Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 Yes, sorry, Galaxy Rice cheese (purple label - casein free) My son doesn't seem to have a problem with Soy in small quantities. I try to avoid it as much as possible, but if he has a little of it, it doesn't seem to make much of a difference like Milk does. I even give him some Fleisihmans unsalted margarine at times, no issue. His real reactions are to Milk/Casein Products (Gastro issues), Gluten (behavioral issues) and some Soy reactions (I gave him a Soy yogurt once and we had problems within 48 hours) Since I have 3 kids, 2 of them under the age of 3, and work full time, I have to find quick and easy ways of working the GFCF diet into our lives. As much as I've been able to do (and I'm sure I could tweak it a little more in his favor).. but he's done wonderfully and has made HUGE gains just from diet alone. > > > > I just read a post that said their kid was GFCFSF,corn free, low oxalate, > low sugar and probably something else. What kind of food is there for left > for them to eat? > > > > > > > -------------------------------------------------------------------- > mail2web LIVE – Free email based on Microsoft® Exchange technology - > http://link.mail2web.com/LIVE > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 if your kids weither NT or ASD get eczema with foods that is an IGE food allergy and immune responce to them. you should get him IGE tested as you may learn some valuable info on him as well. with yeast concerns you can do pears, blueberries, blackberries, raspberries, and cranberries as they are low glycemic fods. Original Message: ----------------- From: Sangeeta Shere sangeetashere@... Date: Tue, 9 Jun 2009 08:48:09 -0700 (PDT) To: mb12 valtrex Subject: What do your kids eat? Here's what my kids eat: Grains: Organic brown rice, millet, amaranth, sorghum, quinoa (NT son only, ASD son can't tolerate quinoa) Fruits: None for my ASD son (due to yeast concerns), NT son eats all fruits except strawberries and pears (he gets eczema from them). Veggies: zuccini, red skinned potatoes for ASD son. He can't tolerate colored veggies. NT son eats all veggies except beets (he's allergic to beets) - spinach, kale, chard, dill, collard greens, eggplant, radishes, okra, brocolli, cauliflower, cabbage, brussel sprouts, green beans, jicama, asparagus, carrots, etc. Meats: Organic/antibiotic free/Hormones free/free range meats - chicken, pork, turkey, lamb, deer, buffalo. My ASD son used to eat all these meats until we discovered that his beta-allanine levels are thru the roof. Beta-allanine is a neurotoxin. So we stopped all meats (animal protien). But my NT son continues to eat meats. Eggs: ASD son could tolerate only egg whites (regressed on yolks), but we stopped egg whites due to the beta-allanine. NT son eats organic eggs. Beans & lentils: organic green lentils. Mung beans, golden lentils, yellow split peas, black beans, red beans, etc. No nuts for either kids - due to allegies and high copper and fungus concerns. -------------------------------------------------------------------- mail2web LIVE – Free email based on Microsoft® Exchange technology - http://link.mail2web.com/LIVE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 We supplement with Opti-Zinc 30 by Labs which is in addition to any multi-vitamin. Give it time to work, maybe a few months. If any parents need a basic guide for supplementation amounts, you might buy the book by Drs. Baker and Pangborn called:   Autism: Effective Biomedical Treatments . This is a manual for treating your child via the DAN! approach.   http://www.autism.com/families/stories/baker.htm Heidi J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 kids limit for a few reasons, 1. opiates like gluten, casein or soy, which is one of the reasons our kids have issues and need those out 2. IGE allergens, many times we crave what we can't or shouldn't have 3. IGG intollerence. again many kids will limit to things they can't have 4. yeast issues. this is when you see kids limit to carbs and sugars. so if you see that you will want to treat for yeast AND focus on meats and veggies or trick fruits like pears, blueberries, blackberries, raspberries and cranberries Original Message: ----------------- From: Heidi hmwjohnson@... Date: Tue, 9 Jun 2009 16:47:05 -0400 To: mb12 valtrex Subject: What do your kids eat? Well, the bad news is that you really don’t want him on juice at all, except maybe pear. I water down any juice my kids have – they actually get stomach aches from straight juice. What are the foods that he will eat? Start with replacing those with alternatives. His gut might just be feeling so bad that he needs to heal before he can think of eating new stuff. Does he seem to have GERD or any other reflux? I found that DGL is a good healer for the digestive/intestinal tract. Licorice root is soothing and fights bacteria like h-pylori which cause ulcers. I knew a family whose child didn’t eat much for 2 weeks. It was scary but they made it through. Again, try to make eating a fun, enjoyable time and relax. Your child will sense your anxiety about food if you show it. It’s a pain, but several small meals each day, all day with fun and good food might be what you do; instead of the pressure of eating three larger meals only. Zinc should be given at night, alone. We give 50 mg per night and it took my son about 3 mos to try new foods. Make sure to keep him hydrated with water, until his eating picks up. Vitamin water has electrolytes and can be better than juice b/c of the electrolytes but it also has sugars and veggie juice for color so watch the phenols. Again, water it down. My kids don’t really like any milk so I never replaced it. I use rice milk for baking or to make cream of rice in the morning with agave nectar to sweeten. My son only ate green apples but we also worked in pineapple, strawberries on a rotational basis. Nothing is good if you eat it exclusively or every day. If you send me a list of what he will eat, I will help you try to start broadening the menu. Heidi J From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Arrowood Sent: Tuesday, June 09, 2009 4:30 PM To: mb12 valtrex Subject: Re: What do your kids eat? This document seems to mostly suggest replacing things with gfcf stuff, but he won't even eat regular hotdogs, nuggets, yogurt, waffles, pancakes etc. For drinks I have tried Almond milk and rice mild. Various mixes, none of which dissolve very well. The only fruit he will eat any of is apple. He was willing to try the gfcf pretzels for awhile, but then no. Any idea how long he live on juice? _____ To: mb12 valtrex Sent: Tuesday, June 9, 2009 3:20:25 PM Subject: What do your kids eat? My experience has been that it took YEARS.. But had I known about adding zinc to help with appetite and taste flexibility, it might not have taken that long. I found that you have to break the taste and smell comparisons. This can take months because the brain has a very good memory of smell (normally). If they are smelling foods at school that is tough too. Also, if others in the family are eating gluten foods, the smells will still be present and the comparison may take longer to break. I went gluten-free with the whole family when we initially started with my son. We all felt better on it. No asking – just do it. Here’s a great resource that Gen Rescue just put out in the newsletter: http://www.generati onrescue. org/resource/ implementing- <http://www.generationrescue.org/resource/implementing-GFCF-diet.htm> GFCF-diet. htm HTH Heidi J From: mb12 valtrex@ yahoogroups. com [mailto:mb12 valtrex @yahoogroups. com] On Behalf Of Arrowood Sent: Tuesday, June 09, 2009 4:00 PM To: mb12 valtrex@ yahoogroups. com Subject: Re: Re: What do your kids eat? So how many days/weeks did your go before they would eat meat and veggies and fruit? I mean the diet wouldn't be hard if he actually ate any of those things. Just wondering at what point does starvation kick in enough to make food a priority? _____ From: Soliday <elizabethsoliday@ yahoo.com <http://yahoo.com/> > To: mb12 valtrex@ yahoogroups. com Sent: Monday, June 8, 2009 11:09:55 PM Subject: Re: What do your kids eat? That's what I thought at first. People do it though and their kids are better for it. Mine does not have a corn problem. Our diet is mostly fresh or steamed fruits and vegetables, organic meats (or meats with no nitrates or anything added, preferably no antibiotics/ hormones) , organic rice, duck eggs, potatoes. When you get the allergens out, they start gaining weight and thriving! No more sensory issues, no more poop problems, no more dark circles, lots of things go away! It's amazing when you read these message boards and thing " oh yeah, my son hasn't done that in awhile " . I hope you all get there, but it was the FOOD for us. --- -------------------------------------------------------------------- mail2web LIVE – Free email based on Microsoft® Exchange technology - http://link.mail2web.com/LIVE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 you can do blood copper/zinc ratio testing to see if kids are low. but typically you do their weight plus 20 mgs. up to 50 mgs unless they are low then you would do more. another way to test is to hide zinc in something they readiably take and if they taste it and refuse it they are fine, if they don't taste it they are low and you can reminieralize them till they taste it and then you know you have levels up to normal Original Message: ----------------- From: Amy Yardley amyisnow2@... Date: Tue, 9 Jun 2009 13:38:46 -0700 (PDT) To: mb12 valtrex Subject: Re: What do your kids eat? How much zinc are you supplementing? My son gets 200% rda in his regular supplement but I'm wondering if we need to give more. Subject: What do your kids eat? To: mb12 valtrex Date: Tuesday, June 9, 2009, 8:20 PM My experience has been that it took YEARS.  But had I known about adding zinc to help with appetite and taste flexibility, it might not have taken that long. I found that you have to break the taste and smell comparisons.  This can take months because the brain has a very good memory of smell (normally). If they are smelling foods at school that is tough too. Also, if others in the family are eating gluten foods, the smells will still be present and the comparison may take longer to break. I went gluten-free with the whole family when we initially started with my son. We all felt better on it. No asking – just do it. Here’s a great resource that Gen Rescue just put out in the newsletter: http://www.generati onrescue. org/resource/ implementing- GFCF-diet. htm    HTH Heidi J  From: mb12 valtrex@ yahoogroups. com [mailto:mb12 valtrex @yahoogroups. com] On Behalf Of Arrowood Sent: Tuesday, June 09, 2009 4:00 PM To: mb12 valtrex@ yahoogroups. com Subject: Re: Re: What do your kids eat?  So how many days/weeks did your go before they would eat meat and veggies and fruit? I mean the diet wouldn't be hard if he actually ate any of those things. Just wondering at what point does starvation kick in enough to make food a priority?  From: Soliday <elizabethsoliday@ yahoo.com> To: mb12 valtrex@ yahoogroups. com Sent: Monday, June 8, 2009 11:09:55 PM Subject: Re: What do your kids eat? That's what I thought at first. People do it though and their kids are better for it. Mine does not have a corn problem. Our diet is mostly fresh or steamed fruits and vegetables, organic meats (or meats with no nitrates or anything added, preferably no antibiotics/ hormones) , organic rice, duck eggs, potatoes. When you get the allergens out, they start gaining weight and thriving! No more sensory issues, no more poop problems, no more dark circles, lots of things go away! It's amazing when you read these message boards and thing " oh yeah, my son hasn't done that in awhile " . I hope you all get there, but it was the FOOD for us. --- -------------------------------------------------------------------- mail2web.com – Enhanced email for the mobile individual based on Microsoft® Exchange - http://link.mail2web.com/Personal/EnhancedEmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 jicama is a mexican potatoe and is eaten cold like on salads ect. it's really cruntchy and not bad. you would be suprized, my kids loved them to great for road trip snacks or to send to school for treats Original Message: ----------------- From: Arrowood emarrowood@... Date: Tue, 9 Jun 2009 13:12:50 -0700 (PDT) To: mb12 valtrex Subject: Re: What do your kids eat? Wow,congrats to your NT son because I could not choke down kale if I had to, the smell alone walking by in the grocery store is enough to make me gag. Not to mention broccoli, brussel sprouts, and I don't even know what jicama is. ________________________________ To: mb12 valtrex Sent: Tuesday, June 9, 2009 10:48:09 AM Subject: What do your kids eat? Here's what my kids eat: Grains: Organic brown rice, millet, amaranth, sorghum, quinoa (NT son only, ASD son can't tolerate quinoa) Fruits: None for my ASD son (due to yeast concerns), NT son eats all fruits except strawberries and pears (he gets eczema from them). Veggies: zuccini, red skinned potatoes for ASD son. He can't tolerate colored veggies. NT son eats all veggies except beets (he's allergic to beets) - spinach, kale, chard, dill, collard greens, eggplant, radishes, okra, brocolli, cauliflower, cabbage, brussel sprouts, green beans, jicama, asparagus, carrots, etc. Meats: Organic/antibiotic free/Hormones free/free range meats - chicken, pork, turkey, lamb, deer, buffalo. My ASD son used to eat all these meats until we discovered that his beta-allanine levels are thru the roof. Beta-allanine is a neurotoxin. So we stopped all meats (animal protien). But my NT son continues to eat meats. Eggs: ASD son could tolerate only egg whites (regressed on yolks), but we stopped egg whites due to the beta-allanine. NT son eats organic eggs. Beans & lentils: organic green lentils. Mung beans, golden lentils, yellow split peas, black beans, red beans, etc. No nuts for either kids - due to allegies and high copper and fungus concerns. -------------------------------------------------------------------- mail2web.com - Microsoft® Exchange solutions from a leading provider - http://link.mail2web.com/Business/Exchange Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 Feeding disorder kids WILL starve themselves and don't let anyone tell you differently. Our son has only eaten using an ABA feeding protocol since his final food strike at 14 months old. We can get him to eat anything now, but it requires a rigidly disciplined approach. He needed oral motor therapy, sensory therapy to overcome oral aversions, and feeding therapy 3 times a week for 2 years and regularly since then for the next 3 years. We are slowly weaning the ABA protocol at age 6 and still dealing with a complete lack of interest in food except for crunchies, sweets, and starches. We are strict about giving him a balanced organic diet with plenty of veggies. Don't allow anyone to convince you to starve your child. Get good quality feeding therapy. Suzanne > > > > > > I just read a post that said their kid was GFCFSF,corn free, low oxalate, > > low sugar and probably something else. What kind of food is there for left > > for them to eat? > > > > > > > ------------ --------- --------- --------- --------- --------- - > > mail2web LIVE †" Free email based on Microsoft® Exchange technology - > > http://link. mail2web. com/LIVE > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- - > > mail2web.com †" What can On Demand Business Solutions do for you? > > http://link. mail2web. com/Business/ SharePoint > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 I TOTALLY agree with Suzanne. Some children may respond to starvation, but for those who will not it's potentially deadly to do this. The problem is you don't know on the front end. I took this bad advice when my daughter was your son's age. She's going to be 10 next month. We are STILL trying to undo the " show her who's boss " or " she'll eat when she gets hungry enough. " BAD-BAD-BAD advice! We are doing feeding therapy now, I HIGHLY recommend it. It's generally done through a licensed speech-language pathologist. Allie went from running off & hiding in her room at supper time to now permitting just about all foods on her plate. She will now touch almost every food, sometimes with prompting. Sometimes we get her to kiss or lick it, sometimes she eats it. I got her to take some bites of meat the other night with the promise of two K-Toos if she did. If you are trying to get him to eat smoother textures, give him some paint brushes & sponges & let him do high chair art where he can play with the food. If he cannot hold or grasp things yet it may not be doable. For crunchies there's a theory called crumb theory. It says for offensive foods, the smaller the pieces up to tiny crumbs, the less offensive it will be. So carrots, for example, if you cut into tiny-tiny pieces and only put a few on his plate, he may feel less overwhelmed than if there's a lot he feels expected to deal with. Again, if he's unable to do grasping it may not work for him yet. These are just a few things our feeding therapist has taught us. Also, mixing meds in preferred foods/drinks is a sure way to create more self-limiting issues. In nursing school we're taught for the elderly who often have lack of appetite to NEVER mix meds in their preferred foods because if it tastes bad we've just taken away yet another food they wanted. That makes sense for our kids too. Better to let them taste the med & realize it's the med and accept it's the med and work through rewards to get it down them. Doing that can be very difficult, how ever. Compounding pharmacies can help with that sometimes. You could pick a special " medicine juice " that he knows is just for medicine. Then you do something like not permit him to watch his favorite video, swing, or other preferred activity until he swallows med without spitting up. I don't know about you, I felt that I could not wager such things with Allie at that age/development. I short-changed her, they get it plenty well. When I finally figured it out she was about 5 yrs old & I spent two hours sitting with her & redosing until she stopped spitting it out -- I made sure was a water-soluble vitamin so the risk of OD was very low. She was not permitted to do any preferred activities. I spoke softly & kept encouraging her so she knew she wasn't in trouble. It was the longest two hrs of my life, but that kid has been taking her meds since. HTH, Debi > > Feeding disorder kids WILL starve themselves and don't let anyone tell you differently. Our son has only eaten using an ABA feeding protocol since his final food strike at 14 months old. We can get him to eat anything now, but it requires a rigidly disciplined approach. He needed oral motor therapy, sensory therapy to overcome oral aversions, and feeding therapy 3 times a week for 2 years and regularly since then for the next 3 years. We are slowly weaning the ABA protocol at age 6 and still dealing with a complete lack of interest in food except for crunchies, sweets, and starches. We are strict about giving him a balanced organic diet with plenty of veggies. > > Don't allow anyone to convince you to starve your child. Get good quality feeding therapy. > > Suzanne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 My son had oral aversion and didn't really care whether he ate or not so I definitely understand it. My pediatrician was the " when he gets hungry enough-he'll eat " . Actually my husband agreed with the dr-for most kids that would be the case. BUt I just knew that it wouldn't be that easy. He only had a few foods he would eat and he would go days and not be interested in food at all. He would have had nothing but bottles if it were up to him so I used that as a reward. At dinner, I would tell him that he had to atleast take a bite and try it or no bottle at bed time. So he would take atleast one bite-of course that generally involved gagging and crying and faces that looked like it tasted like poop! And then after a while he would take 2 bites and sometimes he would regress and we would start all over. But when he liked something I would fix that for him over and over again so he got in the habit of liking what was for dinner-he was so unpredictable that it really was a challenge sometimes- I'd be like " you just ate this yesterday! " but he would refuse and if you DIDN'T cut it the same way-he would refuse and if you DID cut it the same way-he would refuse. You just have no choice but to keep on going-even though its terribly frustrating. So, I kept him on bottles WAY longer than I should have because the threat of not getting one was the ONLY thing that would make him eat. (And he has an under bite and it seemed to me that it was helping with that). So, now he eats more different foods and he asks for food and is a fairly regular eater-this is over a period of several years. But no one can convince me that he would NOT have had an eating disorder if we would have yanked his bottle instead of slowly integrating the food. (as a note: If we went to a new therapist and I explained in front of them that he had an eating problem-he would totally regress and I would have to start all over-so now I never talk about it in front of him-it would take about 6-8 weeks for me to get him back on track afterwards) > > > > > > > > I just read a post that said their kid was GFCFSF,corn free, low oxalate, > > > low sugar and probably something else. What kind of food is there for left > > > for them to eat? > > > > > > > > > > ------------ --------- --------- --------- --------- --------- - > > > mail2web LIVE †" Free email based on Microsoft® Exchange technology - > > > http://link. mail2web. com/LIVE > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- - > > > mail2web.com †" What can On Demand Business Solutions do for you? > > > http://link. mail2web. com/Business/ SharePoint > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 From reading everything you have written so far about your child's feeding issues, I suspect that your son's yeast is thru the roof (have you done an OAT test on him?). Instead of starting the GFCF diet, I'd first try to tackle the yeast. And try adding zinc. I don't have personal experience with zinc helping with taste etc, but many parents swear by it. I do know that ALL of my son's sensory issues went away when we tackled the yeast - and he had MANY. Eating only crispy thngs is clearly a sensory issue. I'd start him on probiotics, nystatin (compounded without sugar) and just try to completely cut out sugar and fruits (sounds like you'd only have to take away the apple?). let him eat other cripy things that he's currently eating but just go after the yeast. Just SOMEHOW try to get that nystatin and probiotics in him. Once the yeast has cleared (and the zinc has done it's job) hopefully he'll be more accepting of other foods and then you can try taking out gluten and casein. Just a thought... good luck! Sangeeta Quote Link to comment Share on other sites More sharing options...
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