Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 Dee, You are ME! When I was finally diagnosed with PF, I was 53. Nearly dead! The docs had done x-rays, ct scans, .... the works. But misdiagnosed it. When I finally drug myself to the doc I have now, he ordered biopsy. It was horrendous, but saved my life. My new lung doc, then, referred me to a new rheumatologist. He and the pulmo worked together and got the PF and Lupus (mixed connective tissue disease, which sounds like your diagnosis, too) under some control. In so doing, the disease process slowed. I had taken Methotrexate before that time and Imuran. I could not tolerate high doses of Imuran (liver/bloodwork abnormality) so the rheumy started me on Cellcept in 1998. It has stalled the autoimmune process and allowed me to live a little longer. I am now in end stage, but the doc said that did not mean it is The End! Like you and everyone with diseases like Lupus, I have had every medical problem known to mankind. I am a walking, talking medical speciman. Been there, done that. So.....I get up every day...do everything that I can....then at night I count that day a VICTORY! I am not totally brave. I shake in my boots like everyone here does. Need a lot of help with that and the wonderful people here provide that. I see such courage from this board. I, too, have the same response to people saying casually, "so, how are you"? I just say, "good".....they look relieved! So, to have you guys to talk to is keeping me sane. You all GET IT! You are me, I am you! Glad you told us a little about yourself. Helps me to know you better. Maybe you could post a photo on the photo page. Hugs, Joyce PF 1997 Bronchiectasis 2004 Indiana >> Hi Beth, Donna, Lynn A., Carolyn, Peggy, Gretel from Dee> > Thanks for the advise, I will follow it.> > Here's a little about me. I am 64 yrs old, married for 42 yrs. live in a 55 + retirement community in Southern Calif., native CA. I have breathed hard as far back as I can remember, been diagnosed with RA, fibromaylaga, pulmonary fibrosis (July of 2006), enlarged right side of heart, mitral valve leakage, lupus, bronchitis, have had kidney stones (surgery to remove them), gall bladder, ulcers, divaticolotis,(sp.), diabetic thanks to the steroids, been on Prednisone 4 yrs. straight. hospitalized twice last year for pneumonia. Other than that I'm in pretty good health. Yeah right. Got to keep a positive attitude otherwise this stuff will get you down and I'm not ready for that. Have trouble with leg and feet swelling, tired all the time, no energy, hands shake and seem to be getting worse, pain everywhere and anywhere but whenever anyone ask how am I doing, I say "great" or "good" and put a big smile on my face. I feel they really don't want to hear about my illnesses and it seems to help me to say that I'm ok.> > I find this group very informative and helpful. I get scared at times just like you guys do and prayer helps me through it. Nighttime is the worse for me. I recently had to go to 5 L and that was a mild set back but I'm over it now and ready to face a new day. My dr. is at UCLA and I really like him, my dr. from Kaiser sent me over there after telling me "there is nothing more I can do for you". That felt like someone dropped a bomb on me. The UCLA dr. is trying different autoimmune drugs to stop the progression of this disease and hopefully will be able to wean me off the steroids. I am having a problem with my liver from the new drugs and hopefully will be able to continue to take them and the liver will calm down.> > Because of all the positive comments from this wonderful group on Pulm. rehab I am going to start that next month. I too get very tired, got a housekeeper and now she is coming twice a month since it just tears me up to doing anything physical. Walking is the worse and carrying something just doubles it. My husband is my caretaker and he usually drops me off at the door whenever we go anywhere. > > Well, that's me in a nutshell. We will be communicating lots more. Take care and God bless each and everyone of you.> > P.S. I also have been wondering about the guy that was contemplating suicide. We never did hear back from him. Sure hope he had a change of heart.> > Bless everyone,> Dee> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 Dee from Sher...thanks for your info. Yes, you've had a lot to deal with. Most of us here seem to have multiple conditions. I too have Fibromyalgia and arthritis that cause me constant pain. I do the same thing. I smile and say, "I'm hangin' in there". Welcome to our board. You will love us. God bless. Sher ipf 5-06 "Don't worry about tomorrow, God is already there" Profile Hi Beth, Donna, Lynn A., Carolyn, Peggy, Gretel from Dee Thanks for the advise, I will follow it. Here's a little about me. I am 64 yrs old, married for 42 yrs. live in a 55 + retirement community in Southern Calif., native CA. I have breathed hard as far back as I can remember, been diagnosed with RA, fibromaylaga, pulmonary fibrosis (July of 2006), enlarged right side of heart, mitral valve leakage, lupus, bronchitis, have had kidney stones (surgery to remove them), gall bladder, ulcers, divaticolotis,(sp.), diabetic thanks to the steroids, been on Prednisone 4 yrs. straight. hospitalized twice last year for pneumonia. Other than that I'm in pretty good health. Yeah right. Got to keep a positive attitude otherwise this stuff will get you down and I'm not ready for that. Have trouble with leg and feet swelling, tired all the time, no energy, hands shake and seem to be getting worse, pain everywhere and anywhere but whenever anyone ask how am I doing, I say "great" or "good" and put a big smile on my face. I feel they really don't want to hear about my illnesses and it seems to help me to say that I'm ok. I find this group very informative and helpful. I get scared at times just like you guys do and prayer helps me through it. Nighttime is the worse for me. I recently had to go to 5 L and that was a mild set back but I'm over it now and ready to face a new day. My dr. is at UCLA and I really like him, my dr. from Kaiser sent me over there after telling me "there is nothing more I can do for you". That felt like someone dropped a bomb on me. The UCLA dr. is trying different autoimmune drugs to stop the progression of this disease and hopefully will be able to wean me off the steroids. I am having a problem with my liver from the new drugs and hopefully will be able to continue to take them and the liver will calm down. Because of all the positive comments from this wonderful group on Pulm. rehab I am going to start that next month. I too get very tired, got a housekeeper and now she is coming twice a month since it just tears me up to doing anything physical. Walking is the worse and carrying something just doubles it. My husband is my caretaker and he usually drops me off at the door whenever we go anywhere. Well, that's me in a nutshell. We will be communicating lots more. Take care and God bless each and everyone of you. P.S. I also have been wondering about the guy that was contemplating suicide. We never did hear back from him. Sure hope he had a change of heart. Bless everyone, Dee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 Hi Dee. Awww, sunny California!!!! My Mom wanted us to get stationed in southern California instead of Ft. when we first got back to the states in the 60's. My Sibs where both born in San Bernadino in the 40's and early 50's. Both my Grandmothers lived in southern California. Fond memories.... Sorry to hear you have so much on your plate, as so many here do. I'm realising that PF is not a solo disease. I've been struggling with fibro for a while, as I believe some others are here also. Joyce, don't you also have fibro? I could be wrong on that though. I also have RA and Fibro from Hypersensitivity Pneumonitis triggered by mold and IMHO, I believe exposure to asbestos, hydrofloric acid and quartz dust. My Raw number is pretty bad - 215 because I also have Atypical Mesothelial Hyperplasia, a precancerous form of meothelioma. Kaiser gave up on me also. My Rheumy said I "fell through the cracks". I know how that on feels. They never did treat me for the meso and now want $300 a month to continue not treating me. LOL!!! Pretty arrogant. I'm glad you decided to go for the Pulmo rehab, it made all the difference in the world for me. As soon as I have medical coverage I'm going to ask to go back so I can get some help to get my numbers back up. I'm glad you found a MD at UCLA who is taking good care of you. Speaking of good care, your Hubby sounds wonderful, what a blessing. Keep it positive, its hard, but its the key. LynnArmede >> Hi Beth, Donna, Lynn A., Carolyn, Peggy, Gretel from Dee> > Thanks for the advise, I will follow it.> > Here's a little about me. I am 64 yrs old, married for 42 yrs. live in a 55 + retirement community in Southern Calif., native CA. I have breathed hard as far back as I can remember, been diagnosed with RA, fibromaylaga, pulmonary fibrosis (July of 2006), enlarged right side of heart, mitral valve leakage, lupus, bronchitis, have had kidney stones (surgery to remove them), gall bladder, ulcers, divaticolotis,(sp.), diabetic thanks to the steroids, been on Prednisone 4 yrs. straight. hospitalized twice last year for pneumonia. Other than that I'm in pretty good health. Yeah right. Got to keep a positive attitude otherwise this stuff will get you down and I'm not ready for that. Have trouble with leg and feet swelling, tired all the time, no energy, hands shake and seem to be getting worse, pain everywhere and anywhere but whenever anyone ask how am I doing, I say "great" or "good" and put a big smile on my face. I feel they really don't want to hear about my illnesses and it seems to help me to say that I'm ok.> > I find this group very informative and helpful. I get scared at times just like you guys do and prayer helps me through it. Nighttime is the worse for me. I recently had to go to 5 L and that was a mild set back but I'm over it now and ready to face a new day. My dr. is at UCLA and I really like him, my dr. from Kaiser sent me over there after telling me "there is nothing more I can do for you". That felt like someone dropped a bomb on me. The UCLA dr. is trying different autoimmune drugs to stop the progression of this disease and hopefully will be able to wean me off the steroids. I am having a problem with my liver from the new drugs and hopefully will be able to continue to take them and the liver will calm down.> > Because of all the positive comments from this wonderful group on Pulm. rehab I am going to start that next month. I too get very tired, got a housekeeper and now she is coming twice a month since it just tears me up to doing anything physical. Walking is the worse and carrying something just doubles it. My husband is my caretaker and he usually drops me off at the door whenever we go anywhere. > > Well, that's me in a nutshell. We will be communicating lots more. Take care and God bless each and everyone of you.> > P.S. I also have been wondering about the guy that was contemplating suicide. We never did hear back from him. Sure hope he had a change of heart.> > Bless everyone,> Dee> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 Dee, Not doing so great now, but I have had a good many more years than I was told at first. Does your insurance give you a hard time over paying for Cellcept. It is so expensive and I have had to fight the fight to get it. Last year was the worst. They just refused in spite of documentation stating that I would probably die without it. I finally won my appeal, but I know I will have the same fight again. Hugs, Joyce PF 1997 Bronchiectasis 2004 Indiana > >> > Hi Beth, Donna, Lynn A., Carolyn, Peggy, Gretel from Dee> > > > Thanks for the advise, I will follow it.> > > > Here's a little about me. I am 64 yrs old, married for 42 yrs. live in a 55 + retirement community in Southern Calif., native CA. I have breathed hard as far back as I can remember, been diagnosed with RA, fibromaylaga, pulmonary fibrosis (July of 2006), enlarged right side of heart, mitral valve leakage, lupus, bronchitis, have had kidney stones (surgery to remove them), gall bladder, ulcers, divaticolotis,(sp.), diabetic thanks to the steroids, been on Prednisone 4 yrs. straight. hospitalized twice last year for pneumonia. Other than that I'm in pretty good health. Yeah right. Got to keep a positive attitude otherwise this stuff will get you down and I'm not ready for that.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 Tootiebess, Do you know how to use a cast iron skillet? Not to kill the poor guy...just a stunning thud....then tell him that you really don't think he has a headache, that he is just faking!!!! Aaaargh! I probably shouldn't tell a girl from Alabama such things! Take care of you! Hugs, Joyce > >> > To help get the ball rolling, how about if we tell a little bit> > about ourselves so we can get to know each other and what brought us> > to this place. You can copy and paste into a new document and> > answer the questions.> >> > Name?> >> > Age? (if you don't mind sharing)> >> > How has pf or ipf touched your life?> >> > If a patient, when were you diagnosed?> >> > Did you go through pulmonary rehab?> >> > Do you participate in a pf support group?> >> > Smoker?> >> > Grew up in a smoke filled environment?> >> > husband/wife?> >> > Children?> >> > Pets?> >> > Favorite Movie?> >> > Favorite Food?> >> > Favorite Holiday?> >> > Favorite Book?> >> > Favorite Author?> >> > What do you like to do in your spare time?> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 I'm new to Cellcept and first started it in Dec. My prescription insurance ran out so I had to pay $160.00 but they said it would be cheaper with the refill. Normally I pay $20.00 for brand named drugs. Will let you know what the refill costs. Dee Re: Profile> > > > Dee, > > You are ME! > > When I was finally diagnosed with PF, I was 53. Nearly dead! The docs had done x-rays, ct scans, .... the works. But misdiagnosed it. When I finally drug myself to the doc I have now, he ordered biopsy. It was horrendous, but saved my life. My new lung doc, then, referred me to a new rheumatologist. He and the pul Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 Joyce, You said it!!!!!! Everyone in this group " gets it " !!!It's so wonderful not to have to explain myself to anyone here!!!!I have NSIP...not PF but it seems to me that the lung troubles are similar ....maybe not as dramatic but still miserable. I have people say " You look good " ...I don't look_ good._.(well).I just say " Thanks " and keep going. I tell them it's just " smoke and mirrors " I am 63 ( in 2 weeks) Until this hit( July,2005)I was healthy and active and working as a college instructor and potter. I have stopped work...the talking being the most difficult and painful. I still work with the clay but have stopped trying to work on the wheel because I couldn't figure out how to use the portable Helios (4.5lbs) and the large protective respirator mask and my glasses and bend over a potter's wheel all at the same time. I go to a workshop 2 days a week...I save my energy for those several hours each week to keep me feeling like the old me. It's my sanity..I'm in the process of trying to figure out my new normal....it is the most difficult thing to do!!!I'm sure that you too have had a total change of your life too. Any suggestions? Thanks for your postings. Z./05 Joyce wrote: > Dee, > > You are ME! > > When I was finally diagnosed with PF, I was 53. Nearly dead! The > docs had done x-rays, ct scans, .... the works. But misdiagnosed it. > When I finally drug myself to the doc I have now, he ordered biopsy. > It was horrendous, but saved my life. My new lung doc, then, referred > me to a new rheumatologist. He and the pulmo worked together and got > the PF and Lupus (mixed connective tissue disease, which sounds like > your diagnosis, too) under some control. In so doing, the disease > process slowed. I had taken Methotrexate before that time and > Imuran. I could not tolerate high doses of Imuran (liver/bloodwork > abnormality) so the rheumy started me on Cellcept in 1998. It has > stalled the autoimmune process and allowed me to live a little > longer. I am now in end stage, but the doc said that did not mean it > is The End! Like you and everyone with diseases like Lupus, I have > had every medical proble known to mankind. I am a walking, talking > medical speciman. Been there, done that. > > So.....I get up every day...do everything that I can....then at night > I count that day a VICTORY! I am not totally brave. I shake in my > boots like everyone here does. Need a lot of help with that and the > wonderful people here provide that. I see such courage from this board. > > I, too, have the same response to people saying casually, " so, how are > you " ? I just say, " good " .....they look relieved! So, to have you > guys to talk to is keeping me sane. You all GET IT! You are me, I am > you! > > Glad you told us a little about yourself. Helps me to know you > better. Maybe you could post a photo on the photo page. > > Hugs, Joyce > > PF 1997 Bronchiectasis 2004 Indiana > > > > > > > Hi Beth, Donna, Lynn A., Carolyn, Peggy, Gretel from Dee > > > > Thanks for the advise, I will follow it. > > > > Here's a little about me. I am 64 yrs old, married for 42 yrs. live > in a 55 + retirement community in Southern Calif., native CA. I have > breathed hard as far back as I can remember, been diagnosed with RA, > fibromaylaga, pulmonary fibrosis (July of 2006), enlarged right side > of heart, mitral valve leakage, lupus, bronchitis, have had kidney > stones (surgery to remove them), gall bladder, ulcers, > divaticolotis,(sp.), diabetic thanks to the steroids, been on > Prednisone 4 yrs. straight. hospitalized twice last year for > pneumonia. Other than that I'm in pretty good health. Yeah right. Got > to keep a positive attitude otherwise this stuff will get you down and > I'm not ready for that. Have trouble with leg ad feet swelling, tired > all the time, no energy, hands shake and seem to be getting worse, > pain everywhere and anywhere but whenever anyone ask how am I doing, I > say " great " or " good " and put a big smile on my face. I feel they > really don't want to hear about my illnesses and it seems to help me > to say that I'm ok. > > > > I find this group very informative and helpful. I get scared at > times just like you guys do and prayer helps me through it. Nighttime > is the worse for me. I recently had to go to 5 L and that was a mild > set back but I'm over it now and ready to face a new day. My dr. is at > UCLA and I really like him, my dr. from Kaiser sent me over there > after telling me " there is nothing more I can do for you " . That felt > like someone dropped a bomb on me. The UCLA dr. is trying different > autoimmune drugs to stop the progression of this disease and hopefully > will be able to wean me off the steroids. I am having a problem with > my liver from the new drugs and hopefully will be able to continue to > tae them and the liver will calm down. > > > > Because of all the positive comments from this wonderful group on > Pulm. rehab I am going to start that next month. I too get very tired, > got a housekeeper and now she is coming twice a month since it just > tears me up to doing anything physical. Walking is the worse and > carrying something just doubles it. My husband is my caretaker and he > usually drops me off at the door whenever we go anywhere. > > > > Well, that's me in a nutshell. We will be communicating lots more. > Take care and God bless each and everyone of you. > > > > P.S. I also have been wondering about the guy that was contemplating > suicide. We never did hear back from him. Sure hope he had a change of > heart. > > > > Bless everyone, > > Dee > > > > > >------------------------------------------------------------------------ > >No virus found in this incoming message. >Checked by AVG Free Edition. >Version: 7.1.410 / Virus Database: 268.16.7/620 - Release Date: 1/8/2007 > > -- I'm gonna be iron like a lion in Zion. * Bob Marley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 Lol Joyce. Yes a iron skillet would be good. I will use the one I made cornbread in for him all these years.Joyce wrote: Tootiebess, Do you know how to use a cast iron skillet? Not to kill the poor guy...just a stunning thud....then tell him that you really don't think he has a headache, that he is just faking!!!! Aaaargh! I probably shouldn't tell a girl from Alabama such things! Take care of you! Hugs, Joyce > >> > To help get the ball rolling, how about if we tell a little bit> > about ourselves so we can get to know each other and what brought us> > to this place. You can copy and paste into a new document and> > answer the questions.> >> > Name?> >> > Age? (if you don't mind sharing)> >> > How has pf or ipf touched your life?> >> > If a patient, when were you diagnosed?> >> > Did you go through pulmonary rehab?> >> > Do you participate in a pf support group?> >> > Smoker?> >> > Grew up in a smoke filled environment?> >> > husband/wife?> >> > Children?> >> > Pets?> >> > Favorite Movie?> >> > Favorite Food?> >> > Favorite Holiday?> >> > Favorite Book?> >> > Favorite Author?> >> > What do you like to do in your spare time?> >> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 This is Sher w/ profile... I am 68 and my life has changed by ipf first by the shock of the diagnosis discover during a routine chest x-ray, secondly by the stunning (I love Joyce's word) reality of an online search for info. that read ipf is a fatal lung disease! I gasped so loudly my husband came running, wondering what was wrong with me. I was dx (diagnosed) Mar and confirmed May, '06. I went through rehab until I could no longer afford it...$25 co-pay each time. I will go back soon since I've changed from HealthNet to Regence BSBS and the co-pay is $5! I smoked many years ago for maybe 15-20 years. Quit that long ago. My grandparents with whom I lived were smokers. My husband name is Rich...76...and a darling. He is my loving caretaker since I have other chronic conditions like Fibromyalgia/arthritis...chronic pain. Have two daughters, Lysa, 40 and Zoe, 37. A son I have been estranged from for many years. A sweet mini-doxie named Lola. I can't think of a favorite movie...duh. Favorite food is 's hot dogs! Holiday is Thanksgiving. Books by Hahn and favorite is Christ the Life of the Soul by Blessed Columba Marmion. All my time is "spare" LOL. I'm a TV watcher I admit. Too much, too long. I do needlepoint and such in spurts and read the same way. Sher "Don't worry about tomorrow, God is already there" Re: Profile Hi everyone I would love to talk to some more People with this horrible disease and those funny looking nails. I am a 53 year old female living in the good old sticks of Alabama. I was diaganosed with this pulmonary fibrosis a year ago. I smoked and loved every minute of it, from Territons to Marboros. I started in my teens. Always told everyone that got on me for it that we all have to go someday. Well I guess the someday is closer than I think. lol I have been married to the same guy for 35 years.[on bless me] He is not one that shows much sympathy. He started out showing some but now I am ready to kill him.[anyone know a good method? lol] He says I am faking. We have 2 sons and 2 precious grandkids.>> To help get the ball rolling, how about if we tell a little bit > about ourselve! s so we can get to know each other and what brought us > to this place. You can copy and paste into a new document and > answer the questions.> > Name?> > Age? (if you don't mind sharing)> > How has pf or ipf touched your life?> > If a patient, when were you diagnosed?> > Did you go through pulmonary rehab?> > Do you participate in a pf support group?> > Smoker?> > Grew up in a smoke filled environment?> > husband/wife?> > Children?> > Pets?> > Favorite Movie?> > Favorite Food?> > Favorite Holiday?> > Favorite Book?> > Favorite Author?> > What do you like to do in your spare time?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Carolyn's Profile: I am a 57 year old "fluffy" lady living in Northern California. Was first told I had Interstitial Lung Disease in July 2006 but not that it was terminal. Had to find that out on my own doing research. Had lung biopsy in September 2006 and was diagnosed with DIP (Desquamative Interstitial Pneumonitis). Up till this time I had such severe depression that I was often feeling suicidal. Now that I am going to die, suicide is the last thing on my mind. Now I want to live. Ironic hey? I have worked as a nurse/supervisor for over 20 years until 1999 when I was injured at work rescuing an alzheimer patient from oncoming traffic. Was injured again in a fall at work in 2002 and that ended my career in nursing. I have Fibromyalgia, Degenerative Disk Disease, Degenerative Joint Disease, Osteoarthritis, Rheumatoid Arthritis (transient type), Chronic Pain Syndrome, Reflex Pain Syndrome and Major Depression, among a few other things. My life has changed from being independent and very much a caregiver to being taken care of in all ways except toileting, bathing, dressing and eating. My husband of almost 8 years is also disabled and does all the housework, laundry and cooking. He cannot stand to talk about my dying and has not come to terms with it. Before I met my present husband I was married for 30 years to an abusive alcoholic who fathered my 5 kids. When the last kid moved out, so did I, after giving him 15 years notice. LOL Funny but he sobered up about a year after I left. I never have regretted my decision to leave him. I married my present husband about two years later, he is my soul mate. I have 5 children ages ranging from their late 20's to late 30's. They have always been very loving and attentive to me until I started becoming ill. They do not know I have a fatal disease but knew I was being tested for a severe illness. When they saw I no longer was able to babysit and started needing assistance, they found reasons (false ones) to no longer have anything to do with me. They have not spoken to me or seen me in over 6 months by their own choice,not mine. I will not tell them I have a terminal disease as I dont want their pity and feeling obligated to see me. If their attention is not out of love, I dont want it. I have 8 grandchildren, 7 living. One died when born over 3 months prematurely. He died in my arms because his mother (my daughter in law) didnt want to hold him but instead was too busy visiting with her friends. I have never forgiven her for not even touching him before he died. (Sorry, that info was not necessary but is part of me so I included it) I do not to to Pulmonary Rehab but want to check into doing so. I belong to two support groups online including this one. I have three doggies, all rescued from the "doggy prison". All mutts but I love them. One Lab, one Schipperke, one Rat Terrier. I also have 5 cockatiels, 4 of which I raised from hatching. I dont have a favorite movie, but I love space movies and anything medical. My favorite authors are Dean Koontz, King, Mckammon, Robin Cook. My favorite foods are anything sweet. I dont celebrate the holidays but do commemorate the death of Christ and what it means for us. In my spare time, which is anything other than therapy or doctors appointments, is spent studying the Bible, reading, or computer researching and /or game playing online. Thats me, how about the rest of you? Carolyn.>> To help get the ball rolling, how about if we tell a little bit > about ourselve! s so we can get to know each other and what brought us > to this place. You can copy and paste into a new document and > answer the questions.> > Name?> > Age? (if you don't mind sharing)> > How has pf or ipf touched your life?> > If a patient, when were you diagnosed?> > Did you go through pulmonary rehab?> > Do you participate in a pf support group?> > Smoker?> > Grew up in a smoke filled environment?> > husband/wife?> > Children?> > Pets?> > Favorite Movie?> > Favorite Food?> > Favorite Holiday?> > Favorite Book?> > Favorite Author?> > What do you like to do in your spare time?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Hiya everyone, Take a No Doze before you read my profile I was named ( what a mouthful ) but raised being called Vicky. I have been married 31 yrs next month to the sweetest man on earth ( sorry ladies). His name is Gene and he has taken such good care of me. He holds me when I cry, bathes me when I'm weak, crys at the thought of losing me. He's a hard worker, he goes to work every as a snow plow driver for the county, then comes homes and cooks me dinner. I am sooo blessed to have him. I also have 3 kids, a son Tom 33, Larry 30 and my baby girl who is 24. My oldest Tom, is my stepson , but his dad got custody of him from his first marriage so I raised him and hes mine. He couldn't be more mine if I had given birth to him. I have an aunt in a nursing home who lived with me for 28 of my married yrs then had a vascular stroke. I am her legal guardian and shes like a mom to me since I lost my mom when I was 19. I take her shopping etc but I'm going to have to transfer guardianship over to my daughter soon... I also have a brother , who is my rock and my heart. He has stood by my side from day 1, he has read up about this monster, called drs, paid for medicines everything. My dad even said " I have never seen a brother who loves his sister more". Told ya I am blessed... Also after 50 yrs of barely talking to my dad, on my 50th birthday, we met and reconciled. Oh my gosh, talk about tears, this little girl in me had a daddy!!!!! I even emailed me him and called him daddy, I have never called him that. To add to it, he got saved about a month ago!!!! . I love country music and Christian music, I listen all day. I am a Christian, Church of God, and know where I'll be when I pass. I have 3 "kids" now with me, Felix and my kittys and Abby my Chihuahua. So see, I really have had a wonderful blessed life. In ways I feel blessed even more because I've been given the opportunity to tell my family and friends how I do care about them, God is good!!!! Vicky81856 Idiopathic Pulmonary Hemosiderosis/Pulmonary Fibrosis/Pulmonary Hypertension 4/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 > > To help get the ball rolling, how about if we tell a little bit > about ourselves so we can get to know each other and what brought us > to this place. You can copy and paste into a new document and > answer the questions. > > Name?Shantel > > Age? (if you don't mind sharing)38 > > How has pf or ipf touched your life?I appreciate everything about living > > If a patient, when were you diagnosed?Dx 2003 but symptoms were ther much longer was misdiagnosed a few years before > > Did you go through pulmonary rehab?no would like to > > Do you participate in a pf support group?no > > Smoker?no > > Grew up in a smoke filled environment?yes all of my relatives were smokers including the parents > > husband/wife?husband > > Children? one 6 year old daughter > > Pets? > > Favorite Movie? > > Favorite Food? > > Favorite Holiday? > > Favorite Book? > > Favorite Author? > > What do you like to do in your spare time?i spend as much time with my daughter as i can > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2007 Report Share Posted January 14, 2007 > > > > To help get the ball rolling, how about if we tell a little bit > > about ourselves so we can get to know each other and what brought > us > > to this place. You can copy and paste into a new document and > > answer the questions. > > > > Name?Shantel > > > > Age? (if you don't mind sharing)38 > > > > How has pf or ipf touched your life?I appreciate everything about > living > > > > If a patient, when were you diagnosed?Dx 2003 but symptoms were > ther much longer was misdiagnosed a few years before > > > > Did you go through pulmonary rehab?no would like to > > > > Do you participate in a pf support group?no > > > > Smoker?no > > > > Grew up in a smoke filled environment?yes all of my relatives were > smokers including the parents > > > > husband/wife?husband > > > > Children? one 6 year old daughter > > > > Pets? > > > > Favorite Movie? > > > > Favorite Food? > > > > Favorite Holiday? > > > > Favorite Book? > > > > Favorite Author? > > > > What do you like to do in your spare time?i spend as much time with > my daughter as i can > > > HI Shantel: Thanks for posting your bio. Sorry you are sick, but you have found a loving and compassionate group to share your ups and downs with you. Keep on letting us hear from you. Welcome; Gale in TX Quote Link to comment Share on other sites More sharing options...
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