Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 I just thought I would let you all know that I have an appointment with my second opinion cardiologist on April 2nd. This is who my GP has sent me to, to see if he will refer me to an EP. I originally wanted to see an EP because my AF was out of control, I believed it had become chronic. Now here I am, and so much better after discovering that my AF seems to be controlled with diet and no meds. It has not stopped an irregular heart beat though. I don't know if this is AF though. I have none of the previous symptoms of racing irregular heart beat, chest pain, breathlessness, dizziness and panic that I had before. And my own GP has not suggested giving me an ECG to find out. To be quite honest I am avoiding them as they just want me back on tablets. Do you think I should persue seeing an EP? Or do you think I should just ask this cardio to give me the tests again without meds to find out what is happening and take it from there. I would have to travel a few hundred miles to see an EP. I just don't know what to do. IT is not causing me problems at the moment. Thanks in advance for any suggestions Fran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2002 Report Share Posted March 10, 2002 on Sun, 10 Mar 2002 at 10:42:07, fross2001 wrote : >So my hopes lie with this new cardio >who has an interest in arrhythmia (according to my GP) and hopefully >he will refer me to an EP. > >I wonder if this is the type of AF people who do not know they have >it have until the Dr catches it. I mean some AF is seemingly not >bothersome and symptomless to some people. Or have I just got better? Fran, I do think you still are in AF. My Cardio explained that after a while (one to a few days) of continuous AF, your heart makes " digoxin-like chemicals " that calm it down somewhat. This /may/ be what you are feeling. Also if your food intolerance has improved like you have been saying, this may be causing less provoking of the bad AF, hence you get a more mild one. To be honest, AF is simple, IMHO - if you're not sure and you don't have a very clear regular pulse, you're probably in AF. I find the carotid artery at the side of my neck is far the best place to feel it (don't press too hard!) HTH Best of health to all, Vicky London, UK, 1954 model http://www.vagalafibportal.fsnet.co.uk/ " You can convert some of the people some of the time, but you can't convert all of the people all of the time " --------------------------------------------------------------------------------\ ------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2002 Report Share Posted March 10, 2002 > Fran, > > I do think you still are in AF. Vicky I may be but it is ok. I will let you all know what transpires with the cardio and what he says. This irregularity I can live with, so I am afraid to go back on meds as they made me really ill. There is a lot to be said for quality of life too. Also if your food intolerance has improved like you have been > saying, this may be causing less provoking of the bad AF, hence you get > a more mild one. Still some additives, some preservatives, flavour enhancers and all MSG based ingredients intolerant. I could make a bad AF happen anytime by consuming it, so I won't. I've just found a range of fresh foods I can tolerate and am really enjoying making new meals and snacks. So I agree it is not provoking bad AF so my heart is doing what is natural to it at the moment. Whether that is AF or not remains to be seen. > > To be honest, AF is simple, IMHO - if you're not sure and you don't have > a very clear regular pulse, you're probably in AF. My pulse is now very clear and strong in all pulse points including the ankle. I can see the vein there beating when I am sitting down on an evening in my nightie. It looks really strange. It is irregular though, I could count it by looking. (don't press too hard!) lol Thanks Vicky. I value your opinion. Fran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2002 Report Share Posted March 10, 2002 Dear Fran, I too think you are in AF but you are right its not so bad. I have wondered the same thing myself about quality of life and worrying all the time about going out of rthymn. When Im out, like I am now, I dont have to worry about staying in. Ive never heard this mentioned on this site but there is some truth to it Im sure. My aunt has been out for 20 years and takes Coumadin and Topral and so far does Not have Congestive Heart Failure. Her biggest complaint is her magular degeneration of her eyes. She cant drive but so long as her husband can, they are fine. She does lots of things that Im getting almost afraid to do. Nobody addresses these issues so neither do I. Im not sure anyone is in permanent AF here. Anyway, I like your spunk. lol, GP Re: Appointment at last > Fran, > > I do think you still are in AF. Vicky I may be but it is ok. I will let you all know what transpires with the cardio and what he says. This irregularity I can live with, so I am afraid to go back on meds as they made me really ill. There is a lot to be said for quality of life too. Also if your food intolerance has improved like you have been > saying, this may be causing less provoking of the bad AF, hence you get > a more mild one. Still some additives, some preservatives, flavour enhancers and all MSG based ingredients intolerant. I could make a bad AF happen anytime by consuming it, so I won't. I've just found a range of fresh foods I can tolerate and am really enjoying making new meals and snacks. So I agree it is not provoking bad AF so my heart is doing what is natural to it at the moment. Whether that is AF or not remains to be seen. > > To be honest, AF is simple, IMHO - if you're not sure and you don't have > a very clear regular pulse, you're probably in AF. My pulse is now very clear and strong in all pulse points including the ankle. I can see the vein there beating when I am sitting down on an evening in my nightie. It looks really strange. It is irregular though, I could count it by looking. (don't press too hard!) lol Thanks Vicky. I value your opinion. Fran Web Page - http://groups.yahoo.com/group/AFIBsupport FAQ - http://groups.yahoo.com/group/AFIBsupport/files/Administrative/faq.htm For more information: http://www.dialsolutions.com/af Unsubscribe: AFIBsupport-unsubscribe List owner: AFIBsupport-owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 on Sun, 10 Mar 2002 at 17:14:18, Gloria wrote : >When Im out, like I am now, I dont have to worry >about staying in. LOL - the ONE benefit of being in AF !!! Best of health to all, Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 Hi Vicky, I am sorry to hear your in AF. Have you noticed that your mental attitude changes when either in AF or Sr. When I was in AF I was dome and gloom and a dark cloud hang over me, concentration was very poor and to put it bluntly I just became a zombie. In an instant when I changed back my mental attitude changed, I became bright and alert. The shortness of breath did not help but I am not sure if this was my mind of the AF. C > >When Im out, like I am now, I dont have to worry > >about staying in. > > LOL - the ONE benefit of being in AF !!! > > Best of health to all, > Vicky > > ********************************************************************** This message may contain information which is confidential or privileged. If you are not the intended recipient, please advise the sender immediately by reply e-mail and delete this message and any attachments without retaining a copy. ********************************************************************** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 on Mon, 11 Mar 2002 at 12:04:30, Codling, wrote : >Hi Vicky, I am sorry to hear your in AF. Thanks for that, - these days I'm in AF(/AFL?) about 8-20 hours a day at present. I get a good morning, generally, but after lunch it brews up and by night I'm jumping all over the place. I think the worst flopping of the fish may be AFL, now it has been diagnosed. >Have you noticed that your mental attitude changes when either in AF >or Sr. >When I was in AF I was dome and gloom and a dark cloud hang over me, >concentration was very poor and to put it bluntly I just became a zombie. In >an instant when I changed back my mental attitude changed, I became bright >and alert. Absolutely. (And people wonder why you can't work when you are like this - it's hard enough keeping up with what goes on at work even when you are 100% physically fit.). My concentration is *shot* much of the time. I have started wondering whether there is a physical aspect to the depression that AF brings on. I often, or even usually, get very down just after an attack starts (when I was in permanent AF before I started dofetilide it was " better " , in a way, since it all settled down and you just got this low-level fibbing but not the terrible highs and lows). I know there is this ANP chemical that makes you pee, but I wonder if an attack starts other hormones or whatever. I find a good blub helps! Best of health to all, Vicky London, UK, 1954 model http://www.vagalafibportal.fsnet.co.uk/ " We don't have a hopeless end; we have an endless hope " - anon (?) via Ellen --------------------------------------------------------------------------------\ ------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 >I find a good blub helps! I have been wondering about this, because I find strong emotions can bring on heart stuff, and so have to clamp down on them, even watching adrenaline producing stuff on television. Another vagal vs adrenergic thing, I guess. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 Hi Gloria Once my GP said to me that he thought, unlike my cardio, that I had chronic AF. I suppose after about twenty years this should not be a surprise for me. I think it has been at the back of my mind for a while. I just did not want to accept it (I'll still wait for the official diagnosis though). IF it is permanent AF, then you are so right, I don't have to worry about going into AF, or waiting to go into NSR. I have what I have. And what ever that is, is constant now. This gives me a permanent base to live from. As you say the worrying is no good. All I have to do is watch what I eat. And slow AF is not a patch on a bad AF run. I can still play sports, do my work, go out and enjoy life (though I can't go to the pub - grrrr). I was thinking that the night before my sleep study I would go and have a good night out. MEal in a restaurant and go to a live music pub and have a few drinks. I haven't done that for years as I am too scared to bring on a black out and seizure. They always seem to happen (if they do) the following night. At least I will be going to the right place. And it is in the big city. So I might as well take advantage of it. I admire your aunt. I am a bit in the same boat as I can't drive (due to infrequent seizures). But I have friends and relations who do, and everyone is so used to it now, no-one compalins. Its just a matter of fact. Thanks for bringing it home. Tkae care Fran > Dear Fran, I too think you are in AF but you are right its > not so bad. I have wondered the same thing myself about > quality of life and worrying all the time about going out of > rthymn. When Im out, like I am now, I dont have to worry > about staying in. Ive never heard this mentioned on this > site but there is some truth to it Im sure. My aunt has been out for 20 years and takes Coumadin and Topral and > so far does Not have Congestive Heart Failure. Her biggest complaint is her magular degeneration of her eyes. She cant drive but so long as her husband can, > they are fine. She does lots of things that Im getting almost afraid to do. Nobody addresses these issues so > neither do I. Im not sure anyone is in permanent AF here. > Anyway, I like your spunk. lol, GP > Re: Appointment at last > > > > > Fran, > > > > I do think you still are in AF. > > Vicky > > I may be but it is ok. I will let you all know what transpires with > the cardio and what he says. This irregularity I can live with, so I > am afraid to go back on meds as they made me really ill. There is a > lot to be said for quality of life too. > > > Also if your food intolerance has improved like you have been > > saying, this may be causing less provoking of the bad AF, hence you > get > > a more mild one. > > Still some additives, some preservatives, flavour enhancers and all > MSG based ingredients intolerant. I could make a bad AF happen > anytime by consuming it, so I won't. I've just found a range of fresh > foods I can tolerate and am really enjoying making new meals and > snacks. So I agree it is not provoking bad AF so my heart is doing > what is natural to it at the moment. Whether that is AF or not > remains to be seen. > > > > > > To be honest, AF is simple, IMHO - if you're not sure and you don't > have > > a very clear regular pulse, you're probably in AF. > > My pulse is now very clear and strong in all pulse points including > the ankle. I can see the vein there beating when I am sitting down on > an evening in my nightie. It looks really strange. It is irregular > though, I could count it by looking. > > (don't press too hard!) > > lol > Thanks Vicky. I value your opinion. > > Fran > > > Web Page - http://groups.yahoo.com/group/AFIBsupport > FAQ - http://groups.yahoo.com/group/AFIBsupport/files/Administrative/faq.htm > For more information: http://www.dialsolutions.com/af > Unsubscribe: AFIBsupport-unsubscribe@y... > List owner: AFIBsupport-owner@y... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2002 Report Share Posted March 11, 2002 > >When I was in AF I was dome and gloom and a dark cloud hang over me, I used to get this. Looking back it was when I was having AF but as you all know I disregarded my AF for years. It was only after the bad run on sotalol that I looked into it. I think there must be a chemical being released, or not being released in enough quantity, due to inneficient pumping, to cause this. It makes sense to me. Fran Quote Link to comment Share on other sites More sharing options...
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