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Did the endo do a 24 hour urinary free cortisol? If not, Irecommend having this done.Yes, I think she did do that test.They took a urine sample the day of the labs.

I was on the depakote for 10 years.

Lithium and mellarill for four years

I know you said it may not revert as fast but the hair is lessening a little.

Right now I am taking a multi vitamin and mineral . and a chromium

Today I just felt so lost I did not know if I needed to see a doctor or not I just started a new multi cause I had been off my multi for a while. I went to the docs and they can't really find nothing wrong. But if I have been off my meds fully since DEC is it normal to just have such a bad weekend where you feel lost and can't remember anything. Will this feeling go away and will I feel any better? I am tired but afraid to sleep or take anything. I just took some lemon and water to help with the anxiety. Is there anything else that can get me feeling any better?

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  • 1 year later...
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Hey Donna.I am goin threw the same thing.Only the doc I am seeing says ms is for

sure ruled out.I had an abnormal emg,and sumthn showed on the eeg but they say

its probably a technical mistake.I have all the signs of ms and I still believe

it is a strong possibility.With me they did a crappy job with mri's and I dont

think they checked my brainstem.It sounds like you have a good doc,at least they

arent ruling out ms just yet.Did you have a spinal?Mine was negative for ms but

did have some abnormalty's.I have heard that if you are in a attack they do

mri's,or every 6 mons. To a yr.I think it just depends on the doc.Good luck,keep

on the docs,and keep us posted.Take care.Big hugz cassy

[djnova50@...] wrote:

On Friday, I saw the new, temporary primary care physician.

Apparently, there are some notes in my chart from previous temporary

doctors, along with the doctor I started seeing in 2004.

I had an MRI either late in 2004 or early in 2005. The MRI did not

show any lesions. The doctor said she wasn't ready to rule out MS,

but wasn't able to comfirm it. She sent me to a neurologist. He did

an EMG only on my right side my forearm, knee, and ankle. He also did

an EEG using this really antiquated machine. He said there did not

seem to be any neurological issues.

Now this new doctor said that it is a good sign that there were no

lesions. I guess that's true. But, a woman I had spoke with at the

National Multiple Sclerosis Society had told me that even with a

negative MRI, the possibility of MS is still there.

How often do you get an MRI if no lesions are found but the symptoms

persist? Does it make a difference where the lesion or lesions are as

to what part of your body is affected?

Donna in WA

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10% of MSers don't have lesions. I'm in that 10%.

My spinal tap was positive, and I absolutely am better on Copaxone

than before.

It's defined, for legal purposes on my SSI application,

as " clinically probable MS " since requires lesions to call MS.

However, for all practical purposes, it is MS. We ruled out

everything else, the spinal tap was positive, I have classic

symptoms, and the Copaxone helps. Dr. agrees it's MS ... but is

forced to call " clinically probable " .

My symptoms have persisted since 11/11/04.

Amy

>

> On Friday, I saw the new, temporary primary care physician.

> Apparently, there are some notes in my chart from previous temporary

> doctors, along with the doctor I started seeing in 2004.

>

> I had an MRI either late in 2004 or early in 2005. The MRI did not

> show any lesions. The doctor said she wasn't ready to rule out MS,

> but wasn't able to comfirm it. She sent me to a neurologist. He

did

> an EMG only on my right side my forearm, knee, and ankle. He also

did

> an EEG using this really antiquated machine. He said there did not

> seem to be any neurological issues.

>

> Now this new doctor said that it is a good sign that there were no

> lesions. I guess that's true. But, a woman I had spoke with at the

> National Multiple Sclerosis Society had told me that even with a

> negative MRI, the possibility of MS is still there.

>

> How often do you get an MRI if no lesions are found but the symptoms

> persist? Does it make a difference where the lesion or lesions are

as

> to what part of your body is affected?

>

> Donna in WA

>

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  • 7 months later...

Fred wrote:

> Are postings to the group censored (or to use Yahoo's politically

> correct term " moderated " )?

All posts to the group are moderated. That's why when someone sends in a messy

post, it shows up like it was magically put in the right format. It ain't

magic. One of the moderators fixed it. We spend a lot of time fixing posts so

that all members, no matter what computerized blind read aloud programme they're

using, will be able to follow along.

I do believe the post you are talking about is one that was directed towards

me. It was vey political, so it was forwarded to me by another moderator. I

agree 100% with what you wrote. I just haven't had the oomph to answer it

privately yet.

As for posts to the group - you might want to read the file section about

posting. Very political, religious or flaming posts are not allowed on this

group. Never have been, likely never will be.

--

Lyndi

Moderator

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