PH

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Hi P here. Have not noticed any changes yet been on it three months but only 3 week on 125mg twice a day (the highest dose you should take) Still have extreme SOB, swollen legs, tinging toes and fingers. My echo showed a pressure of 53 mm HG early this year. Will have new echo on 1/4/07 Patients with IPF and pulmonary hypertension have a poor survival rate. The 1-year survival rate is 45% in patients with IPF and a systolic pulmonary artery pressure on cardiac echo of greater than 50 mm Hg compared with survival rates of 83% among IPF patients whose systolic pulmonary artery pressure is less than 50 mm Hg.[5] Patients with a suggestion of pulmonary hypertension on chest radiography have a poorer prognosis than those without pulmonary artery enlargement.[6] lentz wrote: The medecine I take is Trecleer. It is very expensive but insurance should pay for most of it. I have been on it for a month. So far, I have not noticed too much difference except I dont faint quite as often as before. P. (in our group) is also taking it. Maybe he can tell you if he feels better. thanks Dear all, Thanks for the support. Sher, thanks for the card, although I couldn't open it. Sher, you asked about the pulmonary hypertension. I'm actually not sure how it's determined. They want me to wear a halter monitor for 24 hours and then I figured the cath would tell them information. I'm too new to this stuff. Can someone who has hypertension fill us in? Leanne Leanne Storch Executive Assistant & Patient Advocate Pulmonary Fibrosis Foundation 1332 N. Halsted, Suite 201 Chicago, IL 60622 www.pulmonaryfibrosis.org P F It takes your breath away __________________________________________________