New Member

[Guest guest]

- I visit a chiropractor regularly and he gives me a mild

electric current into my lower back prior to treatment. I have never

felt that this is affecting the afib.

Regards

L

> Hello. My name is Oddi and I live in Columbus, Ohio.I'm a

> recently retired CPA and am 62 years old. I had an episode of

Atrial

> Fibrilation on Jan.6, my first and I'm hoping my last. It was a

> Sunday morning and I simply woke up with it. I was successfully

> Cardioverted on Monday Jan.7 but spent 3 more days in the hospital

> because they thought they saw something following a stress test I

had

> on Wednesday. I had a heart cath on Friday which revealed nothing

and

> they called whatever it was they saw, a " false positive " . I guess

> that's the good news.

>

> I'm currently on Rythmol and Lopressor as well as Coumadin as a

> precaution. I'll have a 24 hour Holter monitor test in about a

month

> to see if everything is stable and then they'll decide what

> medication if any I'll need to continue. My GP thinks I'll continue

> the Rythmol and aspirin.

>

> I do have question of the group. I had gone to a Chiropractor about

> 36 hours before the AFIB and one of the things he did involved

> electrical massage therapy on my neck and shoulder. I'm been

> wondering since whether it's possible that this may have caused the

> AFIB. If anyone has any thoughts or knowledge of anything like this

> I'd appreciate your sharing it with me.

>

> Any help or advice you can offer would be appreciated.

>

> I wish you all well!!!

>

>

[Guest guest]

HIya ,

Welcome to our group. We are here for you, for support, encouragenment or even if you just need to vent. These people are the best people I have ever met!!! Feel free to ask anything.

Vicky81856

[Guest guest]

;

Welcome. Sorry that you are here but you will find many 'penpals' here. These folks are chock-full of information and are a lot of fun to read and correspond with.

Gordon ipf/uip 12/03

New Member

Here is my profile:Name: H. StehliAge: 73When were you diagnosed; December 2006On Oxygen: Not yet but expect to be by January 2007If on oxygen, how long? How many liters?Did you go through pulmonary rehab: Not yet but looking for rehab near Oyster BayDo you participate in a pf face-to-face support group: NoSmoker: Gave it up about 20 years agoGrew up in a smoke-filled environment: YesHusband/Wife: DivorcedChildren: 6Pets: NoneFavorite Movie: Key LargoFavorite Food/s: Steak, mashed potatoes, lima beansFavorite Holiday: ThanksgivingFavorite Book: Tale of Two CitiesWhat do you like to do in your spare time: Read, play backgammon I use the VA in Northport, Long Island, NY. I've sent away for the supplements suggested by Regenerative Nutrition and I'm hoping they will help make me better. My breathing is getting pretty bad whenever I exert myself at all. I'm looking for a pen pal that I might share with about this disease.

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.432 / Virus Database: 268.15.24/592 - Release Date: 12/18/2006 1:45 PM

[Guest guest]

, you just found a lot of "pen pals" ready to share a thought, a feeling, a laugh and all sorts of information. Our experiences are always of interest to all. I'm so glad you found us and so sorry you have this awful diagnosis. I send you my prayers and hugs. Gale in TX

[Guest guest]

, I'm also new( one week)to this great group of people. Welcome.

How did you find the group so quickly after being diagnosed? It took me

almost 18 months!!!! I can tell you that you will gain a great deal of

support and information from very caring and intelligent people. Z./05

peterstehli33 wrote:

> Here is my profile:

> Name: H. Stehli

> Age: 73

> When were you diagnosed; December 2006

> On Oxygen: Not yet but expect to be by January 2007

> If on oxygen, how long? How many liters?

> Did you go through pulmonary rehab: Not yet but looking for rehab

> near Oyster Bay

> Do you participate in a pf face-to-face support group: No

> Smoker: Gave it up about 20 years ago

> Grew up in a smoke-filled environment: Yes

> Husband/Wife: Divorced

> Children: 6

> Pets: None

> Favorite Movie: Key Largo

> Favorite Food/s: Steak, mashed potatoes, lima beans

> Favorite Holiday: Thanksgiving

> Favorite Book: Tale of Two Cities

> What do you like to do in your spare time: Read, play backgammon

>

> I use the VA in Northport, Long Island, NY. I've sent away for the

> supplements suggested by Regenerative Nutrition and I'm hoping they

> will help make me better. My breathing is getting pretty bad whenever

> I exert myself at all. I'm looking for a pen pal that I might share

> with about this disease.

>

>

>

>------------------------------------------------------------------------

>

>No virus found in this incoming message.

>Checked by AVG Free Edition.

>Version: 7.1.409 / Virus Database: 268.15.24/592 - Release Date: 12/18/2006

>

>

>

[Guest guest]

Hi ...welcome to our band of merry maids and men. I too was lucky to find this group quickly. I was diagnosed March and confirmed May this year and found this group in May as well.

I'm 68, considered mild stage and in fact had some improvement at my last testing this month.

I was on 02 but don't seem to need it right now. I've been through rehab and will go back again after my insurance change goes into effect. I had HealthNet which means I had Apria and I am so fed up with Apria I changed insurance to get away from them. Will go with Regence BCBS now and rehab will be $5 co-pay compared with $25 previously.

I hope you are close to your kids, both in proximity and emotionally. They can be a great support.

This group is a God-send. Whatever you want to know, someone here usually has the answer or knows where to find it. is our research guru!

Sharing our illness makes it easier for me and others write the same.

God bless. Sher ipf 5-06

"Don't worry about tomorrow, God is already there"

New Member

Here is my profile:Name: H. StehliAge: 73When were you diagnosed; December 2006On Oxygen: Not yet but expect to be by January 2007If on oxygen, how long? How many liters?Did you go through pulmonary rehab: Not yet but looking for rehab near Oyster BayDo you participate in a pf face-to-face support group: NoSmoker: Gave it up about 20 years agoGrew up in a smoke-filled environment: YesHusband/Wife: DivorcedChildren: 6Pets: NoneFavorite Movie: Key LargoFavorite Food/s: Steak, mashed potatoes, lima beansFavorite Holiday: ThanksgivingFavorite Book: Tale of Two CitiesWhat do you like to do in your spare time: Read, play backgammon I use the VA in Northport, Long Island, NY. I've sent away for the supplements suggested by Regenerative Nutrition and I'm hoping they will help make me better. My breathing is getting pretty bad whenever I exert myself at all. I'm looking for a pen pal that I might share with about this disease.

[Guest guest]

I am a new member.

Rather than answer questions, let me just tell you about myself.

Age 64, never smoked.

Recently we took a trip to Antarctica and I got a coughing fit that

would not stop. I have had coughing issues for a couple years but

dismissed it as allergies.

When I got back from my trip, I went to the doctor. My regular doctor

was away, but another doctor saw me. Agreed it was probably allergies.

Asked how long since I had an x-ray, so sent me for an x-ray.

Got a phone call Friday to come in and see my regular doctor

yesterday, Saturday. I asked why. To discuss the x-ray.

Went in yesterday morning and doctor said I had Pulmonary Fibrosis

based on x-ray. Explained it but not anything about how serious it is.

Scheduled me for tests next week while he is gone, and I am to see him

in about two weeks. When I got home I went to the internet and

discovered what a nasty disease this is. Read through your e-mails for

December and am amazed at how well all of you tackle this problem.

Other than a persistant cough that still does not go away (with four

different medications), I am feeling good. I hiked this morning

vigorously for several miles with no problems.

Question 1. Could this initial diagnosis be incorrect?

Question 2. We have done a lot of travel. One of our friends said we

do three or four trips of a life time a year to exotic and demanding

locations. Should I be able to continue these trips for awhile?

Thanks so much for any comments and Merry Christmas to All.

[Guest guest]

Hello Elston. Welcome to the group, sorry about the circumstances.

Do you have access to a teaching hospital? Some say its best to get

yourself to a place that specifically deals with ILDs because most

general MDs have very little expertese when it come to ILD & PF. As

others mentioned you have a lot of testing in front of you. What

is your o2 saturation? Are you on supplimental o2? I hope you decide

to continue following your travel dreams.

LynnA

>

> I am a new member.

>

> Rather than answer questions, let me just tell you about myself.

>

> Age 64, never smoked.

>

> Recently we took a trip to Antarctica and I got a coughing fit that

> would not stop. I have had coughing issues for a couple years but

> dismissed it as allergies.

>

> When I got back from my trip, I went to the doctor. My regular

doctor

> was away, but another doctor saw me. Agreed it was probably

allergies.

> Asked how long since I had an x-ray, so sent me for an x-ray.

>

> Got a phone call Friday to come in and see my regular doctor

> yesterday, Saturday. I asked why. To discuss the x-ray.

>

> Went in yesterday morning and doctor said I had Pulmonary Fibrosis

> based on x-ray. Explained it but not anything about how serious it

is.

> Scheduled me for tests next week while he is gone, and I am to see

him

> in about two weeks. When I got home I went to the internet and

> discovered what a nasty disease this is. Read through your e-mails

for

> December and am amazed at how well all of you tackle this problem.

>

> Other than a persistant cough that still does not go away (with four

> different medications), I am feeling good. I hiked this morning

> vigorously for several miles with no problems.

>

> Question 1. Could this initial diagnosis be incorrect?

>

> Question 2. We have done a lot of travel. One of our friends said we

> do three or four trips of a life time a year to exotic and demanding

> locations. Should I be able to continue these trips for awhile?

>

> Thanks so much for any comments and Merry Christmas to All.

>

[Guest guest]

Hi . Welcome to the group. Sorry to hear your breathing is

getting bad. Here's hoping it stabelizes soon. LynnA

>

> Here is my profile:

> Name: H. Stehli

> Age: 73

> When were you diagnosed; December 2006

> On Oxygen: Not yet but expect to be by January 2007

> If on oxygen, how long? How many liters?

> Did you go through pulmonary rehab: Not yet but looking for rehab

> near Oyster Bay

> Do you participate in a pf face-to-face support group: No

> Smoker: Gave it up about 20 years ago

> Grew up in a smoke-filled environment: Yes

> Husband/Wife: Divorced

> Children: 6

> Pets: None

> Favorite Movie: Key Largo

> Favorite Food/s: Steak, mashed potatoes, lima beans

> Favorite Holiday: Thanksgiving

> Favorite Book: Tale of Two Cities

> What do you like to do in your spare time: Read, play backgammon

>

> I use the VA in Northport, Long Island, NY. I've sent away for the

> supplements suggested by Regenerative Nutrition and I'm hoping they

> will help make me better. My breathing is getting pretty bad whenever

> I exert myself at all. I'm looking for a pen pal that I might share

> with about this disease.

>

[Guest guest]

absolutely the diagnosis could be wrong. i would be sure to get a 2nd

or even 3rd opinion.

my name is jaime and i am 30 yrs old. i was misdiagnosed with PF in

the fall of 2005. i was re-diagnosed with Langerhans in the fall of

2006. they are equally as bad in the long run, but much different in

many ways.

i have not left this board even though i do not suffer from the same

thing that they do for one very special reason. the members of the

board have become a 2nd family to me, i've been through some of the

things they have gone through, they have been my rock on many

occassions and i wouldn't dare dream of turning my back on them just

because my diagnosis changed.

we're here to help in anyway we can.

HIKING?!?!?!?! you might get snickered at for that one LOL i don't

think there are very many of us who can walk to our mailboxes

unassisted by oxygen, let alone go hiking!

EG 10-05

>

> I am a new member.

>

> Rather than answer questions, let me just tell you about myself.

>

> Age 64, never smoked.

>

> Recently we took a trip to Antarctica and I got a coughing fit that

> would not stop. I have had coughing issues for a couple years but

> dismissed it as allergies.

>

> When I got back from my trip, I went to the doctor. My regular

doctor

> was away, but another doctor saw me. Agreed it was probably

allergies.

> Asked how long since I had an x-ray, so sent me for an x-ray.

>

> Got a phone call Friday to come in and see my regular doctor

> yesterday, Saturday. I asked why. To discuss the x-ray.

>

> Went in yesterday morning and doctor said I had Pulmonary Fibrosis

> based on x-ray. Explained it but not anything about how serious it

is.

> Scheduled me for tests next week while he is gone, and I am to see

him

> in about two weeks. When I got home I went to the internet and

> discovered what a nasty disease this is. Read through your e-mails

for

> December and am amazed at how well all of you tackle this problem.

>

> Other than a persistant cough that still does not go away (with four

> different medications), I am feeling good. I hiked this morning

> vigorously for several miles with no problems.

>

> Question 1. Could this initial diagnosis be incorrect?

>

> Question 2. We have done a lot of travel. One of our friends said we

> do three or four trips of a life time a year to exotic and demanding

> locations. Should I be able to continue these trips for awhile?

>

> Thanks so much for any comments and Merry Christmas to All.

>

[Guest guest]

hi ,

welcome to our group, however it is sad to me to see new people

because unfortunately we do not meet in this group obviously for a

good reason.

you will find this is a great group though, the people are great, the

advice is great, our lives are oxygen filled humor stories, and a

great resource of information on here.

I am so sorry you are at the level you are at in this disease. it is

always sad to see this in anyone here.

please feel free to ask any questions you may have and someone and

most times many of us will respond with our knowledge and experiences

through this.

most of us are on oxygen. some more than others. and you said you

will be on it too. please do not look at the oxygen as a defeat but

as a means to keep you going. once you are on it and using it you

will find where you start to feel a little better. i know that is not

much consolation, but at this point it's all we have. turn it up and

keep trucking with your chin held high.

we have several people from Florida here, peggy, you will find is a

great source for almost anything and a very uplifting person. barb

and phil are also from the florida area.

we're here when ya need us in as many ways as we possibly can be.

in Houston EG 10-05

> >

> > Here is my profile:

> > Name: H. Stehli

> > Age: 73

> > When were you diagnosed; December 2006

> > On Oxygen: Not yet but expect to be by January 2007

> > If on oxygen, how long? How many liters?

> > Did you go through pulmonary rehab: Not yet but looking for rehab

> > near Oyster Bay

> > Do you participate in a pf face-to-face support group: No

> > Smoker: Gave it up about 20 years ago

> > Grew up in a smoke-filled environment: Yes

> > Husband/Wife: Divorced

> > Children: 6

> > Pets: None

> > Favorite Movie: Key Largo

> > Favorite Food/s: Steak, mashed potatoes, lima beans

> > Favorite Holiday: Thanksgiving

> > Favorite Book: Tale of Two Cities

> > What do you like to do in your spare time: Read, play backgammon

> >

> > I use the VA in Northport, Long Island, NY. I've sent away for the

> > supplements suggested by Regenerative Nutrition and I'm hoping

they

> > will help make me better. My breathing is getting pretty bad

whenever

> > I exert myself at all. I'm looking for a pen pal that I might

share

> > with about this disease.

> >

>