Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 , I'm sending positive thoughts and prayers your way. I know how scary this can be having gone through the detached retina scenario recently with Jack. Fingers crossed that all is OK and that if there is a problem they can do something to arrest or repair it. Take care, Elaine mum to Elise (9 yrs) & Jack (4 yrs) CHaRGE Dumfries, Scotland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 Our prayers are most certainly with Diane tomorrow as she visits the Retinal Specialist tomorrow. Please let us know how it goes. Love, Curt, , Camille, and Kendra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 , Good luck with your doctor visit to Philly tomorrow. Since we had long-term ear tubes and often still had infections, I wanted to mention two things that seemed to help a lot in case they are things that haven't been tried so far. First, limiting milk products has helped a lot (it was hard to cut out yogurt, but when we did there were many positives) and second the cranio-sacral work and other work done by an osteopathic doctor helped significantly. Osteopathic doctors claim to be very good at helping to control ear infections. Best luck with your appointment and I hope all goes well. Mom to Kendra, and Camille Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2002 Report Share Posted January 11, 2002 : My father started seeing those flashing light spots - amazingly it was right after my mom went with me to a seminar that noted the symptoms of retinal detachment! His turned out to be not detached, but there was a tear in the retina. I imagine the Ophthalmologist would have noticed that if it had occurred also with Diane. Just something to ask about? Same procedure - laser correction - was done as would be for detachment. Dad said it took about 2 minutes - most of it to get ready - and about 2 seconds of laser to repair it. Said the Ophthalmologist told him not to move, he saw a very bright light, and he was done! When it was first discovered it was only a tear, there was not the immediate push for the treatment. The Ophthalmologist was not overly concerned that it be done in the next few hours, although she did want it done within the following 5 days. Best of luck to Diane at the Specialists. Hopefully there is nothing wrong and it is only growth; but if there is a problem, my Dad says it was amazingly simple. Friends in CHARGE, Marilyn Ogan Mom of Ken (12, ADD) and (9, CHARGE+) Wife of Rick Indianapolis, IN oganm@... Prayers > > To all the group > Please remember my granddaughter Diane in your prayers. She is seeing a > Retinal Specialist tomorrow. Over the past weekend she was experiencing > flashing light which is one symptom of a detaching retina. Her > ophthalmologist examined her immediately and he saw no evidence of > detachment. He believes she is just experiencing a growth spurt which is > causing her retina to stretch. Hopefully, he is correct. I am behind again > in reading the posts, but I have noticed a few new members including two > Grandmothers. I would just like to welcome them and while I'm at it (a > little late) wish everyone a happy and HEALTHY New Year. > > > > > Grandmother of Emma(almost 8) and Diane(6) > Long Island, NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2002 Report Share Posted January 11, 2002 Elaine I know how badly I felt for Jack and your family when I learned about the detachment. They have so much to deal with already. Diane loves to read and watch videos. My heart would break. Marilyn, Thanks so much for you input. The ophthalmologist could not see any tears so hopefully the Retinal specialist will confer with his diagnosis. Right now I am waiting to hear from either or . I should get some news soon. As of now she is still seeing ok, so I am hopeful. and Pushpa thanks for your prayers, they mean a lot to me. and Debra your children will be in my thoughts and prayers Grandmother of Emma(8) and Diane(6) Long Island, NY _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 , I hope all went well, please keep us updated. I am behind in my emails so this is a little late... Weir Mom to Kennedy 3.5yr old CHARGEr, 12, 10, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/kawfolks ICQ #1426476 " In the depths of winter I finally learned there was in me an invincible summer. " -Albert Camus Prayers To all the group Please remember my granddaughter Diane in your prayers. She is seeing a Retinal Specialist tomorrow. Over the past weekend she was experiencing flashing light which is one symptom of a detaching retina. Her ophthalmologist examined her immediately and he saw no evidence of detachment. He believes she is just experiencing a growth spurt which is causing her retina to stretch. Hopefully, he is correct. I am behind again in reading the posts, but I have noticed a few new members including two Grandmothers. I would just like to welcome them and while I'm at it (a little late) wish everyone a happy and HEALTHY New Year. Grandmother of Emma(almost 8) and Diane(6) Long Island, NY _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2002 Report Share Posted January 15, 2002 wendy, thank you for the good thoughts, and ideas--cutting out milk would be a HUGE problem for him---it's his favorite thing of anything....as far as any other milk products, it wouldn't be that much of an issue. HE used to live on yogurt, now he won't touch it. what we found out was, the tube in the right ear is totally out, and there is fluid in the ear--no infection----yet...he started with a stuffy, yet, runny nose this morning. SO, I know what is coming--infection. we go back the 1st of feb. for an ear re-check, if we make it that long. and he's scheduled for the 6th of feb. to get the tube put back in. the ent was upset it came out so quickly too. it all seems so insignificant with what other children go through, but, to him it's a big deal...he is really trying hard to do well in school (since he got caught), and this just makes it harder for him cause he isn't feeling well. oh well, we do the best we can with what we have. maria, mom to timmy 6 ChARGE, Keegan 3 3/4, liam 15 mo. wife to pat Re: prayers > , > > Good luck with your doctor visit to Philly tomorrow. > > Since we had long-term ear tubes and often still had infections, I wanted > to mention two things that seemed to help a lot in case they are things > that haven't been tried so far. First, limiting milk products has helped a > lot (it was hard to cut out yogurt, but when we did there were many > positives) and second the cranio-sacral work and other work done by an > osteopathic doctor helped significantly. Osteopathic doctors claim to be > very good at helping to control ear infections. > > Best luck with your appointment and I hope all goes well. > > Mom to Kendra, and Camille > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2002 Report Share Posted January 15, 2002 , this may be a silly question, but where do you find a osteopathic dr. and what do they do? maria Re: prayers > , > > Good luck with your doctor visit to Philly tomorrow. > > Since we had long-term ear tubes and often still had infections, I wanted > to mention two things that seemed to help a lot in case they are things > that haven't been tried so far. First, limiting milk products has helped a > lot (it was hard to cut out yogurt, but when we did there were many > positives) and second the cranio-sacral work and other work done by an > osteopathic doctor helped significantly. Osteopathic doctors claim to be > very good at helping to control ear infections. > > Best luck with your appointment and I hope all goes well. > > Mom to Kendra, and Camille > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
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