Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Hi Barbara! I am catching up with the mailing list and found your e-mail about " runny nose " . My daughter 20 months of age has constant running nose as well. It seems to come out more from the left nostril then the right one. has tracheomalacia and/or laryngomalacia. She also have lusoria abberant behind the oesophagus. The doctors say she has no stenosis on either side but i doubt it when I read your different e-mails on the subject. Best wishes from Gunila, mother to (CHaRgE) 20 months living in the capital of Sweden, Stockholm secretions > Hi everyone. As usual, I am turning to all of you for your advice > and expertise about what you do for nasal secretions. I don't know > if this is a problem for most people, but appears to have a > chronic " runny nose " . He has choanal stenosis on one side and tends > to have secretions come out on the other. We're holding off on > surgery for a while to see if the opening grows as he gets bigger. > Has anyone used anithistamines or anything else? Do the kids tend to > outgrow it? Also, is there anyone out there who has a child that had > a tracheoesophageal fistula repair? has that when he was born > and in addition to his runny nose, he sound like he has a cold from > the tracheomalacia. Does this improve (ie., quiets) and when? > > All in all I have to say things are going well and lots of big issues > seem to be getting smaller. > > Thanks for any advice on these issues. > > Barbara, mom to 13 months > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
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