Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 Dearest Vicky, If anyone deserves peace, girl, it's YOU! Glad to hear that the visit went well. I especially like the follow up in a month. Take care of you - You are the most important. Love, Leanne uip 1/03 Beth wrote: Vicky, I'm so happy your doctor's appointment went that way. There's nothing in the world like being heard is there? It sounds like you've got a gem of a doc there (from what you describe he reminds me of my pulmo, so compassionate!) and he's right about quality of life being as important as quantity. I'm glad he's working with you to get you comfortable and happy. When the time comes to go home, I want to go with a smile on my face!! Love you Vicky!! Beth Fibrotic NSIP 06/06 Don't try to explain it, just nod your head. Breathe in, breathe out. Move on. J. Buffett Drs visit today Hi all, I must say, for the first time in a long time, I left my drs office at peace, feeling better about things than I have in ages. This is just my regular dr, no specialist but I poured my heart out to him and he listened as always. I told him I don't want a heart lung transplant and that I feel like the Pulmonary's at U of MI are a waste of gas. He said Vicky, if you're sure you don't want a transplant then lets get you comfortable. He did say he doesn't think I'm ready for Hospice yet. He upped my steroids back to 30 mg a day. He said I'm one of the rare ones that respond really well to them, I breathe easier etc. He upped my Klonopin and he upped my Vicadin. He told me to enjoy my life and to come see him again in a month to see how I'm doing. He said quality of life is important too. I am still going to U of Mi on the 23rd to treat the Pulmonary Hypertension. When he told me those things, it was like.....having a ton of bricks lifted off me. So, I'm going to live my life, enjoy it, and when it's my time, I'll go home to my Jesus. I am happy. Vicky81856 IPH/PF/PH 4/06 Everyone is raving about the all-new Yahoo! Mail beta. Quote Link to comment Share on other sites More sharing options...
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