Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 Hi, I never had growth hormone. I think I am about 5 1 or maybe 2 at the most. I kept growing sideways feeding > just wanted to write and see if someone could give me some advice on > feeding. First of all elizabeth is on a 22 hr a day feed nothing by > mouth we know she can swallow (not good everyhing everywhere) but she > definitly can swallow. Where is there a feeding school in Wis. and well > it help secnd should we see a speech therapist more than once a week and > what should they be working on? Now about growth she has been the same > height for some time but continues to get fatter ( little over 20lbs) > 14months old. should we see an endo for ghr please help!!!!! > > mom to CHARgEr and is and wife to Lucas > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 , I think it wouldn't hurt to have her followed by an endocrinologist. Kennedy hasn't shown signs of GHD, but we have her followed by an endo just in case. Weir Mom to Kennedy 3.5yr old CHARGEr, 12, 10, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/kawfolks ICQ #1426476 " In the depths of winter I finally learned there was in me an invincible summer. " -Albert Camus feeding just wanted to write and see if someone could give me some advice on feeding. First of all elizabeth is on a 22 hr a day feed nothing by mouth we know she can swallow (not good everyhing everywhere) but she definitly can swallow. Where is there a feeding school in Wis. and well it help secnd should we see a speech therapist more than once a week and what should they be working on? Now about growth she has been the same height for some time but continues to get fatter ( little over 20lbs) 14months old. should we see an endo for ghr please help!!!!! mom to CHARgEr and is and wife to Lucas Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.