Have a question for anyone that may have this problem.

[Guest guest]

I seem to cough all the time and I can no longer eat regular food. I have to eat soups that I can drink in sips or eat in nibbles, if I try to eat anything else I cough so bad that it just isn't worth the hassle to eat at all. I can't even to go out to eat any more because of it. I cough 24/7 now and I am so tired from it. I can't sleep for coughing and nothing I do seems to help. I can't take cough medication with codeine because I am allergic to codeine and all of the OTC medications I have tried do not work. Please help me if you have any ideas.

Another problem I have is my feet. The bottom of my feet feel like they are on fire at times and I don't know what to do about it. I don't know where to turn for answers since the doctors look at me like I just landed from Mars or some where like that. I have been to the Dermatologist and he has no answers either. This disease is driving me nuts.

If anyone else has these problems please reply.

Thanks to all.

Hugs and Prayers!

Barbara R IPF 1/2003

[Guest guest]

Have you been checked to see if you are aspirating your food when you eat? That is what it sounds like. I once had my vocal cords paralyzed after surgery on my neck and I could not eat any solids without coughing. I had to drink thickened liquids for 6 months till my vocal cords healed. If you are aspirating, coughing after eating is the major symptom. This is extremely serious as any food aspirated can cause Aspiration Pneumonia which can be deadly. As a nurse we always had to investigate any patients who experienced coughing when eating or right after eating. Carolyn russellshih@... wrote: I seem to

cough all the time and I can no longer eat regular food. I have to eat soups that I can drink in sips or eat in nibbles, if I try to eat anything else I cough so bad that it just isn't worth the hassle to eat at all. I can't even to go out to eat any more because of it. I cough 24/7 now and I am so tired from it. I can't sleep for coughing and nothing I do seems to help. I can't take cough medication with codeine because I am allergic to codeine and all of the OTC medications I have tried do not work. Please help me if you have any ideas. Another problem I have is my feet. The bottom of my feet feel like they are on fire at times and I don't know what to do about it. I don't know where to turn for answers since the doctors look at me like I just landed from Mars or some where like that. I have been to the Dermatologist and he has no answers either. This disease is driving me nuts. If anyone else has these problems please reply. Thanks to all. Hugs and Prayers! Barbara R IPF 1/2003

[Guest guest]

Barbara,

My feet burn too. Especially at bedtime. I use peppermint lotions or some real cooling lotion. Temporary, but feels good. Also ibuprofin may help the inflamation. Docs will never give an answer for this. My friend has this so badly and the docs just blow it off. I think ours is connected to PF and less circulation to the extremeties. It can also be a symptom of diabetes.

For the coughing....do you use a nebulizer? I use mine 4 times a day. I use Duoneb in it. It opens the airways and it has an ingredient 'ipratropium bromide' which relaxes the airways. I have used Advair and Pulmicort also. The doc was giving me Tussen Pearle (benzonatate) for coughing at night but decided at this stage he wouldn't do that anymore. So....I got my nightime dose of Muscinex with DM. It helps the nightime coughing. I gotta sleep sometime! I will cough the rest of the time and not complain.

Hope this helps. No need in being so miserable. The least we can ask is to be somewhat comfortable. Good Grief!

Hugs, Joyce PF 1997 Bronchiectasis 2004 INDIANA >> I seem to cough all the time and I can no longer eat regular food. I have to > eat soups that I can drink in sips or eat in nibbles, if I try to eat > anything else I cough so bad that it just isn't worth the hassle to eat at all. I > can't even to go out to eat any more because of it. I cough 24/7 now and I am > so tired from it. I can't sleep for coughing and nothing I do seems to help. > I can't take cough medication with codeine because I am allergic to codeine > and all of the OTC medications I have tried do not work. Please help me if you > have any ideas.> > Another problem I have is my feet. The bottom of my feet feel like they are > on fire at times and I don't know what to do about it. I don't know where to > turn for answers since the doctors look at me like I just landed from Mars or > some where like that. I have been to the Dermatologist and he has no answers > either. This disease is driving me nuts. > > If anyone else has these problems please reply.> > Thanks to all.> > Hugs and Prayers!> > Barbara R IPF 1/2003>

[Guest guest]

Joyce, I am a diabetic but had not thought of the fact that the feet burning could be caused from that. I use Combivent inhalers and that doesn't work for me but I am going to call Mon and ask the doc to change it to something else and see if that will help. I think that sometimes they leave us on one thing so long that it quits working. I just want to sleep sometime and I am at the point that I am tired of fighting this battle and that is not like me to be ready to give up.

Hugs and Prayers!

Barbara R IPF 1/2003> >> > I seem to cough all the time and I can no longer eat regular food. I> have to> > eat soups that I can drink in sips or eat in nibbles, if I try to eat> > anything else I cough so bad that it just isn't worth the hassle to> eat at all. I> > can't even to go out to eat any more because of it. I cough 24/7 now> and I am> > so tired from it. I can't sleep for coughing and nothing I do seems to> help.> > I can't take cough medication with codeine because I am allergic to> codeine> > and all of the OTC medications I have tried do not work. Please help> me if you> > have any ideas.> >> > Another problem I have is my feet. The bottom of my feet feel like> they are> > on fire at times and I don't know what to do about it. I don't know> where to> > turn for answers since the doctors look at me like I just landed from> Mars or> > some where like that. I have been to the Dermatologist and he has no> answers> > either. This disease is driving me nuts.> >> > If anyone else has these problems please reply.> >> > Thanks to all.> >> > Hugs and Prayers!> >> > Barbara R IPF 1/2003> >>

[Guest guest]

I haven't been checked for aspirating my food but last year in March my doc had to go down my throat and try to clear out some stuff from my lungs and he couldn't get there because my esophagas was to narrow for him to put the tube down. I had forgotten about that until you mentioned the aspirating so when he is in his office on Mon I will call and ask him about this. Thank you for your input.

Hugs and Prayers!

Barbara R IPF 1/2003

> I seem to cough all the time and I can no longer eat regular food. I have to eat soups that I can drink in sips or eat in nibbles, if I try to eat anything else I cough so bad that it just isn't worth the hassle to eat at all. I can't even to go out to eat any more because of it. I cough 24/7 now and I am so tired from it. I can't sleep for coughing and nothing I do seems to help. I can't take cough medication with codeine because I am allergic to codeine and all of the OTC medications I have tried do not work. Please help me if you have any ideas.> > Another problem I have is my feet. The bottom of my feet feel like they are on fire at times and I don't know what to do about it. I don't know where to turn for answers since the doctors look at me like I just landed from Mars or some where like that. I have been to the Dermatologist and he has no answers either. This disease is driving me nuts. > > If anyone else has these problems please reply.> > Thanks to all.> > Hugs and Prayers!> > Barbara R IPF 1/2003>

[Guest guest]

Barbara,

I had a significant increase in my coughing once my prednisone was lower than 40mg a day. The pulmonologist from Columbia Presbyterian in NY put me on Advair 250/50 to help with the cough. It took several weeks but I'd say it's reduced my cough about 50% which is a huge relief. The improvement seems to be lasting even though my prednisone is down to 20mg now and I expect it will be reduced further at my doctors visit on the 18th.

You might also want to ask your doctor about a nebulizer. Like Joyce I use DuoNeb and it helps me bring up mucous and the cough then settles down for awhile.

Hope that helps!

Beth Fibrotic NSIP 06/06

Don't try to explain it, just nod your head.

Breathe in, breathe out. Move on. J. Buffett

Have a question for anyone that may have this problem.

I seem to cough all the time and I can no longer eat regular food. I have to eat soups that I can drink in sips or eat in nibbles, if I try to eat anything else I cough so bad that it just isn't worth the hassle to eat at all. I can't even to go out to eat any more because of it. I cough 24/7 now and I am so tired from it. I can't sleep for coughing and nothing I do seems to help. I can't take cough medication with codeine because I am allergic to codeine and all of the OTC medications I have tried do not work. Please help me if you have any ideas.

Another problem I have is my feet. The bottom of my feet feel like they are on fire at times and I don't know what to do about it. I don't know where to turn for answers since the doctors look at me like I just landed from Mars or some where like that. I have been to the Dermatologist and he has no answers either. This disease is driving me nuts.

If anyone else has these problems please reply.

Thanks to all.

Hugs and Prayers!

Barbara R IPF 1/2003

[Guest guest]

Hi Barbara,

I have had the burning feet for about three years. I also have very red burning hands. My Dr. thinks it may be vascular. All I know is every night I am feeling around for a new cool spot on the sheets for my feet. I refuse to go to any more specialists ( for now ) All I want is one day without the tube up my nose and do my own cleaning, cooking and shopping.. Well to fit back into a 14 would be Wonderful.

Back to the feet. I go outside at night and walk the porch to cool my feet. 22 degrees feels wonderful on the bottoms..lol.. This disease is only for the strong and those with fight and mainly Faith. So you hang in there and we'll all be there to stand by you. God Bless

Love and Prayers, Peggy 9/04 ipf Florida

I seem to cough all the time and I can no longer eat regular food. I have to eat soups that I can drink in sips or eat in nibbles, if I try to eat anything else I cough so bad that it just isn't worth the hassle to eat at all. I can't even to go out to eat any more because of it. I cough 24/7 now and I am so tired from it. I can't sleep for coughing and nothing I do seems to help. I can't take cough medication with codeine because I am allergic to codeine and all of the OTC medications I have tried do not work. Please help me if you have any ideas.

Another problem I have is my feet. The bottom of my feet feel like they are on fire at times and I don't know what to do about it. I don't know where to turn for answers since the doctors look at me like I just landed from Mars or some where like that. I have been to the Dermatologist and he has no answers either. This disease is driving me nuts.

If anyone else has these problems please reply.

Thanks to all.

Hugs and Prayers!

Barbara R IPF 1/2003

[Guest guest]

Barbara...I'm soooo sorry to hear of your additional problems! Damn. Seems we get such overload. Have you by chance seen a Gastroenterologist? The swallowing COULD BE related to reflux.

The feet, I don't know. See a Podiatrist maybe? Hope you have insurance!

I do know how you feel. Seems like I deal with one thing then another thing until I stop dealing and don't take good care of myself. I feel like a chronic complainer! I'm not! People do not know what a "tough old broad" I am. You too. Tough I mean, not old broad!

I'm having a down day today. Woke up tired...took a shower and I may not dress all day. My hubby is used to me in my "lounge" clothes. When we were first married, 14 years ago, he thought I was pretty weird when on some days I stayed in my pj's.

I pray you will find your answers. Let us know.....Love, Sher ipf 5-06

"Don't worry about tomorrow, God is already there"

Have a question for anyone that may have this problem.

I seem to cough all the time and I can no longer eat regular food. I have to eat soups that I can drink in sips or eat in nibbles, if I try to eat anything else I cough so bad that it just isn't worth the hassle to eat at all. I can't even to go out to eat any more because of it. I cough 24/7 now and I am so tired from it. I can't sleep for coughing and nothing I do seems to help. I can't take cough medication with codeine because I am allergic to codeine and all of the OTC medications I have tried do not work. Please help me if you have any ideas.

Another problem I have is my feet. The bottom of my feet feel like they are on fire at times and I don't know what to do about it. I don't know where to turn for answers since the doctors look at me like I just landed from Mars or some where like that. I have been to the Dermatologist and he has no answers either. This disease is driving me nuts.

If anyone else has these problems please reply.

Thanks to all.

Hugs and Prayers!

Barbara R IPF 1/2003

[Guest guest]

Barbara...Joyce's post reminded me of a product I use and love. It's Freeman, "Bare Foot" peppermint I poppies foot lotion. Inexpensive and feels sooooooo good. Find it where you would stuff for pedicure.

Try it, you'll like it. hehe. Sher

"Don't worry about tomorrow, God is already there"

Re: Have a question for anyone that may have this problem.

Joyce, I am a diabetic but had not thought of the fact that the feet burning could be caused from that. I use Combivent inhalers and that doesn't work for me but I am going to call Mon and ask the doc to change it to something else and see if that will help. I think that sometimes they leave us on one thing so long that it quits working. I just want to sleep sometime and I am at the point that I am tired of fighting this battle and that is not like me to be ready to give up.

Hugs and Prayers!

Barbara R IPF 1/2003> >> > I seem to cough all the time and I can no longer eat regular food. I> have to> > eat soups that I can drink in sips or eat in nibbles, if I try to eat> > anything else I cough so bad that it just isn't worth the hassle to> eat at all. I> > can't even to go out to eat any more because of it. I cough 24/7 now> and I am> > so tired from it. I can't sleep for coughing and nothing I do see! ms to> help.> > I can't take cough medication with codeine because I am allergic to> codeine> > and all of the OTC medications I have tried do not work. Please help> me if you> > have any ideas.> >> > Another problem I have is my feet. The bottom of my feet feel like> they are> > on fire at times and I don't know what to do about it. I don't know> where to> > turn for answers since the doctors look at me like I just landed from> Mars or> > some where like that. I have been to the Dermatologist and he has no> answers> > either. This disease is driving me nuts.> >> > If anyone else has these problems please reply.> >> > Thanks to all.> >> > Hugs and Prayers!> >> > Barbara R IPF 1/2003> >>

[Guest guest]

Barbara....yikes...you are putting up with so much. I can't imagine coughing so much. Is the cough caused when you breath in? Joyrussellshih@... wrote: I seem to cough all the time and I can no longer eat regular food. I have to eat soups that I can drink in sips or eat in nibbles, if I try to eat anything else I cough so bad that it just isn't worth the hassle to eat at all. I can't even to go out to eat any more because of it. I cough

24/7 now and I am so tired from it. I can't sleep for coughing and nothing I do seems to help. I can't take cough medication with codeine because I am allergic to codeine and all of the OTC medications I have tried do not work. Please help me if you have any ideas. Another problem I have is my feet. The bottom of my feet feel like they are on fire at times and I don't know what to do about it. I don't know where to turn for answers since the doctors look at me like I just landed from Mars or some where like that. I have been to the Dermatologist and he has no answers either. This disease is driving me nuts. If anyone else has these problems please reply. Thanks to all. Hugs and

Prayers! Barbara R IPF 1/2003 Joy (IPF 3/06) Today is a gift for each of us. Enjoy it.

[Guest guest]

Barbara,

Ask him about nebulizers instead of an inhaler. It is so much more effective.

What is this 'giving up' malarky...none of that! You just keep on fighting girlfriend. This is WAR!

Hugs, Joyce PF 1997 Bronchiectasis 2004 Indiana

> > >> > > I seem to cough all the time and I can no longer eat regular food. I> > have to> > > eat soups that I can drink in sips or eat in nibbles, if I try to> eat> > > anything else I cough so bad that it just isn't worth the hassle to> > eat at all. I> > > can't even to go out to eat any more because of it. I cough 24/7 now> > and I am> > > so tired from it. I can't sleep for coughing and nothing I do seems> to> > help.> > > I can't take cough medication with codeine because I am allergic to> > codeine> > > and all of the OTC medications I have tried do not work. Please help> > me if you> > > have any ideas.> > >> > > Another problem I have is my feet. The bottom of my feet feel like> > they are> > > on fire at times and I don't know what to do about it. I don't know> > where to> > > turn for answers since the doctors look at me like I just landed> from> > Mars or> > > some where like that. I have been to the Dermatologist and he has no> > answers> > > either. This disease is driving me nuts.> > >> > > If anyone else has these problems please reply.> > >> > > Thanks to all.> > >> > > Hugs and Prayers!> > >> > > Barbara R IPF 1/2003> > >> >>

[Guest guest]

Joy it seems like I am coughing no matter what I am doing. I can't even talk on the phone because of the coughing and my children and grandchildren get so upset when they call and all I do is cough. I try so hard not to but it just doesn't work. I am coughing just setting here typing. It is really about to get the best of me. My doc has all his surgeries on Fri and doesn't go into his office but come Mon I will call and see if he has any suggestions as to what I can do. My primary didn't know what to tell me and my inhaler doesn't do the trick. I guess I will just quit eating or talking and see if that works. Good way to loose some weight I guess. Not quite what I had in mind though.

Hugs and Prayers!

Barbara R I seem to cough all the time and I can no longer eat regular food. I have to eat soups that I can drink in sips or eat in nibbles, if I try to eat anything else I cough so bad that it just isn't worth the hassle to eat at all. I can't even to go out to eat any more because of it. I cough 24/7 now and I am so tired from it. I can't sleep for coughing and nothing I do seems to help. I can't take cough medication with codeine because I am allergic to codeine and all of the OTC medications I have tried do not work. Please help me if you have any ideas.> > Another problem I have is my feet. The bottom of my feet feel like they are on fire at times and I don't know what to do about it. I don't know where to turn for answers since the doctors look at me like I just landed from Mars or some where like that. I have been to the Dermatologist and he has no answers either. This disease is driving me nuts. > > If anyone else has these problems please reply.> > Thanks to all.> > Hugs and Prayers!> > Barbara R IPF 1/2003> > > > > > Joy > (IPF 3/06)> Today is a gift for each> of us. Enjoy it.>

[Guest guest]

Sher, thanks for the info I will have my daughter check for some when she goes to Wal-mart this week-end.

Barbara R> > >> > > I seem to cough all the time and I can no longer eat regular food. I> > have to> > > eat soups that I can drink in sips or eat in nibbles, if I try to eat> > > anything else I cough so bad that it just isn't worth the hassle to> > eat at all. I> > > can't even to go out to eat any more because of it. I cough 24/7 now> > and I am> > > so tired from it. I can't sleep for coughing and nothing I do see! ms to> > help.> > > I can't take cough medication with codeine because I am allergic to> > codeine> > > and all of the OTC medications I have tried do not work. Please help> > me if you> > > have any ideas.> > >> > > Another problem I have is my feet. The bottom of my feet feel like> > they are> > > on fire at times and I don't know what to do about it. I don't know> > where to> > > turn for answers since the doctors look at me like I just landed from> > Mars or> > > some where like that. I have been to the Dermatologist and he has no> > answers> > > either. This disease is driving me nuts.> > >> > > If anyone else has these problems please reply.> > >> > > Thanks to all.> > >> > > Hugs and Prayers!> > >> > > Barbara R IPF 1/2003> > >> >>

[Guest guest]

Barbara,

I want to reply about your coughing. Boy do I remember when all I did was cough. I could not eat, talk, dress, anything. I would cough so hard that I would throw up and even faint. We tried every cough medecine in the drug store. I didnt sleep because I would cough the worst when I reclined. It was terrible. Finally got some relief. The pulmo. had me turn my o2 up a couple of numbers, dgave me a valiuim to relax my muscles and soon my coughing decreased. I still have terrible time of coughing at night and if I talk too much but it is so much better. Found out that I could breathe better too. Because the valium had side effects for me, it was switched to XANAX which is a situational drug. So, I only take it when needed. Anyway, sorry you are coughing so much. Been there...I know the distress. Hope you get some relief.

Re: Have a question for anyone that may have this problem.

Joy it seems like I am coughing no matter what I am doing. I can't even talk on the phone because of the coughing and my children and grandchildren get so upset when they call and all I do is cough. I try so hard not to but it just doesn't work. I am coughing just setting here typing. It is really about to get the best of me. My doc has all his surgeries on Fri and doesn't go into his office but come Mon I will call and see if he has any suggestions as to what I can do. My primary didn't know what to tell me and my inhaler doesn't do the trick. I guess I will just quit eating or talking and see if that works. Good way to loose some weight I guess. Not quite what I had in mind though.

Hugs and Prayers!

Barbara R I seem to cough all the time and I can no longer eat regular food. I have to eat soups that I can drink in sips or eat in nibbles, if I try to eat anything else I cough so bad that it just isn't worth the hassle to eat at all. I can't even to go out to eat any more because of it. I cough 24/7 now and I am so tired from it. I can't sleep for coughing and nothing I do seems to help. I can't take cough medication with codeine because I am allergic to codeine and all of the OTC medications I have tried do not work. Please help me if you have any ideas.> > Another problem I have is my feet. The bottom of my feet feel like they are on fire at times and I don't know what to do about it. I don't know where to turn for answers since the doctors look at me like I just landed from Mars or some where like that. I have been to the Dermatologist and he has no answers either. This disease is driving me nuts. > > If anyone else has these problems please reply.> > Thanks to all.> > Hugs and Prayers!> > Barbara R IPF 1/2003> > > > > > Joy > (IPF 3/06)> Today is a gift for each> of us. Enjoy it.>

[Guest guest]

You know, the worst thing about the coughing is the exhaustion. It just wears me out! After a big bout, I feel like I have scrubbed the floors......(I don't think I remember what that feels like)......Because I developed the Bronchiectasis the doc will not let me suppress the cough because I need to get the gunk out. Like you all, talking and especially laughing brings it on.

Hugs, Joyce

PF 1997 Bronchiectasis 2004 Indiana I seem to cough all the time and I can no longer eat regular food. I have to eat soups that I can drink in sips or eat in nibbles, if I try to eat anything else I cough so bad that it just isn't worth the hassle to eat at all. I can't even to go out to eat any more because of it. I cough 24/7 now and I am so tired from it. I can't sleep for coughing and nothing I do seems to help. I can't take cough medication with codeine because I am allergic to codeine and all of the OTC medications I have tried do not work. Please help me if you have any ideas.> > > > Another problem I have is my feet. The bottom of my feet feel like they are on fire at times and I don't know what to do about it. I don't know where to turn for answers since the doctors look at me like I just landed from Mars or some where like that. I have been to the Dermatologist and he has no answers either. This disease is driving me nuts. > > > > If anyone else has these problems please reply.> > > > Thanks to all.> > > > Hugs and Prayers!> > > > Barbara R IPF 1/2003> > > > > > > > > > > > Joy > > (IPF 3/06)> > Today is a gift for each> > of us. Enjoy it.> >>

[Guest guest]

, My doc has wanted to put me on Valium for sometime now because of the muscle spasms that I have in my chest at times. It feels like someone is putting their fist in my chest and trying to pull the muscles out and boy does it hurt. I guess maybe now would be a good time to say ok if it will help with the coughing. I don't know how much longer I can take this. It is really about to get the best of me, but with Gods grace and mercy I have made it through another day. He has been so good to me and I give Him praise and glory for each day that I am able to get out of bed. He alone knows when He will choose to take me out of this world and take me home to be with Him and I am looking forward to that time, I just pray that my children are ready for it when the time comes. My husband isn't and I don't think he will ever be ready.

Thank you for your advise and for caring. We are truly blessed to have a support group that understands what we are going through and are willing to offer their advice.

Hugs and Prayers!

Barbara R IPF 1/2003 I seem to cough all the time and I can no longer eat regular food. I have to eat soups that I can drink in sips or eat in nibbles, if I try to eat anything else I cough so bad that it just isn't worth the hassle to eat at all. I can't even to go out to eat any more because of it. I cough 24/7 now and I am so tired from it. I can't sleep for coughing and nothing I do seems to help. I can't take cough medication with codeine because I am allergic to codeine and all of the OTC medications I have tried do not work. Please help me if you have any ideas.> > > > Another problem I have is my feet. The bottom of my feet feel like they are on fire at times and I don't know what to do about it. I don't know where to turn for answers since the doctors look at me like I just landed from Mars or some where like that. I have been to the Dermatologist and he has no answers either. This disease is driving me nuts. > > > > If anyone else has these problems please reply.> > > > Thanks to all.> > > > Hugs and Prayers!> > > > Barbara R IPF 1/2003> > > > > > > > > > > > Joy > > (IPF 3/06)> > Today is a gift for each> > of us. Enjoy it.> >>

[Guest guest]

Hey Sher, I had my daughter pick me up some of the lotion you mentioned in an email I got earlier and it sure smells good. I am sure that if it works for just a while it will be a releive and a help.

This monster is about to drive me around the bend so to speak but I am a fighter and I plan on fighting to the very end. Like you I am a tough old bird. I am 62 so I am now a senior citizen. My oldest grand daughter calls me old woman all the time. Say a prayer for her she is in Milwaukee today auditioning for their summer dance classes at the Milwaukee Ballet. She has been dancing since she was 4 and she is good. She went there last year and learned so much and she wants to go back this summer. I feel that she will make it because like I said she is good.

Hugs and Prayers!

Barbara R>> Barbara...I'm soooo sorry to hear of your additional problems! Damn. Seems we get such overload. Have you by chance seen a Gastroenterologist? The swallowing COULD BE related to reflux.> The feet, I don't know. See a Podiatrist maybe? Hope you have insurance!> I do know how you feel. Seems like I deal with one thing then another thing until I stop dealing and don't take good care of myself. I feel like a chronic complainer! I'm not! People do not know what a "tough old broad" I am. You too. Tough I mean, not old broad!> I'm having a down day today. Woke up tired...took a shower and I may not dress all day. My hubby is used to me in my "lounge" clothes. When we were first married, 14 years ago, he thought I was pretty weird when on some days I stayed in my pj's.> > I pray you will find your answers. Let us know.....Love, Sher ipf 5-06 > "Don't worry about tomorrow, God is already there"> Have a question for anyone that may have this problem.> > > > I seem to cough all the time and I can no longer eat regular food. I have to eat soups that I can drink in sips or eat in nibbles, if I try to eat anything else I cough so bad that it just isn't worth the hassle to eat at all. I can't even to go out to eat any more because of it. I cough 24/7 now and I am so tired from it. I can't sleep for coughing and nothing I do seems to help. I can't take cough medication with codeine because I am allergic to codeine and all of the OTC medications I have tried do not work. Please help me if you have any ideas.> > Another problem I have is my feet. The bottom of my feet feel like they are on fire at times and I don't know what to do about it. I don't know where to turn for answers since the doctors look at me like I just landed from Mars or some where like that. I have been to the Dermatologist and he has no answers either. This disease is driving me nuts. > > If anyone else has these problems please reply.> > Thanks to all.> > Hugs and Prayers!> > Barbara R IPF 1/2003>

[Guest guest]

Hey Sher, I had my daughter pick me up some of the lotion you mentioned in an email I got earlier and it sure smells good. I am sure that if it works for just a while it will be a releive and a help.

This monster is about to drive me around the bend so to speak but I am a fighter and I plan on fighting to the very end. Like you I am a tough old bird. I am 62 so I am now a senior citizen. My oldest grand daughter calls me old woman all the time. Say a prayer for her she is in Milwaukee today auditioning for their summer dance classes at the Milwaukee Ballet. She has been dancing since she was 4 and she is good. She went there last year and learned so much and she wants to go back this summer. I feel that she will make it because like I said she is good.

Hugs and Prayers!

Barbara R>> Barbara...I'm soooo sorry to hear of your additional problems! Damn. Seems we get such overload. Have you by chance seen a Gastroenterologist? The swallowing COULD BE related to reflux.> The feet, I don't know. See a Podiatrist maybe? Hope you have insurance!> I do know how you feel. Seems like I deal with one thing then another thing until I stop dealing and don't take good care of myself. I feel like a chronic complainer! I'm not! People do not know what a "tough old broad" I am. You too. Tough I mean, not old broad!> I'm having a down day today. Woke up tired...took a shower and I may not dress all day. My hubby is used to me in my "lounge" clothes. When we were first married, 14 years ago, he thought I was pretty weird when on some days I stayed in my pj's.> > I pray you will find your answers. Let us know.....Love, Sher ipf 5-06 > "Don't worry about tomorrow, God is already there"> Have a question for anyone that may have this problem.> > > > I seem to cough all the time and I can no longer eat regular food. I have to eat soups that I can drink in sips or eat in nibbles, if I try to eat anything else I cough so bad that it just isn't worth the hassle to eat at all. I can't even to go out to eat any more because of it. I cough 24/7 now and I am so tired from it. I can't sleep for coughing and nothing I do seems to help. I can't take cough medication with codeine because I am allergic to codeine and all of the OTC medications I have tried do not work. Please help me if you have any ideas.> > Another problem I have is my feet. The bottom of my feet feel like they are on fire at times and I don't know what to do about it. I don't know where to turn for answers since the doctors look at me like I just landed from Mars or some where like that. I have been to the Dermatologist and he has no answers either. This disease is driving me nuts. > > If anyone else has these problems please reply.> > Thanks to all.> > Hugs and Prayers!> > Barbara R IPF 1/2003>

[Guest guest]

Martha, Thanks for your input. I have been off of the pred for a while and I have a dry cough with nothing to come up but I do plan on calling my doc on Mon and asking him some questions. I have coughed for almost 5 years but not this bad. This only started about a month ago, right after I saw him the last time and it just doesn't seem to be getting any better.

Thanks again for being there.

Hugs and Prayers!

Barbara R IPF 1/2203>> Barbara,> > I had a significant increase in my coughing once my prednisone was lower than 40mg a day. The pulmonologist from Columbia Presbyterian in NY put me on Advair 250/50 to help with the cough. It took several weeks but I'd say it's reduced my cough about 50% which is a huge relief. The improvement seems to be lasting even though my prednisone is down to 20mg now and I expect it will be reduced further at my doctors visit on the 18th.> > You might also want to ask your doctor about a nebulizer. Like Joyce I use DuoNeb and it helps me bring up mucous and the cough then settles down for awhile.> > Hope that helps!> > Beth Fibrotic NSIP 06/06> > Don't try to explain it, just nod your head.> Breathe in, breathe out. Move on. J. Buffett> > > > Have a question for anyone that may have this problem.> > I seem to cough all the time and I can no longer eat regular food. I have to eat soups that I can drink in sips or eat in nibbles, if I try to eat anything else I cough so bad that it just isn't worth the hassle to eat at all. I can't even to go out to eat any more because of it. I cough 24/7 now and I am so tired from it. I can't sleep for coughing and nothing I do seems to help. I can't take cough medication with codeine because I am allergic to codeine and all of the OTC medications I have tried do not work. Please help me if you have any ideas.> > Another problem I have is my feet. The bottom of my feet feel like they are on fire at times and I don't know what to do about it. I don't know where to turn for answers since the doctors look at me like I just landed from Mars or some where like that. I have been to the Dermatologist and he has no answers either. This disease is driving me nuts. > > If anyone else has these problems please reply.> > Thanks to all.> > Hugs and Prayers!> > Barbara R IPF 1/2003>

[Guest guest]

Barbara,

RE: grand daughter calls me old woman all the time

My older grandkids do that too. I am also 62. My spirit doesn't feel 62 (some days I am 12 and some days 35..but never 62) They think it bothers me and that it is funny! The boys 16 and 17 call me 'Oldie Hawn'.

Aren't grandkids wonderful?

Hugs, Joyce > >> > Barbara...I'm soooo sorry to hear of your additional problems! Damn.> Seems we get such overload. Have you by chance seen a> Gastroenterologist? The swallowing COULD BE related to reflux.> > The feet, I don't know. See a Podiatrist maybe? Hope you have> insurance!> > I do know how you feel. Seems like I deal with one thing then another> thing until I stop dealing and don't take good care of myself. I feel> like a chronic complainer! I'm not! People do not know what a "tough old> broad" I am. You too. Tough I mean, not old broad!> > I'm having a down day today. Woke up tired...took a shower and I may> not dress all day. My hubby is used to me in my "lounge" clothes. When> we were first married, 14 years ago, he thought I was pretty weird when> on some days I stayed in my pj's.> >> > I pray you will find your answers. Let us know.....Love, Sher ipf 5-06> > "Don't worry about tomorrow, God is already there"> > Have a question for anyone that may have> this problem.> >> >> >> > I seem to cough all the time and I can no longer eat regular food. I> have to eat soups that I can drink in sips or eat in nibbles, if I try> to eat anything else I cough so bad that it just isn't worth the hassle> to eat at all. I can't even to go out to eat any more because of it. I> cough 24/7 now and I am so tired from it. I can't sleep for coughing and> nothing I do seems to help. I can't take cough medication with codeine> because I am allergic to codeine and all of the OTC medications I have> tried do not work. Please help me if you have any ideas.> >> > Another problem I have is my feet. The bottom of my feet feel like> they are on fire at times and I don't know what to do about it. I don't> know where to turn for answers since the doctors look at me like I just> landed from Mars or some where like that. I have been to the> Dermatologist and he has no answers either. This disease is driving me> nuts.> >> > If anyone else has these problems please reply.> >> > Thanks to all.> >> > Hugs and Prayers!> >> > Barbara R IPF 1/2003> >>

[Guest guest]

Barbara,

RE: Hey Sher, I had my daughter pick me up some of the lotion you mentioned> in an email I got earlier and it sure smells good

Oh, I wish I had some...my feet are burning as we speak!

Joyce

> >> > Barbara...I'm soooo sorry to hear of your additional problems! Damn.> Seems we get such overload. Have you by chance seen a> Gastroenterologist? The swallowing COULD BE related to reflux.> > The feet, I don't know. See a Podiatrist maybe? Hope you have> insurance!> > I do know how you feel. Seems like I deal with one thing then another> thing until I stop dealing and don't take good care of myself. I feel> like a chronic complainer! I'm not! People do not know what a "tough old> broad" I am. You too. Tough I mean, not old broad!> > I'm having a down day today. Woke up tired...took a shower and I may> not dress all day. My hubby is used to me in my "lounge" clothes. When> we were first married, 14 years ago, he thought I was pretty weird when> on some days I stayed in my pj's.> >> > I pray you will find your answers. Let us know.....Love, Sher ipf 5-06> > "Don't worry about tomorrow, God is already there"> > Have a question for anyone that may have> this problem.> >> >> >> > I seem to cough all the time and I can no longer eat regular food. I> have to eat soups that I can drink in sips or eat in nibbles, if I try> to eat anything else I cough so bad that it just isn't worth the hassle> to eat at all. I can't even to go out to eat any more because of it. I> cough 24/7 now and I am so tired from it. I can't sleep for coughing and> nothing I do seems to help. I can't take cough medication with codeine> because I am allergic to codeine and all of the OTC medications I have> tried do not work. Please help me if you have any ideas.> >> > Another problem I have is my feet. The bottom of my feet feel like> they are on fire at times and I don't know what to do about it. I don't> know where to turn for answers since the doctors look at me like I just> landed from Mars or some where like that. I have been to the> Dermatologist and he has no answers either. This disease is driving me> nuts.> >> > If anyone else has these problems please reply.> >> > Thanks to all.> >> > Hugs and Prayers!> >> > Barbara R IPF 1/2003> >>

[Guest guest]

Barbara...Good! I'm glad you like the foot stuff. Glad I can share some good things.

Love, Sher

"Don't worry about tomorrow, God is already there"

Have a question for anyone that may have this problem.> > > > I seem to cough all the time and I can no longer eat regular food. I have to eat soups that I can drink in sips or eat in nibbles, if I try to eat anything else I cough so bad that it just isn't worth the hassle to eat at all. I can't even to go out to eat any more because of it. I cough 24/7 now and I am so tired from it. I can't sleep for coughing and nothing I do seems to help. I can't take cough medication with codeine because I am allergic to codeine and all of the OTC medications I have tried do not work. Please help me if you have any ideas.> > ! Another problem I have is my feet. The bottom of my feet feel like they are on fire at times and I don't know what to do about it. I don't know where to turn for answers since the doctors look at me like I just landed from Mars or some where like that. I have been to the Dermatologist and he has no answers either. This disease is driving me nuts. > > If anyone else has these problems please reply.> > Thanks to all.> > Hugs and Prayers!> > Barbara R IPF 1/2003>

[Guest guest]

Joyce...did you get the name? It's Freeman Peppermint and Poppies. Used a lot for pedicures. Comes in a pinkish tube. Try it!

Love, Sher

"Don't worry about tomorrow, God is already there"

Have a question for anyone that may have> this problem.> >> >> >> > I seem to cough all the time and I can no longer eat regular food. I> have to eat soups that I can drink in sips or eat in nibbles, if I try> to eat anything else I cough so bad that it just isn't worth the hassle> to eat at all. I can't even to go out to eat any more because of it. I> cough 24/7 now and I am so tired from it. I can't sleep for coughing and & ! gt; nothing I do seems to help. I can't take cough medication with codeine> because I am allergic to codeine and all of the OTC medications I have> tried do not work. Please help me if you have any ideas.> >> > Another problem I have is my feet. The bottom of my feet feel like> they are on fire at times and I don't know what to do about it. I don't> know where to turn for answers since the doctors look at me like I just> landed from Mars or some where like that. I have been to the> Dermatologist and he has no answers either. This disease is driving me> nuts.> >> > If anyone else has these problems please reply.> >> > Thanks to all.> >> > Hugs and Prayers!> >> > Barbara R IPF 1/2003> >>

[Guest guest]

Poppies???? hummm

Love and Prayers, Peggy 9/04 ipf Florida

Joyce...did you get the name? It's Freeman Peppermint and Poppies. Used a lot for pedicures. Comes in a pinkish tube. Try it!

Love, Sher

" Don't worry about tomorrow, God is already there "

Have a question for anyone that may have

> this problem.

> >

> >

> >

> > I seem to cough all the time and I can no longer eat regular food. I

> have to eat soups that I can drink in sips or eat in nibbles, if I try

> to eat anything else I cough so bad that it just isn't worth the hassle

> to eat at all. I can't even to go out to eat any more because of it. I

> cough 24/7 now and I am so tired from it. I can't sleep for coughing and

& ! gt; nothing I do seems to help. I can't take cough medication with codeine

> because I am allergic to codeine and all of the OTC medications I have

> tried do not work. Please help me if you have any ideas.

> >

> > Another problem I have is my feet. The bottom of my feet feel like

> they are on fire at times and I don't know what to do about it. I don't

> know where to turn for answers since the doctors look at me like I just

> landed from Mars or some where like that. I have been to the

> Dermatologist and he has no answers either. This disease is driving me

> nuts.

> >

> > If anyone else has these problems please reply.

> >

> > Thanks to all.

> >

> > Hugs and Prayers!

> >

> > Barbara R IPF 1/2003

> >

>

[Guest guest]

Sher,

I am going to get some the next Wally World trip. Do they have it there?

Hugs, Joyce > > >> > > Barbara...I'm soooo sorry to hear of your additional problems! Damn.> > Seems we get such overload. Have you by chance seen a> > Gastroenterologist? The swallowing COULD BE related to reflux.> > > The feet, I don't know. See a Podiatrist maybe? Hope you have> > insurance!> > > I do know how you feel. Seems like I deal with one thing then another> > thing until I stop dealing and don't take good care of myself. I feel> > like a chronic complainer! I'm not! People do not know what a "tough old> > broad" I am. You too. Tough I mean, not old broad!> > > I'm having a down day today. Woke up tired...took a shower and I may> > not dress all day. My hubby is used to me in my "lounge" clothes. When> > we were first marr! ied, 14 years ago, he thought I was pretty weird when> > on some days I stayed in my pj's.> > >> > > I pray you will find your answers. Let us know.....Love, Sher ipf 5-06> > > "Don't worry about tomorrow, God is already there"> > > Have a question for anyone that may have> > this problem.> > >> > >> > >> > > I seem to cough all the time and I can no longer eat regular food. I> > have to eat soups that I can drink in sips or eat in nibbles, if I try> > to eat anything else I cough so bad that it just isn't worth the hassle> > to eat at all. I can't even to go out to eat any more because of it. I> > cough 24/7 now and I am so tired from it. I can't sleep for coughing and> & ! gt; nothing I do seems to help. I can't take cough medication with codeine> > because I am allergic to codeine and all of the OTC medications I have> > tried do not work. Please help me if you have any ideas.> > >> > > Another problem I have is my feet. The bottom of my feet feel like> > they are on fire at times and I don't know what to do about it. I don't> > know where to turn for answers since the doctors look at me like I just> > landed from Mars or some where like that. I have been to the> > Dermatologist and he has no answers either. This disease is driving me> > nuts.> > >> > > If anyone else has these problems please reply.> > >> > > Thanks to all.> > >> > > Hugs and Prayers!> > >> > > Barbara R IPF 1/2003> > >> >>