Re: Has anyone tried BH$ and/or VSL #3?

[Guest guest]

Makes sense. We were using Threelac when our strep/PANDAS issues started. I got rid of Threelac and used VSL#3 not knowing about the strep. What a nightmare!

Kerrie

No big wows for my son w/ the BH4 but no negatives either. I would stay far aya from the VSL # 3 as it contains a strep strain which seems to effect our kids. I as told that the strep strain in the VSL #3 and other probiotics was different than the strep in our kids gut but I found out thru lab testing that my sons ASO strep titer went up using VSL #3. His ASO titer was slowly coming down over 2.5 years of lots of supplements and chelation. The VSL # 3 made his titer rise which as very disappointing.

SUsan

[Guest guest]

It's a probiotic. The problem is that some probiotics contain S.Thermophilus which is a strep strain. It's supposedly a beneficial strep strain but for people with PANDAS it can cause issues. Anything with S. Thermophilus causes a full blown PANDAS flare that can take me months to calm down in my son. One cup of yogurt with the strain in it caused a serious regression in my son. To us, it's poison.

Kerrie

Now you've got me intrigued.What is this stuff.and what is it supposed to do ?

[Guest guest]

Anyone tried BIOPTERIN (BH4) and/or VSL #3?

Does anyone know what is the best time to give BH4?

Thanks!

-Shilpa

[Guest guest]

No big wows for my son w/ the BH4 but no negatives either. I would stay far aya from the VSL # 3 as it contains a strep strain which seems to effect our kids. I as told that the strep strain in the VSL #3 and other probiotics was different than the strep in our kids gut but I found out thru lab testing that my sons ASO strep titer went up using VSL #3. His ASO titer was slowly coming down over 2.5 years of lots of supplements and chelation. The VSL # 3 made his titer rise which as very disappointing.

SUsan

Subject: Re: Has anyone tried BH$ and/or VSL #3?To: mb12 valtrex Date: Sunday, August 9, 2009, 8:01 PM

Anyone tried BIOPTERIN (BH4) and/or VSL #3?

Does anyone know what is the best time to give BH4?

Thanks!

-Shilpa

[Guest guest]

My daughter takes BH4, she takes it with her evening pills, per MP

Subject: Re: Has anyone tried BH$ and/or VSL #3?To: mb12 valtrex Date: Sunday, August 9, 2009, 8:01 PM

Anyone tried BIOPTERIN (BH4) and/or VSL #3?

Does anyone know what is the best time to give BH4?

Thanks!

-Shilpa

[Guest guest]

Where do you all get your BH4 and how much do you give?

Dana

From: Shilpa Lele <deepshilpyahoo (DOT) com>Subject: Re: Has anyone tried BH$ and/or VSL #3?To: mb12 valtrex@ yahoogroups. comDate: Sunday, August 9, 2009, 8:01 PM

Anyone tried BIOPTERIN (BH4) and/or VSL #3?

Does anyone know what is the best time to give BH4?

Thanks!

-Shilpa

[Guest guest]

Now you've got me intrigued.What is this stuff.and what is it supposed to do ? Subject: Re: Has anyone tried BH$ and/or VSL #3?To: mb12 valtrex Date: Sunday, August 9, 2009, 6:17 PM

Makes sense. We were using Threelac when our strep/PANDAS issues started. I got rid of Threelac and used VSL#3 not knowing about the strep. What a nightmare!

Kerrie

In a message dated 8/9/2009 8:08:02 P.M. Eastern Daylight Time, susan_fundyahoo (DOT) com writes:

No big wows for my son w/ the BH4 but no negatives either. I would stay far aya from the VSL # 3 as it contains a strep strain which seems to effect our kids. I as told that the strep strain in the VSL #3 and other probiotics was different than the strep in our kids gut but I found out thru lab testing that my sons ASO strep titer went up using VSL #3. His ASO titer was slowly coming down over 2.5 years of lots of supplements and chelation. The VSL # 3 made his titer rise which as very disappointing.

SUsan

[Guest guest]

Baccilus Coagulalns is the only probiotic I use.It's not one of the top recommended probiotics for inflammatory bowel disease.for nothing. Subject: Re: Has anyone tried BH$ and/or VSL #3?To: mb12 valtrex Date: Sunday, August 9, 2009, 6:53 PM

It's a probiotic. The problem is that some probiotics contain S.Thermophilus which is a strep strain. It's supposedly a beneficial strep strain but for people with PANDAS it can cause issues. Anything with S. Thermophilus causes a full blown PANDAS flare that can take me months to calm down in my son. One cup of yogurt with the strain in it caused a serious regression in my son. To us, it's poison.

Kerrie

In a message dated 8/9/2009 8:50:09 P.M. Eastern Daylight Time, thorenstd124@ yahoo.com writes:

Now you've got me intrigued.What is this stuff.and what is it supposed to do ?

[Guest guest]

It's 900 mcg, one pill per day, in the evening. I started her slowly and built up to avoid die off, so I can't say any big positives or negatives. I get it from Payne.

From: Shilpa Lele <deepshilpyahoo (DOT) com>Subject: Re: Has anyone tried BH$ and/or VSL #3?To: mb12 valtrex@ yahoogroups. comDate: Sunday, August 9, 2009, 8:01 PM

Anyone tried BIOPTERIN (BH4) and/or VSL #3?

Does anyone know what is the best time to give BH4?

Thanks!

-Shilpa

[Guest guest]

It's sold under the name "Digestive Advantage" Wal-Mart has it.I do not use it without enzymes.Look it up under the Bacillus Coagulans From: ratlenhumaol (DOT) com <ratlenhumaol (DOT) com> Subject: Re: Has anyone tried BH$ and/or VSL #3? To: mb12 valtrex@ yahoogroups. com Date: Sunday, August 9, 2009, 6:53 PM

>

>

>

> It's a probiotic. The problem is that some probiotics contain

> S.Thermophilus which is a strep strain. It's supposedly a beneficial strep

> strain but for people with PANDAS it can cause issues. Anything with S.

> Thermophilus causes a full blown PANDAS flare that can take me months to calm

> down in my son. One cup of yogurt with the strain in it caused a serious

> regression in my son. To us, it's poison.

>

> Kerrie

>

> In a message dated 8/9/2009 8:50:09 P.M. Eastern Daylight Time,

> thorenstd124@ yahoo.com writes:

> Now you've got me intrigued.What is this stuff.and what

> is it supposed to do ?

>

>

>

>

>