Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 here are some pics of me! This one has pics of my ears. Dunno if this is the one with my school in it. Most of these pics are quite recent (last few weeks) <a href= " /doc/earpic.doc " > picture</a> Chantelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 >Deedee, Nineteen years ago when was born we learned of the clinic. Although we lived in Oregon/Washington at the time we began the self study course for DeafBlind infants. Unlike the Deaf " only " program, this program encouraged communication of any type, including sign language. At that time, we completed a self assessment of our knowledge as well as the degree of 's vision and hearing loss and if he had additional disabilities. We were then mailed a packet of information to complete at our leisure. The packet included a variety of units including communication, self-care....can't remember the rest....But, when we completed this packet, a teacher would review it( Meyer at the time), comment and send the next level of information. It was great for us as we lived in remote areas of the state and got us started with . I found it extremely helpful! Maybe they have moved to a more Oral approach like Mike said, but 19 years ago, it was deafblind specific. A friend from Minnesota has a son 's age who is " just deaf " . They attended the summer program for him many years ago and found it very helpful...but again, there may be changes. Sally > >Message: 9 > Date: Tue, 20 Mar 2001 17:13:56 -0800 > >Subject: Re: Jophn clinic > >We did the home study course for awhile. It was free. They sent us >workbooks and video tapes, and we mailed back reports. It uses the > " oralist " approach (lip reading, etc.). > > >>From: JDDUNGETHEIM749@... >>Reply-To: CHARGE >>To: CHARGE >>Subject: Jophn clinic >>Date: Sun, 18 Mar 2001 07:38:31 EST >> >>Has anyone ever had any experience with the Clinic for deaf and >>hard of hearing children? I just wrote for information about their 3 week >>summer program. Has anyone ever been to that? Thanks for the info. >> >>Deedee > >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com > > > >________________________________________________________________________ >________________________________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 Chantelle, May I comment that your ears look completely normal to me. My son, 's ears also looked normal yet he was said to be completely deaf and Jillian has the " CHARGE " ears and can hear fine(w/tubes)... Her CHARGE ears hears the best and her more normal looking ear has a little less hearing. What is your hearing like? Foley Re: Digest Number 1344 > here are some pics of me! This one has pics of my ears. Dunno if this is the > one with my school in it. Most of these pics are quite recent (last few weeks) > <a href= " /doc/earpic.doc " > picture</a> > > Chantelle > > " 5th International CHARGE Syndrome Conference, Indianapolis, Indiana, July > 20-22, 2001. Information will be available first in CHARGE Accounts, the > CHARGE Syndrome Foundation's newsletter. " > > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 This is since getting my ears pinned back. My one ear is slightly folded back, while the other is slightly out. its not noticable in the picture. The perpose was that the two ears dont look the same. Guess wich one is my charge bad ear! Bet youl be correct. Chantelle > Chantelle, > May I comment that your ears look completely normal to me. My son, 's > ears also looked normal yet he was said to be completely deaf and Jillian > has the " CHARGE " ears and can hear fine(w/tubes)... Her CHARGE ears hears > the best and her more normal looking ear has a little less hearing. What is > your hearing like? > Foley > Re: Digest Number 1344 > > > > here are some pics of me! This one has pics of my ears. Dunno if this is > the > > one with my school in it. Most of these pics are quite recent (last few > weeks) > > <a href= " /doc/earpic.doc " > picture</a> > > > > Chantelle > > > > " 5th International CHARGE Syndrome Conference, Indianapolis, Indiana, July > > 20-22, 2001. Information will be available first in CHARGE Accounts, the > > CHARGE Syndrome Foundation's newsletter. " > > > > For information about the CHARGE Syndrome > > Foundation or to become a member (and get the newsletter) > > please contact marion@c... or visit > > the CHARGE Syndrome Foundation web page > > at http://www.chargesyndrome.org > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 My charge ear is my right ear. I am moderat/profoundly hearing impared in that ear. Left ear is close to normal. Chantelle In CHARGE@y..., " JEFFREY FOLEY " <3jefmom@e...> wrote: > Chantelle, > May I comment that your ears look completely normal to me. My son, 's > ears also looked normal yet he was said to be completely deaf and Jillian > has the " CHARGE " ears and can hear fine(w/tubes)... Her CHARGE ears hears > the best and her more normal looking ear has a little less hearing. What is > your hearing like? > Foley > Re: Digest Number 1344 > > > > here are some pics of me! This one has pics of my ears. Dunno if this is > the > > one with my school in it. Most of these pics are quite recent (last few > weeks) > > <a href= " /doc/earpic.doc " > picture</a> > > > > Chantelle > > > > " 5th International CHARGE Syndrome Conference, Indianapolis, Indiana, July > > 20-22, 2001. Information will be available first in CHARGE Accounts, the > > CHARGE Syndrome Foundation's newsletter. " > > > > For information about the CHARGE Syndrome > > Foundation or to become a member (and get the newsletter) > > please contact marion@c... or visit > > the CHARGE Syndrome Foundation web page > > at http://www.chargesyndrome.org > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 I had plastic surgury on my ears to make them look more normal. Chantelle > Chantelle, > I think you have nice looking ears! Have you had plastic surgery or are > they your " natural " ears? I love seeing pictures of CHARGERs. I also think > it is great that you are on this serve. I gives me added hope that Tyler > will do as great as you are:o) > Kristy, mom to Tyler 7w/(CHARGE) and 2 > Re: Digest Number 1344 > > > > here are some pics of me! This one has pics of my ears. Dunno if this is > the > > one with my school in it. Most of these pics are quite recent (last few > weeks) > > <a href= " /doc/earpic.doc " > picture</a> > > > > Chantelle > > > > " 5th International CHARGE Syndrome Conference, Indianapolis, Indiana, July > > 20-22, 2001. Information will be available first in CHARGE Accounts, the > > CHARGE Syndrome Foundation's newsletter. " > > > > For information about the CHARGE Syndrome > > Foundation or to become a member (and get the newsletter) > > please contact marion@c... or visit > > the CHARGE Syndrome Foundation web page > > at http://www.chargesyndrome.org > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 Chantelle, I think you have nice looking ears! Have you had plastic surgery or are they your " natural " ears? I love seeing pictures of CHARGERs. I also think it is great that you are on this serve. I gives me added hope that Tyler will do as great as you are:o) Kristy, mom to Tyler 7w/(CHARGE) and 2 Re: Digest Number 1344 > here are some pics of me! This one has pics of my ears. Dunno if this is the > one with my school in it. Most of these pics are quite recent (last few weeks) > <a href= " /doc/earpic.doc " > picture</a> > > Chantelle > > " 5th International CHARGE Syndrome Conference, Indianapolis, Indiana, July > 20-22, 2001. Information will be available first in CHARGE Accounts, the > CHARGE Syndrome Foundation's newsletter. " > > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 Hi Deedee, Just a small " two cents worth " memory from Tracey Clinic...on 's first birthday,which was a bit tough for us, she received the most wonderful " touchy " card from Tracey. It was large print all done in a touchy fabric and had great contrast AND it was cute and dear! The card had been made at the clinic and touched my heart in a very special place. Also, I did receive lots on info from them and found it helpful. Somehow with that card I knew the people there had what Van Dyk calls " IT " and I was grateful for that help. Excuse my emotions at this point but I needed just that on that day long ago... All the best with your decisions, Jackie Kenley, San Francisco Sally Prouty wrote: > > >Deedee, > > Nineteen years ago when was born we learned of the > clinic. Although we lived in Oregon/Washington at the time we began > the self study course for DeafBlind infants. Unlike the Deaf " only " > program, this program encouraged communication of any type, including > sign language. At that time, we completed a self assessment of our > knowledge as well as the degree of 's vision and hearing loss > and if he had additional disabilities. We were then mailed a packet > of information to complete at our leisure. The packet included a > variety of units including communication, self-care....can't remember > the rest....But, when we completed this packet, a teacher would > review it( Meyer at the time), comment and send the next level > of information. It was great for us as we lived in remote areas of > the state and got us started with . I found it extremely > helpful! Maybe they have moved to a more Oral approach like Mike > said, but 19 years ago, it was deafblind specific. > > A friend from Minnesota has a son 's age who is " just deaf " . > They attended the summer program for him many years ago and found it > very helpful...but again, there may be changes. > > Sally > > > > >Message: 9 > > Date: Tue, 20 Mar 2001 17:13:56 -0800 > > > >Subject: Re: Jophn clinic > > > >We did the home study course for awhile. It was free. They sent us > >workbooks and video tapes, and we mailed back reports. It uses the > > " oralist " approach (lip reading, etc.). > > > > > >>From: JDDUNGETHEIM749@... > >>Reply-To: CHARGE > >>To: CHARGE > >>Subject: Jophn clinic > >>Date: Sun, 18 Mar 2001 07:38:31 EST > >> > >>Has anyone ever had any experience with the Clinic for deaf and > >>hard of hearing children? I just wrote for information about their 3 week > >>summer program. Has anyone ever been to that? Thanks for the info. > >> > >>Deedee > > > >_________________________________________________________________ > >Get your FREE download of MSN Explorer at http://explorer.msn.com > > > > > > > >________________________________________________________________________ > >________________________________________________________________________ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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