Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 Thank you, Leanne. Those faces are why I keep huffing and puffing! Joyce >> Joyce,> > I just checked out your pictures. Thanks for sharing. You have an > absolutely great looking family! > > Leanne> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 Joyce, VERY well put. Thank you, my friend. LeanneJoyce wrote: Leanne, I could read 80 books and not be as touched or helped as much as the writings of the wonderful, courageous people on this site....including you. Just read through the posts. One posting will be full of humour, the next full of faith and the next absolute despair. The depression we feel is real, the pain is real, the grief is real...we are real people who are living this nightmare. The astonishing thing is that in all this horror, we are giving of ourselves to others. Hugs to all of you, Joyce PF 1997 Bronchiectasis 2004 INDIANA > HI all, This may seem long winded but its been on my mind for a while now. I think Carolyn's situation just made me look at my situation more seriously. To start with, for those of you that don't know I was diagnosed with IPF in April of 06. A lung biopsy also showed Pulmonary Hemosiderosis. Then in Oct, University of MI specialist said I also have Pulmonary Hypertension. He was quite frank, told me I wouldn't see Christmas 2007, that the deck is stacked against me, and that I probably wouldn't live long enough to even lose the weight I needed to and even SEE if I qualified for a double lung and heart transplant. I see the heart specialist on the 23rd of this month, which I'm sure she'll want to do a heart cath. I also changed pulmonary drs at U of Mi, as I felt this character was so "negative" I couldn't handle seeing him again. Here's my situation. I'm going to see the heart dr and the new pulmonogist, BUT......if things are as bad as they say, I'm thinking about> bringing in Hospice. I will say since June , my breathing is worse and my chest pain much more often. In Oct, the dr did tell me that I wet downhill drastically in just 3 months. I know if I call in Hospice, it rules out any work towards or chances of a transplant. But if I'm not gonna live long enough to even run the tests for one, why bother? My question is this, how can I convince my daughter who is 24 that this is what I want? She always says to me things like, " what about when you said you were gonna fight this to the end , etc and why are you giving up?" She just doesn't understand the pain and exhaustion that goes along with this monster everyday. I will have 3 bad weeks, then maybe a good day. I see my friends starting new jobs in management and here I sit, planning my funeral or wondering, will I have enough energy to do laundry tomorrow? I'm just so tired, depressed a little but not horrible like I have been before. This disease has consumed my life, my> thoughts, everything since I found out I had it. I try to live a normal life, but what's normal anymore? 31 pills a day, oxygen 24/7. Chest pain, back pain, weakness, exhaustion. I'm sorry I know I'm rambling on, but you guys are really the only ones that can relate and understand. So what do I do?> > With much love,> > Vicky81856 > > > > > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
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