Guest guest Posted December 29, 2001 Report Share Posted December 29, 2001 Hi , Saw Billie's photos earlier today, what a sweetie! Our daughter was born with a lot of hair also (blondie though). In infancy she had the Don King look, it was pretty dramatic, stuck straight up! It seemed like everyone was attracted to her hair, so they would rub there hands up through it, so it would stick up even farther She's 14.5 mos.old, now she has bangs that are like cow-licks(sp) & shoulder length strawberry blonde hair. was born with a severe bilateral cleft lip & palate. Even though it was challenging she did well with her Haberman (that's the kind of bottle we used because of the clefts). She ate orally until she was 2 mo. old (did fairly good with the bottle despite her clefts). But this is when we noticed the aspirating & the poor swallow, cranial nerve involvement? She then got a g-tube & a nissen fundoplication. She is still feed via g-tube, nil' orally! The most important advice I can share about the feedings (or all of the time) is to keep that mouth a happy place!! During 's feedings we dipped the nipple (now it's via spoon, big girl) in just about anything, within reason, lemon juice to ice cream! She can have only tethered tastes, because she still aspirates. Does Billie aspirate or have swallowing difficulties? If you don't know you should get that checked, it's scary when they aspirate. We are slowly introducing tethered textures. It's great that Billie enjoys the candycane, whatever it takes to wake up those senses & to keep the mouth happy & hungry. Jan mom to (14.5 mo.)CHARGEr wife to Quote Link to comment Share on other sites More sharing options...
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