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we are pulling our hair out !!

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Dear Parents

Our baby is now two years and three months. For the last

two months he has suffered from what seems to be severe

intermittent, abdominal cramping. His been constipated at times

but not always and his stomach is bloated most of the time. He

passes frequent, fowl smelling winds. His doctors have excluded

gallstones (his stools were quite pale). The abdominal x-ray

showed marked gaseous distension.

They think he may have GIARDIA and have given him FLAGYL and

DUFALAC. He continues to cry as if in severe pain and has not

eaten for the last week.. He is on a gluten/casein free diet

and has managed to take in some rice milk. He has been on this

diet for four months now. He also recently had grommets and his

ears are not infected.

Getting him to sleep at night remains a difficult challenge.

Does anyone have any experience or ideas on how we can help our

son, as the doctors here in South Africa have never dealt much

with CHARGE?

Love and Gwynne

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