food in his mouth!! They are very pleased and excited by their whole experience in Cleveland and wanted me to pass it along to the list. They wanted to also strongly encourage anyone who may be interested in e-stim to call them at home . I know that they will be more than happy to talk to anyone. The number for Marcy Freed in Cleveland is , she answers her own phone, very easy to talk to, very happy to talk to parents of kids with CHARGE and will call you back!! I have learned this through my own experience because I have talked to her about Rose about 4 times. I have been considering this treatment for a long time--but we are taking a trip to California (our second trip) for a month to see an osteopathic dr. there and I have been not wanting to spend so much time away from home. Anyway, I talked to Marcy again and we agreed that Rose would have a swallow study done so we could find out exactly (hopefully) what is happening with her swallow, and also to determine whether or not she needs e-stim, I have made up my mind that if is seems that Rose would benefit from estim than we would go, regardless of spending so much time away. Anyway, to me estim seems like it could help many children with CHARGE----Marcy has been doing this treatment for quite some time with adults---I am not sure how long with children----but the FDA has approved this treatment for children, and she has also had much of her success with CHARGE children. Also, the treatment is not harmful and it doesn't hurt! So we will see where this goes............. Take Care, Beckett --mom to Rose 15mos and Henry--3.75yrs and baby in belly! _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
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