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Dear ,

Wonderful!!! You brought a smile to my face as I read of your joy over

's progress. We're excited for you too! And that's something we

don't have too much of down here with Jaecky at the moment - 4 weeks now

with v. high temps suppressed with Panadol, although there has been some

cycling in that time. No answers in sight yet.

God bless you,

Bruce and Robyn.

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get well soon Jaecky--no more fevers!!!

maria mom to timmy 6 ChAARGE, keegan 3, and liam 10 mo, wife to pat

Wow!

> Dear ,

>

> Wonderful!!! You brought a smile to my face as I read of your joy over

> 's progress. We're excited for you too! And that's something we

> don't have too much of down here with Jaecky at the moment - 4 weeks now

> with v. high temps suppressed with Panadol, although there has been some

> cycling in that time. No answers in sight yet.

>

> God bless you,

>

> Bruce and Robyn.

>

>

> Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 6th International CHARGE Syndrome Conference, Cleveland, Ohio,

> July 25-27, 2003. Information will be available at our website

> www.chargesyndrome.org or by calling 1-.

>

>

>

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