What to use for treating PANDAS?

[Guest guest]

Hello folks,

I am suspecting my 2 1/2 yr old son has PANDAS and want to start treating it

right away. Is there a protocol to follow, what good supplements to us and how

long does it take?

Can anyone volunteer to mentor me or buddy up with this PANDAS ?

Thanks,

Maya

[Guest guest]

Are you working with a DAN! doctor? You probably want to check

labs for PANDAS.

Pamela

From: mb12 valtrex

[mailto:mb12 valtrex ] On Behalf Of mywonderbaby

Sent: Monday, August 10, 2009 1:22 PM

To: mb12 valtrex

Subject: What to use for treating PANDAS?

Hello folks,

I am suspecting my 2 1/2 yr old son has PANDAS and want to start treating it

right away. Is there a protocol to follow, what good supplements to us and how

long does it take?

Can anyone volunteer to mentor me or buddy up with this PANDAS ?

Thanks,

Maya

[Guest guest]

no we dont have a DAN. Can I do this without a DAN ?

What should I ask the DAN for ? any specific tests? any other bacteria to test for ? is Pandas and lyme related?

thanks,

maya

To: mb12 valtrex Sent: Monday, August 10, 2009 11:03:56 AMSubject: RE: What to use for treating PANDAS?

Are you working with a DAN! doctor? You probably want to check labs for PANDAS.

Pamela

From: mb12 valtrex@ yahoogroups. com [mailto:mb12 valtrex @yahoogroups. com] On Behalf Of mywonderbabySent: Monday, August 10, 2009 1:22 PMTo: mb12 valtrex@ yahoogroups. comSubject: What to use for treating PANDAS?

Hello folks,I am suspecting my 2 1/2 yr old son has PANDAS and want to start treating it right away. Is there a protocol to follow, what good supplements to us and how long does it take?Can anyone volunteer to mentor me or buddy up with this PANDAS ?Thanks,Maya

[Guest guest]

Tell the doc you would like your child screened for PANDAS.

There are two lab values that are looked at for a PANDAS diagnosis.

Pamela

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf

Of Maya

Sent: Monday, August 10, 2009 2:29 PM

To: mb12 valtrex

Subject: Re: What to use for treating PANDAS?

no we dont have a DAN. Can I do this without a DAN ?

What should I ask the DAN for ? any specific tests? any other

bacteria to test for ? is Pandas and lyme related?

thanks,

maya

From: Pamela P

To: mb12 valtrex

Sent: Monday, August 10, 2009 11:03:56 AM

Subject: RE: What to use for treating PANDAS?

Are you working with a DAN!

doctor? You probably want to check labs for PANDAS.

Pamela

From:

mb12 valtrex@ yahoogroups. com [mailto:mb12 valtrex @yahoogroups. com] On

Behalf Of mywonderbaby

Sent: Monday, August 10, 2009 1:22 PM

To: mb12 valtrex@ yahoogroups. com

Subject: What to use for treating PANDAS?

Hello folks,

I am suspecting my 2 1/2 yr old son has PANDAS and want to start treating it

right away. Is there a protocol to follow, what good supplements to us and how

long does it take?

Can anyone volunteer to mentor me or buddy up with this PANDAS ?

Thanks,

Maya

[Guest guest]

Thanks!

Are these tests any pedi can order?

Jackie

Subject: Re: What to use for treating PANDAS?To: mb12 valtrex Date: Monday, August 10, 2009, 11:01 PM

Hi Maya,

You can get the ASO and dNASE titres done to find out if the these antibodies are higher than they are supposed to be.

Also We recently had our kids blood work done by Dr Cunningham at oklahoma university to test for PANDAS. She worked with SWEDO before and currently researching PANDAS. Hope this helps.

Madhu.

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