Re: Digest version and Baby

[Guest guest]

Congrats !!! I'm sure Rose is quite the big girl now, that's great

about oral feedings and the gross motor. take care, and hugs to Rose from

Timmy.

maria, mom to timmy 6 ChARGE, keegan 3.5 and liam 1, wife to pat

Digest version and Baby

> Hi everyone----I have resubscribed for the digest version and have been

> reading it the last week--it helps so much to have a shorter version as I

> seem to have less and less time for email.

>

> Rose is doing very well, progressing with oral feedings and I believe she

> will be crawling in the next three months or so and she loves standing

(not

> on her own yet!) but probably soon too. So far this winter season she

has

> only had a cold and an ear infection and seems so be improving from that.

> OH also she is learning some signs--she recognizes several and tries to do

> them---it is exciting, she loves to be signed to. She is quite funny, has

a

> good sense of humor and makes me laugh alot.

>

> We have some other news---we are going to have a baby in July----I am due

> around the 8th. So Kris, when I read your mail I was curious about what

you

> did at the geneticists appointment and how it was determined that your

baby

> would most likely be born without difficulities. I have just been mostly

> assuming that our chances of having another baby with CHARGE were not

really

> any higher than the rest of the population. I have my first visit with

our

> Obstetrician on Wednesday and plan to discuss all this with him, but any

> ideas and info would be appeciated. In the meantime congratulations to

you

> Kris!

>

> Beckett--mom to Rose 14mos and Henry 3.5yrs

>

>

>

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>

> Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 6th International CHARGE Syndrome Conference, Cleveland, Ohio,

> July 25-27, 2003. Information will be available at our website

> www.chargesyndrome.org or by calling 1-.

>

>

>

[Guest guest]

and Kris, please let us know what are the tests required for

having a baby without difficulty, my children have been told that there is a

2% chance of the second child having charge, please give more information

on this, Pushpa Mehta<India>grandmother to Aman 8

weeks charge