Re: accutane

[Guest guest]

Meg, Does that include topical retin- A creams, or just oral?

Thanks

Audrey Dwyer, Mom to -10, Meredith-8(CHARGE), -7, and wife to

Bill.

accutane

> Jill,

> Meg Hefner, resident geneticist here. Welcoome to the group. You are in

the

> right place to get lots of information and (more importantly) support from

other

> grandparents, parents and other interested parties.

>

> You asked about accutane. As most everyone knows, accutate taken in the

first

> 3 months of pregnancy can be devasting. The problems it can cause overlap

with

> CHARGE in that there can be heart defects and it can cause malformed ears.

> Otherwise, the problems are different from CHARGE.

>

> Accutane only causes problems DURING pregnancy. There is lots and lots of

info

> avaialble on people who went off accutane before becoming pregnant - the

risk

> of birth defects in that group is no higher than the general population.

So,

> your daughter taking accutane a few years before Caity was conceived had

nothing

> to do with it. Despite lots of looking, we haven't come up with anything

that

> was done, taken, not done, not taken during pregnancy that increases the

risk

> for CHARGE syndrome. that doesn't mean we don't pay attention to

pregnancy

> history. We'll keep looking just to be sure, but I really doubt it's

anything

> that anyone did or took.

>

> Keep us all updated on her progress. Join the Foundation

(www.chargesyndrome.org,

> get the Manual (CHARGE Syndrome Management Manual for Parents), and try to

make

> it to the next conference in Cleveland. You're part of a much bigger

family

> now.

> Meg

>

>

>

>

> Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 6th International CHARGE Syndrome Conference, Cleveland, Ohio,

> July 25-27, 2003. Information will be available at our website

> www.chargesyndrome.org or by calling 1-.

>

>

>